Liabilities / Assets
24th percentile
Higher debt load relative to assets than 24% of similar nonprofits.
990 • Fiscal year 2015 • EIN 23-7376197
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
24th percentile
Higher debt load relative to assets than 24% of similar nonprofits.
Liabilities / Revenue
48th percentile
Higher debt load relative to revenue than 48% of similar nonprofits.
Net Margin
79th percentile
Higher net margin than 79% of similar nonprofits.
Top Officer Pay
53rd percentile
Higher top officer pay than 53% of similar nonprofits.
Top officer pay equals 7.6% of source-year revenue.
Asset Growth
31st percentile
Faster asset growth than 31% of similar nonprofits.
Revenue Growth
6th percentile
Faster revenue growth than 6% of similar nonprofits.
Assets
Down$11,110,344
Down $267,730 (-2.4%) from 2014
Net Assets
Down$10,578,414
Down $199,482 (-1.9%) from 2014
Liabilities
Down$531,930
Down $68,248 (-11%) from 2014
Revenue
Down$2,358,172
Down $1,851,775 (-44%) from 2014
Expenses
Up$1,887,144
Up $39,057 (+2.1%) from 2014
Net Income
Down$471,028
Down $1,890,832 (-80%) from 2014
To fund innovative research towards curing huntington's disease and impacting other brain disorders.
The purpose of the foundation is to support and fund scientific research seeking to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, in particular, huntington's disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $5,915,250 | $5,635,528 | ▼ $279,722 |
| Investments Other Securities | $4,296,091 | $4,427,330 | ▲ $131,239 |
| Pledges and Grants Receivable | $838,133 | $743,274 | ▼ $94,859 |
| Cash and Non-Interest-Bearing Accounts | $307,549 | $283,161 | ▼ $24,388 |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $11,378,074 | $11,110,344 | ▼ $267,730 |
| Other Assets Total | $21,051 | $21,051 | → $0 |
| Liabilities | |||
| Grants Payable | $471,624 | $457,297 | ▼ $14,327 |
| Accounts Payable and Accrued Expenses | $128,554 | $74,633 | ▼ $53,921 |
| Total Liabilities | $600,178 | $531,930 | ▼ $68,248 |
| Net Assets / Fund Balance | |||
| Permanently Rstr Net Assets | $8,525,000 | $8,525,000 | → $0 |
| Temporarily Rstr Net Assets | $2,538,568 | $2,017,004 | ▼ $521,564 |
| Unrestricted Net Assets | $-285,672 | $36,410 | ▲ $322,082 |
| Total Net Assets Fund Balance | $10,777,896 | $10,578,414 | ▼ $199,482 |
| Total Liabilities and Net Assets / Fund Balance | $11,378,074 | $11,110,344 | ▼ $267,730 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Leasehold Improvements | $0 | $401,737 | $401,737 |
| Other Land Buildings | $0 | $36,869 | $36,869 |
| Other Securities | $1,226,758 | - | - |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2015 | $8,250,520 | - | ▼ $225,617 | $458,759 | $7,566,144 |
| 2014 | $8,512,186 | - | ▲ $205,358 | $467,024 | $8,250,520 |
| 2013 | $7,703,889 | - | ▲ $1,233,025 | $424,728 | $8,512,186 |
| 2012 | $7,373,196 | - | ▲ $719,433 | $388,740 | $7,703,889 |
| 2011 | $7,953,844 | - | ▼ $173,007 | $407,641 | $7,373,196 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Jonathan Guest | Chief Executive Officer & Vice Pres. | FT | $180,000 | $180,000 |
| Frank Mucha | CFO & Treasurer Thru Aug 2015 | FT | $74,375 | $74,375 |
| Travis Carey | Chief Financial Officer | PT | $29,850 | $29,850 |
| Name | Title |
|---|---|
| David Zwally | Chair |
| Nancy S Wexler Phd | President |
| Anne B Young Md Phd | Vice Chair |
| Arthur Golding Md | Director |
| Berta a Gehry | Director |
| David Gerstenhaber | Director |
| David Housman Phd | Director |
| Frank O Gehry | Director |
| Herbert Pardes Md | Director |
| Joan Leiman | Director |
