Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2016 • EIN 23-7376197

Jan 01, 2016 to Dec 31, 2016 • Filed on May 15, 2017

Organization ProfileHDFOUNDATION.ORG

View Organization Page

3960 Broadway 6th FloorNew York, NY 10032

(212) 928-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

25th percentile

0.05x

Higher debt load relative to assets than 25% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Liabilities / Revenue

50th percentile

0.25x

Higher debt load relative to revenue than 50% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Net Margin

71st percentile

10%

Higher net margin than 71% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Top Officer Pay

57th percentile

$195,000

Higher top officer pay than 57% of similar nonprofits.

Top officer pay equals 8.5% of source-year revenue.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Asset Growth

64th percentile

5.6%

Faster asset growth than 64% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Revenue Growth

32nd percentile

-2.9%

Faster revenue growth than 32% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets25th percentile

Assets

Up

$11,731,003

Up $620,659 (+5.6%) from 2015

Net Assets

Up

$11,165,260

Up $586,846 (+5.5%) from 2015

Liabilities

Up

$565,743

Up $33,813 (+6.4%) from 2015

Revenue And Expenses
Liabilities / Revenue50th percentileNet Margin71st percentile

Revenue

Down

$2,289,333

Down $68,839 (-2.9%) from 2015

Expenses

Up

$2,049,110

Up $161,966 (+8.6%) from 2015

Net Income

Down

$240,223

Down $230,805 (-49%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2016

Assets$11,731,003
Liabilities$565,743
Net Assets$11,165,260
Open 2016 Filing

Operations Trend

Revenue Growth32nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2016

Revenue$2,289,333
Expenses$2,049,110
Net Income$240,223
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
May 15, 2017
Return Version
2016v3.0
Gross Receipts
$6,351,269
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,836,100$9,075,265▲ $239,165
Savings and Temporary Cash Investments$1,226,758$1,245,563▲ $18,805
Cash and Non-Interest-Bearing Accounts$283,161$820,716▲ $537,555
Pledges and Grants Receivable$743,274$568,408▼ $174,866
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$11,110,344$11,731,003▲ $620,659
Other Assets Total$21,051$21,051→ $0
Liabilities
Grants Payable$457,297$560,110▲ $102,813
Accounts Payable and Accrued Expenses$74,633$5,633▼ $69,000
Total Liabilities$531,930$565,743▲ $33,813
Net Assets / Fund Balance
Permanently Rstr Net Assets$8,525,000$8,525,000→ $0
Temporarily Rstr Net Assets$2,017,004$2,418,783▲ $401,779
Unrestricted Net Assets$36,410$221,477▲ $185,067
Total Net Assets Fund Balance$10,578,414$11,165,260▲ $586,846
Total Liabilities and Net Assets / Fund Balance$11,110,344$11,731,003▲ $620,659

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$0$401,737$401,737
Other Land Buildings$0$36,869$36,869

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$7,566,144-▲ $580,315$446,040$7,700,419
2015$8,250,520-▼ $225,617$458,759$7,566,144
2014$8,512,186-▲ $205,358$467,024$8,250,520
2013$7,703,889-▲ $1,233,025$424,728$8,512,186
2012$7,373,196-▲ $719,433$388,740$7,703,889
Compensation and Service Providers
Top Officer Pay57th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jonathan GuestCEO Thru Dec 2016FT$195,000$195,000

Board Members and Trustees

NameTitle
David ZwallyChair
Nancy S Wexler PhdPresident
Anne B Young Md PhdVice Chair
Arthur Golding MdDirector
Berta a GehryDirector
David GerstenhaberDirector
David Housman PhdDirector
Frank O GehryDirector
Herbert Pardes MdDirector
Joan LeimanDirector
Karen NewmanDirector
Kelly Posner Gerstenhaber PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Travis CareyChief Financial Officer
Alice Wexler PhdSecretary
Bruce DonaldsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,107,686
Program Service Revenue
$0
Investment Income
$288,736
Other Revenue
$-107,089
All Other Contributions
$1,613,244
Change in Net Assets
$240,223

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,367,128
Revenue Not Reported on Financial Statements
$-77,795
Revenue Not Reported on Form 990
$446,623
Other Revenue Adjustments
$-132,839
Total Revenue per Audited Statements
$2,813,751
Total Revenue per Form 990
$2,289,333
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$821,719
Grants and Similar Amounts Paid$734,444
Salaries, Compensation, and Employee Benefits$492,947
Total Fundraising Expense$167,668
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$420,437--$420,437
Grants to Domestic Individuals$370,000--$370,000
Grants to Domestic Orgs$253,049--$253,049
Current Officers, Directors, Trustees, and Key Employees$158,655$62,483$29,250$250,388
Other Salaries and Wages$130,727$18,189$30,002$178,918
Occupancy$128,469$16,904$23,665$169,038
Foreign Grants$111,395--$111,395
Office Expenses$19,119$8,350$72,606$100,075
Fees for Service Investment Mgmnt Fees-$55,044-$55,044
Fees for Services Other-$50,872-$50,872
Other Employee Benefits$25,842$4,785$7,657$38,284
Payroll Taxes$16,034$5,175$4,148$25,357
Insurance$8,008$2,993-$11,001
Other Expenses$3,487$6,919$225$10,631
Travel$662$3,844$115$4,621
Total Functional Expenses$1,645,884$235,558$167,668$2,049,110

