Liabilities / Assets
75th percentile
Higher debt load relative to assets than 75% of similar nonprofits.
EIN 91-1397792 • 501(c)3 • Gahanna, OH
Profile
Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
75th percentile
Higher debt load relative to assets than 75% of similar nonprofits.
Liabilities / Revenue
83rd percentile
Higher debt load relative to revenue than 83% of similar nonprofits.
Net Margin
6th percentile
Higher net margin than 6% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
13th percentile
Faster asset growth than 13% of similar nonprofits.
Revenue Growth
17th percentile
Faster revenue growth than 17% of similar nonprofits.
Assets
Down$965,863
Down $237,388 (-20%) from 2023
Liabilities
Up$197,874
Up $114,891 (+138%) from 2023
Net Assets
Down$767,989
Down $352,279 (-31%) from 2023
Revenue
Down$601,964
Down $144,183 (-19%) from 2023
Expenses
Up$967,326
Up $15,290 (+1.6%) from 2023
Net Income
Down-$365,362
Down $159,473 (-77%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $668,380 | $570,630 | ▼ $97,750 |
| Cash and Non-Interest-Bearing Accounts | $445,787 | $366,862 | ▼ $78,925 |
| Accounts Receivable | $43,630 | - | - |
| Land, Buildings, and Equipment, Net | $34,362 | $22,739 | ▼ $11,623 |
| Prepaid Expenses and Deferred Charges | $4,282 | $4,282 | → $0 |
| Total Assets | $1,203,251 | $965,863 | ▼ $237,388 |
| Other Assets Total | $6,810 | $1,350 | ▼ $5,460 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $26,983 | $167,874 | ▲ $140,891 |
| Grants Payable | $56,000 | $30,000 | ▼ $26,000 |
| Total Liabilities | $82,983 | $197,874 | ▲ $114,891 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $123,047 | $676,584 | ▲ $553,537 |
| Net Assets Without Donor Restrictions | $997,221 | $91,405 | ▼ $905,816 |
| Total Net Assets Fund Balance | $1,120,268 | $767,989 | ▼ $352,279 |
| Total Liabilities and Net Assets / Fund Balance | $1,203,251 | $965,863 | ▼ $237,388 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $22,739 | $77,775 | $100,514 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy Fenton Parker | President & | FT | $100,000 | $100,000 |
| Name | Title |
|---|---|
| Darlene Royalty | Board Chair |
| Barbara Wuebbels | Board Vice C |
| Anthony Ferrandino | Director |
| Dave Pearce | Director |
| Donna Fogel | Director |
| Fernanda Leal-pardinas | Director |
| John Ireland | Director |
| John Patterson | Director |
| Kate Haller | Director |
| Suzette James | Director |
| Wayne Kiefer | Director |
| Barbara Mcdonough | Secretary |
| Fred Surrey | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $461,851 |
| Salaries, Compensation, and Employee Benefits | $369,612 |
| Grants and Similar Amounts Paid | $135,863 |
| Total Fundraising Expense | $79,600 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $143,789 | $62,504 | $24,536 | $230,829 |
| Grants to Domestic Orgs | $135,863 | - | - | $135,863 |
| Current Officers, Directors, Trustees, and Key Employees | $63,500 | $24,500 | $12,000 | $100,000 |
| Fees for Services Other | $81,518 | $1,775 | $8,202 | $91,495 |
| Information Technology | $46,359 | $15,475 | $3,866 | $65,700 |
| Office Expenses | $25,040 | $10,608 | $12,783 | $48,431 |
| Travel | $35,235 | $1,784 | $906 | $37,925 |
| Fees for Services Accounting | $1,422 | $31,804 | $3,364 | $36,590 |
| Occupancy | $6,903 | $11,635 | $3,938 | $22,476 |
| Payroll Taxes | $11,498 | $6,722 | $2,930 | $21,150 |
| Other Employee Benefits | $9,652 | $5,595 | $2,386 | $17,633 |
| Insurance | $3,512 | $4,482 | $4,549 | $12,543 |
| Depreciation Depletion | - | $11,623 | - | $11,623 |
| Other Expenses | $2,535 | $100 | $26 | $2,661 |
| Conferences and Meetings | $2,255 | - | - | $2,255 |
| Fees for Service Investment Mgmnt Fees | - | $1,924 | - | $1,924 |
| All Other Expenses | $221 | $110 | - | $331 |
| Total Functional Expenses | $685,086 | $202,640 | $79,600 | $967,326 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Coloradodenver | Aurora, CO | 501c3 | Research | $23,796 |
| NATIONWIDE CHILDREN'S HOSPITAL | Columbus, OH | 501c3 | Research | $23,411 |
| CHOC CHILDREN'S RESEARCH INSTITUTE | Orange, CA | 501c3 | Research | $19,636 |
| Kenney Krieger Institute | Baltimore, MD | 501c3 | Research | $19,539 |
| University of Rochester | Rochester, NY | 501c3 | Research | $18,633 |
| Rush University Medical Center | Chicago, IL | 501c3 | Research | $12,544 |
| Nyu Grossman School of Medicine | New York, NY | 501c3 | Research | $11,304 |
| University of North Carolina | Chapel Hill, NC | 501c3 | Research | $7,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“The governing body will receive and review the return prior to filing.”
