Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2022 • EIN 23-7376197

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 15, 2023

Organization ProfileWWW.HDFOUNDATION.ORG

View Organization Page

601 West 168th Street 54New York, NY 10032

(212) 981-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

37th percentile

0.08x

Higher debt load relative to assets than 37% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.31x

Higher debt load relative to revenue than 58% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Net Margin

86th percentile

42%

Higher net margin than 86% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Top Officer Pay

33rd percentile

$132,468

Higher top officer pay than 33% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Asset Growth

25th percentile

-7.5%

Faster asset growth than 25% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Revenue Growth

70th percentile

18%

Faster revenue growth than 70% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets37th percentile

Assets

Down

$16,776,193

Down $1,369,419 (-7.5%) from 2021

Net Assets

Down

$15,395,679

Down $419,916 (-2.7%) from 2021

Liabilities

Down

$1,380,514

Down $949,503 (-41%) from 2021

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin86th percentile

Revenue

Up

$4,522,686

Up $676,037 (+18%) from 2021

Expenses

Down

$2,603,305

Down $364,319 (-12%) from 2021

Net Income

Up

$1,919,381

Up $1,040,356 (+118%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth25th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2022

Assets$16,776,193
Liabilities$1,380,514
Net Assets$15,395,679
Open 2022 Filing

Operations Trend

Revenue Growth70th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2022

Revenue$4,522,686
Expenses$2,603,305
Net Income$1,919,381
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 15, 2023
Return Version
2022v5.0
Gross Receipts
$4,852,401
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

Funding innovative research to cure huntington's disease and impacting other brain disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$15,845,874$12,285,491▼ $3,560,383
Cash and Non-Interest-Bearing Accounts$1,258,423$2,725,218▲ $1,466,795
Pledges and Grants Receivable$962,814$1,722,568▲ $759,754
Savings and Temporary Cash Investments$43,221$16,748▼ $26,473
Prepaid Expenses and Deferred Charges$4,663$15,155▲ $10,492
Land, Buildings, and Equipment, Net$25,212$5,608▼ $19,604
Total Assets$18,145,612$16,776,193▼ $1,369,419
Other Assets Total$5,405$5,405→ $0
Liabilities
Grants Payable$2,288,342$1,316,997▼ $971,345
Accounts Payable and Accrued Expenses$41,675$63,517▲ $21,842
Total Liabilities$2,330,017$1,380,514▼ $949,503
Net Assets / Fund Balance
Net Assets With Donor Restrictions$9,803,171$9,803,171→ $0
Net Assets Without Donor Restrictions$6,012,424$5,592,508▼ $419,916
Total Net Assets Fund Balance$15,815,595$15,395,679▼ $419,916
Total Liabilities and Net Assets / Fund Balance$18,145,612$16,776,193▼ $1,369,419

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$5,608$92,414$98,022

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2022$10,244,052---$10,244,052
2021$10,244,052---$10,244,052
2020$9,703,171-▲ $1,026,040$485,159$10,244,052
2019$8,534,335-▲ $1,595,553$426,717$9,703,171
2018$8,401,672$676,151▼ $543,488-$8,534,335
Compensation and Service Providers
Top Officer Pay33rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Julie PorterHead of ScienceFT$103,600$28,868$132,468
Meghan DonaldsonCEOFT$110,000-$110,000
Travis CareyCFO-$11,516-$11,516

Board Members and Trustees

NameTitle
Karen NewmanChair
Nancy S Wexler PhdPresident
Anne B Young Md PhdVice Chair
Barry EvenchickDirector
Berta a GehryDirector
C Frank Bennett PhdDirector
David Housman PhdDirector
David ZwallyDirector
Frank O GehryDirector
Herbert Pardes MdDirector
Joan Leiman PhdDirector
Kelly Posner Gerstenhaber PhdDirector
Lauren Baker PinkusDirector
Leslie M Thompson PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Tacie FoxDirector
Alice Wexler PhdSecretary
Bruce DonaldsonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Fly On The Wall ProductionsVideography & Photography68 JAY STREET 618, Brooklyn, NY 11201$161,982
Susan Quinlan Martin INCEvent Planner Gala 202110 MITCHELL PLACE STE 3 H, New York, NY 10017$113,000
Revenue and Support