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,226,905
Total Expenses per Form 990$2,049,110
Expenses per Audited Statements$1,994,066
Expenses Not Reported on Form 990$232,839
Expenses Not Reported on Financial Statements$55,044
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
New York Genome CenterNew York, NY-Research$165,267
New Your Brain BankNew York, NY-Research$46,980
Buck InstituteNovato, CA-Research$25,000
Gladstone InstituteSan Francisco, CA-Research$15,802

International Summary

Offices
3
Employees
3
Spending
$111,395

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South America - VenezuelaProgram ServicesOPERATION OF A CLINIC AND NURSING HOME FOR HUNTINGTON'S PATIENTS11$55,395
Bordeaux, FranceGrants to Recipients Located in RegionScientific Research11$50,000
Ontario, CanadaGrants to Recipients Located in RegionScientific Research11$6,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$132,839
Fundraising Gross Income$25,750
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$520,192$25,750$87,311$-61,561
Total Events$520,192$25,750$132,839$-107,089
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Section C, Line 19

“The foundation makes governing documents and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129282121
Address
3960 BROADWAY 6TH FLOOR, NEW YORK, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Phone
2129282121
Signed
2017-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
17
Independent Board Members
16
Employees
5
Volunteers
1

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
21 EAST MAIN STREET, WESTBOROUGH, MA 01581
Preparer
John Buckley CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The foundation's audit committee assumes responsibility for the oversight of the audit.”

Financial Statement Notes

PART III, LINE 1A:

“The collections, which consist of artwork, were acquired through purchases and contributions since the foundation's inception, and are not recognized as assets in the accompanying statements of financial position at december 31, 2016, as their value is not determinable.”

PART V, LINE 4:

“The foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including huntington's disease.”

PART X, LINE 2:

“The foundation accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. The foundation has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2016.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Special event expense -132,839.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special events expense 132,839.”

