Civic Intelligence

Batten Disease Support and Research Association

990 • Fiscal year 2014 • EIN 91-1397792

Jan 01, 2014 to Dec 31, 2014 • Filed on Nov 13, 2015

Organization ProfileN/A
1175 Dublin RoadColumbus, OH 43215

(800) 448-4570

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

77th percentile

0.35x

Higher debt load relative to assets than 77% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Liabilities / Revenue

81st percentile

0.40x

Higher debt load relative to revenue than 81% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Net Margin

9th percentile

-32%

Higher net margin than 9% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Top Officer Pay

86th percentile

$91,412

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 14.5% of source-year revenue.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Asset Growth

58th percentile

5.1%

Faster asset growth than 58% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2013 to 2014

Revenue Growth

34th percentile

-2.5%

Faster revenue growth than 34% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets77th percentile

Assets

Up

$728,236

Up $35,358 (+5.1%) from 2013

Net Assets

Down

$476,868

Down $204,604 (-30%) from 2013

Liabilities

Up

$251,368

Up $239,962 (+2104%) from 2013

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin9th percentile

Revenue

Down

$631,459

Down $16,421 (-2.5%) from 2013

Expenses

Down

$836,483

Down $100,154 (-11%) from 2013

Net Income

Up

-$205,024

Up $83,733 (+29%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth58th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $1,173,122Liabilities 2011: $6,942Net Assets 2011: $1,166,1802011Assets 2012: $969,288Liabilities 2012: $12,974Net Assets 2012: $956,3142012Assets 2013: $692,878Liabilities 2013: $11,406Net Assets 2013: $681,4722013Assets 2014: $728,236Liabilities 2014: $251,368Net Assets 2014: $476,8682014Assets 2015: $657,635Liabilities 2015: $90,954Net Assets 2015: $566,6812015Assets 2016: $664,508Liabilities 2016: $324,716Net Assets 2016: $339,7922016Assets 2017: $462,370Liabilities 2017: $209,036Net Assets 2017: $253,3342017Assets 2019: $815,440Liabilities 2019: $356,783Net Assets 2019: $458,6572019Assets 2020: $1,028,529Liabilities 2020: $79,405Net Assets 2020: $949,1242020Assets 2021: $1,208,507Liabilities 2021: $53,246Net Assets 2021: $1,155,2612021Assets 2022: $1,291,125Liabilities 2022: $17,543Net Assets 2022: $1,273,5822022Assets 2023: $1,203,251Liabilities 2023: $82,983Net Assets 2023: $1,120,2682023Assets 2024: $965,863Liabilities 2024: $197,874Net Assets 2024: $767,9892024

Highlighted filing

2014

Assets$728,236
Liabilities$251,368
Net Assets$476,868
Open 2014 Filing

Operations Trend

Revenue Growth34th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $647,251Expenses 2011: $562,992Net Income 2011: $84,2592011Expenses 2012: $769,2922012Revenue 2013: $647,880Expenses 2013: $936,637Net Income 2013: -$288,7572013Revenue 2014: $631,459Expenses 2014: $836,483Net Income 2014: -$205,0242014Revenue 2015: $994,203Expenses 2015: $880,137Net Income 2015: $114,0662015Revenue 2016: $812,976Expenses 2016: $1,054,316Net Income 2016: -$241,3402016Revenue 2017: $834,187Expenses 2017: $948,857Net Income 2017: -$114,6702017Revenue 2019: $953,611Expenses 2019: $749,007Net Income 2019: $204,6042019Revenue 2020: $1,228,607Expenses 2020: $718,019Net Income 2020: $510,5882020Revenue 2021: $875,074Expenses 2021: $668,937Net Income 2021: $206,1372021Revenue 2022: $1,099,485Expenses 2022: $858,302Net Income 2022: $241,1832022Revenue 2023: $746,147Expenses 2023: $952,036Net Income 2023: -$205,8892023Revenue 2024: $601,964Expenses 2024: $967,326Net Income 2024: -$365,3622024

Highlighted filing

2014

Revenue$631,459
Expenses$836,483
Net Income-$205,024
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Nov 13, 2015
Return Version
2014v5.0
Gross Receipts
$631,459
Mission and Program Overview

Mission

Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$267,211$368,519▲ $101,308
Cash and Non-Interest-Bearing Accounts$422,555$349,660▼ $72,895
Land, Buildings, and Equipment, Net$403$7,349▲ $6,946
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$692,878$728,236▲ $35,358
Other Assets Total$2,709$2,708▼ $1
Liabilities
Other Liabilities$11,239$251,368▲ $240,129
Accounts Payable and Accrued Expenses$167--
Total Liabilities$11,406$251,368▲ $239,962
Net Assets / Fund Balance
Unrestricted Net Assets$238,511$477,029▲ $238,518
Permanently Rstr Net Assets$85,986$84,349▼ $1,637
Temporarily Rstr Net Assets$356,975$-84,510▼ $441,485
Total Net Assets Fund Balance$681,472$476,868▼ $204,604
Total Liabilities and Net Assets / Fund Balance$692,878$728,236▲ $35,358

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,349$13,086$20,435
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Marjorie FrazierExecutive DirectorFT$91,412$91,412

