Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990 • Fiscal year 2013 • EIN 23-2635206

Jan 01, 2013 to Dec 31, 2013 • Filed on Nov 03, 2014

Organization Profilewww.smithlemliopitz.org
1710 S 8th St58103

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

47th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • NTEE A • <$500k nonprofits • Source year 2013

Liabilities / Revenue

48th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • NTEE A • <$500k nonprofits • Source year 2013

Net Margin

13th percentile

-27%

Higher net margin than 13% of similar nonprofits.

2013 filings • NTEE A • <$500k nonprofits • Source year 2013

Top Officer Pay

74th percentile

$0

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • NTEE A • <$500k nonprofits • Source year 2013

Asset Growth

21st percentile

-17%

Faster asset growth than 21% of similar nonprofits.

2013 filings • NTEE A • <$500k nonprofits • Annualized from 2012 to 2013

Revenue Growth

88th percentile

77%

Faster revenue growth than 88% of similar nonprofits.

2013 filings • NTEE A • <$500k nonprofits • Annualized from 2011 to 2013

Balance Sheet
Liabilities / Assets47th percentile

Assets

Down

$79,130

Down $16,784 (-17%) from 2012

Net Assets

Down

$79,130

Down $16,784 (-17%) from 2012

Liabilities

Flat

$0

Flat from 2012

Revenue And Expenses
Liabilities / Revenue48th percentileNet Margin13th percentile

Revenue

$61,300

No earlier filing loaded for comparison.

Expenses

Up

$78,084

Up $43,738 (+127%) from 2012

Net Income

-$16,784

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2013

Assets$79,130
Liabilities$0
Net Assets$79,130
Open 2013 Filing

Operations Trend

Revenue Growth88th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2013

Revenue$61,300
Expenses$78,084
Net Income-$16,784
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Nov 3, 2014
Return Version
2013v3.0
Gross Receipts
$71,692
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

To raise funds to provide research grants for the study of SLO/RSH Syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$95,914$79,130▼ $16,784
Cash and Non-Interest-Bearing Accounts$94,414$72,789▼ $21,625
Land, Buildings, and Equipment, Net$1,500$6,341▲ $4,841
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$95,914$79,130▼ $16,784
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$95,914$79,130▼ $16,784
Total Liabilities and Net Assets / Fund Balance$95,914$79,130▼ $16,784

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$6,341$1,600$7,941
Compensation and Service Providers
Top Officer Pay74th percentile

Board Members and Trustees

NameTitle
Gretchen NoahPresident/Treasurer
Amanda BlackVice President
Kate DurenDirector
Melissa GallagherSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$43,766
Program Service Revenue
$7,591
Investment Income
$50
Other Revenue
$9,893
All Other Contributions
$24,739
Change in Net Assets
$-16,784
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$53,084
Grants and Similar Amounts Paid$25,000
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$33,010--$33,010
Grants to Domestic Orgs$25,000--$25,000
Travel$9,639--$9,639
Office Expenses$6,926--$6,926
Depreciation Depletion$1,600--$1,600
Insurance-$956-$956
Other Expenses$204$453-$204
Information Technology$160--$160
All Other Expenses-$136-$136
Total Functional Expenses$76,539$1,545$0$78,084
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
--State of OregonStudy of rare diseases.$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$20,285
Fundraising Direct Expenses$10,392
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$30,583$11,556$8,882$2,674
Event 2$8,729$8,729$1,510$7,219
Total Events$39,312$20,285$10,392$9,893
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 8B

“There are no committees that are able to act on behalf of the board.”

Form 990, Part VI, Section B, line 11

“The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.”

Form 990, Part VI, Section B, line 12C

“Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.”

Form 990, Part VI, Section B, line 15

“There are no employees in the filing organization.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy, and financial statements are available upon request to the public.”