Raw XML AppendixShowing 400 of 703 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE HEREDITARY DISEASE FOUNDATION WISHES TO CELEBRATE OUR UPCOMING 50TH BIRTHDAY BY MAKING EVEN MORE OF AN IMPACT TO DEVELOP NOVEL THERAPEUTICS AND CURES. WE ARE PUTTING IN PLACE STRATEGIES AND NEW GRANT FUNDING PROGRAMS TO MAXIMIZE OUR EFFECTIVENESS. WE HAVE BEEN FUNDING CATALYTIC AND PARADIGM-CHANGING RESEARCH SINCE OUR BIRTH - INCLUDING IDENTIFYING THE HUNTINGTON'S DISEASE MARKER IN 1983 AND THE HD GENE IN 1993, AND SUPPORTING GENE SILENCING APPROACHES SINCE 2002. WE WANT TO CONTINUE TO MAKE AN IMPACT BY FUNDING RESEARCH THAT PUSHES THE ENVELOPE. THE HEREDITARY DISEASE FOUNDATION PROVIDES FUNDING FOR RESEARCH THAT ADVANCES THE DISCOVERY AND DEVELOPMENT OF TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER BRAIN DISORDERS. WE ARE PASSIONATE ABOUT FINDING AND FUNDING THE MOST INNOVATIVE, CREATIVE AND PARADIGM-CHANGING RESEARCH POSSIBLE. THE DATA GENERATED WITH HDF FUNDING OFTEN ALLOWS RESEARCHERS TO GET INITIAL FINDINGS THAT HELP THEM APPLY SUCCESSFULLY FOR LARGER, LONG-TERM FUNDING FROM OTHER FUNDING AGENCIES, INCLUDING THE NATIONAL INSTITUTES OF HEALTH. THE FOUNDATION'S CURRENT FOCUS IS ON 1) MODIFIER STUDIES - ON DNA REPAIR PATHWAYS, PROTEIN DEGRADATION AND OTHER MODIFIERS OF PHENOTYPE AND AGE OF ONSET AND 2) RESEARCH MECHANISMS OF HD NEURODEGENERATION AND BIOMARKERS AND THERAPY FOR HD-INDUCED NEURODEGENERATION.TYPE OF FUNDING:THE BASIC RESEARCH GRANTS PROGRAM: SUPPORTS PROJECTS CONTRIBUTING TO IDENTIFYING AND UNDERSTANDING THE FUNDAMENTAL DEFECTS IN HUNTINGTON'S DISEASE.POSTDOCTORAL FELLOWSHIPS: THESE POSTDOCTORAL FELLOWSHIPS ARE INTENDED TO CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH BY BRIGHT YOUNG SCIENTISTS. FELLOWSHIPS ARE GRANTED TO THOSE WHO POSSESS IMAGINATION, RIGOR, CREATIVITY AND SPIRIT TO PUSH FORWARD TOWARD A CURE FOR HD AND ENSURE THAT THESE LEARNING CAN BE APPLIED TO OTHER BRAIN DISEASES.
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IRS990/Form990PartVIISectionAGrp/PersonNm15ARTHUR GOLDING MD
IRS990/Form990PartVIISectionAGrp/PersonNm16KAREN NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm17TRAVIS CAREY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0195000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO THRU DEC 2016
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF FINANCIAL OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01968
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0494442
IRS990/FundraisingDirectExpensesAmt0132839
IRS990/FundraisingGrossIncomeAmt025750
IRS990/GainOrLossGrp/SecuritiesAmt015503
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt0734444
IRS990/GrantsPayableGrp/BOYAmt0457297
IRS990/GrantsPayableGrp/EOYAmt0560110
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0370000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0370000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0253049
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0253049
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt03944600
IRS990/GrossReceiptsAmt06351269
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt02993
IRS990/InsuranceGrp/ProgramServicesAmt08008
IRS990/InsuranceGrp/TotalAmt011001
IRS990/InvestmentIncomeGrp/ExclusionAmt0273233
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0273233
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt08836100
IRS990/InvestmentsPubTradedSecGrp/EOYAmt09075265
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0438606
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0438606
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt03929097
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER BRAIN DISORDERS.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt010578414
IRS990/NetAssetsOrFundBalancesEOYAmt011165260
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt015503
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt015503
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-107089
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-107089
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0346623
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt023665
IRS990/OccupancyGrp/ManagementAndGeneralAmt016904
IRS990/OccupancyGrp/ProgramServicesAmt0128469
IRS990/OccupancyGrp/TotalAmt0169038
IRS990/OfficeExpensesGrp/FundraisingAmt072606
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt08350
IRS990/OfficeExpensesGrp/ProgramServicesAmt019119
IRS990/OfficeExpensesGrp/TotalAmt0100075
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt021051
IRS990/OtherAssetsTotalGrp/EOYAmt021051
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07657
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt04785
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt025842
IRS990/OtherEmployeeBenefitsGrp/TotalAmt038284
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt0225
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt06919
IRS990/OtherExpensesGrp/ProgramServicesAmt03487
IRS990/OtherExpensesGrp/TotalAmt010631
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt030002
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018189
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0130727
IRS990/OtherSalariesAndWagesGrp/TotalAmt0178918
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04148
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05175
IRS990/PayrollTaxesGrp/ProgramServicesAmt016034
IRS990/PayrollTaxesGrp/TotalAmt025357
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt08525000
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt08525000
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0743274
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0568408
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0MEGHAN DONALDSON
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01886920
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0793978
IRS990/PYInvestmentIncomeAmt0539898
IRS990/PYOtherExpensesAmt0453123
IRS990/PYOtherRevenueAmt0-68646
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0471028
IRS990/PYSalariesCompEmpBnftPaidAmt0640043
IRS990/PYTotalExpensesAmt01887144
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02358172
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0240223
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01226758
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01245563
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02107686
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01886920
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02670705
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01120348
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01951430
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt09737089
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0273233
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0267915
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0305949
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0263221
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0311905
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01422223
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.65180
IRS990ScheduleA/PublicSupportPY170Pct00.70560
IRS990ScheduleA/PublicSupportTotal170Amt07273921
IRS990ScheduleA/SubstantialContributorsTotAmt02463168
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02107686
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01886920
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt02670705
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01120348
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01951430
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt09737089
IRS990ScheduleA/TotalSupportAmt011159312
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/CollectionUsedOtherPurposesInd0X
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/OtherPurposesDesc0ARTWORK
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt07566144
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt07700419
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt0580315
IRS990ScheduleD/CYEndwmtFundGrp/OtherExpendituresAmt0446040
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt08250520
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt07566144
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0-225617
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/OtherExpendituresAmt0458759
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt08512186
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt08250520
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0205358
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/OtherExpendituresAmt0467024
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt07703889
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt08512186
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt01233025
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/OtherExpendituresAmt0424728
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt07373196
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt07703889
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0719433
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/OtherExpendituresAmt0388740

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,731,003
Liabilities
$565,743
Net assets
$11,165,260
Revenue
$2,289,333
Expenses
$2,049,110
Net income
$240,223
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09