Civic Intelligence

Batten Disease Support and Research Association

990 • Fiscal year 2015 • EIN 91-1397792

Jan 01, 2015 to Dec 31, 2015 • Filed on Nov 14, 2016

1175 Dublin RoadColumbus, OH 43215

(800) 448-4570

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

65th percentile

0.14x

Higher debt load relative to assets than 65% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Liabilities / Revenue

62nd percentile

0.09x

Higher debt load relative to revenue than 62% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Net Margin

68th percentile

11%

Higher net margin than 68% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Top Officer Pay

91st percentile

$117,056

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 11.8% of source-year revenue.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Asset Growth

17th percentile

-9.7%

Faster asset growth than 17% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Revenue Growth

89th percentile

57%

Faster revenue growth than 89% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Assets

Down

$657,635

Down $70,601 (-9.7%) from 2014

Net Assets

Up

$566,681

Up $89,813 (+19%) from 2014

Liabilities

Down

$90,954

Down $160,414 (-64%) from 2014

Revenue

Up

$994,203

Up $362,744 (+57%) from 2014

Expenses

Up

$880,137

Up $43,654 (+5.2%) from 2014

Net Income

Up

$114,066

Up $319,090 (+156%) from 2014

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $1,173,122Liabilities 2011: $6,942Net Assets 2011: $1,166,1802011Assets 2012: $969,288Liabilities 2012: $12,974Net Assets 2012: $956,3142012Assets 2013: $692,878Liabilities 2013: $11,406Net Assets 2013: $681,4722013Assets 2014: $728,236Liabilities 2014: $251,368Net Assets 2014: $476,8682014Assets 2015: $657,635Liabilities 2015: $90,954Net Assets 2015: $566,6812015Assets 2016: $664,508Liabilities 2016: $324,716Net Assets 2016: $339,7922016Assets 2017: $462,370Liabilities 2017: $209,036Net Assets 2017: $253,3342017Assets 2019: $815,440Liabilities 2019: $356,783Net Assets 2019: $458,6572019Assets 2020: $1,028,529Liabilities 2020: $79,405Net Assets 2020: $949,1242020Assets 2021: $1,208,507Liabilities 2021: $53,246Net Assets 2021: $1,155,2612021Assets 2022: $1,291,125Liabilities 2022: $17,543Net Assets 2022: $1,273,5822022Assets 2023: $1,203,251Liabilities 2023: $82,983Net Assets 2023: $1,120,2682023Assets 2024: $965,863Liabilities 2024: $197,874Net Assets 2024: $767,9892024

Highlighted filing

2015

Assets$657,635
Liabilities$90,954
Net Assets$566,681

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $647,251Expenses 2011: $562,992Net Income 2011: $84,2592011Expenses 2012: $769,2922012Revenue 2013: $647,880Expenses 2013: $936,637Net Income 2013: -$288,7572013Revenue 2014: $631,459Expenses 2014: $836,483Net Income 2014: -$205,0242014Revenue 2015: $994,203Expenses 2015: $880,137Net Income 2015: $114,0662015Revenue 2016: $812,976Expenses 2016: $1,054,316Net Income 2016: -$241,3402016Revenue 2017: $834,187Expenses 2017: $948,857Net Income 2017: -$114,6702017Revenue 2019: $953,611Expenses 2019: $749,007Net Income 2019: $204,6042019Revenue 2020: $1,228,607Expenses 2020: $718,019Net Income 2020: $510,5882020Revenue 2021: $875,074Expenses 2021: $668,937Net Income 2021: $206,1372021Revenue 2022: $1,099,485Expenses 2022: $858,302Net Income 2022: $241,1832022Revenue 2023: $746,147Expenses 2023: $952,036Net Income 2023: -$205,8892023Revenue 2024: $601,964Expenses 2024: $967,326Net Income 2024: -$365,3622024

Highlighted filing

2015

Revenue$994,203
Expenses$880,137
Net Income$114,066
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Nov 14, 2016
Return Version
2015v2.0
Gross Receipts
$994,203
Mission and Program Overview