Filing and Contact Details

Filer

EIN
23-2635206
Phone
7013671976

Signing Officer

Name
Gretchen Noah
Title
President/Treasurer
Phone
7013671976
Signed
2014-11-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gretchen Noah
Formed
1990
Legal Domicile
Pa
Voting Board Members
4
Independent Board Members
4
Employees
0
Volunteers
4

Preparer

Preparer
Lisa Chaffee
Phone
7012398500
Raw XML Appendix369 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd01
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0To raise funds to provide research grants for the study of SLO/RSH Syndrome.
IRS990/AllOtherContributionsAmt024739
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0136
IRS990/AllOtherExpensesGrp/TotalAmt0136
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine10Gretchen Noah
IRS990/BooksInCareOfDetail/PhoneNum07013671976
IRS990/BooksInCareOfDetail/USAddress/AddressLine101710 S 8th St
IRS990/BooksInCareOfDetail/USAddress/City0Fargo
IRS990/BooksInCareOfDetail/USAddress/State0ND
IRS990/BooksInCareOfDetail/USAddress/ZIPCode058103
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt00
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt00
IRS990/CashNonInterestBearingGrp/BOYAmt094414
IRS990/CashNonInterestBearingGrp/EOYAmt072789
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt033010
IRS990/ConferencesMeetingsGrp/TotalAmt033010
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt019027
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt043766
IRS990/CYGrantsAndSimilarPaidAmt025000
IRS990/CYInvestmentIncomeAmt050
IRS990/CYOtherExpensesAmt053084
IRS990/CYOtherRevenueAmt09893
IRS990/CYProgramServiceRevenueAmt07591
IRS990/CYRevenuesLessExpensesAmt0-16784
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt078084
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt061300
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ProgramServicesAmt01600
IRS990/DepreciationDepletionGrp/TotalAmt01600
IRS990/Desc0Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration. Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other. Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt076539
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt17.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt320.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/PersonNm0Gretchen Noah
IRS990/Form990PartVIISectionAGrp/PersonNm1Amanda Black
IRS990/Form990PartVIISectionAGrp/PersonNm2Melissa Gallagher
IRS990/Form990PartVIISectionAGrp/PersonNm3Kate Duren
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/TitleTxt0President/Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt019027
IRS990/FundraisingDirectExpensesAmt010392
IRS990/FundraisingGrossIncomeAmt020285
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt04
IRS990/GrantAmt025000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt025000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt025000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt071692
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt04
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt0160
IRS990/InformationTechnologyGrp/TotalAmt0160
IRS990/InsuranceGrp/ManagementAndGeneralAmt0956
IRS990/InsuranceGrp/TotalAmt0956
IRS990/InvestmentIncomeGrp/ExclusionAmt050
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt050
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt01600
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01500
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06341
IRS990/LandBldgEquipCostOrOtherBssAmt07941
IRS990/LegalDomicileStateCd0PA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0Family support for families affected by SLO/RSH Syndrome and funding research to find a cure for SLO/RSH Syndrome.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt095914
IRS990/NetAssetsOrFundBalancesEOYAmt079130
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt09893
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt09893
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ProgramServicesAmt06926
IRS990/OfficeExpensesGrp/TotalAmt06926
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0Licenses & Permits
IRS990/OtherExpensesGrp/Desc1Dues & Subscriptions
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0453
IRS990/OtherExpensesGrp/ProgramServicesAmt0204
IRS990/OtherExpensesGrp/TotalAmt0453
IRS990/OtherExpensesGrp/TotalAmt1204
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0Gretchen Noah
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/BusinessCd1511140
IRS990/ProgramServiceRevenueGrp/Desc0Conference Revenue
IRS990/ProgramServiceRevenueGrp/Desc1Membership Dues
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt05501
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt12090
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt05501
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt12090
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt045047
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt015000
IRS990/PYInvestmentIncomeAmt075
IRS990/PYOtherExpensesAmt019346
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt0550
IRS990/PYRevenuesLessExpensesAmt011326
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt034346
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt045672
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-16784
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt07591
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt095914
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt079130
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt043765
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt045047
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt07942
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt015689
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt026428
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0138871
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt050
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt075
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt097
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0442
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01054
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01718
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt028426
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.98780
IRS990ScheduleA/PublicSupportPY170Pct00.97290
IRS990ScheduleA/PublicSupportTotal170Amt0138871
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt043765
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt045047
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt07942
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt015689
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt026428
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0138871
IRS990ScheduleA/TotalSupportAmt0140589
IRS990/ScheduleBRequiredInd00
IRS990ScheduleD/EquipmentGrp/BookValueAmt06341
IRS990ScheduleD/EquipmentGrp/DepreciationAmt01600
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt07941
