Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
990 • Fiscal year 2022 • EIN 91-1397792
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Liabilities / Revenue
29th percentile
Higher debt load relative to revenue than 29% of similar nonprofits.
Net Margin
72nd percentile
Higher net margin than 72% of similar nonprofits.
Top Officer Pay
66th percentile
Higher top officer pay than 66% of similar nonprofits.
Top officer pay equals 8.6% of source-year revenue.
Asset Growth
62nd percentile
Faster asset growth than 62% of similar nonprofits.
Revenue Growth
70th percentile
Faster revenue growth than 70% of similar nonprofits.
Assets
Up$1,291,125
Up $82,618 (+6.8%) from 2021
Net Assets
Up$1,273,582
Up $118,321 (+10%) from 2021
Liabilities
Down$17,543
Down $35,703 (-67%) from 2021
Revenue
Up$1,099,485
Up $224,411 (+26%) from 2021
Expenses
Up$858,302
Up $189,365 (+28%) from 2021
Net Income
Up$241,183
Up $35,046 (+17%) from 2021
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $532,183 | $810,980 | ▲ $278,797 |
| Investments in Publicly Traded Securities | $518,660 | $397,068 | ▼ $121,592 |
| Land, Buildings, and Equipment, Net | $57,608 | $45,985 | ▼ $11,623 |
| Accounts Receivable | $94,596 | $26,000 | ▼ $68,596 |
| Prepaid Expenses and Deferred Charges | - | $4,282 | - |
| Total Assets | $1,208,507 | $1,291,125 | ▲ $82,618 |
| Other Assets Total | $5,460 | $6,810 | ▲ $1,350 |
| Liabilities | |||
| Unsecured Notes Loans Payable | $49,532 | - | - |
| Accounts Payable and Accrued Expenses | $3,714 | $17,543 | ▲ $13,829 |
| Total Liabilities | $53,246 | $17,543 | ▼ $35,703 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $208,562 | $856,802 | ▲ $648,240 |
| Net Assets Without Donor Restrictions | $946,699 | $416,780 | ▼ $529,919 |
| Total Net Assets Fund Balance | $1,155,261 | $1,273,582 | ▲ $118,321 |
| Total Liabilities and Net Assets / Fund Balance | $1,208,507 | $1,291,125 | ▲ $82,618 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $45,985 | $54,529 | $100,514 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy Fenton Parker | President & | FT | $94,760 | $94,760 |
| Name | Title |
|---|---|
| Darlene Royalty | Board Chair |
| Barbara Wuebbels | Board Vice C |
| Barbara Mcdonough | Director |
| David Pearce | Director |
| John Ireland | Director |
| John Patterson | Director |
| Kate Haller | Director |
| Rene Martinez | Director |
| Tony Ferrandino | Director |
| Trent Lewis | Director |
| Donna Fogle | Secretary |
| Fred Surrey | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $526,805 |
| Salaries, Compensation, and Employee Benefits | $291,497 |
| Total Fundraising Expense | $54,358 |
| Grants and Similar Amounts Paid | $40,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $85,526 | $59,195 | $20,559 | $165,280 |
| Travel | $138,571 | $1,220 | $774 | $140,565 |
| Current Officers, Directors, Trustees, and Key Employees | $49,035 | $33,938 | $11,787 | $94,760 |
| Conferences and Meetings | $92,816 | $408 | - | $93,224 |
| Office Expenses | $17,287 | $51,129 | $18,225 | $86,641 |
| Occupancy | - | $42,148 | - | $42,148 |
| Grants to Domestic Orgs | $40,000 | - | - | $40,000 |
| Fees for Services Other | $2,147 | $25,256 | $4 | $27,407 |
| Fees for Services Accounting | $292 | $26,107 | $70 | $26,469 |
| Payroll Taxes | $11,035 | $8,069 | $2,653 | $21,757 |
| Information Technology | $11,033 | $4,434 | - | $15,467 |
| Depreciation Depletion | - | $11,623 | - | $11,623 |
| Other Employee Benefits | - | $9,700 | - | $9,700 |
| All Other Expenses | $3,408 | $3,430 | $281 | $7,119 |
| Other Expenses | $4,213 | $1,352 | $5 | $5,565 |
| Insurance | - | $4,894 | - | $4,894 |
| Total Functional Expenses | $486,723 | $317,221 | $54,358 | $858,302 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| HALEY'S HEROES FOUNDATION | Los Angeles, CA | 501c3 | Research | $40,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“No committees of bdsra have the authority to act on behalf of the board.”
