Liabilities / Assets
83rd percentile
Higher debt load relative to assets than 83% of similar nonprofits.
990 • Fiscal year 2017 • EIN 91-1397792
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
83rd percentile
Higher debt load relative to assets than 83% of similar nonprofits.
Liabilities / Revenue
77th percentile
Higher debt load relative to revenue than 77% of similar nonprofits.
Net Margin
17th percentile
Higher net margin than 17% of similar nonprofits.
Top Officer Pay
89th percentile
Higher top officer pay than 89% of similar nonprofits.
Top officer pay equals 12.7% of source-year revenue.
Asset Growth
5th percentile
Faster asset growth than 5% of similar nonprofits.
Revenue Growth
46th percentile
Faster revenue growth than 46% of similar nonprofits.
Assets
Down$462,370
Down $202,138 (-30%) from 2016
Net Assets
Down$253,334
Down $86,458 (-25%) from 2016
Liabilities
Down$209,036
Down $115,680 (-36%) from 2016
Revenue
Up$834,187
Up $21,211 (+2.6%) from 2016
Expenses
Down$948,857
Down $105,459 (-10%) from 2016
Net Income
Up-$114,670
Up $126,670 (+52%) from 2016
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $326,039 | $345,011 | ▲ $18,972 |
| Cash and Non-Interest-Bearing Accounts | $331,678 | $111,716 | ▼ $219,962 |
| Land, Buildings, and Equipment, Net | $4,083 | $83 | ▼ $4,000 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $664,508 | $462,370 | ▼ $202,138 |
| Other Assets Total | $2,708 | $5,560 | ▲ $2,852 |
| Liabilities | |||
| Other Liabilities | $324,716 | $206,563 | ▼ $118,153 |
| Accounts Payable and Accrued Expenses | - | $2,473 | - |
| Total Liabilities | $324,716 | $209,036 | ▼ $115,680 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $263,484 | $244,399 | ▼ $19,085 |
| Permanently Rstr Net Assets | $134,349 | $134,349 | → $0 |
| Temporarily Rstr Net Assets | $-58,041 | $-125,414 | ▼ $67,373 |
| Total Net Assets Fund Balance | $339,792 | $253,334 | ▼ $86,458 |
| Total Liabilities and Net Assets / Fund Balance | $664,508 | $462,370 | ▼ $202,138 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $83 | $20,352 | $20,435 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Marjorie Frazier | Executive Director | FT | $106,000 | $106,000 |
| Name | Title |
|---|---|
| Rob Geer | President |
| Mike Collins | Vice President |
| Barbara Wuebbels | Director |
| Darlene Royalty | Director |
| Dave Pearce | Director |
| Donna Fogle | Director |
| Jennifer Dilley | Director |
| Kate Haller | Director |
| Tony Ferrandino | Director |
| Bob Jensen | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $646,083 |
| Salaries, Compensation, and Employee Benefits | $302,774 |
| Total Fundraising Expense | $114,924 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $85,598 | $22,780 | $65,081 | $173,459 |
| Conferences and Meetings | $137,511 | $13,080 | - | $150,591 |
| Current Officers, Directors, Trustees, and Key Employees | $74,200 | $31,800 | - | $106,000 |
| Fees for Services Other | $32,778 | $16,885 | - | $49,663 |
| Occupancy | $25,271 | $13,019 | - | $38,290 |
| Travel | $17,329 | $8,927 | - | $26,256 |
| All Other Expenses | $15,700 | $10,315 | - | $26,015 |
| Payroll Taxes | $13,332 | $4,553 | $5,430 | $23,315 |
| Insurance | $12,502 | $4,502 | $4,548 | $21,552 |
| Other Expenses | $5,619 | $2,895 | $39,865 | $8,514 |
| Fees for Services Accounting | $5,033 | $2,592 | - | $7,625 |
| Office Expenses | $4,647 | $2,393 | - | $7,040 |
| Advertising | $2,919 | $1,504 | - | $4,423 |
| Depreciation Depletion | - | $4,000 | - | $4,000 |
| Interest | - | $846 | - | $846 |
| Total Functional Expenses | $688,647 | $145,286 | $114,924 | $948,857 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $955,968 |
| Expenses per Audited Statements | $948,857 |
| Total Expenses per Form 990 | $948,857 |
| Expenses Not Reported on Form 990 | $7,111 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Deferred Revenue | $202,732 |
| Credit Card Payable | $3,165 |
| Payroll W/h | $666 |
“The governing body will receive and review return prior to filing”
“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines.”