IRS990ScheduleD/TotalBookValueLandBuildingsAmt06341
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt019027
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt019027
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt010392
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt030583
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt08729
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt039312
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt011556
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt08729
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt020285
IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent1Amt0Mark Noah Charity Mite Jam
IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent2Amt0Alexis Black Walk
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt09893
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt010392
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt08882
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt01510
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0State of Oregon
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Study of rare diseases.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine10Oregon Health & Science University - Dept of Physics
IRS990ScheduleI/RecipientTable/USAddress/AddressLine10707 SW Gaines Street
IRS990ScheduleI/RecipientTable/USAddress/City0Portland
IRS990ScheduleI/RecipientTable/USAddress/State0OR
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode097239
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0Completed proposals are reviewed by the Smith-Lemli-Opitz/RSH Foundation Medical Advisory Board for evaluation and interpretation. Final determination is made by the Board of Directors based on the recommendations of the Medical Advisory Board. If the grant is approved a letter of approval will be sent to the applicant and funds will be available for immediate disbursement. Funded research proposals must provide the information to the Foundation. At every six month interval over the course of the approved project, a progress report of the research must be submitted to the Smith-Lemli-Opitz/RSH Foundation for review. This report must include: 1) A summary of progress made thus far in the project 2) Details of any difficulties encountered and solutions used or proposed 3) A description of any proposed changes to the project and why the changes are required. 4) An updated Budget listing expenditures to date. 5) Within 60 days after the end of the grant period, a written report is due that includes a layman's summary which the Smith-Lemli-Opitz/RSH Foundation may publish. 6) Also within 60 days after the end of the grant period, a final financial report is due. 7) If the grant is for a multiple-year project, reports are due annually on the anniversary of grant commencement. 8) Immediate notification of changes in Principal Investigator or Institution 9) Notification of any patent application resulting from work performed for the funded research grant. 10) On any public report of the granted research project, the Smith-Lemli-Opitz/RSH Foundation must be named as a source of funding, no matter if funding was partial or whole and a copy of the report must be sent to the Smith-Lemli-Opitz/RSH Foundation.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, Line 2:
IRS990ScheduleI/Total501c3OrgCnt01
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0There are no committees that are able to act on behalf of the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3There are no employees in the filing organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The governing documents, conflict of interest policy, and financial statements are available upon request to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section C, line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0PA
IRS990/StatesWhereCopyOfReturnIsFldCd1MA
IRS990/StatesWhereCopyOfReturnIsFldCd2NY
IRS990/StatesWhereCopyOfReturnIsFldCd3OH
IRS990/StatesWhereCopyOfReturnIsFldCd4IL
IRS990/StatesWhereCopyOfReturnIsFldCd5WV
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt095914
IRS990/TotalAssetsEOYAmt079130
IRS990/TotalAssetsGrp/BOYAmt095914
IRS990/TotalAssetsGrp/EOYAmt079130
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt043766
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt01545
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt076539
IRS990/TotalFunctionalExpensesGrp/TotalAmt078084
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt095914
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt079130
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt076539
IRS990/TotalProgramServiceRevenueAmt07591
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt09943
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt07591
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt061300
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt04
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt095914
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt079130
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt09639
IRS990/TravelGrp/TotalAmt09639
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine101710 S 8th St
IRS990/USAddress/City0Fargo
IRS990/USAddress/State0ND
IRS990/USAddress/ZIPCode058103
IRS990/VotingMembersGoverningBodyCnt04
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0www.smithlemliopitz.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Gretchen Noah
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President/Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum07013671976
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-11-03
ReturnHeader/Filer/BusinessName/BusinessNameLine10Smith-Lemli-OpitzRSH Foundation
ReturnHeader/Filer/BusinessNameControlTxt0SMIT
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/PhoneNum07013671976
ReturnHeader/Filer/USAddress/AddressLine101710 S 8th St
ReturnHeader/Filer/USAddress/City0Fargo
ReturnHeader/Filer/USAddress/State0ND
ReturnHeader/Filer/USAddress/ZIPCode058103
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0450250958
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10EIDE BAILLY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine104310 17TH AVE S PO BOX 2545
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City0FARGO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State0ND
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode0581082545
ReturnHeader/PreparerPersonGrp/PhoneNum07012398500
ReturnHeader/PreparerPersonGrp/PreparationDt02014-11-03
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Lisa Chaffee
ReturnHeader/ReturnTs02014-11-04T10:08:49-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02013-01-01
ReturnHeader/TaxPeriodEndDt02013-12-31
ReturnHeader/TaxYr02013

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$79,130
Liabilities
$0
Net assets
$79,130
Revenue
$61,300
Expenses
$78,084
Net income
-$16,784
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54