Civic Intelligence

Batten Disease Support and Research Association

990 • Fiscal year 2023 • EIN 91-1397792

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 30, 2024

Organization ProfileN/A
104 Mill Street Suite GColumbus, OH 43219

(800) 448-4570

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

51st percentile

0.07x

Higher debt load relative to assets than 51% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

54th percentile

0.11x

Higher debt load relative to revenue than 54% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

12th percentile

-28%

Higher net margin than 12% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

67th percentile

$98,500

Higher top officer pay than 67% of similar nonprofits.

Top officer pay equals 13.2% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

17th percentile

-6.8%

Faster asset growth than 17% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

11th percentile

-32%

Faster revenue growth than 11% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets51st percentile

Assets

Down

$1,203,251

Down $87,874 (-6.8%) from 2022

Net Assets

Down

$1,120,268

Down $153,314 (-12%) from 2022

Liabilities

Up

$82,983

Up $65,440 (+373%) from 2022

Revenue And Expenses
Liabilities / Revenue54th percentileNet Margin12th percentile

Revenue

Down

$746,147

Down $353,338 (-32%) from 2022

Expenses

Up

$952,036

Up $93,734 (+11%) from 2022

Net Income

Down

-$205,889

Down $447,072 (-185%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth17th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $1,173,122Liabilities 2011: $6,942Net Assets 2011: $1,166,1802011Assets 2012: $969,288Liabilities 2012: $12,974Net Assets 2012: $956,3142012Assets 2013: $692,878Liabilities 2013: $11,406Net Assets 2013: $681,4722013Assets 2014: $728,236Liabilities 2014: $251,368Net Assets 2014: $476,8682014Assets 2015: $657,635Liabilities 2015: $90,954Net Assets 2015: $566,6812015Assets 2016: $664,508Liabilities 2016: $324,716Net Assets 2016: $339,7922016Assets 2017: $462,370Liabilities 2017: $209,036Net Assets 2017: $253,3342017Assets 2019: $815,440Liabilities 2019: $356,783Net Assets 2019: $458,6572019Assets 2020: $1,028,529Liabilities 2020: $79,405Net Assets 2020: $949,1242020Assets 2021: $1,208,507Liabilities 2021: $53,246Net Assets 2021: $1,155,2612021Assets 2022: $1,291,125Liabilities 2022: $17,543Net Assets 2022: $1,273,5822022Assets 2023: $1,203,251Liabilities 2023: $82,983Net Assets 2023: $1,120,2682023Assets 2024: $965,863Liabilities 2024: $197,874Net Assets 2024: $767,9892024

Highlighted filing

2023

Assets$1,203,251
Liabilities$82,983
Net Assets$1,120,268
Open 2023 Filing

Operations Trend

Revenue Growth11th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $647,251Expenses 2011: $562,992Net Income 2011: $84,2592011Expenses 2012: $769,2922012Revenue 2013: $647,880Expenses 2013: $936,637Net Income 2013: -$288,7572013Revenue 2014: $631,459Expenses 2014: $836,483Net Income 2014: -$205,0242014Revenue 2015: $994,203Expenses 2015: $880,137Net Income 2015: $114,0662015Revenue 2016: $812,976Expenses 2016: $1,054,316Net Income 2016: -$241,3402016Revenue 2017: $834,187Expenses 2017: $948,857Net Income 2017: -$114,6702017Revenue 2019: $953,611Expenses 2019: $749,007Net Income 2019: $204,6042019Revenue 2020: $1,228,607Expenses 2020: $718,019Net Income 2020: $510,5882020Revenue 2021: $875,074Expenses 2021: $668,937Net Income 2021: $206,1372021Revenue 2022: $1,099,485Expenses 2022: $858,302Net Income 2022: $241,1832022Revenue 2023: $746,147Expenses 2023: $952,036Net Income 2023: -$205,8892023Revenue 2024: $601,964Expenses 2024: $967,326Net Income 2024: -$365,3622024

Highlighted filing

2023

Revenue$746,147
Expenses$952,036
Net Income-$205,889
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 30, 2024
Return Version
2023v5.0
Gross Receipts
$746,147
Mission and Program Overview

Mission

Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$397,068$668,380▲ $271,312
Cash and Non-Interest-Bearing Accounts$810,980$445,787▼ $365,193
Accounts Receivable$26,000$43,630▲ $17,630
Land, Buildings, and Equipment, Net$45,985$34,362▼ $11,623
Prepaid Expenses and Deferred Charges$4,282$4,282→ $0
Total Assets$1,291,125$1,203,251▼ $87,874
Other Assets Total$6,810$6,810→ $0
Liabilities
Grants Payable-$56,000-
Accounts Payable and Accrued Expenses$17,543$26,983▲ $9,440
Total Liabilities$17,543$82,983▲ $65,440
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$416,780$997,221▲ $580,441
Net Assets With Donor Restrictions$856,802$123,047▼ $733,755
Total Net Assets Fund Balance$1,273,582$1,120,268▼ $153,314
Total Liabilities and Net Assets / Fund Balance$1,291,125$1,203,251▼ $87,874

