Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2017 • EIN 23-7376197

Jan 01, 2017 to Dec 31, 2017 • Filed on May 15, 2018

Organization ProfileHDFOUNDATION.ORG

View Organization Page

601 West 168th Street Suite 54New York, NY 10032

(212) 928-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.12x

Higher debt load relative to assets than 38% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Liabilities / Revenue

83rd percentile

1.31x

Higher debt load relative to revenue than 83% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Net Margin

2nd percentile

-137%

Higher net margin than 2% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Top Officer Pay

22nd percentile

$99,211

Higher top officer pay than 22% of similar nonprofits.

Top officer pay equals 9.2% of source-year revenue.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Asset Growth

37th percentile

1.3%

Faster asset growth than 37% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Revenue Growth

3rd percentile

-53%

Faster revenue growth than 3% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets38th percentile

Assets

Up

$11,878,583

Up $147,580 (+1.3%) from 2016

Net Assets

Down

$10,472,245

Down $693,015 (-6.2%) from 2016

Liabilities

Up

$1,406,338

Up $840,595 (+149%) from 2016

Revenue And Expenses
Liabilities / Revenue83rd percentileNet Margin2nd percentile

Revenue

Down

$1,074,269

Down $1,215,064 (-53%) from 2016

Expenses

Up

$2,547,618

Up $498,508 (+24%) from 2016

Net Income

Down

-$1,473,349

Down $1,713,572 (-713%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth37th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2017

Assets$11,878,583
Liabilities$1,406,338
Net Assets$10,472,245
Open 2017 Filing

Operations Trend

Revenue Growth3rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2017

Revenue$1,074,269
Expenses$2,547,618
Net Income-$1,473,349
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
May 15, 2018
Return Version
2017v2.2
Gross Receipts
$2,627,456
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,075,265$9,921,525▲ $846,260
Savings and Temporary Cash Investments$1,245,563$1,264,526▲ $18,963
Cash and Non-Interest-Bearing Accounts$820,716$400,213▼ $420,503
Pledges and Grants Receivable$568,408$272,243▼ $296,165
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$11,731,003$11,878,583▲ $147,580
Other Assets Total$21,051$20,076▼ $975
Liabilities
Grants Payable$560,110$1,387,589▲ $827,479
Accounts Payable and Accrued Expenses$5,633$18,749▲ $13,116
Total Liabilities$565,743$1,406,338▲ $840,595
Net Assets / Fund Balance
Permanently Rstr Net Assets$8,525,000$8,525,000→ $0
Unrestricted Net Assets$221,477$1,219,266▲ $997,789
Temporarily Rstr Net Assets$2,418,783$727,979▼ $1,690,804
Total Net Assets Fund Balance$11,165,260$10,472,245▼ $693,015
Total Liabilities and Net Assets / Fund Balance$11,731,003$11,878,583▲ $147,580

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$0$401,737$401,737
Other Land Buildings$0$36,869$36,869

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$7,700,419-▲ $1,155,712$454,459$8,401,672
2016$7,566,144-▲ $580,315$446,040$7,700,419
2015$8,250,520-▼ $225,617$458,759$7,566,144
2014$8,512,186-▲ $205,358$467,024$8,250,520
2013$7,703,889-▲ $1,233,025$424,728$8,512,186
Compensation and Service Providers
Top Officer Pay22nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Meghan DonaldsonCEOFT$99,211$99,211

Board Members and Trustees

NameTitle
David ZwallyChair
Nancy S Wexler PhdPresident
Anne B Young Md PhdVice Chair
Arthur Golding MdDirector
Berta a GehryDirector
David GerstenhaberDirector
David Housman PhdDirector
Frank O GehryDirector
Herbert Pardes MdDirector
Joan LeimanDirector
Karen NewmanDirector
Kelly Posner Gerstenhaber PhdDirector
Robi BlumensteinDirector
Sandy FoxDirector
Travis CareyChief Financial Officer
Alice Wexler PhdSecretary
Bruce DonaldsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$747,377
Program Service Revenue
$0
Investment Income
$432,044
Other Revenue
$-105,152
All Other Contributions
$341,815
Change in Net Assets
$-1,473,349

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,174,553
Revenue Not Reported on Financial Statements
$-100,284
Revenue Not Reported on Form 990
$883,334
Other Revenue Adjustments
$-156,950
Total Revenue per Audited Statements
$2,057,887
Total Revenue per Form 990
$1,074,269
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,752,844
Other Expenses$419,848
Salaries, Compensation, and Employee Benefits$374,926
Total Fundraising Expense$116,470
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$1,165,941--$1,165,941
Grants to Domestic Orgs$322,188--$322,188
Foreign Grants$264,715--$264,715
Occupancy$132,351$17,415$24,380$174,146
Current Officers, Directors, Trustees, and Key Employees$94,648$52,682$14,882$162,212
Other Salaries and Wages$106,113$17,426$30,885$154,424
Office Expenses$24,200$16,963$33,264$74,427
Fees for Service Investment Mgmnt Fees-$56,666-$56,666
Conferences and Meetings$42,938--$42,938
Other Employee Benefits$25,281$4,682$7,491$37,454
Fees for Services Other-$26,904-$26,904
Payroll Taxes$13,430$3,905$3,501$20,836
Fees for Services Accounting-$20,100-$20,100
Insurance$8,539$2,993-$11,532
Travel$2,023$6$2,023$4,052
Other Expenses$3,465$3,610$44$3,465
Total Functional Expenses$2,207,796$223,352$116,470$2,547,618

