Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2021 • EIN 23-7376197

Jan 01, 2021 to Dec 31, 2021 • Filed on Oct 14, 2024

Organization ProfileWWW.HDFOUNDATION.ORG

View Organization Page

601 West 168th Street 54New York, NY 10032

(212) 981-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.13x

Higher debt load relative to assets than 45% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Liabilities / Revenue

73rd percentile

0.61x

Higher debt load relative to revenue than 73% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Net Margin

68th percentile

23%

Higher net margin than 68% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Top Officer Pay

26th percentile

$110,000

Higher top officer pay than 26% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Asset Growth

66th percentile

17%

Faster asset growth than 66% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Revenue Growth

22nd percentile

-5.3%

Faster revenue growth than 22% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets45th percentile

Assets

Up

$18,145,612

Up $2,638,549 (+17%) from 2020

Net Assets

Up

$15,815,595

Up $2,090,140 (+15%) from 2020

Liabilities

Up

$2,330,017

Up $548,409 (+31%) from 2020

Revenue And Expenses
Liabilities / Revenue73rd percentileNet Margin68th percentile

Revenue

Down

$3,846,649

Down $213,170 (-5.3%) from 2020

Expenses

Up

$2,967,624

Up $447,963 (+18%) from 2020

Net Income

Down

$879,025

Down $661,133 (-43%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth66th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2021

Assets$18,145,612
Liabilities$2,330,017
Net Assets$15,815,595
Open 2021 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2021

Revenue$3,846,649
Expenses$2,967,624
Net Income$879,025
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Oct 14, 2024
Return Version
2021v4.2
Gross Receipts
$5,869,907
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

Fund innovative research towards curing huntington's disease and impacting other brain disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$12,384,273$15,845,874▲ $3,461,601
Cash and Non-Interest-Bearing Accounts$272,171$1,008,422▲ $736,251
Pledges and Grants Receivable$416,443$962,814▲ $546,371
Savings and Temporary Cash Investments$2,379,491$293,222▼ $2,086,269
Land, Buildings, and Equipment, Net$44,817$25,212▼ $19,605
Prepaid Expenses and Deferred Charges$4,463$4,663▲ $200
Total Assets$15,507,063$18,145,612▲ $2,638,549
Other Assets Total$5,405$5,405→ $0
Liabilities
Grants Payable$1,768,438$2,288,342▲ $519,904
Accounts Payable and Accrued Expenses$13,170$41,675▲ $28,505
Total Liabilities$1,781,608$2,330,017▲ $548,409
Net Assets / Fund Balance
Net Assets With Donor Restrictions$10,585,495$12,645,054▲ $2,059,559
Net Assets Without Donor Restrictions$3,139,960$3,170,541▲ $30,581
Total Net Assets Fund Balance$13,725,455$15,815,595▲ $2,090,140
Total Liabilities and Net Assets / Fund Balance$15,507,063$18,145,612▲ $2,638,549

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$25,212$72,810$98,022

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2021$10,244,052-▲ $1,932,598$512,203$11,593,322
2020$9,703,171-▲ $1,026,040$485,159$10,244,052
2019$8,534,335-▲ $1,595,553$426,717$9,703,171
2018$8,401,672$676,151▼ $543,488-$8,534,335
2017$7,700,419-▲ $1,155,712$454,459$8,401,672
Compensation and Service Providers
Top Officer Pay26th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Meghan DonaldsonCEOFT$110,000$110,000
Travis CareyCFO-$7,700$7,700

Board Members and Trustees

NameTitle
David ZwallyChair
Nancy S Wexler PhdPresident
Anne B Young Md PhdVice Chair
Barry EvenchickDirector
Berta a GehryDirector
David Housman PhdDirector
Frank O GehryDirector
Herbert Pardes MdDirector
Joan Leiman PhdDirector
Karen NewmanDirector
Kelly Posner Gerstenhaber PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Alice Wexler PhdSecretary
Bruce DonaldsonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Susan Quinlan Martin INCEvent Planner Gala 202110 MITCHELL PLACE STE 3 H, New York, NY 10017$103,500
Revenue and Support