| Jonathan Matz | Director |
| Kelly Posner Gerstenhaber Phd | Director |
| Robi Blumenstein | Director |
| Sandy Fox | Director |
| Alice Wexler Phd | Secretary |
| Bruce Donaldson | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Mccarter & English LLP | Legal | 100 MILBERRY STREET, Newark, NJ 07102 | $116,074 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 4 | $147,972 | Fair Market Value |
| Total Noncash Contributions | 4 | $147,972 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $793,978 |
| Salaries, Compensation, and Employee Benefits | $640,043 |
| Other Expenses | $453,123 |
| Total Fundraising Expense | $63,619 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Individuals | $391,736 | - | - | $391,736 |
| Current Officers, Directors, Trustees, and Key Employees | $91,680 | $185,537 | $7,008 | $284,225 |
| Other Salaries and Wages | $209,206 | $54,670 | $19,718 | $283,594 |
| Foreign Grants | $260,547 | - | - | $260,547 |
| Occupancy | $76,623 | $77,960 | $7,380 | $161,963 |
| Grants to Domestic Orgs | $141,695 | - | - | $141,695 |
| Conferences and Meetings | $75,505 | - | - | $75,505 |
| Office Expenses | $20,921 | $24,694 | $24,438 | $70,053 |
| Fees for Service Investment Mgmnt Fees | - | $60,241 | - | $60,241 |
| Fees for Services Other | - | $47,560 | - | $47,560 |
| Other Employee Benefits | $21,831 | $17,163 | $785 | $39,779 |
| Payroll Taxes | $21,613 | $9,319 | $1,513 | $32,445 |
| Travel | $3,340 | $8,237 | $2,702 | $14,279 |
| Insurance | $8,959 | $2,974 | - | $11,933 |
| Other Expenses | $5,625 | $5,889 | $75 | $11,589 |
| Total Functional Expenses | $1,329,281 | $494,244 | $63,619 | $1,887,144 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,046,093 |
| Total Expenses per Form 990 | $1,887,144 |
| Expenses per Audited Statements | $1,826,903 |
| Expenses Not Reported on Form 990 | $219,190 |
| Expenses Not Reported on Financial Statements | $60,241 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| New York Genome Center | New York, NY | - | Research | $89,725 |
| New Your Brain Bank | New York, NY | - | Research | $46,970 |
| Gordon Conference | West Kingston, RI | - | Research | $5,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| South America - Argentina, Bolivia, Brazil, Chile, Columbia, Ecuador, | Program Services | OPERATION OF A CLINIC AND NURSING HOME FOR HUNTINGTON'S PATIENTS. | 1 | 1 | $66,355 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $153,921 |
| Fundraising Gross Income | $50,544 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala | $713,540 | $43,750 | $85,888 | $-42,138 |
| Gigi on Broadway | $143,460 | $6,794 | $250 | $6,544 |
| Total Events | $857,000 | $50,544 | $153,921 | $-103,377 |
“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors.”
“The foundation provides the 990 to the board of directors for approval.”
“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”
“A written employee contract is established and approved by the board or compensation committee.”
“The foundation makes governing documents and financial statements available to the public upon request.”
“INSURANCE GAIN 34,764.”
“The foundation's audit committee assumes responsibility for the oversight of the audit.”
“Collections of works of art.”
“The foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including huntington's disease.”
“The foundation accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. The foundation has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2015.”
“INSURANCE GAIN 34,764.”
“Special event expense -153,921. Recovered grants 34,731.”
