Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
990 • Fiscal year 2020 • EIN 91-1397792
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Liabilities / Revenue
36th percentile
Higher debt load relative to revenue than 36% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
77th percentile
Faster asset growth than 77% of similar nonprofits.
Revenue Growth
80th percentile
Faster revenue growth than 80% of similar nonprofits.
Assets
Up$1,028,529
Up $213,089 (+26%) from 2019
Net Assets
Up$949,124
Up $490,467 (+107%) from 2019
Liabilities
Down$79,405
Down $277,378 (-78%) from 2019
Revenue
Up$1,228,607
Up $274,996 (+29%) from 2019
Expenses
Down$718,019
Down $30,988 (-4.1%) from 2019
Net Income
Up$510,588
Up $305,984 (+150%) from 2019
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $323,061 | $465,498 | ▲ $142,437 |
| Accounts Receivable | $363,982 | $307,269 | ▼ $56,713 |
| Cash and Non-Interest-Bearing Accounts | $45,879 | $184,309 | ▲ $138,430 |
| Land, Buildings, and Equipment, Net | $76,958 | $65,893 | ▼ $11,065 |
| Total Assets | $815,440 | $1,028,529 | ▲ $213,089 |
| Other Assets Total | $5,560 | $5,560 | → $0 |
| Liabilities | |||
| Deferred Revenue | $202,732 | - | - |
| Unsecured Notes Loans Payable | - | $54,242 | - |
| Accounts Payable and Accrued Expenses | $154,051 | $25,163 | ▼ $128,888 |
| Total Liabilities | $356,783 | $79,405 | ▼ $277,378 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $204,524 | $694,991 | ▲ $490,467 |
| Net Assets With Donor Restrictions | $254,133 | $254,133 | → $0 |
| Total Net Assets Fund Balance | $458,657 | $949,124 | ▲ $490,467 |
| Total Liabilities and Net Assets / Fund Balance | $815,440 | $1,028,529 | ▲ $213,089 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $65,893 | $31,417 | $97,310 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michelle Churchill | Executive Di | FT | $30,086 | $30,086 |
| Name | Title |
|---|---|
| Darlene Royalty | President |
| Barbara Mcdonough | Director |
| Brock Benroth | Director |
| David Pearce | Director |
| Kate Haller | Director |
| Mike Collins | Director |
| Tony Ferrandino | Director |
| Trent Lewis | Director |
| Donna Fogle | Secretary |
| John Ireland | Sib Represen |
| Bob Jensen | Treasurer |
| Barbara Wuebbels | Vice Preside |
| Line Item | Amount |
|---|---|
| Other Expenses | $336,887 |
| Salaries, Compensation, and Employee Benefits | $285,804 |
| Total Fundraising Expense | $115,057 |
| Grants and Similar Amounts Paid | $95,328 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $113,257 | $45,268 | $48,279 | $206,804 |
| Grants to Domestic Orgs | $50,000 | - | - | $50,000 |
| Conferences and Meetings | $47,275 | $2,000 | - | $49,275 |
| Foreign Grants | $45,328 | - | - | $45,328 |
| Occupancy | $21,933 | $8,767 | $9,350 | $40,050 |
| Office Expenses | $19,542 | $7,811 | $8,330 | $35,683 |
| Current Officers, Directors, Trustees, and Key Employees | $16,476 | $6,586 | $7,024 | $30,086 |
| Other Employee Benefits | $15,799 | $6,314 | $6,735 | $28,848 |
| Travel | $26,214 | $1,459 | - | $27,673 |
| Fees for Services Accounting | - | $26,140 | - | $26,140 |
| Payroll Taxes | $9,991 | $5,844 | $4,231 | $20,066 |
| Depreciation Depletion | - | $11,065 | - | $11,065 |
| Other Expenses | $5,018 | $6,196 | $31,108 | $6,196 |
| Insurance | - | $4,136 | - | $4,136 |
| Fees for Services Other | $26 | $740 | - | $766 |
| Information Technology | - | $576 | - | $576 |
| All Other Expenses | - | $123 | - | $123 |
| Interest | - | $5 | - | $5 |
| Total Functional Expenses | $462,010 | $140,952 | $115,057 | $718,019 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of North Carolina | Chapel Hill, NC | 501c3 | Research | $40,000 |
| Washington University | St Louis, MO | 501c3 | Research | $10,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“No committees of bdsra have the authority to act on behalf of the board.”