Revenue Composition

Contributions and Grants
$2,827,274
Program Service Revenue
$0
Investment Income
$1,019,375
Other Revenue
$0
All Other Contributions
$2,513,273
Change in Net Assets
$879,025

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,761,566
Revenue Not Reported on Financial Statements
$85,083
Revenue Not Reported on Form 990
$1,211,115
Total Revenue per Audited Statements
$4,972,681
Total Revenue per Form 990
$3,846,649
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,114,614
Other Expenses$391,507
Salaries, Compensation, and Employee Benefits$358,003
Total Fundraising Expense$297,303
Professional Fundraising Fees$103,500

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,536,230--$1,536,230
Foreign Grants$578,384--$578,384
Other Salaries and Wages$113,728$17,175$34,651$165,554
Fees for Services Other$8,780$40,542$72,074$121,396
Current Officers, Directors, Trustees, and Key Employees$55,000$40,700$22,000$117,700
Fees for Services Professional Fundraising--$103,500$103,500
Fees for Service Investment Mgmnt Fees-$85,083-$85,083
Occupancy$38,720$13,280$13,000$65,000
Other Employee Benefits$27,589$16,562$9,294$53,445
Fees for Services Accounting-$35,890-$35,890
Payroll Taxes$12,782$4,261$4,261$21,304
Depreciation Depletion$11,678$4,006$3,921$19,605
Information Technology$10,827$3,475$3,399$17,701
Insurance$4,183$1,435$1,405$7,023
Other Expenses$1,535$1,743$29,084$3,278
Conferences and Meetings$1,539$1,015$714$3,268
Office Expenses$346$956-$1,302
Total Functional Expenses$2,403,646$266,675$297,303$2,967,624

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$2,967,624
Expenses per Audited Statements$2,882,541
Total Expenses per Audited Statements$2,882,541
Expenses Not Reported on Financial Statements$85,083
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Massachusetts Institute of TechnologyCambridge, MA504 C (3)Scientific Research$223,328
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA502 C (3)Scientific Research$214,388
Stanford UniversityPalo Alto, CA505 C (3)Scientific Research$205,656
Massachusetts General HospitalBoston, MA503 C (3)Scientific Research$203,684
University of California IrvineIrvine, CA509 C (3)Scientific Research$200,584
Thomas Jefferson UniversityPhiladelphia, PA506 C (3)Scientific Research$135,320
Washington UniversitySaint Louis, MO511 C (3)Scientific Research$78,270
Brigham and Womens HospitalSomerville, MA501 C (3)Scientific Research$75,000
University of Alabama at BirminghamBirmingham, AL508 C (3)Scientific Research$75,000
University of TexasGalveston, TX510 C (3)Scientific Research$75,000
Trustees of Columbia UniversityNew York, NY507 C (3)Scientific Research$50,000

International Summary

Offices
0
Employees
0
Spending
$578,384

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaGrants to RecipientsScientific Research--$269,388
AustraliaGrants to RecipientsScientific Research--$135,320
ItalyGrants to RecipientsScientific Research--$100,000
FranceGrants to RecipientsScientific Research--$73,676
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$103,500
Fundraising Direct Expenses$0
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fr Events$314,001---
Total Events$314,001---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors. Meghan donaldson, ceo, and bruce donaldson, board member, are married and are both members of the board of directors. Frank gehry and berta gehry are married and both are members of the board of directors. Sandy fox is the aunt of david zwally and both are members of the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15A

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Section C, Line 19

“The foundation makes its financial statements and 990 available to the public on its website, www.hdfoundation.org. The foundation makes its govering documents and conflicts of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129812121
Address
601 WEST 168TH STREET 54, NEW YORK, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Phone
2129812121
Signed
2024-10-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
16
Independent Board Members
15
Employees
3
Volunteers
17

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS-16TH FL, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2122682804
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Hdf does not believe its financial statements include any material, uncertain tax positions. Tax filings for the periods ending december 31, 2018 and later are subject to examination by applicable taxing authorities.”