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,750,902
Total Expenses per Form 990$2,547,618
Expenses per Audited Statements$2,490,952
Expenses Not Reported on Form 990$259,950
Expenses Not Reported on Financial Statements$56,666
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
New York Genome CenterNew York, NY-Research$275,208
New Your Brain BankNew York, NY-Research$46,980

International Summary

Offices
4
Employees
4
Spending
$264,715

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
London, EnglandGrants to Recipients Located in RegionScientific Research11$100,000
Oslo, NorwayGrants to Recipients Located in RegionScientific Research11$75,000
ChinaGrants to Recipients Located in RegionScientific Research11$75,000
South America - VenezuelaProgram ServicesOPERATION OF A CLINIC FOR HUNTINGTON'S PATIENTS11$14,715
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$156,950
Fundraising Gross Income$51,798
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$457,360$51,798$100,006$-48,208
Total Events$457,360$51,798$156,950$-105,152
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Nancy wexler, president, and alice wexler, secretary, are sisters and both are members of the board of directors. Meghan donaldson, ceo and bruce donaldson, board member, are married and are both members of the board of directors. Kelly posner gerstanhaber and daivd gerstenhaber are married and are both members of the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Section B, Line 12C

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Section C, Line 19

“The foundation makes its financial statements available to the public on its website, www.hdfoundation.org. The foundation makes its governing documents and conflict of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129282121
Address
601 WEST 168TH STREET SUITE 54, NEW YORK, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Phone
2129282121
Signed
2018-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
17
Independent Board Members
15
Employees
3
Volunteers
17

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
John Buckley CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The foundation's audit committee assumes responsibility for the oversight of the audit.”

Financial Statement Notes

PART V, LINE 4:

“The foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including huntington's disease.”

PART X, LINE 2:

“The foundation accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. The foundation has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2017. The foundation's information returns are subject to examination by the federal and state jurisdictions.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Special event expense -156,950.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special events expense 156,950.”