“Special events expense 153,921. Recovered grants -34,731.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 128554 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 74633 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE PURPOSE OF THE FOUNDATION IS TO SUPPORT AND FUND SCIENTIFIC RESEARCH SEEKING TO FURTHER THE UNDERSTANDING OF, AND TO DEVELOP DIAGNOSTICS AND THERAPEUTICS FOR, NEURODEGENERATIVE DISEASES, IN PARTICULAR, HUNTINGTON'S DISEASE. |
| IRS990/AllOtherContributionsAmt | 0 | 1080464 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | JONATHAN C GUEST |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2129282121 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3960 BROADWAY 6TH FLOOR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10032 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 307549 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 283161 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 1 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 7008 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 185537 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 91680 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 284225 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 75505 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 75505 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 116074 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 100 MILBERRY STREET |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | NEWARK |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 07102 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | MCCARTER & ENGLISH LLP |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | LEGAL |
| IRS990/ContriRptFundraisingEventAmt | 0 | 806456 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1886920 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 793978 |
| IRS990/CYInvestmentIncomeAmt | 0 | 539898 |
| IRS990/CYOtherExpensesAmt | 0 | 453123 |
| IRS990/CYOtherRevenueAmt | 0 | -68646 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 471028 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 640043 |
| IRS990/CYTotalExpensesAmt | 0 | 1887144 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 63619 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2358172 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE STARTING POINT FOR MOST RESEARCH HAS BEEN THE QUESTION OF HOW THE EXPANSION OF A POLYGLUTAMINE TRACT IN A PROTEIN CALLED HUNTINGTIN CAN LEAD TO NEURODEGENERATIVE DISEASE. MUCH OF THE RESEARCH FOCUS HAS BEEN ON THE ASSAYS THAT WILL ALLOW HIGH THROUGH-PUT SCREENINGS OF MOLECULES THAT CAN BE TURNED INTO MEDICINES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1329281 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 47560 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 47560 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 60241 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 60241 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 260547 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 260547 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 35.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JONATHAN GUEST |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | NANCY S WEXLER PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ALICE WEXLER PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | FRANK O GEHRY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DAVID HOUSMAN PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JOAN LEIMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JONATHAN MATZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HERBERT PARDES MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ANNE B YOUNG MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | DAVID ZWALLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ROBI BLUMENSTEIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | BRUCE DONALDSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | SANDY FOX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | BERTA A GEHRY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | DAVID GERSTENHABER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | KELLY POSNER GERSTENHABER PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | ARTHUR GOLDING MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | TRAVIS CAREY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | FRANK MUCHA |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 180000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 29850 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 74375 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHIEF EXECUTIVE OFFICER & VICE PRES. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | CHIEF FINANCIAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | CFO & TREASURER THRU AUG 2015 |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1968 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 806456 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 153921 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 50544 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 271983 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 17 |
| IRS990/GrantAmt | 0 | 793978 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 471624 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 457297 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 391736 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 391736 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 141695 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 141695 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 1 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 2192844 |
| IRS990/GrossReceiptsAmt | 0 | 4432954 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 16 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2974 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 8959 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 11933 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 267915 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 267915 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 4296091 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 4427330 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 5915250 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 5635528 |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 438606 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 438606 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1920861 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE PURPOSE OF THE FOUNDATION IS TO SUPPORT AND FUND SCIENTIFIC RESEARCH SEEKING TO FURTHER THE UNDERSTANDING OF, AND TO DEVELOP DIAGNOSTICS AND THERAPEUTICS FOR, NEURODEGENERATIVE DISEASES, IN PARTICULAR, HUNTINGTON'S DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 1 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 10777896 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 10578414 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 271983 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 271983 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -103377 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -103377 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -705274 |
| IRS990/NoncashContributionsAmt | 0 | 147972 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7380 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 77960 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 76623 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 161963 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 24438 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 24694 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 20921 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 70053 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 21051 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 21051 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 34764 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 785 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 17163 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 21831 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 39779 |
| IRS990/OtherExpensesGrp/Desc | 0 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 75 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5889 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 5625 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 11589 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 999999 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 34731 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 34731 |
| IRS990/OtherRevenueTotalAmt | 0 | 34731 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 19718 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 54670 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 209206 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 283594 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1513 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 9319 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 21613 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 32445 |
| IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt | 0 | 8525000 |
| IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt | 0 | 8525000 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 838133 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 743274 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | JONATHAN C GUEST |
| IRS990/ProfessionalFundraisingInd | 0 | 1 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 3133228 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 419159 |
| IRS990/PYInvestmentIncomeAmt | 0 | 972849 |
| IRS990/PYOtherExpensesAmt | 0 | 1015644 |
| IRS990/PYOtherRevenueAmt | 0 | 103870 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 2361860 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 413284 |
| IRS990/PYTotalExpensesAmt | 0 | 1848087 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 4209947 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 471028 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1886920 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2670705 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1120348 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1951430 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 661521 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 8290924 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 267915 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 305949 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 263221 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 311905 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 308662 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1457652 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.70560 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.64090 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6878444 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1412480 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1886920 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2670705 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1120348 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1951430 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 661521 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 8290924 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 9748576 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/CollectionUsedOtherPurposesGrp/CollectionUsedOtherPurposesInd | 0 | X |
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Displayed year
2015 • Form 990Detailed filing. Detailed filing data is available for this year.