Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2023 • EIN 23-7376197

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 15, 2024

Organization ProfileWWW.HDFOUNDATION.ORG

View Organization Page

601 West 168th Street 54New York, NY 10032

(212) 981-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

48th percentile

0.17x

Higher debt load relative to assets than 48% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Liabilities / Revenue

82nd percentile

1.20x

Higher debt load relative to revenue than 82% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Net Margin

4th percentile

-84%

Higher net margin than 4% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Top Officer Pay

45th percentile

$166,457

Higher top officer pay than 45% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Asset Growth

58th percentile

8.7%

Faster asset growth than 58% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Revenue Growth

8th percentile

-43%

Faster revenue growth than 8% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets48th percentile

Assets

Up

$18,234,308

Up $1,458,115 (+8.7%) from 2022

Net Assets

Down

$15,142,896

Down $252,783 (-1.6%) from 2022

Liabilities

Up

$3,091,412

Up $1,710,898 (+124%) from 2022

Revenue And Expenses
Liabilities / Revenue82nd percentileNet Margin4th percentile

Revenue

Down

$2,578,841

Down $1,943,845 (-43%) from 2022

Expenses

Up

$4,738,635

Up $2,135,330 (+82%) from 2022

Net Income

Down

-$2,159,794

Down $4,079,175 (-213%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth58th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2023

Assets$18,234,308
Liabilities$3,091,412
Net Assets$15,142,896
Open 2023 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2023

Revenue$2,578,841
Expenses$4,738,635
Net Income-$2,159,794
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 15, 2024
Return Version
2023v5.1
Gross Receipts
$4,799,900
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

To fund transformative research to find treatments, and ultimately a cure, for huntington's disease and other related disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$12,285,491$14,760,979▲ $2,475,488
Pledges and Grants Receivable$1,722,568$1,756,404▲ $33,836
Savings and Temporary Cash Investments$16,748$1,085,556▲ $1,068,808
Cash and Non-Interest-Bearing Accounts$2,725,218$588,649▼ $2,136,569
Prepaid Expenses and Deferred Charges$15,155$37,315▲ $22,160
Land, Buildings, and Equipment, Net$5,608$0▼ $5,608
Total Assets$16,776,193$18,234,308▲ $1,458,115
Other Assets Total$5,405$5,405→ $0
Liabilities
Grants Payable$1,316,997$2,968,806▲ $1,651,809
Accounts Payable and Accrued Expenses$63,517$122,606▲ $59,089
Total Liabilities$1,380,514$3,091,412▲ $1,710,898
Net Assets / Fund Balance
Net Assets With Donor Restrictions$9,803,171$12,017,432▲ $2,214,261
Net Assets Without Donor Restrictions$5,592,508$3,125,464▼ $2,467,044
Total Net Assets Fund Balance$15,395,679$15,142,896▼ $252,783
Total Liabilities and Net Assets / Fund Balance$16,776,193$18,234,308▲ $1,458,115

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$0$98,022$98,022

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$8,982,275-▲ $1,732,681$449,114$10,208,361
2022$11,593,322-▼ $1,958,855$579,666$8,982,275
2021$10,244,052-▲ $1,932,598$512,203$11,593,322
2020$9,703,171-▲ $1,026,040$485,159$10,244,052
2019$8,534,335-▲ $1,595,553$426,717$9,703,171
Compensation and Service Providers
Top Officer Pay45th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sarah HernandezDirector of Research ProgramsFT$125,220$41,237$166,457
Julie PorterDirector of AdministrationFT$112,648$16,953$129,601
Meghan DonaldsonCEOFT$110,000-$110,000
Travis CareyCFOPT$43,995-$43,995

Board Members and Trustees

NameTitle
Karen NewmanChair
Nancy S Wexler PhdPresident
Anne B Young Md PhdVice Chair
Berta a GehryDirector
C Frank Bennett PhdDirector
David Housman PhdDirector
David ZwallyDirector
Frank O GehryDirector
Herbert Pardes MdDirector
Joan Leiman PhdDirector
Lauren Baker PinkusDirector
Leslie M Thompson PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Tacie FoxDirector
Barry EvenchickDirector Thru 9/23
Alice Wexler PhdSecretary
Bruce DonaldsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,087,245
Program Service Revenue
$0
Investment Income
$488,200
Other Revenue
$3,396
All Other Contributions
$1,876,118
Change in Net Assets
$-2,159,794