Revenue Composition

Contributions and Grants
$4,399,874
Program Service Revenue
$0
Investment Income
$86,093
Other Revenue
$36,719
All Other Contributions
$4,102,292
Change in Net Assets
$1,919,381
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,142,435
Other Expenses$1,018,661
Salaries, Compensation, and Employee Benefits$442,209
Total Fundraising Expense$289,422
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$729,049--$729,049
Foreign Grants$413,386--$413,386
Fees for Services Other$202,034$42,542$151,514$396,090
Conferences and Meetings$345,927$1,938$4,620$352,485
Other Salaries and Wages$163,100$13,984$35,900$212,984
Current Officers, Directors, Trustees, and Key Employees$55,000$44,516$22,000$121,516
Fees for Service Investment Mgmnt Fees-$86,700-$86,700
Other Employee Benefits$49,315$20,268$13,093$82,676
Occupancy$22,525$4,827$4,827$32,179
Payroll Taxes$16,322$4,378$4,333$25,033
Information Technology$14,482$-1,905$12,132$24,709
Depreciation Depletion$13,723$2,941$2,941$19,605
Fees for Services Accounting-$11,516-$11,516
Insurance$5,166$1,107$1,107$7,380
Office Expenses$1,316$2,158$3,649$7,123
Other Expenses$1,016$367$33,306$1,383
All Other Expenses$500$313-$813
Total Functional Expenses$2,076,266$237,617$289,422$2,603,305
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Massachusetts Institute of TechnologyCambridge, MA501 C (3)Scientific Research$185,828
Stanford UniversityStanford, CA501 C (3)Scientific Research$177,837
The Board of Trustees of the Leland StanfordRedwood City, CA501 C (3)Scientific Research$135,320
University of Massachusetts Med School DeWorcester, MA501 C (3)Scientific Research$130,064
J David Gladstone InstitutesSan Francisco, CA501 C (3)Scientific Research$100,000

International Summary

Offices
0
Employees
0
Spending
$571,312

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaGrants to RecipientsScientific Research--$271,312
SwedenGrants to RecipientsScientific Research--$150,000
FranceGrants to RecipientsScientific Research--$75,000
ItalyGrants to RecipientsScientific Research--$75,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$145,001
Fundraising Gross Income$145,001
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$442,583$145,001$145,001$0
Total Events$442,583$145,001$145,001$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors. Meghan donaldson, ceo, and bruce donaldson, board member, are married and are both members of the board of directors. Kelly posner gerstenhaber and david gerstenhaber are married and both are members of the board of directors. Frank gehry and berta gehry are married and both are members of the board of directors. Sandy fox is the aunt of david zwally and both are members of the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15A

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Section C, Line 19

“The foundation makes its financial statements and 990 available to the public on its website, www.hdfoundation.org. The foundation makes its govering documents and conflicts of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129812121
Address
601 WEST 168TH STREET 54, NEW YORK, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Phone
2129812121
Signed
2023-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
20
Independent Board Members
19
Employees
4
Volunteers
21

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS-16TH FL, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2126618640
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Consultants: program service expenses 202,034. Management and general expenses 42,542. Fundraising expenses 151,514. Total expenses 396,090.”

Financial Statement Notes

PART X, LINE 2:

“Hdf does not believe its financial statements include any material, uncertain tax positions. Tax filings for the periods ending december 31, 2019 and later are subject to examination by applicable taxing authorities.”

