Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2015 • EIN 23-7376197

Jan 01, 2015 to Dec 31, 2015 • Filed on Aug 09, 2016

3960 Broadway 6th FloorNew York, NY 10032

(212) 928-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

24th percentile

0.05x

Higher debt load relative to assets than 24% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Liabilities / Revenue

48th percentile

0.23x

Higher debt load relative to revenue than 48% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Net Margin

79th percentile

20%

Higher net margin than 79% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Top Officer Pay

53rd percentile

$180,000

Higher top officer pay than 53% of similar nonprofits.

Top officer pay equals 7.6% of source-year revenue.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Asset Growth

31st percentile

-2.4%

Faster asset growth than 31% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Revenue Growth

6th percentile

-44%

Faster revenue growth than 6% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Assets

Down

$11,110,344

Down $267,730 (-2.4%) from 2014

Net Assets

Down

$10,578,414

Down $199,482 (-1.9%) from 2014

Liabilities

Down

$531,930

Down $68,248 (-11%) from 2014

Revenue

Down

$2,358,172

Down $1,851,775 (-44%) from 2014

Expenses

Up

$1,887,144

Up $39,057 (+2.1%) from 2014

Net Income

Down

$471,028

Down $1,890,832 (-80%) from 2014

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2015

Assets$11,110,344
Liabilities$531,930
Net Assets$10,578,414

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2015

Revenue$2,358,172
Expenses$1,887,144
Net Income$471,028
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Aug 9, 2016
Return Version
2015v2.1
Gross Receipts
$4,432,954
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

The purpose of the foundation is to support and fund scientific research seeking to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, in particular, huntington's disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,915,250$5,635,528▼ $279,722
Investments Other Securities$4,296,091$4,427,330▲ $131,239
Pledges and Grants Receivable$838,133$743,274▼ $94,859
Cash and Non-Interest-Bearing Accounts$307,549$283,161▼ $24,388
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$11,378,074$11,110,344▼ $267,730
Other Assets Total$21,051$21,051→ $0
Liabilities
Grants Payable$471,624$457,297▼ $14,327
Accounts Payable and Accrued Expenses$128,554$74,633▼ $53,921
Total Liabilities$600,178$531,930▼ $68,248
Net Assets / Fund Balance
Permanently Rstr Net Assets$8,525,000$8,525,000→ $0
Temporarily Rstr Net Assets$2,538,568$2,017,004▼ $521,564
Unrestricted Net Assets$-285,672$36,410▲ $322,082
Total Net Assets Fund Balance$10,777,896$10,578,414▼ $199,482
Total Liabilities and Net Assets / Fund Balance$11,378,074$11,110,344▼ $267,730

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$0$401,737$401,737
Other Land Buildings$0$36,869$36,869
Other Securities$1,226,758--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$8,250,520-▼ $225,617$458,759$7,566,144
2014$8,512,186-▲ $205,358$467,024$8,250,520
2013$7,703,889-▲ $1,233,025$424,728$8,512,186
2012$7,373,196-▲ $719,433$388,740$7,703,889
2011$7,953,844-▼ $173,007$407,641$7,373,196
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Jonathan GuestChief Executive Officer & Vice Pres.FT$180,000$180,000
Frank MuchaCFO & Treasurer Thru Aug 2015FT$74,375$74,375
Travis CareyChief Financial OfficerPT$29,850$29,850

Highest Paid Contractors

ContractorServicesLocationCompensation
Mccarter & English LLPLegal100 MILBERRY STREET, Newark, NJ 07102$116,074
Revenue and Support

Revenue Composition

Contributions and Grants
$1,886,920
Program Service Revenue
$0
Investment Income
$539,898
Other Revenue
$-68,646
All Other Contributions
$1,080,464
Change in Net Assets
$471,028