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,497,222
Revenue Not Reported on Financial Statements
$81,619
Revenue Not Reported on Form 990
$1,944,798
Total Revenue per Audited Statements
$4,442,020
Total Revenue per Form 990
$2,578,841
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,497,370
Other Expenses$667,807
Salaries, Compensation, and Employee Benefits$530,916
Total Fundraising Expense$333,247
Professional Fundraising Fees$42,542

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$3,019,400--$3,019,400
Foreign Grants$477,970--$477,970
Other Salaries and Wages$208,401$15,352$54,989$278,742
Conferences and Meetings$162,229$184$96,236$258,649
Fees for Services Other$46,462$70,833$50,321$167,616
Current Officers, Directors, Trustees, and Key Employees$55,000$76,995$22,000$153,995
Fees for Service Investment Mgmnt Fees-$81,619-$81,619
Other Employee Benefits$58,544$3,125$4,948$66,617
Fees for Services Professional Fundraising--$42,542$42,542
Occupancy$22,313$4,096$6,522$32,931
Payroll Taxes$21,385$3,926$6,251$31,562
Fees for Services Accounting-$20,000-$20,000
Office Expenses$625$9,635$3,199$13,459
Other Expenses$5,067$1,933$877$7,877
Insurance$5,293$972$1,547$7,812
Depreciation Depletion$3,800$698$1,110$5,608
Total Functional Expenses$4,109,088$296,300$333,247$4,738,635

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,738,635
Expenses per Audited Statements$4,657,016
Total Expenses per Audited Statements$4,657,016
Expenses Not Reported on Financial Statements$81,619
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501 (c) (3)Scientific Research$1,150,000
Massachusetts General HospitalSommerville, MA501 (c) (3)Scientific Research$1,105,262
Trustees of Columbia UniversityNew York, NY501 (c) (3)Scientific Research$150,000
University of California - IrvineIrvine, CA501 (c) (3)Scientific Research$150,000
University of FloridaGainesville, FL501 (c) (3)Scientific Research$150,000
J David Gladstone InstitutesSan Francisco, CA501 (c) (3)Scientific Research$75,000
The Regents - UclaLos Angeles, CA501 (c) (3)Scientific Research$75,000
University of Southern California UscLos Angeles, CA501 (c) (3)Scientific Research$75,000
University of TexasGalveston, TX501 (c) (3)Scientific Research$75,000
University of WashingtonSeattle, WA501 (c) (3)Scientific Research$75,000
Massachusetts Institute of TechnologyCambridge, MA501 (c) (3)Scientific Research$63,240

International Summary

Offices
0
Employees
0
Spending
$477,970

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to RecipientsScientific Research00$252,970
North AmericaGrants to RecipientsScientific Research00$225,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$63,088
Fundraising Gross Income$63,088
Professional Fundraising Fees$42,542

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$274,215$63,088$60,841$2,247
Total Events$274,215$63,088$63,088$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors. Meghan donaldson, ceo, and bruce donaldson, board member, are married and are both members of the board of directors. Frank gehry and berta gehry are married and both are members of the board of directors. Sandy fox is the aunt of david zwally and both are members of the board of directors. Tacie fox is the daughter of sandy fox and both are members of the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15A

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Section C, Line 19

“The foundation makes its financial statements and 990 available to the public on its website, www.hdfoundation.org. The foundation makes its govering documents and conflicts of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129812121
Address
601 WEST 168TH STREET 54, NEW YORK, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Phone
2129812121
Signed
2024-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
18
Independent Board Members
17
Employees
4
Volunteers
50

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS-16TH FL, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2122682804
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Hdf does not believe its financial statements include any material, uncertain tax positions. Tax filings for the periods ending december 31, 2020 and later are subject to examination by applicable taxing authorities.”