“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines and disclose all relationships with other entities.”
“Louisiana, maine, maryland, massachusetts, michigan, minnesota, mississippi, missouri, nevada, new hampshire, new jersey, new mexico, new york, north carolina, north dakota, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, texas, virginia, washington, west virginia, wisconsin”
“Record requests are individually reviewed and approved by the board. Form 990's are made available upon request and also on organization website, bdsrafoundation.org”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 26983 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 167874 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 43630 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 566255 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 110 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 221 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 331 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | AMY FENTON PARKER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8004484570 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 104 MILL STSTE G |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | GAHANNA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 43230 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 445787 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 366862 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 12000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 24500 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 63500 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 100000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 2255 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2255 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 566255 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 135863 |
| IRS990/CYInvestmentIncomeAmt | 0 | 35709 |
| IRS990/CYOtherExpensesAmt | 0 | 461851 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -365362 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 369612 |
| IRS990/CYTotalExpensesAmt | 0 | 967326 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 79600 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 601964 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 11623 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 11623 |
| IRS990/Desc | 0 | PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 123047 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 676584 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 239406 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 3364 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 31804 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 1422 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 36590 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 8202 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1775 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 81518 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 91495 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 1924 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 1924 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | AMY FENTON PARKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DARLENE ROYALTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BARBARA WUEBBELS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BARBARA MCDONOUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | FRED SURREY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JOHN IRELAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | WAYNE KIEFER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KATE HALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DAVE PEARCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | SUZETTE JAMES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | FERNANDA LEAL-PARDINAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ANTHONY FERRANDINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | DONNA FOGEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | JOHN PATTERSON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 100000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT & |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD VICE C |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 56000 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 30000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 135863 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 135863 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 601964 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 3866 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 15475 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 46359 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 65700 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 4549 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4482 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3512 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 12543 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 35709 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 35709 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 668380 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 570630 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 77775 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 34362 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 22739 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 100514 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1120268 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 767989 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 13562 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 997221 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 91405 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 3938 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 11635 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6903 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 22476 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 12783 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 10608 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 25040 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 48431 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 6810 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1350 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2386 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5595 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9652 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 17633 |
| IRS990/OtherExpensesGrp/Desc | 0 | MEALS |
| IRS990/OtherExpensesGrp/Desc | 1 | PROGRAM EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 114 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 26 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 740 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 11259 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 100 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 77798 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 37697 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 289 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2535 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 78652 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 37697 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 11548 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2661 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 24536 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 62504 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 143789 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 230829 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2930 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6722 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 11498 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 21150 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 4282 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4282 |
| IRS990/PrincipalOfficerNm | 0 | AMY FENTON PARKER |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | -479 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 201481 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 135863 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 244199 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 724656 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 82000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 21491 |
| IRS990/PYOtherExpensesAmt | 0 | 557342 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -205889 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 312694 |
| IRS990/PYTotalExpensesAmt | 0 | 952036 |
| IRS990/PYTotalRevenueAmt | 0 | 746147 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -365362 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 21337 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 13346 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5920 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 3370 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 43973 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | SALES 21,919 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART III, LINE 12 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 566255 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 724656 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1064250 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 811390 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 968030 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4134581 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 35709 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 21491 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 19641 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 33129 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 23619 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 133589 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 35235 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 18200 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 236958 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 290393 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 35709 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 21491 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 19641 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 33129 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 23619 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 133589 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.03000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.03000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 9564 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 12355 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 21919 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.95640 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.95250 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4381001 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 21337 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 13346 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5920 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 3370 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 43973 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 566255 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 724656 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1099485 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 829590 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1204988 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4424974 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 601964 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 746147 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1128690 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 875074 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1228607 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4580482 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 22739 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 77775 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 100514 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 22739 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 7000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 18633 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 19636 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 11304 |
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