Civic Intelligence

Batten Disease Support and Research Association

990 • Fiscal year 2016 • EIN 91-1397792

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 13, 2017

Organization ProfileN/A
1175 Dublin RoadColumbus, OH 43215

(800) 448-4570

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

83rd percentile

0.49x

Higher debt load relative to assets than 83% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

82nd percentile

0.40x

Higher debt load relative to revenue than 82% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

11th percentile

-30%

Higher net margin than 11% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

87th percentile

$98,289

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 12.1% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

48th percentile

1.0%

Faster asset growth than 48% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

18th percentile

-18%

Faster revenue growth than 18% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets83rd percentile

Assets

Up

$664,508

Up $6,873 (+1.0%) from 2015

Net Assets

Down

$339,792

Down $226,889 (-40%) from 2015

Liabilities

Up

$324,716

Up $233,762 (+257%) from 2015

Revenue And Expenses
Liabilities / Revenue82nd percentileNet Margin11th percentile

Revenue

Down

$812,976

Down $181,227 (-18%) from 2015

Expenses

Up

$1,054,316

Up $174,179 (+20%) from 2015

Net Income

Down

-$241,340

Down $355,406 (-312%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth48th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $1,173,122Liabilities 2011: $6,942Net Assets 2011: $1,166,1802011Assets 2012: $969,288Liabilities 2012: $12,974Net Assets 2012: $956,3142012Assets 2013: $692,878Liabilities 2013: $11,406Net Assets 2013: $681,4722013Assets 2014: $728,236Liabilities 2014: $251,368Net Assets 2014: $476,8682014Assets 2015: $657,635Liabilities 2015: $90,954Net Assets 2015: $566,6812015Assets 2016: $664,508Liabilities 2016: $324,716Net Assets 2016: $339,7922016Assets 2017: $462,370Liabilities 2017: $209,036Net Assets 2017: $253,3342017Assets 2019: $815,440Liabilities 2019: $356,783Net Assets 2019: $458,6572019Assets 2020: $1,028,529Liabilities 2020: $79,405Net Assets 2020: $949,1242020Assets 2021: $1,208,507Liabilities 2021: $53,246Net Assets 2021: $1,155,2612021Assets 2022: $1,291,125Liabilities 2022: $17,543Net Assets 2022: $1,273,5822022Assets 2023: $1,203,251Liabilities 2023: $82,983Net Assets 2023: $1,120,2682023Assets 2024: $965,863Liabilities 2024: $197,874Net Assets 2024: $767,9892024

Highlighted filing

2016

Assets$664,508
Liabilities$324,716
Net Assets$339,792
Open 2016 Filing

Operations Trend

Revenue Growth18th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $647,251Expenses 2011: $562,992Net Income 2011: $84,2592011Expenses 2012: $769,2922012Revenue 2013: $647,880Expenses 2013: $936,637Net Income 2013: -$288,7572013Revenue 2014: $631,459Expenses 2014: $836,483Net Income 2014: -$205,0242014Revenue 2015: $994,203Expenses 2015: $880,137Net Income 2015: $114,0662015Revenue 2016: $812,976Expenses 2016: $1,054,316Net Income 2016: -$241,3402016Revenue 2017: $834,187Expenses 2017: $948,857Net Income 2017: -$114,6702017Revenue 2019: $953,611Expenses 2019: $749,007Net Income 2019: $204,6042019Revenue 2020: $1,228,607Expenses 2020: $718,019Net Income 2020: $510,5882020Revenue 2021: $875,074Expenses 2021: $668,937Net Income 2021: $206,1372021Revenue 2022: $1,099,485Expenses 2022: $858,302Net Income 2022: $241,1832022Revenue 2023: $746,147Expenses 2023: $952,036Net Income 2023: -$205,8892023Revenue 2024: $601,964Expenses 2024: $967,326Net Income 2024: -$365,3622024

Highlighted filing

2016

Revenue$812,976
Expenses$1,054,316
Net Income-$241,340
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 13, 2017
Return Version
2016v3.0
Gross Receipts
$812,976
Mission and Program Overview

