Civic Intelligence

Hereditary Disease Foundation

990 • Fiscal year 2019 • EIN 23-7376197

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 11, 2020

Organization Profilehdfoundation.com

View Organization Page

601 West 168th StreetNew York, NY 10032

(212) 981-2121

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

36th percentile

0.09x

Higher debt load relative to assets than 36% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

70th percentile

0.56x

Higher debt load relative to revenue than 70% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

14th percentile

-14%

Higher net margin than 14% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

25th percentile

$110,000

Higher top officer pay than 25% of similar nonprofits.

Top officer pay equals 5.4% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

76th percentile

14%

Faster asset growth than 76% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

12th percentile

-25%

Faster revenue growth than 12% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets36th percentile

Assets

Up

$12,457,716

Up $1,534,810 (+14%) from 2018

Net Assets

Up

$11,316,710

Up $1,238,519 (+12%) from 2018

Liabilities

Up

$1,141,006

Up $296,291 (+35%) from 2018

Revenue And Expenses
Liabilities / Revenue70th percentileNet Margin14th percentile

Revenue

Down

$2,027,985

Down $663,372 (-25%) from 2018

Expenses

Up

$2,301,831

Up $164,172 (+7.7%) from 2018

Net Income

Down

-$273,846

Down $827,544 (-149%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $9,436,673Liabilities 2011: $596,220Net Assets 2011: $8,840,4532011Assets 2014: $11,378,074Liabilities 2014: $600,178Net Assets 2014: $10,777,8962014Assets 2015: $11,110,344Liabilities 2015: $531,930Net Assets 2015: $10,578,4142015Assets 2016: $11,731,003Liabilities 2016: $565,743Net Assets 2016: $11,165,2602016Assets 2017: $11,878,583Liabilities 2017: $1,406,338Net Assets 2017: $10,472,2452017Assets 2018: $10,922,906Liabilities 2018: $844,715Net Assets 2018: $10,078,1912018Assets 2019: $12,457,716Liabilities 2019: $1,141,006Net Assets 2019: $11,316,7102019Assets 2020: $15,507,063Liabilities 2020: $1,781,608Net Assets 2020: $13,725,4552020Assets 2021: $18,145,612Liabilities 2021: $2,330,017Net Assets 2021: $15,815,5952021Assets 2022: $16,776,193Liabilities 2022: $1,380,514Net Assets 2022: $15,395,6792022Assets 2023: $18,234,308Liabilities 2023: $3,091,412Net Assets 2023: $15,142,8962023Assets 2024: $21,978,294Liabilities 2024: $2,828,419Net Assets 2024: $19,149,8752024

Highlighted filing

2019

Assets$12,457,716
Liabilities$1,141,006
Net Assets$11,316,710
Open 2019 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $2,092,8612011Revenue 2014: $4,209,947Expenses 2014: $1,848,087Net Income 2014: $2,361,8602014Revenue 2015: $2,358,172Expenses 2015: $1,887,144Net Income 2015: $471,0282015Revenue 2016: $2,289,333Expenses 2016: $2,049,110Net Income 2016: $240,2232016Revenue 2017: $1,074,269Expenses 2017: $2,547,618Net Income 2017: -$1,473,3492017Revenue 2018: $2,691,357Expenses 2018: $2,137,659Net Income 2018: $553,6982018Revenue 2019: $2,027,985Expenses 2019: $2,301,831Net Income 2019: -$273,8462019Revenue 2020: $4,059,819Expenses 2020: $2,519,661Net Income 2020: $1,540,1582020Revenue 2021: $3,846,649Expenses 2021: $2,967,624Net Income 2021: $879,0252021Revenue 2022: $4,522,686Expenses 2022: $2,603,305Net Income 2022: $1,919,3812022Revenue 2023: $2,578,841Expenses 2023: $4,738,635Net Income 2023: -$2,159,7942023Revenue 2024: $7,899,221Expenses 2024: $4,524,145Net Income 2024: $3,375,0762024

Highlighted filing

2019

Revenue$2,027,985
Expenses$2,301,831
Net Income-$273,846
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 11, 2020
Return Version
2019v5.0
Gross Receipts
$4,349,424
Mission and Program Overview

Mission

To fund innovative research towards curing huntington's disease and impacting other brain disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,434,335$11,198,150▲ $1,763,815
Savings and Temporary Cash Investments$782,260$891,676▲ $109,416
Cash and Non-Interest-Bearing Accounts$345,388$258,816▼ $86,572
Land, Buildings, and Equipment, Net$84,026$64,422▼ $19,604
Pledges and Grants Receivable$257,108$24,309▼ $232,799
Prepaid Expenses and Deferred Charges$19,789$20,343▲ $554
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$10,922,906$12,457,716▲ $1,534,810
Other Assets Total-$0-
Liabilities
Grants Payable$825,949$1,123,506▲ $297,557
Accounts Payable and Accrued Expenses$18,766$17,500▼ $1,266
Total Liabilities$844,715$1,141,006▲ $296,291
Net Assets / Fund Balance
Net Assets With Donor Restrictions$8,999,470$9,803,171▲ $803,701
Net Assets Without Donor Restrictions$1,078,721$1,513,539▲ $434,818
Total Net Assets Fund Balance$10,078,191$11,316,710▲ $1,238,519
Total Liabilities and Net Assets / Fund Balance$10,922,906$12,457,716▲ $1,534,810