Raw XML AppendixShowing 400 of 730 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE HEREDITARY DISEASE FOUNDATION COMMEMORATES ITS 52ND YEAR BY MAKING AN EVEN GREATER IMPACT TOWARD DEVELOPING NOVEL THERAPEUTICS AND CURES. WE HAVE PUT IN PLACE STRATEGIES AND NEW GRANT FUNDING PROGRAMS TO MAXIMIZE OUR EFFECTIVENESS. WE HAVE BEEN FUNDING CATALYTIC AND PARADIGM-CHANGING RESEARCH SINCE OUR BIRTH - INCLUDING IDENTIFYING THE HUNTINGTON'S DISEASE MARKER IN 1983 AND THE HD GENE IN 1993, AND SUPPORTING GENE SILENCING APPROACHES SINCE 2002. WE WANT TO CONTINUE TO MAKE AN IMPACT BY FUNDING RESEARCH THAT PUSHES THE ENVELOPE.THE HEREDITARY DISEASE FOUNDATION PROVIDES FUNDING FOR RESEARCH THAT ADVANCES THE DISCOVERY AND DEVELOPMENT OF TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER BRAIN DISORDERS. WE ARE (CONTINUE ON SCHEDULE O) PASSIONATE ABOUT FUNDING AND THE FOUNDATION INTENDS TO USE THE ENDOWMENT FUNDS FOR ITS SCIENTIFIC ACTIVITIES WHICH INCLUDES PROVIDING GRANTS TO FUND SCIENTIFIC RESEARCH TO FURTHER THE UNDERSTANDING OF, AND TO DEVELOP DIAGNOSTICS AND THERAPEUTICS FOR NEURODEGENERATIVE DISEASES, INCLUDING HUNTINGTON'S DISEASE. THE HEREDITARY DISEASE FOUNDATION FUNDS THE MOST INNOVATIVE, CREATIVE AND PARADIGM-CHANGING RESEARCH POSSIBLE. THE DATA GENERATED WITH HDF FUNDING OFTEN ALLOWS RESEARCHERS TO GET INITIAL FINDINGS THAT HELP THEM APPLY SUCCESSFULLY FOR LARGER, LONG-TERM FUNDING FROM OTHER FUNDING AGENCIES, INCLUDING THE NATIONAL INSTITUTES OF HEALTH. THE FOUNDATION'S CURRENT FOCUS IS ON:1) MODIFIER STUDIES - ON DNA REPAIR PATHWAYS, PROTEIN DEGRADATION AND OTHER MODIFIERS OF PHENOTYPE AND AGE OF ONSET.2) RESEARCH MECHANISMS OF HD NEUROGENERATION AND BIOMARKERS AND THERAPY FOR HD-INDUCED NEURODEGENERATION.TYPE OF FUNDING:THE BASIC RESEARCH GRANTS PROGRAM: SUPPORTS PROJECTS CONTRIBUTING TO IDENTIFYING AND UNDERSTANDING THE FUNDAMENTAL DEFECTS IN HUNTINGTON'S DISEASE. POSTDOCTORAL FELLOWSHIPS: THESE POSTDOCTORAL FELLOWSHIPS ARE INTENDED TO CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH BY BRIGHT YOUNG SCIENTISTS. FELLOWSHIPS ARE GRANTED TO THOSE WHO POSSESS IMAGINATION, RIGOR, CREATIVITY AND SPIRIT TO PUSH FORWARD TOWARD A CURE FOR HD AND ENSURE THAT THESE LEARNING CAN BE APPLIED TO OTHER BRAIN DISEASES.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2128868
IRS990/Form990PartVIISectionAGrp/PersonNm0NANCY S WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm1KAREN NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm2ANNE B YOUNG MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm3BRUCE DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm4ALICE WEXLER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm5ROBI BLUMENSTEIN
IRS990/Form990PartVIISectionAGrp/PersonNm6BARRY EVENCHICK
IRS990/Form990PartVIISectionAGrp/PersonNm7SANDY FOX
IRS990/Form990PartVIISectionAGrp/PersonNm8BERTA A GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm9FRANK O GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm10KELLY POSNER GERSTENHABER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11DAVID HOUSMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12JOAN LEIMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID ZWALLY
IRS990/Form990PartVIISectionAGrp/PersonNm14HERBERT PARDES MD
IRS990/Form990PartVIISectionAGrp/PersonNm15C FRANK BENNETT PHD
IRS990/Form990PartVIISectionAGrp/PersonNm16TACIE FOX
IRS990/Form990PartVIISectionAGrp/PersonNm17LAUREN BAKER PINKUS
IRS990/Form990PartVIISectionAGrp/PersonNm18LESLIE M THOMPSON PHD
IRS990/Form990PartVIISectionAGrp/PersonNm19MEGHAN DONALDSON
IRS990/Form990PartVIISectionAGrp/PersonNm20TRAVIS CAREY
IRS990/Form990PartVIISectionAGrp/PersonNm21JULIE PORTER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19110000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2011516
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21103600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt20CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt21HEAD OF SCIENCE
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01968
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0297582
IRS990/FundraisingDirectExpensesAmt0145001
IRS990/FundraisingGrossIncomeAmt0145001
IRS990/GainOrLossGrp/SecuritiesAmt0-184714
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt020
IRS990/GrantAmt01142435
IRS990/GrantsPayableGrp/BOYAmt02288342