Board Members and Trustees

NameTitle
Kim ZellmerPresident
Rob GeerVice President
Tracy VanhoutanVice President
Barbara WuebbelsDirector
Christopher HawkinsDirector
Craig BensonDirector
Dave PearceDirector
Mike CollinsDirector
Tony FerrandinoDirector
Christopher LowdenSecretary
Joel KargTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$618,249
Program Service Revenue
$0
Investment Income
$13,210
Other Revenue
$0
All Other Contributions
$609,049
Change in Net Assets
$-205,024
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$515,345
Salaries, Compensation, and Employee Benefits$321,138
Total Fundraising Expense$69,477
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$83,434$21,142$61,250$165,826
Current Officers, Directors, Trustees, and Key Employees$78,945$39,467-$118,412
Conferences and Meetings$74,864$5,341-$80,205
Occupancy$22,515$11,599-$34,114
Payroll Taxes$18,889$7,050$7,125$33,064
All Other Expenses$15,445$8,990$275$24,710
Fees for Services Other$14,075$7,251-$21,326
Travel$13,355$6,880-$20,235
Other Expenses$5,561$2,864-$8,425
Advertising$3,287$1,693-$4,980
Other Employee Benefits$2,191$818$827$3,836
Office Expenses$1,671$861-$2,532
Insurance$1,480$762-$2,242
Fees for Service Investment Mgmnt Fees$1,347$694-$2,041
Depreciation Depletion-$817-$817
Interest-$252-$252
Total Functional Expenses$646,748$120,258$69,477$836,483
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Research Awards Payable$177,201
Accrued Payroll & Taxes$29,700
Credit Card Payable$19,221
Refundable Advance$16,969
Accrued Expenses$5,172
Payroll W/h$3,105
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The governing body will receive and review return prior to filing”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Records are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Batten Disease Support & Research Assoc
EIN
91-1397792
Phone
8004484570
Address
1175 DUBLIN ROAD, COLUMBUS, OH 43215

Signing Officer

Name
Margie Frazier
Title
Executive Director
Signed
2015-11-13
Discuss with paid preparer
Yes

Organization Details

Formed
1987
Legal Domicile
Oh
Voting Board Members
11
Independent Board Members
0
Employees
5

Preparer

Firm
Laubie Karling & Associates LLC
Address
1041 Dublin Rd, Columbus, OH 43215
Preparer
Fred W Laubie
Phone
6144810700
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OfficeExpensesGrp/ProgramServicesAmt01671
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IRS990/OtherExpensesGrp/Desc0RESEARCH AWARDS
IRS990/OtherExpensesGrp/Desc1BIOMARIN TRIAL EXPENSES
IRS990/OtherExpensesGrp/Desc2Postage and Shipping
IRS990/OtherExpensesGrp/Desc3FEES/DUES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03777
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12864
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IRS990/OtherExpensesGrp/ProgramServicesAmt112192
IRS990/OtherExpensesGrp/ProgramServicesAmt27331
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IRS990/OtherSalariesAndWagesGrp/TotalAmt0165826
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt07125
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07050
IRS990/PayrollTaxesGrp/ProgramServicesAmt018889
IRS990/PayrollTaxesGrp/TotalAmt033064
IRS990/PensionPlanContributionsGrp/TotalAmt00
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IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/ProfessionalFundraisingInd0false
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IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0281718
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IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0621576
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt026304
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0665492
IRS990/PYRevenuesLessExpensesAmt0-288757
IRS990/PYSalariesCompEmpBnftPaidAmt0271145
IRS990/PYTotalExpensesAmt0936637
IRS990/PYTotalRevenueAmt0647880
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-205024
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0676263
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0621576
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0528777
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0479812
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0639053
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02945481
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt03880
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt06556
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt05628
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt038456
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt05628
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt038456
IRS990ScheduleA/InvestmentIncomeCYPct00.01290
IRS990ScheduleA/InvestmentIncomePYPct00.01060
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IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.98710
IRS990ScheduleA/PublicSupportPY509Pct00.98940
IRS990ScheduleA/PublicSupportTotal509Amt02945481
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0676263
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0621576
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0528777
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0479812
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0639053
IRS990ScheduleA/Total509Grp/TotalAmt02945481
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0689473
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0630758
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0532657
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0486368
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0644681
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02983937
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$728,236
Liabilities
$251,368
Net assets
$476,868
Revenue
$631,459
Expenses
$836,483
Net income
-$205,024
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.20$0.77$0.60$0.97$0.37
2023Detailed filing. Detailed filing data is available for this year.$1.20$0.08$1.12$0.75$0.95$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.29$0.02$1.27$1.10$0.86$0.24
2021Detailed filing. Detailed filing data is available for this year.$1.21$0.05$1.16$0.88$0.67$0.21
2020Detailed filing. Detailed filing data is available for this year.$1.03$0.08$0.95$1.23$0.72$0.51
2019Summary only. Only limited summary data is available for this year.$0.82$0.36$0.46$0.95$0.75$0.20
2017Detailed filing. Detailed filing data is available for this year.$0.46$0.21$0.25$0.83$0.95$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.66$0.32$0.34$0.81$1.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.66$0.09$0.57$0.99$0.88$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.73$0.25$0.48$0.63$0.84$0.21
2013Detailed filing. Detailed filing data is available for this year.$0.69$0.01$0.68$0.65$0.94$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.01$0.96$0.77
2011Summary only. Only limited summary data is available for this year.$1.17$0.01$1.17$0.65$0.56$0.08
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2014 filings • 501(c)3 • $500k-$1M nonprofits