Mission

Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$230,287$331,678▲ $101,391
Investments in Publicly Traded Securities$410,441$326,039▼ $84,402
Prepaid Expenses and Deferred Charges$8,482$0▼ $8,482
Land, Buildings, and Equipment, Net$5,716$4,083▼ $1,633
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$657,635$664,508▲ $6,873
Other Assets Total$2,709$2,708▼ $1
Liabilities
Other Liabilities$90,954$324,716▲ $233,762
Total Liabilities$90,954$324,716▲ $233,762
Net Assets / Fund Balance
Unrestricted Net Assets$324,819$263,484▼ $61,335
Permanently Rstr Net Assets$134,349$134,349→ $0
Temporarily Rstr Net Assets$107,513$-58,041▼ $165,554
Total Net Assets Fund Balance$566,681$339,792▼ $226,889
Total Liabilities and Net Assets / Fund Balance$657,635$664,508▲ $6,873

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$4,083$16,352$20,435
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Marjorie FrazierExecutive DirectorFT$98,289$98,289

Board Members and Trustees

NameTitle
Rob GeerPresident
Tracy VanhoutanVice President
Barbara WuebbelsDirector
Bob JensenDirector
Darlene RoyaltyDirector
Dave PearceDirector
Donna FogleDirector
Kate HallerDirector
Kristen DragoDirector
Tony FerrandinoDirector
Mike CollinsSecretary
Joel KargTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$803,869
Program Service Revenue
$0
Investment Income
$9,107
Other Revenue
$0
All Other Contributions
$799,114
Change in Net Assets
$-241,340

Audited Revenue Reconciliation

Revenue per Audited Statements
$811,138
Revenue Not Reported on Financial Statements
$1,838
Revenue Not Reported on Form 990
$17,179
Other Revenue Adjustments
$1,838
Total Revenue per Audited Statements
$828,317
Total Revenue per Form 990
$812,976
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$781,199
Salaries, Compensation, and Employee Benefits$273,117
Total Fundraising Expense$75,055
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$79,218$18,180$55,215$152,613
Conferences and Meetings$136,595$3,637-$140,232
Current Officers, Directors, Trustees, and Key Employees$68,802$29,487-$98,289
Travel$26,732$13,771-$40,503
Occupancy$21,383$11,016-$32,399
All Other Expenses$14,565$13,560-$28,125
Payroll Taxes$12,160$4,623$5,432$22,215
Insurance$11,031$4,376$4,322$19,729
Other Expenses$10,545$5,433$10,086$10,086
Fees for Services Other$6,100$3,142-$9,242
Fees for Services Accounting$5,016$2,584-$7,600
Depreciation Depletion-$4,091-$4,091
Office Expenses$1,187$611-$1,798
Total Functional Expenses$864,750$114,511$75,055$1,054,316

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,056,611
Total Expenses per Form 990$1,054,316
Expenses per Audited Statements$1,053,883
Expenses Not Reported on Form 990$2,728
Expenses Not Reported on Financial Statements$433
Other Expense Adjustments$433
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Revenue$214,248
Research Awards Payable$102,500
Credit Card Payable$4,278
Payroll W/h$3,690
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The governing body will receive and review return prior to filing”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Record requests are individually reviewed and approved by the board.”

Filing and Contact Details

Filer

Filer Name
Batten Disease Support & Research Assoc
EIN
91-1397792
Phone
8004484570
Address
1175 DUBLIN ROAD, COLUMBUS, OH 43215

Signing Officer

Name
Margie Frazier
Title
Executive Director
Signed
2017-11-13
Discuss with paid preparer
Yes

Organization Details

Formed
1987
Legal Domicile
Oh
Voting Board Members
12
Independent Board Members
0
Employees
4

Preparer

Firm
Laubie Karling & Associates LLC
Address
1041 Dublin Rd, Columbus, OH 43215
Preparer
Fred W Laubie
Phone
6144810700
Supplemental Narrative

Additional Explanations

Other Changes In Net Assets Or Fund Balances - Other Decreases

“50% meals & entertainment = -$2728”

Financial Statement Notes

Part XI, Line 4B: Other revenue amounts included on 990 but not included in F/S

“Tax return adjustment $1838”

Part XII, Line 2D: Other expenses and losses per audited F/S

“50% meals & entertainment $2728”

