Liabilities / Assets
50th percentile
Tied with the lowest-debt nonprofits in its peer group.
Smith-Lemli -Opitz Rsh Foundation
990EZ • Fiscal year 2018 • EIN 23-2635206
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
50th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
4th percentile
Higher net margin than 4% of similar nonprofits.
Top Officer Pay
71st percentile
Higher top officer pay than 71% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
18th percentile
Faster asset growth than 18% of similar nonprofits.
Revenue Growth
92nd percentile
Faster revenue growth than 92% of similar nonprofits.
Balance Sheet
Assets
Down$98,137
Down $33,544 (-25%) from 2017
Net Assets
Down$98,137
Down $33,544 (-25%) from 2017
Liabilities
Flat$0
Flat from 2017
Revenue And Expenses
Revenue
Up$30,507
Up $16,163 (+113%) from 2017
Expenses
Up$64,051
Up $8,801 (+16%) from 2017
Net Income
Up-$33,544
Up $7,362 (+18%) from 2017
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2018 to Dec 31, 2018
- Signed
- Aug 26, 2019
- Return Version
- 2018v3.1
- Gross Receipts
- $31,439
Mission and Program Overview
Mission
Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.
To raise funds to provide research grants for the study of SLO/RSH syndrome.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration.Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other.Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome. | $45,000 | $58,873 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Gretchen Noah | President/Treasurer | PT | $0 | - | - |
| Bonny Williams | Vice President | PT | $0 | - | - |
| Kelly Noah | Secretary | PT | $0 | - | - |
| Kate Duren | Director Of Communication | PT | $0 | - | - |
| Kathy Proudfoot | Director Of Global Relation | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Smith-Lemli-OpitzRSH Foundation
- EIN
- 23-2635206
- Phone
- 7013671976
- Address
- 1710 S 8th St, Fargo, ND 58103
Signing Officer
- Name
- Gretchen Noah
- Title
- President/Treasurer
- Phone
- 7013671976
- Signed
- 2019-08-26
- Discuss with paid preparer
- Yes
Preparer
- Firm
- Eide Bailly Llp
- Address
- 4310 17TH AVE S PO BOX 2545, FARGO, ND 58108-2545
- Preparer
- Deb Nelson
- Phone
- 7012398500
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity Classification: Research. Grantee Name: IOMA LLC, Fred Chasalow, Ph.D. Grantee Address: 2523 Hastings Drive Belmont, CA 94002. Amount Given: 10,000.”
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity Classification: Research. Grantee Name: Sanford Research. Grantee Address: 2301 East 60th Street North Sioux Falls, SD 57104-0569. Amount Given: 10,000.”
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid
“Activity Classification: Research. Grantee Name: tTap - a life science accelerator - Dr. Robert Grantee Name: tTap - a life science accelerator - Dr. Robert. Grantee Address: PO Box 201 Pennington, NJ 08534. Amount Given: 25,000. Total included on Form 990-EZ, line 10: 45,000.”
Form 990-EZ, Part I, Line 16 - Other Expenses
“Description: Conferences & Meetings. Amount: 6,449. Description: Depreciation. Amount: 1,441. Description: Office Supplies & Postage. Amount: 2,247. Description: Memorial Charm Expense. Amount: 1,292. Description: Licenses & Fees. Amount: 577. Total to Form 990-EZ, line 16: 12,006.”
Form 990-EZ, Part II, Line 24 - Other Assets
“Description: Other Depreciable Assets. Beg. of Year Amount: 1,954. End of Year Amount: 513.”
Raw XML Appendix178 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | Vice President |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | Director of Global Relation |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 1954 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 513 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 12006 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To raise funds to provide research grants for the study of SLO/RSH syndrome. |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 307 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration.Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other.Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 45000 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 58873 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/ScheduleBNotRequiredInd | 0 | X |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 932 |
| IRS990EZ/SpecialEventsNetIncomeLossAmt | 0 | 5280 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | PA |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 1 | NY |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 2 | OH |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 3 | IL |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 4 | WV |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
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| IRS990EZ/TotalExpensesAmt | 0 | 64051 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 58873 |
| IRS990EZ/TotalRevenueAmt | 0 | 30507 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | www.smithlemliopitz.org |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 24920 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 8033 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 58919 |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 61160 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 194792 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 48 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 38 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 41 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 127 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 55808 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.85680 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.87630 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 167004 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 27788 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 24920 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 8033 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 58919 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 41760 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 194792 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 194919 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Activity Classification: Research. Grantee Name: IOMA LLC, Fred Chasalow, Ph.D. Grantee Address: 2523 Hastings Drive Belmont, CA 94002. Amount Given: 10,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Activity Classification: Research. Grantee Name: Sanford Research. Grantee Address: 2301 East 60th Street North Sioux Falls, SD 57104-0569. Amount Given: 10,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Activity Classification: Research. Grantee Name: tTap - a life science accelerator - Dr. Robert Grantee Name: tTap - a life science accelerator - Dr. Robert. Grantee Address: PO Box 201 Pennington, NJ 08534. Amount Given: 25,000. Total included on Form 990-EZ, line 10: 45,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Description: Conferences & Meetings. Amount: 6,449. Description: Depreciation. Amount: 1,441. Description: Office Supplies & Postage. Amount: 2,247. Description: Memorial Charm Expense. Amount: 1,292. Description: Licenses & Fees. Amount: 577. Total to Form 990-EZ, line 16: 12,006. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Description: Other Depreciable Assets. Beg. of Year Amount: 1,954. End of Year Amount: 513. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990-EZ, Part I, Line 16 - Other Expenses |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990-EZ, Part II, Line 24 - Other Assets |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract. |
| ReturnHeader/BuildTS | 0 | 2019-02-21 02:37:17Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Gretchen Noah |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President/Treasurer |
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| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2019-08-26 |
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| ReturnHeader/Filer/BusinessNameControlTxt | 0 | SMIT |
| ReturnHeader/Filer/EIN | 0 | 232635206 |
| ReturnHeader/Filer/PhoneNum | 0 | 7013671976 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 1710 S 8th St |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Fargo |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | ND |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 58103 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId | 0 | 66CC91E6B7F11C4783FFFA5645E675327CB67316 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId | 0 | 3F1B4C4A1C1F32CA3CD03C05270CE62742EA9E6E |
| ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd | 0 | P |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 199.247.45.22 |
| ReturnHeader/FilingSecurityInformation/IPDt | 0 | 2019-08-26 |
| ReturnHeader/FilingSecurityInformation/IPTimezoneCd | 0 | CD |
| ReturnHeader/FilingSecurityInformation/IPTm | 0 | 10:08:05 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 450250958 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | EIDE BAILLY LLP |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 4310 17TH AVE S PO BOX 2545 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | FARGO |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | ND |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 581082545 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 7012398500 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2019-08-26 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Deb Nelson |
| ReturnHeader/ReturnTs | 0 | 2019-08-26T13:38:33-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2018-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2018-12-31 |
| ReturnHeader/TaxYr | 0 | 2018 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2018 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $98,137
- Liabilities
- $0
- Net assets
- $98,137
- Revenue
- $30,507
- Expenses
- $64,051
- Net income
- -$33,544