Raw XML AppendixShowing 400 of 820 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE AND OTHER RELATED DISORDERS.
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IRS990/Desc0THE HEREDITARY DISEASE FOUNDATION SUPPORTS A COLLABORATIVE APPROACH TO SCIENTIFIC DISCOVERY. WE INVEST IN RESEARCH BY PROVIDING SENIOR SCIENTISTS WITH GRANTS, INCLUDING OUR NEW MILLION-DOLLAR TRANSFORMATIVE RESEARCH AWARDS, WHICH BEGAN IN 2023, AND FUNDING THE WORK OF EARLY CAREER SCIENTISTS THROUGH POSTDOCTORAL FELLOWSHIPS. WE ORGANIZE SCIENTIFIC CONFERENCES ENABLING EXPERTS IN HD TO SHARE THEIR LATEST DISCOVERIES, EXPLORE CUTTING-EDGE TECHNOLOGIES, AND FORM COLLABORATIONS. WE HIGHLIGHT FOR THE PUBLIC NOTABLE WORK OF SCIENTISTS THROUGH OUR WEBINARS.THOUGH THE YEARS THE RESEARCH FUNDED BY THE HDF HAS BEEN THE CATALYST FOR RESEARCH THAT ISOLATED THE GENE THAT CAUSES HUNTINGTON'S DISEASE.(SEE CONTINUATION ON SCHEDULE O)THIS FINDING LED TO THE DEVELOPMENT OF A GENETIC TEST FOR HD AND LAUNCHING MODERN RESEARCH EFFORTS.THE HDF ADVANCES PARADIGM-CHANGING HUNTINGTON'S RESEARCH THAT DIRECTLY IMPACTS OTHER NEURODEGENERATIVE DISEASES LIKE ALS, PARKINSON'S AND ALZHEIMER'S. WE CHAMPION COLLABORATIVE SCIENCE THROUGH SMALL THINK TANK WORKSHOPS, INTERNATIONAL CONFERENCES AND WEBINARS. WE ENGAGE AND RETAIN THE BRIGHTEST MINDS IN RESEARCH BY FUNDING AND MENTORING EARLY-CAREER SCIENTISTS. HDF-FUNDED RESEARCHERS HAVE MADE SIGNIFICANT STRIDES IN APPLYING ADVANCED TECHNIQUES SUCH AS ARTIFICIAL INTELLIGENCE (AI), CRISPR AND BRAIN MAPPING, LEADING TO TREMENDOUS PROMISE FOR POTENTIAL TREATMENTS.THE HEREDITARY DISEASE FOUNDATION SUPPORTS RESEARCH THROUGH SEVERAL FUNDING OPPORTUNITIES. HDF RESEARCH GRANTS: ONE-YEAR GRANTS PROVIDE SENIOR RESEARCHERS WITH SEED FUNDING TO ENABLE THEM TO COLLECT THE PRELIMINARY DATA NEEDED TO OBTAIN MAJOR, LONG-TERM FUNDING FROM OTHER ORGANIZATIONS, INCLUDING NIH. HDF POSTDOCTORAL FELLOWSHIPS: TWO-YEAR FELLOWSHIPS FUND THE WORK OF EARLY-CAREER SCIENTISTS. THESE FELLOWSHIPS ARE INTENDED TO ENCOURAGE AND CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH. TRANSFORMATIVE RESEARCH AWARDS: THESE MILLION-DOLLAR RESEARCH AWARDS, HDF'S LARGEST GRANTS, FUND COLLABORATIVE RESEARCH TEAMS TO CREATE INNOVATIVE WAYS TO STUDY NEW PATHOGENIC DISEASE MECHANISMS AND TREATMENT MODALITIES IN HUNTINGTON'S DISEASE.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2016953
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2141237
IRS990/Form990PartVIISectionAGrp/PersonNm0MEGHAN DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm1ALICE WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm2KAREN NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3NANCY S WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm4ANNE B YOUNG MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm5BRUCE DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm6C FRANK BENNETT PHD
IRS990/Form990PartVIISectionAGrp/PersonNm7ROBI BLUMENSTEIN
IRS990/Form990PartVIISectionAGrp/PersonNm8BARRY EVENCHICK
IRS990/Form990PartVIISectionAGrp/PersonNm9SANDY FOX
IRS990/Form990PartVIISectionAGrp/PersonNm10TACIE FOX
IRS990/Form990PartVIISectionAGrp/PersonNm11BERTA A GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm12FRANK O GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID HOUSMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm14JOAN LEIMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm15HERBERT PARDES MD
IRS990/Form990PartVIISectionAGrp/PersonNm16LAUREN BAKER PINKUS
IRS990/Form990PartVIISectionAGrp/PersonNm17LESLIE M THOMPSON PHD
IRS990/Form990PartVIISectionAGrp/PersonNm18DAVID ZWALLY
IRS990/Form990PartVIISectionAGrp/PersonNm19TRAVIS CAREY
IRS990/Form990PartVIISectionAGrp/PersonNm20JULIE PORTER
IRS990/Form990PartVIISectionAGrp/PersonNm21SARAH HERNANDEZ
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0110000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1943995
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20112648
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21125220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR THRU 9/23
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIR OF ADMINISTRATION
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIR. OF RESEARCH PROGRAMS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01968
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0211127
IRS990/FundraisingDirectExpensesAmt063088
IRS990/FundraisingGrossIncomeAmt063088
IRS990/GainOrLossGrp/SecuritiesAmt0114523
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt03497370