“Record requests are individually reviewed and approved by the board.”
“50% meals & entertainment = -$2838”
“Prior year net asset adjustment $3220”
“50% meals & entertainment $2837”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 2473 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION'S MISSION IS TO BE AN INTERNATIONAL SUPPORT AND RESEARCH NETWORKING ORGANIZATION FOR FAMILIES OF CHILDREN AND YOUNG ADULTS WITH AN INHERITED NEUROLOGICAL DEGENERATIVE DISORDER KNOWN AS BATTEN DISEASE. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1504 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 2919 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 4423 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 832109 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 10315 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 15700 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 26015 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARGIE FRAZIER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8004484570 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2780 AIRPORT DRIVE 342 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | COLUMBUS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 43219 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 331678 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 111716 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 31800 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 74200 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 106000 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 13080 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 137511 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 150591 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 834109 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 78 |
| IRS990/CYOtherExpensesAmt | 0 | 646083 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -114670 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 302774 |
| IRS990/CYTotalExpensesAmt | 0 | 948857 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 114924 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 834187 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 4000 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 4000 |
| IRS990/Desc | 0 | PROGRAMS SUCH AS THE SIBLING PROGRAM, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | true |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 305013 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2592 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 5033 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7625 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 16885 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 32778 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 49663 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JENNIFER DILLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KATE HALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DONNA FOGLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BOB JENSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DAVE PEARCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MIKE COLLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DARLENE ROYALTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | BARBARA WUEBBELS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ROB GEER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | TONY FERRANDINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | MARJORIE FRAZIER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 106000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Executive Dir. |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 834187 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 0 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 4548 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4502 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 12502 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 21552 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 846 |
| IRS990/InterestGrp/TotalAmt | 0 | 846 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 78 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 78 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 326039 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 345011 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 20352 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 4083 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 83 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 20435 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembershipDuesAmt | 0 | 2000 |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION'S MISSION IS TO BE AN INTERNATIONAL SUPPORT AND RESEARCH NETWORKING ORGANIZATION FOR FAMILIES OF CHILDREN AND YOUNG ADULTS WITH AN INHERITED NEUROLOGICAL DEGENERATIVE DISORDER KNOWN AS BATTEN DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 339792 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 253334 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 31050 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 13019 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 25271 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 38290 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2393 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 4647 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7040 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2708 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 5560 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -2838 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | RESEARCH AWARDS |
| IRS990/OtherExpensesGrp/Desc | 1 | FUNDRAISING EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 2 | FEES/DUES |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 39865 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5195 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2895 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 246123 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 10085 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 5619 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 246123 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 39865 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 15280 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 8514 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 324716 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 206563 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 65081 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 22780 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 85598 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 173459 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 5430 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4553 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 13332 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23315 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt | 0 | 134349 |
| IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt | 0 | 134349 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 246123 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 137511 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 803869 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 9107 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 781199 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -241340 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 273117 |
| IRS990/PYTotalExpensesAmt | 0 | 1054316 |
| IRS990/PYTotalRevenueAmt | 0 | 812976 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -114670 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 834109 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 835676 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 977295 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 676263 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 621576 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3944919 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 78 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 9107 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 16908 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13210 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 9182 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 48485 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 78 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 9107 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 16908 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 13210 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 9182 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 48485 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.01210 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.01420 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.98790 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.98580 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 3944919 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 834109 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 835676 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 977295 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 676263 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 621576 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 3944919 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 834187 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 844783 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 994203 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 689473 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 630758 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 3993404 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 83 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 20352 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 20435 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 7111 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 948857 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 31050 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 2837 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 3165 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 202732 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 2 | 666 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | CREDIT CARD PAYABLE |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | DEFERRED REVENUE |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 2 | PAYROLL W/H |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.