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$64,422$33,600-

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$8,534,335-▲ $1,595,553$426,717$9,703,171
2018$8,401,672$676,151▼ $543,488-$8,534,335
2017$7,700,419-▲ $1,155,712$454,459$8,401,672
2016$7,566,144-▲ $580,315$446,040$7,700,419
2015$8,250,520-▼ $225,617$458,759$7,566,144
Compensation and Service Providers
Top Officer Pay25th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Meghan DonaldsonCEOPT$110,000$110,000
Travis CareyCFO-$19,084$19,084

Board Members and Trustees

NameTitle
David ZwallyChair
Nancy Wexler PhDPresident
Anne Young MD PhDVice Chair
Barry EvenchickDirector
Berta GehryDirector
David GerstenhaberDirector
David Housman PhDDirector
Frank GehryDirector
Herbert Pardes MDDirector
Joan LeimanDirector
Karen NewmanDirector
Kelly Posner Gerstenhaber PhDDirector
Robi BlumensteinDirector
Sandy FoxDirector
Alice Wexler PhDSecretary
Bruce DonaldsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,650,090
Program Service Revenue
$0
Investment Income
$330,387
Other Revenue
$47,508
All Other Contributions
$1,208,383
Change in Net Assets
$-273,846

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$56,324Fair Market Value (FMV)
Total Noncash Contributions1$56,324-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,965,670
Revenue Not Reported on Financial Statements
$62,315
Revenue Not Reported on Form 990
$1,612,365
Total Revenue per Audited Statements
$3,578,035
Total Revenue per Form 990
$2,027,985
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,467,686
Other Expenses$394,547
Salaries, Compensation, and Employee Benefits$367,598
Total Fundraising Expense$229,388
Professional Fundraising Fees$72,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,157,686--$1,157,686
Foreign Grants$210,000--$210,000
Other Salaries and Wages$134,874$3,701$30,017$168,592
Current Officers, Directors, Trustees, and Key Employees$55,000$52,084$22,000$129,084
Grants to Domestic Individuals$100,000--$100,000
Conferences and Meetings$61,696$6,003$19,019$86,718
Fees for Services Other$2,000$56,257$18,727$76,984
Fees for Services Professional Fundraising--$72,000$72,000
Occupancy$48,087$6,306$15,656$70,049
Fees for Service Investment Mgmnt Fees-$62,315-$62,315
Other Employee Benefits$31,047$4,073$6,879$41,999
Payroll Taxes$15,934$8,458$3,531$27,923
Depreciation Depletion$14,492$1,901$3,211$19,604
Information Technology$12,546$1,646$2,973$17,165
Other Expenses$7,093$1,134$3,545$11,772
Office Expenses$864$7,269$1,571$9,704
Insurance$6,916$907$1,532$9,355
Total Functional Expenses$1,858,695$213,748$229,388$2,301,831

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,339,516
Total Expenses per Form 990$2,301,831
Expenses per Audited Statements$2,239,516
Expenses Not Reported on Form 990$100,000
Expenses Not Reported on Financial Statements$62,315
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Univ of California IrvineIrvine, CA501(c)(3)-$206,636
Columbia University Med CtrNew York, NY501(c)(3)-$150,000
Stanford UniversityStanford, CA501(c)(3)-$131,636
Broad InstituteCambridge, MA501(c)(3)-$120,380
UclaLos Angeles, CA501(c)(3)-$109,550
Mass Institute of TechnologyCambridge, MA501(c)(3)-$79,863
Brigham and Womens HospitalBoston, MA501(c)(3)-$75,000
CaltechPasadena, CA501(c)(3)-$75,000
J David Gladstone InstituteSan Francisco, CA501(c)(3)-$75,000
Thomas Jefferson UniversityPhiladelphia, PA501(c)(3)-$75,000
Childrens Hospital of PhillyPhiladelphia, PA501(c)(3)-$46,738
Duke UniversityDurham, NC501(c)(3)-$12,883

International Summary

Spending
$210,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaGrants to recipientsScientific Research00$75,000
IsraelGrants to recipientsScientific Research00$75,000
United KingdomGrants to recipientsScientific Research00$60,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$72,000
Fundraising Direct Expenses$59,414
Fundraising Gross Income$59,414