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$147,972Fair Market Value
Total Noncash Contributions4$147,972-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,417,121
Revenue Not Reported on Financial Statements
$-58,949
Revenue Not Reported on Form 990
$-570,510
Other Revenue Adjustments
$-119,190
Total Revenue per Audited Statements
$1,846,611
Total Revenue per Form 990
$2,358,172
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$793,978
Salaries, Compensation, and Employee Benefits$640,043
Other Expenses$453,123
Total Fundraising Expense$63,619
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$391,736--$391,736
Current Officers, Directors, Trustees, and Key Employees$91,680$185,537$7,008$284,225
Other Salaries and Wages$209,206$54,670$19,718$283,594
Foreign Grants$260,547--$260,547
Occupancy$76,623$77,960$7,380$161,963
Grants to Domestic Orgs$141,695--$141,695
Conferences and Meetings$75,505--$75,505
Office Expenses$20,921$24,694$24,438$70,053
Fees for Service Investment Mgmnt Fees-$60,241-$60,241
Fees for Services Other-$47,560-$47,560
Other Employee Benefits$21,831$17,163$785$39,779
Payroll Taxes$21,613$9,319$1,513$32,445
Travel$3,340$8,237$2,702$14,279
Insurance$8,959$2,974-$11,933
Other Expenses$5,625$5,889$75$11,589
Total Functional Expenses$1,329,281$494,244$63,619$1,887,144

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,046,093
Total Expenses per Form 990$1,887,144
Expenses per Audited Statements$1,826,903
Expenses Not Reported on Form 990$219,190
Expenses Not Reported on Financial Statements$60,241
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
New York Genome CenterNew York, NY-Research$89,725
New Your Brain BankNew York, NY-Research$46,970
Gordon ConferenceWest Kingston, RI-Research$5,000

International Summary

Offices
1
Employees
1
Spending
$66,355

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South America - Argentina, Bolivia, Brazil, Chile, Columbia, Ecuador,Program ServicesOPERATION OF A CLINIC AND NURSING HOME FOR HUNTINGTON'S PATIENTS.11$66,355
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$153,921
Fundraising Gross Income$50,544
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$713,540$43,750$85,888$-42,138
Gigi on Broadway$143,460$6,794$250$6,544
Total Events$857,000$50,544$153,921$-103,377
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors.

Form 990, Part VI, Section B, Line 11

The foundation provides the 990 to the board of directors for approval.

Form 990, Part VI, Section B, Line 12C

Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.

Form 990, Part VI, Section B, Line 15

A written employee contract is established and approved by the board or compensation committee.

Form 990, Part VI, Section C, Line 19

The foundation makes governing documents and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129282121
Address
3960 BROADWAY 6TH FLOOR, NEW YORK, NY 10032

Signing Officer

Name
Jonathan C Guest
Title
CEO
Phone
2129282121
Signed
2016-08-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jonathan C Guest
Formed
1968
Legal Domicile
CA
Voting Board Members
17
Independent Board Members
16
Employees
5
Volunteers
1

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
21 EAST MAIN STREET, WESTBORO, MA 01581
Preparer
Robin Kelley CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

INSURANCE GAIN 34,764.

FORM 990, PART XII, LINE 2C:

The foundation's audit committee assumes responsibility for the oversight of the audit.

Financial Statement Notes

PART III, LINE 1A:

Collections of works of art.

PART V, LINE 4:

The foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including huntington's disease.

PART X, LINE 2:

The foundation accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. The foundation has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2015.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

INSURANCE GAIN 34,764.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Special event expense -153,921. Recovered grants 34,731.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Special events expense 153,921. Recovered grants -34,731.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0CHIEF EXECUTIVE OFFICER & VICE PRES.
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CFO & TREASURER THRU AUG 2015
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IRS990/MissionDesc0THE PURPOSE OF THE FOUNDATION IS TO SUPPORT AND FUND SCIENTIFIC RESEARCH SEEKING TO FURTHER THE UNDERSTANDING OF, AND TO DEVELOP DIAGNOSTICS AND THERAPEUTICS FOR, NEURODEGENERATIVE DISEASES, IN PARTICULAR, HUNTINGTON'S DISEASE.
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