Raw XML AppendixShowing 400 of 736 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE HEREDITARY DISEASE FOUNDATION COMMEMORATES ITS 52ND YEAR BY MAKING AN EVEN GREATER IMPACT TOWARD DEVELOPING NOVEL THERAPEUTICS AND CURES. WE HAVE PUT IN PLACE STRATEGIES AND NEW GRANT FUNDING PROGRAMS TO MAXIMIZE OUR EFFECTIVENESS. WE HAVE BEEN FUNDING CATALYTIC AND PARADIGM-CHANGING RESEARCH SINCE OUR BIRTH - INCLUDING IDENTIFYING THE HUNTINGTON'S DISEASE MARKER IN 1983 AND THE HD GENE IN 1993, AND SUPPORTING GENE SILENCING APPROACHES SINCE 2002. WE WANT TO CONTINUE TO MAKE AN IMPACT BY FUNDING RESEARCH THAT PUSHES THE ENVELOPE.THE HEREDITARY DISEASE FOUNDATION PROVIDES FUNDING FOR RESEARCH THAT ADVANCES THE DISCOVERY AND DEVELOPMENT OF TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER BRAIN DISORDERS. WE ARE PASSIONATE ABOUT FUNDING AND THE FOUNDATION INTENDS TO USE THE ENDOWMENT FUNDS FOR ITS SCIENTIFIC ACTIVITIES WHICH INCLUDES PROVIDING GRANTS TO FUND SCIENTIFIC RESEARCH TO FURTHER THE UNDERSTANDING OF, AND TO DEVELOP DIAGNOSTICS AND THERAPEUTICS FOR NEURODEGENERATIVE DISEASES, INCLUDING HUNTINGTON'S DISEASE. THE HEREDITARY DISEASE FOUNDATION FUNDS THE MOST INNOVATIVE, CREATIVE AND PARADIGM-CHANGING RESEARCH POSSIBLE. THE DATA GENERATED WITH HDF FUNDING OFTEN ALLOWS RESEARCHERS TO GET INITIAL FINDINGS THAT HELP THEM APPLY SUCCESSFULLY FOR LARGER, LONG-TERM FUNDING FROM OTHER FUNDING AGENCIES, INCLUDING THE NATIONAL INSTITUTES OF HEALTH. THE FOUNDATION'S CURRENT FOCUS IS ON:1) MODIFIER STUDIES - ON DNA REPAIR PATHWAYS, PROTEIN DEGRADATION AND OTHER MODIFIERS OF PHENOTYPE AND AGE OF ONSET.2) RESEARCH MECHANISMS OF HD NEUROGENERATION AND BIOMARKERS AND THERAPY FOR HD-INDUCED NEURODEGENERATION.TYPE OF FUNDING:THE BASIC RESEARCH GRANTS PROGRAM: SUPPORTS PROJECTS CONTRIBUTING TO IDENTIFYING AND UNDERSTANDING THE FUNDAMENTAL DEFECTS IN HUNTINGTON'S DISEASE. POSTDOCTORAL FELLOWSHIPS: THESE POSTDOCTORAL FELLOWSHIPS ARE INTENDED TO CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH BY BRIGHT YOUNG SCIENTISTS. FELLOWSHIPS ARE GRANTED TO THOSE WHO POSSESS IMAGINATION, RIGOR, CREATIVITY AND SPIRIT TO PUSH FORWARD TOWARD A CURE FOR HD AND ENSURE THAT THESE LEARNING CAN BE APPLIED TO OTHER BRAIN DISEASES.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0NANCY S WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm1DAVID ZWALLY
IRS990/Form990PartVIISectionAGrp/PersonNm2ANNE B YOUNG MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm3BRUCE DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm4ALICE WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm5ROBI BLUMENSTEIN
IRS990/Form990PartVIISectionAGrp/PersonNm6BARRY EVENCHICK
IRS990/Form990PartVIISectionAGrp/PersonNm7SANDY FOX
IRS990/Form990PartVIISectionAGrp/PersonNm8BERTA A GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm9FRANK O GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm10KELLY POSNER GERSTENHABER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11DAVID HOUSMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12JOAN LEIMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm13KAREN NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm14HERBERT PARDES MD
IRS990/Form990PartVIISectionAGrp/PersonNm15MEGHAN DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm16TRAVIS CAREY
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15110000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt167700
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt16CFO
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01968
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0314001
IRS990/FundraisingDirectExpensesAmt00
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0773831
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantAmt02114614
IRS990/GrantsPayableGrp/BOYAmt01768438
IRS990/GrantsPayableGrp/EOYAmt02288342
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01536230
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01536230
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt02797089
IRS990/GrossReceiptsAmt05869907
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt03399
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03475
IRS990/InformationTechnologyGrp/ProgramServicesAmt010827
IRS990/InformationTechnologyGrp/TotalAmt017701
IRS990/InsuranceGrp/FundraisingAmt01405
IRS990/InsuranceGrp/ManagementAndGeneralAmt01435
IRS990/InsuranceGrp/ProgramServicesAmt04183
IRS990/InsuranceGrp/TotalAmt07023
IRS990/InvestmentIncomeGrp/ExclusionAmt0245544
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0245544
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt012384273
IRS990/InvestmentsPubTradedSecGrp/EOYAmt015845874
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt072810
IRS990/LandBldgEquipBasisNetGrp/BOYAmt044817
IRS990/LandBldgEquipBasisNetGrp/EOYAmt025212
IRS990/LandBldgEquipCostOrOtherBssAmt098022