IRS990/GrantsPayableGrp/BOYAmt01316997
IRS990/GrantsPayableGrp/EOYAmt02968806
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt03019400
IRS990/GrantsToDomesticOrgsGrp/TotalAmt03019400
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt02272494
IRS990/GrossReceiptsAmt04799900
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt01547
IRS990/InsuranceGrp/ManagementAndGeneralAmt0972
IRS990/InsuranceGrp/ProgramServicesAmt05293
IRS990/InsuranceGrp/TotalAmt07812
IRS990/InvestmentIncomeGrp/ExclusionAmt0373677
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0373677
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt012285491
IRS990/InvestmentsPubTradedSecGrp/EOYAmt014760979
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt098022
IRS990/LandBldgEquipBasisNetGrp/BOYAmt05608
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt098022
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt02157971
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER NEURODEGENERATIVE DISORDERS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt015395679
IRS990/NetAssetsOrFundBalancesEOYAmt015142896
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0114523
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0114523
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01944798
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt05592508
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03125464
IRS990/NoncashContributionsAmt011423
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06522
IRS990/OccupancyGrp/ManagementAndGeneralAmt04096
IRS990/OccupancyGrp/ProgramServicesAmt022313
IRS990/OccupancyGrp/TotalAmt032931
IRS990/OfficeExpensesGrp/FundraisingAmt03199
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09635
IRS990/OfficeExpensesGrp/ProgramServicesAmt0625
IRS990/OfficeExpensesGrp/TotalAmt013459
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05405
IRS990/OtherAssetsTotalGrp/EOYAmt05405
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04948
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03125
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt058544
IRS990/OtherEmployeeBenefitsGrp/TotalAmt066617
IRS990/OtherExpensesGrp/Desc0POSTAGE & PRINTING
IRS990/OtherExpensesGrp/Desc1COMPUTER SUPPORT AND MA
IRS990/OtherExpensesGrp/Desc2OTHER EXPENSE
IRS990/OtherExpensesGrp/FundraisingAmt029044
IRS990/OtherExpensesGrp/FundraisingAmt113661
IRS990/OtherExpensesGrp/FundraisingAmt2877
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02551
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt14381
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21933
IRS990/OtherExpensesGrp/ProgramServicesAmt09824
IRS990/OtherExpensesGrp/ProgramServicesAmt112775
IRS990/OtherExpensesGrp/ProgramServicesAmt25067
IRS990/OtherExpensesGrp/TotalAmt041419
IRS990/OtherExpensesGrp/TotalAmt130817
IRS990/OtherExpensesGrp/TotalAmt27877
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS
IRS990/OtherRevenueMiscGrp/ExclusionAmt03396
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt03396
IRS990/OtherRevenueTotalAmt03396
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt054989
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt015352
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0208401
IRS990/OtherSalariesAndWagesGrp/TotalAmt0278742
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06251
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03926
IRS990/PayrollTaxesGrp/ProgramServicesAmt021385
IRS990/PayrollTaxesGrp/TotalAmt031562
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01722568
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01756404
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt015155
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt037315
IRS990/PrincipalOfficerNm0MEGHAN DONALDSON
IRS990/PriorPeriodAdjustmentsAmt0-37787
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04399874
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01142435
IRS990/PYInvestmentIncomeAmt086093
IRS990/PYOtherExpensesAmt01018661
IRS990/PYOtherRevenueAmt036719
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01919381
IRS990/PYSalariesCompEmpBnftPaidAmt0442209
IRS990/PYTotalExpensesAmt02603305
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04522686
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-2159794
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$18,234,308
Liabilities
$3,091,412
Net assets
$15,142,896
Revenue
$2,578,841
Expenses
$4,738,635
Net income
-$2,159,794
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09