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$34,362$66,152$100,514
Compensation and Service Providers
Top Officer Pay67th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amy Fenton ParkerPresident &FT$98,500$98,500

Board Members and Trustees

NameTitle
Darlene RoyaltyBoard Chair
Barbara WuebbelsBoard Vice C
David PearceDirector
Donna FogleDirector
Fernanda Leal-pardinasDirector
John PattersonDirector
Kate HallerDirector
Kyleen DouglasDirector
Suzette JamesDirector
Tony FerrandinoDirector
Wayne KieferDirector
Barbara McdonoughSecretary
John IrelandSibling Rep.
Fred SurreyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$724,656
Program Service Revenue
$0
Investment Income
$21,491
Other Revenue
$0
All Other Contributions
$724,656
Change in Net Assets
$-205,889
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$557,342
Salaries, Compensation, and Employee Benefits$312,694
Grants and Similar Amounts Paid$82,000
Total Fundraising Expense$66,942
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$84,617$73,927$25,788$184,332
Conferences and Meetings$116,708$300-$117,008
Travel$101,946$6,265$540$108,751
Current Officers, Directors, Trustees, and Key Employees$45,201$35,946$17,353$98,500
Information Technology$49,857$16,195$4,798$70,850
Office Expenses$12,578$44,742$8,382$65,702
Grants to Domestic Orgs$52,000--$52,000
Fees for Services Other$2,949$27,932$2,104$32,985
Foreign Grants$30,000--$30,000
Occupancy-$25,336-$25,336
Fees for Services Accounting-$22,350-$22,350
Payroll Taxes$9,159$7,455$3,516$20,130
Depreciation Depletion-$11,623-$11,623
Other Employee Benefits-$9,732-$9,732
Insurance$25$7,046-$7,071
Other Expenses$1,802$934$167$2,903
Fees for Service Investment Mgmnt Fees-$2,778-$2,778
All Other Expenses$1,063$444-$1,507
Total Functional Expenses$585,142$299,952$66,942$952,036
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of RochesterRochester, NY501c3Research$52,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The governing body will receive and review the return prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines and disclose all relationships with other entities.”

Form 990, Page 6, Part VI, Line 19

“Record requests are individually reviewed and approved by the board. Form 990's are made available upon request and also on organization website, bdsrafoundation.org”

Filing and Contact Details

Filer

Filer Name
Batten Disease Support
EIN
91-1397792
Phone
8004484570
Address
104 MILL STREET SUITE G, COLUMBUS, OH 43219

Signing Officer

Name
Amy Fenton Parker
Title
President & CEO
Phone
8004484570
Signed
2024-08-30

Organization Details

Principal Officer
Amy Fenton Parker
Formed
1987
Legal Domicile
Oh
Voting Board Members
14
Independent Board Members
14
Employees
4
Volunteers
45

Preparer

Firm
Wells CPA LLC
Address
215 N FRONT ST STE 110, COLUMBUS, OH 43215
Preparer
Donald Wells
Phone
6143968974
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IRS990/ReportLandBuildingEquipmentInd0true
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,203,251
Liabilities
$82,983
Net assets
$1,120,268
Revenue
$746,147
Expenses
$952,036
Net income
-$205,889
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.20$0.77$0.60$0.97$0.37
2023Detailed filing. Detailed filing data is available for this year.$1.20$0.08$1.12$0.75$0.95$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.29$0.02$1.27$1.10$0.86$0.24
2021Detailed filing. Detailed filing data is available for this year.$1.21$0.05$1.16$0.88$0.67$0.21
2020Detailed filing. Detailed filing data is available for this year.$1.03$0.08$0.95$1.23$0.72$0.51
2019Summary only. Only limited summary data is available for this year.$0.82$0.36$0.46$0.95$0.75$0.20
2017Detailed filing. Detailed filing data is available for this year.$0.46$0.21$0.25$0.83$0.95$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.66$0.32$0.34$0.81$1.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.66$0.09$0.57$0.99$0.88$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.73$0.25$0.48$0.63$0.84$0.21
2013Detailed filing. Detailed filing data is available for this year.$0.69$0.01$0.68$0.65$0.94$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.01$0.96$0.77
2011Summary only. Only limited summary data is available for this year.$1.17$0.01$1.17$0.65$0.56$0.08