“The governing body will receive and review the return prior to filing.”
“Officers, directors and key employees are required to annually sign a letter of agreement with conflict of interest policies and guidelines and disclose all relationships with other entities.”
“Record requests are individually reviewed and approved by the board.”
“Accounts payable adjustments -20,121”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 154051 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 25163 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 363982 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 307269 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 968030 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 123 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 123 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | AMY FENTON PARKER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8004484570 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2780 AIRPORT DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | COLUMBUS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 43219 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 45879 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 184309 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 7024 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 6586 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 16476 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 30086 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 2000 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 47275 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 49275 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 968030 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 95328 |
| IRS990/CYInvestmentIncomeAmt | 0 | 23619 |
| IRS990/CYOtherExpensesAmt | 0 | 336887 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 236958 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 510588 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 285804 |
| IRS990/CYTotalExpensesAmt | 0 | 718019 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 115057 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1228607 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 202732 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 11065 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 11065 |
| IRS990/Desc | 0 | PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 254133 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 254133 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 6 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 314629 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 26140 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 26140 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 740 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 26 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 766 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 45328 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 45328 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DARLENE ROYALTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BARBARA WUEBBELS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DONNA FOGLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BOB JENSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JOHN IRELAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BROCK BENROTH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MIKE COLLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TONY FERRANDINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KATE HALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | BARBARA MCDONOUGH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TRENT LEWIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | DAVID PEARCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MICHELLE CHURCHILL |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 30086 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SIB REPRESEN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | EXECUTIVE DI |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 50000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 50000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1228607 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 576 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 576 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4136 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4136 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 5 |
| IRS990/InterestGrp/TotalAmt | 0 | 5 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 23619 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 23619 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 323061 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 465498 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 31417 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 76958 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 65893 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 97310 |
| IRS990/LegalDomicileStateCd | 0 | OH |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 458657 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 949124 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 204524 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 694991 |
| IRS990/NoncashContributionsAmt | 0 | 5228 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 9350 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 8767 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 21933 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 40050 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 8330 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 7811 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 19542 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 35683 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 5560 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 5560 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -20121 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 6735 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 6314 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 15799 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 28848 |
| IRS990/OtherExpensesGrp/Desc | 0 | PROGRAM EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 1 | FUNDRAISING EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/Desc | 3 | BANK FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 31108 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 99 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 7823 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 6196 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 91151 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 5018 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 91250 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 31108 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 12841 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 6196 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 48279 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 45268 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 113257 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 206804 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4231 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5844 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9991 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 20066 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | AMY FENTON PARKER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | PROGRAM SERVICE FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 236958 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 236958 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 95328 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 95328 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 52053 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 883058 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 47608 |
| IRS990/PYOtherExpensesAmt | 0 | 511249 |
| IRS990/PYOtherRevenueAmt | 0 | 22945 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 204604 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 237758 |
| IRS990/PYTotalExpensesAmt | 0 | 749007 |
| IRS990/PYTotalRevenueAmt | 0 | 953611 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 510588 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 236958 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 3370 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 3370 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | SALES 22,945 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART III, LINE 12 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 968030 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 883058 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 967924 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 834109 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 834676 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4487797 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 23619 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 47608 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | -13024 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 78 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 9107 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 67388 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 236958 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 236958 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 23619 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 47608 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | -13024 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 78 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 9107 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 67388 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.01000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.01000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 22945 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 22945 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.98050 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.98170 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4721385 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 3370 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 3370 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1204988 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 883058 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 967924 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 834109 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 834676 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4724755 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1228607 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 953611 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 954900 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 834187 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 843783 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4815088 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 65893 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 31417 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 97310 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 65893 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 45328 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 0 | CASH |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 1 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 40000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501C3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | WASHINGTON UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF NORTH CAROLINA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine2Txt | 0 | AT CHAPEL HILL |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 430653611 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 566001393 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1 BROOKINGS DRIVE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 103 SOUTH BUILDING CAMPUS |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.