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt02023258
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER BRAIN DISORDERS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt013725455
IRS990/NetAssetsOrFundBalancesEOYAmt015815595
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0773831
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0773831
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01211115
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03139960
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03170541
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt013000
IRS990/OccupancyGrp/ManagementAndGeneralAmt013280
IRS990/OccupancyGrp/ProgramServicesAmt038720
IRS990/OccupancyGrp/TotalAmt065000
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0956
IRS990/OfficeExpensesGrp/ProgramServicesAmt0346
IRS990/OfficeExpensesGrp/TotalAmt01302
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05405
IRS990/OtherAssetsTotalGrp/EOYAmt05405
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt09294
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt016562
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt027589
IRS990/OtherEmployeeBenefitsGrp/TotalAmt053445
IRS990/OtherExpensesGrp/Desc0PRINTING
IRS990/OtherExpensesGrp/Desc1OTHERS
IRS990/OtherExpensesGrp/FundraisingAmt029084
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0552
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11743
IRS990/OtherExpensesGrp/ProgramServicesAmt02325
IRS990/OtherExpensesGrp/ProgramServicesAmt11535
IRS990/OtherExpensesGrp/TotalAmt031961
IRS990/OtherExpensesGrp/TotalAmt13278
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt034651
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt017175
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0113728
IRS990/OtherSalariesAndWagesGrp/TotalAmt0165554
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04261
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04261
IRS990/PayrollTaxesGrp/ProgramServicesAmt012782
IRS990/PayrollTaxesGrp/TotalAmt021304
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0416443
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0962814
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04463
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04663
IRS990/PrincipalOfficerNm0MEGHAN DONALDSON
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03654196
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01782780
IRS990/PYInvestmentIncomeAmt0387663
IRS990/PYOtherExpensesAmt0304275
IRS990/PYOtherRevenueAmt017960
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01540158
IRS990/PYSalariesCompEmpBnftPaidAmt0364606
IRS990/PYTotalExpensesAmt02519661
IRS990/PYTotalProfFndrsngExpnsAmt068000
IRS990/PYTotalRevenueAmt04059819
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0879025
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02379491
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0293222
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02827274
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03654196
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01650090
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02169236
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0747377
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt011048173
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0245544
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0262035
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0295551
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0317651
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0265653
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01386434
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0139069
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt017960
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt047508
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt025439
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0229976
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.63590
IRS990ScheduleA/PublicSupportPY170Pct00.56380
IRS990ScheduleA/PublicSupportTotal170Amt08054033
IRS990ScheduleA/SubstantialContributorsTotAmt02994140
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02827274
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03654196
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01650090
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02169236
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0747377
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt011048173
IRS990ScheduleA/TotalSupportAmt012664583
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$18,145,612
Liabilities
$2,330,017
Net assets
$15,815,595
Revenue
$3,846,649
Expenses
$2,967,624
Net income
$879,025
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09