Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2014 • EIN 23-7376197

Jan 01, 2014 to Dec 31, 2014 • Filed on Aug 12, 2015

Organization ProfileHDFOUNDATION.ORG

View Organization Page

3960 Broadway 6th FloorNew York, NY 10032

(212) 928-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

25th percentile

0.05x

Higher debt load relative to assets than 25% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Liabilities / Revenue

36th percentile

0.14x

Higher debt load relative to revenue than 36% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Net Margin

92nd percentile

56%

Higher net margin than 92% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Top Officer Pay

37th percentile

$135,367

Higher top officer pay than 37% of similar nonprofits.

Top officer pay equals 3.2% of source-year revenue.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Asset Growth

61st percentile

6.4%

Faster asset growth than 61% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2011 to 2014

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Balance Sheet
Liabilities / Assets25th percentile

Assets

Up

$11,378,074

Up $1,941,401 (+21%) from 2011

Net Assets

Up

$10,777,896

Up $1,937,443 (+22%) from 2011

Liabilities

Up

$600,178

Up $3,958 (+0.7%) from 2011

Revenue And Expenses
Liabilities / Revenue36th percentileNet Margin92nd percentile

Revenue

$4,209,947

No earlier filing loaded for comparison.

Expenses

Down

$1,848,087

Down $244,774 (-12%) from 2011

Net Income

$2,361,860

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth61st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2014

Assets$11,378,074
Liabilities$600,178
Net Assets$10,777,896
Open 2014 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2014

Revenue$4,209,947
Expenses$1,848,087
Net Income$2,361,860
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 12, 2015
Return Version
2014v5.0
Gross Receipts
$4,794,606
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

The purpose of the foundation is to support and fund scientific research seeking to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, in particular, huntington's disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,936,031$5,915,250▼ $20,781
Investments Other Securities$3,298,900$4,296,091▲ $997,191
Pledges and Grants Receivable-$838,133-
Cash and Non-Interest-Bearing Accounts$180,183$307,549▲ $127,366
Land, Buildings, and Equipment, Net$267,990$0▼ $267,990
Accounts Receivable$0--
Prepaid Expenses and Deferred Charges$0--
Total Assets$9,956,038$11,378,074▲ $1,422,036
Other Assets Total$272,934$21,051▼ $251,883
Liabilities
Grants Payable$640,500$471,624▼ $168,876
Accounts Payable and Accrued Expenses$54,125$128,554▲ $74,429
Other Liabilities$27,022--
Total Liabilities$721,647$600,178▼ $121,469
Net Assets / Fund Balance
Permanently Rstr Net Assets-$8,525,000-
Temporarily Rstr Net Assets$9,172,176$2,538,568▼ $6,633,608
Unrestricted Net Assets$62,215$-285,672▼ $347,887
Total Net Assets Fund Balance$9,234,391$10,777,896▲ $1,543,505
Total Liabilities and Net Assets / Fund Balance$9,956,038$11,378,074▲ $1,422,036

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$0$401,737$401,737
Other Land Buildings$0$36,869$36,869
Other Securities$1,049,922--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$8,512,186-▲ $205,358$467,024$8,250,520
2013$7,703,889-▲ $1,233,025$424,728$8,512,186
2012$7,373,196-▲ $719,433$388,740$7,703,889
2011$7,953,844-▼ $173,007$407,641$7,373,196
2010$7,661,611-▲ $676,070$383,837$7,953,844
Compensation and Service Providers
Top Officer Pay37th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Carl JohnsonAssociate Director for ScienceFT$134,000$1,367$135,367
Frank MuchaTreasurerPT$94,063-$94,063
Jonathan GuestChief Executive OfficerFT$34,914-$34,914

Board Members and Trustees

NameTitle
Herbert Pardes MdChair
Nancy S Wexler PhdPresident
Frank O GehryVice-president
Anne B Young Md PhdDirector
Arthur Golding MdDirector
Berta a GehryDirector
Bruce DonaldsonDirector
David GerstenhaberDirector
David Housman PhdDirector
David ZwallyDirector
Gerald Aronson MdDirector
Joan LeimanDirector
Jonathan MatzDirector
Kelly Posner Gerstenhaber PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Alice Wexler PhdSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Mccarter & English LLPLegal100 MILBERRY STREET, Newark, NJ 07102$226,325
Revenue and Support

Revenue Composition

Contributions and Grants
$3,133,228
Program Service Revenue
$0
Investment Income
$972,849
Other Revenue
$103,870
All Other Contributions
$2,670,705
Change in Net Assets
$2,361,860