“The governing body will receive and review the return prior to filing.”
“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines and disclose all relationships with other entities.”
“Record requests are individually reviewed and approved by the board. Form 990s are made available upon request and also on organization website, bdsrafoundation.org”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3714 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 17543 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 94596 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 26000 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 1064250 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 281 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3430 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3408 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7119 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | AMY FENTON PARKER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8004484570 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 30049 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | GAHANNA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 43230 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 532183 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 810980 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11787 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 33938 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 49035 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 94760 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 408 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 92816 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 93224 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1064250 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 40000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 19641 |
| IRS990/CYOtherExpensesAmt | 0 | 526805 |
| IRS990/CYOtherRevenueAmt | 0 | 9594 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 6000 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 241183 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 291497 |
| IRS990/CYTotalExpensesAmt | 0 | 858302 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 54358 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1099485 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 11623 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 11623 |
| IRS990/Desc | 0 | PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 208562 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 856802 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 352376 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 70 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 26107 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 292 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 26469 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 25256 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 2147 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 27407 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | AMY FENTON PARKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DARLENE ROYALTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BARBARA WUEBBELS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | FRED SURREY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DONNA FOGLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JOHN IRELAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JOHN PATTERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TONY FERRANDINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KATE HALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | BARBARA MCDONOUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TRENT LEWIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | DAVID PEARCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | RENE MARTINEZ |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 94760 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT & |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD VICE C |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 40000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 40000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1099485 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 4434 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 11033 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 15467 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4894 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4894 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 19641 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 19641 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 518660 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 397068 |
| IRS990/IRPDocumentCnt | 0 | 10 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 54529 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 57608 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 45985 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 100514 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1155261 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1273582 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -90158 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 946699 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 416780 |
| IRS990/NoncashContributionsAmt | 0 | 4600 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 42148 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 42148 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 18225 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 51129 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 17287 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 86641 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 5460 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 6810 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -32704 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 9700 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 9700 |
| IRS990/OtherExpensesGrp/Desc | 0 | PROGRAM EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 1 | BAD DEBT EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | MEALS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 5 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 97 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 25185 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 9036 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1352 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 31341 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 19 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 4213 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 31438 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 25185 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 9060 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5565 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | CREDIT CARD REWARDS |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 9594 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 9594 |
| IRS990/OtherRevenueTotalAmt | 0 | 9594 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 20559 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 59195 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 85526 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 165280 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2653 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 8069 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 11035 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 21757 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4282 |
| IRS990/PrincipalOfficerNm | 0 | AMY FENTON PARKER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | PROGRAM SERVICE FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 6000 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 6000 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 41531 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 40000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 92816 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 811390 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 10000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 33129 |
| IRS990/PYOtherExpensesAmt | 0 | 365631 |
| IRS990/PYOtherRevenueAmt | 0 | 12355 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 18200 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 206137 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 293306 |
| IRS990/PYTotalExpensesAmt | 0 | 668937 |
| IRS990/PYTotalRevenueAmt | 0 | 875074 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 241183 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 6000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 13346 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 5920 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 3370 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 22636 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | SALES 35,300 CREDIT CARD REWARDS 9,564 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART III, LINE 12 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1064250 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 811390 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 968030 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 883058 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 967924 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4694652 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 19641 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 33129 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 23619 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 47608 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | -13024 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 110973 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 35235 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 18200 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 236958 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 290393 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 19641 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 33129 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 23619 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 47608 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | -13024 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 110973 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.02000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 9564 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 12355 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 22945 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 44864 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.96530 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.97190 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4962409 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 13346 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 5920 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 3370 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 22636 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1099485 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 829590 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1204988 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 883058 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 967924 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4985045 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1128690 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 875074 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1228607 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 953611 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 954900 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 5140882 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 45985 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 54529 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 100514 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 45985 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 40000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | HALEY'S HEROES FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 043367888 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 2208 CANYONBACK RD |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | LOS ANGELES |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.