Part XII, Line 4B: Other revenue amounts included on 990 but not included in F/S

“Tax return adjustment $433”

Raw XML AppendixShowing 400 of 524 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/CYRevenuesLessExpensesAmt0-241340
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IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt017179
IRS990/NondeductibleContributionsInd0false
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IRS990/OccupancyGrp/TotalAmt032399
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0611
IRS990/OfficeExpensesGrp/ProgramServicesAmt01187
IRS990/OfficeExpensesGrp/TotalAmt01798
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
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IRS990/Organization501c3Ind0X
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IRS990/OtherChangesInNetAssetsAmt0-2728
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IRS990/OtherExpensesGrp/Desc0RESEARCH AWARDS
IRS990/OtherExpensesGrp/Desc1PROGRAM EXPENSES
IRS990/OtherExpensesGrp/Desc2FEES/DUES
IRS990/OtherExpensesGrp/Desc3FUNDRAISING EXPENSE
IRS990/OtherExpensesGrp/FundraisingAmt010086
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt05433
IRS990/OtherExpensesGrp/ProgramServicesAmt0454043
IRS990/OtherExpensesGrp/ProgramServicesAmt117373
IRS990/OtherExpensesGrp/ProgramServicesAmt210545
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IRS990/OtherExpensesGrp/TotalAmt117373
IRS990/OtherExpensesGrp/TotalAmt215978
IRS990/OtherExpensesGrp/TotalAmt310086
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IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt055215
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018180
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt079218
IRS990/OtherSalariesAndWagesGrp/TotalAmt0152613
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt05432
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04623
IRS990/PayrollTaxesGrp/ProgramServicesAmt012160
IRS990/PayrollTaxesGrp/TotalAmt022215
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0134349
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0134349
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt08482
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/ProfessionalFundraisingInd0false
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IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0270475
IRS990/ProgSrvcAccomActy3Grp/Desc0CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0140232
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0977295
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt016908
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0606389
IRS990/PYRevenuesLessExpensesAmt0114066
IRS990/PYSalariesCompEmpBnftPaidAmt0273748
IRS990/PYTotalExpensesAmt0880137
IRS990/PYTotalRevenueAmt0994203
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-241340
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0835676
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0977295
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0676263
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0621576
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0528777
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt03639587
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt09107
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt013210
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt09182
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt03880
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt052287
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt09107
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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt09182
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt03880
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt052287
IRS990ScheduleA/InvestmentIncomeCYPct00.01420
IRS990ScheduleA/InvestmentIncomePYPct00.01490
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IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
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IRS990ScheduleA/PublicSupportPY509Pct00.98510
IRS990ScheduleA/PublicSupportTotal509Amt03639587
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IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0835676
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0977295
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0676263
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0621576
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0528777
IRS990ScheduleA/Total509Grp/TotalAmt03639587
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0844783
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0994203
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0689473
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0630758
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0532657
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03691874
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$664,508
Liabilities
$324,716
Net assets
$339,792
Revenue
$812,976
Expenses
$1,054,316
Net income
-$241,340
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.20$0.77$0.60$0.97$0.37
2023Detailed filing. Detailed filing data is available for this year.$1.20$0.08$1.12$0.75$0.95$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.29$0.02$1.27$1.10$0.86$0.24
2021Detailed filing. Detailed filing data is available for this year.$1.21$0.05$1.16$0.88$0.67$0.21
2020Detailed filing. Detailed filing data is available for this year.$1.03$0.08$0.95$1.23$0.72$0.51
2019Summary only. Only limited summary data is available for this year.$0.82$0.36$0.46$0.95$0.75$0.20
2017Detailed filing. Detailed filing data is available for this year.$0.46$0.21$0.25$0.83$0.95$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.66$0.32$0.34$0.81$1.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.66$0.09$0.57$0.99$0.88$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.73$0.25$0.48$0.63$0.84$0.21
2013Detailed filing. Detailed filing data is available for this year.$0.69$0.01$0.68$0.65$0.94$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.01$0.96$0.77
2011Summary only. Only limited summary data is available for this year.$1.17$0.01$1.17$0.65$0.56$0.08
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2016 filings • 501(c)3 • $500k-$1M nonprofits