Mission

Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$368,519$410,441▲ $41,922
Cash and Non-Interest-Bearing Accounts$349,660$230,287▼ $119,373
Prepaid Expenses and Deferred Charges-$8,482-
Land, Buildings, and Equipment, Net$7,349$5,716▼ $1,633
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$728,236$657,635▼ $70,601
Other Assets Total$2,708$2,709▲ $1
Liabilities
Other Liabilities$251,368$90,954▼ $160,414
Total Liabilities$251,368$90,954▼ $160,414
Net Assets / Fund Balance
Unrestricted Net Assets$477,029$324,819▼ $152,210
Permanently Rstr Net Assets$84,349$134,349▲ $50,000
Temporarily Rstr Net Assets$-84,510$107,513▲ $192,023
Total Net Assets Fund Balance$476,868$566,681▲ $89,813
Total Liabilities and Net Assets / Fund Balance$728,236$657,635▼ $70,601

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$5,716$14,719$20,435
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Marjorie FrazierExecutive DirectorFT$117,056$117,056

Board Members and Trustees

NameTitle
Rob GeerPresident
Tracy VanhoutanVice President
Barbara WuebbelsDirector
Bob JensenDirector
Darlene RoyaltyDirector
Dave PearceDirector
Donna FogleDirector
Kate HallerDirector
Tony FerrandinoDirector
Mike CollinsSecretary
Joel KargTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$977,295
Program Service Revenue
$0
Investment Income
$16,908
Other Revenue
$0
All Other Contributions
$972,995
Change in Net Assets
$114,066
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$606,389
Salaries, Compensation, and Employee Benefits$273,748
Total Fundraising Expense$76,598
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$68,588$16,251$53,396$138,235
Current Officers, Directors, Trustees, and Key Employees$81,939$35,117-$117,056
Conferences and Meetings$89,417$10,881-$100,298
All Other Expenses$25,044$13,398-$38,442
Occupancy$23,327$12,017-$35,344
Travel$17,044$8,780-$25,824
Payroll Taxes$10,883$3,714$3,860$18,457
Other Expenses$9,095$4,684$17,218$13,779
Fees for Services Accounting$8,316$4,284-$12,600
Insurance$7,350$2,745$2,124$12,219
Fees for Services Other$7,369$3,796-$11,165
Advertising$2,059$1,061-$3,120
Office Expenses$1,274$655-$1,929
Depreciation Depletion-$1,633-$1,633
Total Functional Expenses$684,523$119,016$76,598$880,137
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Research Awards Payable$67,500
Accrued Expenses$13,703
Credit Card Payable$5,167
Payroll W/h$4,584
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

The governing body will receive and review return prior to filing

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines.

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

Records are available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Batten Disease Support & Research Assoc
EIN
91-1397792
Phone
8004484570
Address
1175 DUBLIN ROAD, COLUMBUS, OH 43215

Signing Officer

Name
Margie Frazier
Title
Executive Director
Signed
2016-11-14
Discuss with paid preparer
Yes

Organization Details

Formed
1987
Legal Domicile
Oh
Voting Board Members
11
Independent Board Members
0
Employees
4

Preparer

Firm
Laubie Karling & Associates LLC
Address
1041 Dublin Rd, Columbus, OH 43215
Preparer
Fred W Laubie
Phone
6144810700
Supplemental Narrative

Additional Explanations

Other Changes In Net Assets Or Fund Balances - Other Decreases

50% meals & entertainment = -$1665

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.20$0.77$0.60$0.97$0.37
2023Detailed filing. Detailed filing data is available for this year.$1.20$0.08$1.12$0.75$0.95$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.29$0.02$1.27$1.10$0.86$0.24
2021Detailed filing. Detailed filing data is available for this year.$1.21$0.05$1.16$0.88$0.67$0.21
2020Detailed filing. Detailed filing data is available for this year.$1.03$0.08$0.95$1.23$0.72$0.51
2019Summary only. Only limited summary data is available for this year.$0.82$0.36$0.46$0.95$0.75$0.20
2017Detailed filing. Detailed filing data is available for this year.$0.46$0.21$0.25$0.83$0.95$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.66$0.32$0.34$0.81$1.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.66$0.09$0.57$0.99$0.88$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.73$0.25$0.48$0.63$0.84$0.21
2013Detailed filing. Detailed filing data is available for this year.$0.69$0.01$0.68$0.65$0.94$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.01$0.96$0.77
2011Summary only. Only limited summary data is available for this year.$1.17$0.01$1.17$0.65$0.56$0.08