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
FR events$501,121$59,414-$59,414
Total Events$501,121$59,414$59,414-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Nancy Wexler, President, and Alice Wexler, Secretary, are sisters and both are members of the board of directors.Meghan Donaldson, CEO, and Bruce Donaldson, Board Member, are married and are both members of the board of directors. Kelly Posner Gerstenhaber and David Gerstenhaber are married and both are members of the board of directors.Frank Gehry and Berta Gehry are married and both are members of the board of directors.Sandy Fox is the aunt of David Zwally and both are members of the board of directors.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Foundation provides the 990 to the board of directors for approval.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Annual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“A written employee contract is established and approved by the board or compensation committee.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The Foundation makes its financial statements and 990 available to the public on its website, www.hdfoundation.org. The Foundation makes its governing documents and conflicts of interest policy available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Disease Foundation
EIN
23-7376197
Phone
2129812121
Address
601 West 168th Street, New York, NY 10032

Signing Officer

Name
Meghan Donaldson
Title
CEO
Signed
2020-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meghan Donaldson
Formed
1968
Legal Domicile
CA
Voting Board Members
17
Independent Board Members
15
Employees
3
Volunteers
1

Preparer

Firm
Schall & Ashenfarb Cpas
Address
307 5th Ave 15th Floor, NEW YORK, NY 10016-6517
Preparer
Michael Schall
Phone
2122682800
Supplemental Narrative

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“HDF intends to use the endowment funds for its scientific activities which includes grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including Huntington's Disease.”

Part X : FIN48 Footnote

“HDF does not believe its financial statements include any material, uncertain tax positions. Tax filings for the periods ending December 31, 2016 and later are subject to examination by applicable taxing authorities.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0The Hereditary Disease Foundation commemorates its 51st year by making an even greater impact toward developing novel therapeutics and cures. We have put in place strategies and new grant funding programs to maximize our effectiveness. We have been funding catalytic and paradigm-changing research since our birth - including identifying the Huntington's Disease marker in 1983 and the HD Gene in 1993, and supporting gene silencing approaches since 2002. We want to continue to make an impact by funding research that pushes the envelope.The Hereditary Disease Foundation provides funding for research that advances the discovery and development of treatments for Huntington's Disease and other brain disorders. We are passionate about funding and the Foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for neurodegenerative diseases, including Huntington's Disease. The Hereditary Disease Foundation funds the most innovative, creative and paradigm-changing research possible. The data generated with HDF funding often allows researchers to get initial findings that help them apply successfully for larger, long-term funding from other funding agencies, including the National Institutes of Health. The Foundation's current focus is on:1) Modifier Studies - On DNA repair pathways, protein degradation and other modifiers of phenotype and age of onset.2) Research mechanisms of HD neurogeneration and biomarkers and therapy for HD-induced neurodegeneration.Type of funding:The Basic Research Grants Program: Supports projects contributing to identifying and understanding the fundamental defects in Huntington's Disease. Postdoctoral Fellowships: These postdoctoral fellowships are intended to cultivate interest in Huntington's Disease research by bright young scientists. Fellowships are granted to those who possess imagination, rigor, creativity and spirit to push forward toward a cure for HD and ensure that these learning can be applied to other brain diseases.
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IRS990/Form990PartVIISectionAGrp/PersonNm5David Zwally
IRS990/Form990PartVIISectionAGrp/PersonNm6Anne Young MD PhD
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IRS990/Form990PartVIISectionAGrp/PersonNm8Frank Gehry
IRS990/Form990PartVIISectionAGrp/PersonNm9David Gerstenhaber
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IRS990/Form990PartVIISectionAGrp/PersonNm15Herbert Pardes MD
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,457,716
Liabilities
$1,141,006
Net assets
$11,316,710
Revenue
$2,027,985
Expenses
$2,301,831
Net income
-$273,846
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$22.0$2.83$19.1$7.90$4.52$3.38
2023Detailed filing. Detailed filing data is available for this year.$18.2$3.09$15.1$2.58$4.74$2.16
2022Detailed filing. Detailed filing data is available for this year.$16.8$1.38$15.4$4.52$2.60$1.92
2021Detailed filing. Detailed filing data is available for this year.$18.1$2.33$15.8$3.85$2.97$0.88
2020Detailed filing. Detailed filing data is available for this year.$15.5$1.78$13.7$4.06$2.52$1.54
2019Detailed filing. Detailed filing data is available for this year.$12.5$1.14$11.3$2.03$2.30$0.27
2018Detailed filing. Detailed filing data is available for this year.$10.9$0.84$10.1$2.69$2.14$0.55
2017Detailed filing. Detailed filing data is available for this year.$11.9$1.41$10.5$1.07$2.55$1.47
2016Detailed filing. Detailed filing data is available for this year.$11.7$0.57$11.2$2.29$2.05$0.24
2015Detailed filing. Detailed filing data is available for this year.$11.1$0.53$10.6$2.36$1.89$0.47
2014Detailed filing. Detailed filing data is available for this year.$11.4$0.60$10.8$4.21$1.85$2.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.44$0.60$8.84$2.09