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,148,359
Revenue Not Reported on Financial Statements
$61,588
Revenue Not Reported on Form 990
$-712,808
Total Revenue per Audited Statements
$3,435,551
Total Revenue per Form 990
$4,209,947
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,015,644
Grants and Similar Amounts Paid$419,159
Salaries, Compensation, and Employee Benefits$413,284
Total Fundraising Expense$49,918
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$448,378--$448,378
Grants to Domestic Individuals$312,031--$312,031
Other Salaries and Wages$227,787$5,575$2,415$235,777
Occupancy$73,304$74,583$7,061$154,948
Fees for Services Legal-$136,086-$136,086
Current Officers, Directors, Trustees, and Key Employees$42,185$77,386$9,406$128,977
Foreign Grants$107,128--$107,128
Fees for Services Accounting$34,567$50,081$9,415$94,063
Office Expenses$43,309$13,455$17,957$74,721
Fees for Service Investment Mgmnt Fees-$61,588-$61,588
Payroll Taxes$20,570$6,420$902$27,892
Other Expenses$5,985$15,162$190$21,337
Other Employee Benefits$11,232$7,786$1,620$20,638
Fees for Services Other$14,000--$14,000
Travel$4,699$2,221$952$7,872
Insurance$2,651--$2,651
Total Functional Expenses$1,347,826$450,343$49,918$1,848,087

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,849,802
Total Expenses per Form 990$1,848,087
Expenses per Audited Statements$1,786,499
Expenses Not Reported on Form 990$63,303
Expenses Not Reported on Financial Statements$61,588
International Activity

International Summary

Offices
1
Employees
1
Spending
$107,128

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South AmericaProgram ServicesOPERATION OF A CLINIC AND NURSING HOME FOR HUNTINGTON'S PATIENTS.11$107,128
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$199,520
Fundraising Direct Expenses$95,650
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Bullets Over Broadway$27,350$16,100-$16,100
Yo Yo Ma Concert$467,373$16,100$70,017$-53,917
Total Events$662,043$199,520$95,650$103,870
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors.”

Form 990, Part VI, Section A, Line 4

“During 2014 the foundation made changes to their bylaws as approved by the board of directors”

Form 990, Part VI, Section A, Line 5

“During 2014, the foundation discovered that its former controller had embezzeled approximately $2.2 million over a five year period. The controller is currently being prosecuted by the u.s. Department of justice.”

Form 990, Part VI, Section B, Line 11

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section C, Line 19

“The foundation makes governing documents and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129282121
Address
3960 BROADWAY 6TH FLOOR, NEW YORK, NY 10032

Signing Officer

Name
Jonathan C Guest
Title
CEO
Phone
2129282121
Signed
2015-08-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jonathan C Guest
Formed
1968
Legal Domicile
CA
Voting Board Members
18
Independent Board Members
14
Employees
7
Volunteers
0

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
21 EAST MAIN STREET, WESTBORO, MA 01581
Preparer
Robin Kelley CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“INSURANCE LOSS -63,303.”

Form 990, Part XII, Line 2C

“The process for oversight has changed from the prior year. In 2014 the foundation formed an audit committee that assumes responsibility for the oversight of the audit.”

Financial Statement Notes

PART III, LINE 1A:

“Collections of works of art.”

PART X, LINE 2:

“The foundation accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. The foundation has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2014. The foundation's information returns are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.”

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IRS990/Form990PartVIISectionAGrp/PersonNm18HERBERT PARDES MD
IRS990/Form990PartVIISectionAGrp/PersonNm19CARL JOHNSON
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE-PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF EXECUTIVE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt19ASSOCIATE DIRECTOR FOR SCIENCE
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IRS990/InvestmentsPubTradedSecGrp/EOYAmt05915250
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0103870
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IRS990/NetUnrlzdGainsLossesInvstAmt0-712808
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IRS990/OccupancyGrp/ManagementAndGeneralAmt074583
IRS990/OccupancyGrp/ProgramServicesAmt073304
IRS990/OccupancyGrp/TotalAmt0154948
IRS990/OfficeExpensesGrp/FundraisingAmt017957
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt013455
IRS990/OfficeExpensesGrp/ProgramServicesAmt043309
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IRS990/OperateHospitalInd00
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IRS990/OtherChangesInNetAssetsAmt0-63303
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01620
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt07786
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt011232
IRS990/OtherEmployeeBenefitsGrp/TotalAmt020638
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt015162
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IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05575
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IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0902
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06420
IRS990/PayrollTaxesGrp/ProgramServicesAmt020570
IRS990/PayrollTaxesGrp/TotalAmt027892
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt08525000
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IRS990/PoliticalCampaignActyInd00
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,378,074
Liabilities
$600,178
Net assets
$10,777,896
Revenue
$4,209,947
Expenses
$1,848,087
Net income
$2,361,860
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09