IRS990/GrantsPayableGrp/EOYAmt01316997
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0729049
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0729049
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt04852401
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt019
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt012132
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0-1905
IRS990/InformationTechnologyGrp/ProgramServicesAmt014482
IRS990/InformationTechnologyGrp/TotalAmt024709
IRS990/InsuranceGrp/FundraisingAmt01107
IRS990/InsuranceGrp/ManagementAndGeneralAmt01107
IRS990/InsuranceGrp/ProgramServicesAmt05166
IRS990/InsuranceGrp/TotalAmt07380
IRS990/InvestmentIncomeGrp/ExclusionAmt0270807
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0270807
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt015845874
IRS990/InvestmentsPubTradedSecGrp/EOYAmt012285491
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt092414
IRS990/LandBldgEquipBasisNetGrp/BOYAmt025212
IRS990/LandBldgEquipBasisNetGrp/EOYAmt05608
IRS990/LandBldgEquipCostOrOtherBssAmt098022
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0184714
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER BRAIN DISORDERS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt015815595
IRS990/NetAssetsOrFundBalancesEOYAmt015395679
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-184714
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-184714
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-2339297
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt06012424
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt05592508
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt04827
IRS990/OccupancyGrp/ManagementAndGeneralAmt04827
IRS990/OccupancyGrp/ProgramServicesAmt022525
IRS990/OccupancyGrp/TotalAmt032179
IRS990/OfficeExpensesGrp/FundraisingAmt03649
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02158
IRS990/OfficeExpensesGrp/ProgramServicesAmt01316
IRS990/OfficeExpensesGrp/TotalAmt07123
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05405
IRS990/OtherAssetsTotalGrp/EOYAmt05405
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt013093
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt020268
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt049315
IRS990/OtherEmployeeBenefitsGrp/TotalAmt082676
IRS990/OtherExpensesGrp/Desc0POSTAGE & PRINTING
IRS990/OtherExpensesGrp/Desc1EVENT SPONSORSHIP
IRS990/OtherExpensesGrp/Desc2REGISTRATIONS
IRS990/OtherExpensesGrp/Desc3GIFTS
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01967
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1367
IRS990/OtherExpensesGrp/ProgramServicesAmt020496
IRS990/OtherExpensesGrp/ProgramServicesAmt120000
IRS990/OtherExpensesGrp/ProgramServicesAmt22909
IRS990/OtherExpensesGrp/ProgramServicesAmt31016
IRS990/OtherExpensesGrp/TotalAmt055769
IRS990/OtherExpensesGrp/TotalAmt120000
IRS990/OtherExpensesGrp/TotalAmt22909
IRS990/OtherExpensesGrp/TotalAmt31383
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS
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IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt036719
IRS990/OtherRevenueTotalAmt036719
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt035900
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt013984
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0163100
IRS990/OtherSalariesAndWagesGrp/TotalAmt0212984
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04333
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04378
IRS990/PayrollTaxesGrp/ProgramServicesAmt016322
IRS990/PayrollTaxesGrp/TotalAmt025033
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0962814
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01722568
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04663
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt015155
IRS990/PrincipalOfficerNm0MEGHAN DONALDSON
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03243717
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02114613
IRS990/PYInvestmentIncomeAmt0880648
IRS990/PYOtherExpensesAmt0497956

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$16,776,193
Liabilities
$1,380,514
Net assets
$15,395,679
Revenue
$4,522,686
Expenses
$2,603,305
Net income
$1,919,381
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09