Raw XML AppendixShowing 400 of 671 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE HEREDITARY DISEASE FOUNDATION COMMEMORATES ITS 50TH YEAR BY MAKING AN EVEN GREATER IMPACT TOWARD DEVELOPING NOVEL THERAPEUTICS AND CURES. WE HAVE PUT IN PLACE STRATEGIES AND NEW GRANT FUNDING PROGRAMS TO MAXIMIZE OUR EFFECTIVENESS. WE HAVE BEEN FUNDING CATALYTIC AND PARADIGM-CHANGING RESEARCH SINCE OUR BIRTH - INCLUDING IDENTIFYING THE HUNTINGTON'S DISEASE MARKER IN 1983 AND THE HD GENE IN 1993, AND SUPPORTING GENE SILENCING APPROACHES SINCE 2002. WE WANT TO CONTINUE TO MAKE AN IMPACT BY FUNDING RESEARCH THAT PUSHES THE ENVELOPE. THE HEREDITARY DISEASE FOUNDATION PROVIDES FUNDING FOR RESEARCH THAT ADVANCES THE DISCOVERY AND DEVELOPMENT OF TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER BRAIN DISORDERS. WE ARE PASSIONATE ABOUT FINDING AND FUNDING THE MOST INNOVATIVE, CREATIVE AND PARADIGM-CHANGING RESEARCH POSSIBLE. THE DATA GENERATED WITH HDF FUNDING OFTEN ALLOWS RESEARCHERS TO GET INITIAL FINDINGS THAT HELP THEM APPLY SUCCESSFULLY FOR LARGER, LONG-TERM FUNDING FROM OTHER FUNDING AGENCIES, INCLUDING THE NATIONAL INSTITUTES OF HEALTH. THE FOUNDATION'S CURRENT FOCUS IS ON 1) MODIFIER STUDIES - ON DNA REPAIR PATHWAYS, PROTEIN DEGRADATION AND OTHER MODIFIERS OF PHENOTYPE AND AGE OF ONSET AND 2) RESEARCH MECHANISMS OF HD NEURODEGENERATION AND BIOMARKERS AND THERAPY FOR HD-INDUCED NEURODEGENERATION.TYPE OF FUNDING:THE BASIC RESEARCH GRANTS PROGRAM: SUPPORTS PROJECTS CONTRIBUTING TO IDENTIFYING AND UNDERSTANDING THE FUNDAMENTAL DEFECTS IN HUNTINGTON'S DISEASE.POSTDOCTORAL FELLOWSHIPS: THESE POSTDOCTORAL FELLOWSHIPS ARE INTENDED TO CULTIVATE INTEREST IN HUNTINGTON'S DISEASE RESEARCH BY BRIGHT YOUNG SCIENTISTS. FELLOWSHIPS ARE GRANTED TO THOSE WHO POSSESS IMAGINATION, RIGOR, CREATIVITY AND SPIRIT TO PUSH FORWARD TOWARD A CURE FOR HD AND ENSURE THAT THESE LEARNING CAN BE APPLIED TO OTHER BRAIN DISEASES.
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IRS990/Form990PartVIISectionAGrp/PersonNm12BERTA A GEHRY
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID GERSTENHABER
IRS990/Form990PartVIISectionAGrp/PersonNm14KELLY POSNER GERSTENHABER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm15ARTHUR GOLDING MD
IRS990/Form990PartVIISectionAGrp/PersonNm16KAREN NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm17TRAVIS CAREY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt099211
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF FINANCIAL OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01968
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0405562
IRS990/FundraisingDirectExpensesAmt0156950
IRS990/FundraisingGrossIncomeAmt051798
IRS990/GainOrLossGrp/SecuritiesAmt0166391
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt01752844
IRS990/GrantsPayableGrp/BOYAmt0560110
IRS990/GrantsPayableGrp/EOYAmt01387589
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt01165941
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt01165941
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0322188
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0322188
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01562628
IRS990/GrossReceiptsAmt02627456
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt02993
IRS990/InsuranceGrp/ProgramServicesAmt08539
IRS990/InsuranceGrp/TotalAmt011532
IRS990/InvestmentIncomeGrp/ExclusionAmt0265653
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0265653
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt09075265
IRS990/InvestmentsPubTradedSecGrp/EOYAmt09921525
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0438606
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0438606
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01396237
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER BRAIN DISORDERS.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt011165260
IRS990/NetAssetsOrFundBalancesEOYAmt010472245
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0166391
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0166391
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-105152
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-105152
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0780334
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt024380
IRS990/OccupancyGrp/ManagementAndGeneralAmt017415
IRS990/OccupancyGrp/ProgramServicesAmt0132351
IRS990/OccupancyGrp/TotalAmt0174146
IRS990/OfficeExpensesGrp/FundraisingAmt033264
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt016963
IRS990/OfficeExpensesGrp/ProgramServicesAmt024200
IRS990/OfficeExpensesGrp/TotalAmt074427
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt020076
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07491
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt04682
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt025281
IRS990/OtherEmployeeBenefitsGrp/TotalAmt037454
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc1MEDICAL SUPPLIES
IRS990/OtherExpensesGrp/FundraisingAmt044
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03610
IRS990/OtherExpensesGrp/ProgramServicesAmt01964
IRS990/OtherExpensesGrp/ProgramServicesAmt13465
IRS990/OtherExpensesGrp/TotalAmt05618
IRS990/OtherExpensesGrp/TotalAmt13465
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt030885
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt017426
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0106113
IRS990/OtherSalariesAndWagesGrp/TotalAmt0154424
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03501
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03905
IRS990/PayrollTaxesGrp/ProgramServicesAmt013430
IRS990/PayrollTaxesGrp/TotalAmt020836
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt08525000
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt08525000
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0568408
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0272243
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0MEGHAN DONALDSON
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02107686
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0734444
IRS990/PYInvestmentIncomeAmt0288736
IRS990/PYOtherExpensesAmt0821719
IRS990/PYOtherRevenueAmt0-107089
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0240223
IRS990/PYSalariesCompEmpBnftPaidAmt0492947
IRS990/PYTotalExpensesAmt02049110
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02289333
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-1473349
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01245563
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01264526
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0747377
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02107686
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01886920
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02670705
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01120348
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt08533036
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0265653
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0273233
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0267915
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0305949
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0263221
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01375971
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.62130
IRS990ScheduleA/PublicSupportPY170Pct00.65180
IRS990ScheduleA/PublicSupportTotal170Amt06156016
IRS990ScheduleA/SubstantialContributorsTotAmt02377020
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0747377
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02107686
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01886920
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02670705
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01120348
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt08533036
IRS990ScheduleA/TotalSupportAmt09909007
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt07700419
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt08401672
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt01155712
IRS990ScheduleD/CYEndwmtFundGrp/OtherExpendituresAmt0454459
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt07566144
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt07700419
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0580315
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/OtherExpendituresAmt0446040
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt08250520
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt07566144
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0-225617
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/OtherExpendituresAmt0458759
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt08512186
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt08250520
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0205358
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/OtherExpendituresAmt0467024
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt07703889
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt08512186
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt01233025
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/OtherExpendituresAmt0424728
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0103000
IRS990ScheduleD/DonatedServicesUseFcltsAmt0103000
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd00

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,878,583
Liabilities
$1,406,338
Net assets
$10,472,245
Revenue
$1,074,269
Expenses
$2,547,618
Net income
-$1,473,349
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09