Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990EZ • Fiscal year 2019 • EIN 23-2635206

Jan 01, 2019 to Dec 31, 2019 • Filed on Jul 12, 2020

Organization ProfileSMITHLEMILIOPITZ.ORG
1710 S 8th StFargo, ND 58103

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2019

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2019

Net Margin

12th percentile

-30%

Higher net margin than 12% of similar nonprofits.

2019 filings • NTEE A • <$500k nonprofits • Source year 2019

Top Officer Pay

72nd percentile

$0

Higher top officer pay than 72% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • NTEE A • <$500k nonprofits • Source year 2019

Asset Growth

19th percentile

-24%

Faster asset growth than 19% of similar nonprofits.

2019 filings • NTEE A • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

93rd percentile

158%

Faster revenue growth than 93% of similar nonprofits.

2019 filings • NTEE A • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$74,355

Down $23,782 (-24%) from 2018

Net Assets

Down

$74,355

Down $23,782 (-24%) from 2018

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin12th percentile

Revenue

Up

$78,588

Up $48,081 (+158%) from 2018

Expenses

Up

$102,121

Up $38,070 (+59%) from 2018

Net Income

Up

-$23,533

Up $10,011 (+30%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth19th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2019

Assets$74,355
Liabilities-
Net Assets$74,355
Open 2019 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2019

Revenue$78,588
Expenses$102,121
Net Income-$23,533
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jul 12, 2020
Return Version
2019v5.0
Gross Receipts
$78,588
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

Primary exempt purpose raise funds to provide research grants for study of slo/rsh syndrom and provide support services and informaiton to families affected by smith -lemli-opitz/rsh syndrome

Program Services

DescriptionGrantsExpenses
PROVIDE SUPPORT SERVICES TO FAMILIES AFFECTED BY SLO/RSH SYNDROME. ORIGINALLY , THE SMITH-LEMLI-OPITZ/RSH FOUNDATION WAS CREATED IN 1988 TO GIVE A GROUP OF 37 FAMILIES WITH SLO CHILDREN A NETWORK TO EXCHANGE EXPRIENCES AND INFORMATION ABOUT SMITH-LEMLI -OPITZ SYNDROME. SINNCE THEN, THE GROUP GROWN TO MORE THAN 500 FAMILIES IN THE UNITED STATES AND ACROSS THE WORLD. THE SLO/RSH FOUNDATION'S WEBSITE (WWW.SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH THE SMITH-LEMLI-OPITZ SYNDROME. ON THE WEBSITE FAMILES WIL FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, INFORMATION ABOUT ONGOING RESEARCH STUDIES, AND AN INVITATION FOR FAMILES TO JOIN OUR SPECIAL SUPPORT COMMUNITY. THE FOUNDATION, INCONJUNCTION WITH VOLUNTEERS, HAS SET-UP E-MAIL AND SOCIAL MEDIA GROUPS SUCH AS FACEBOOK, TWITTER AND OUR SLO YAHOOGROUP SO THAT FAMILIES CAN CONTACT EACHOTHER INFORMALLY. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS, SHARE IN JOYFUL TIMES AND SHARE IN GRIEF OR FRUSTRATION. ADDITIONAL THE FOUNDATION PROVIDES SEMI-ANNUAL NEWSLETTERS AND HELPS TO SPONSOR REGULAR NATIONAL CONFERENCES WHERE PHYSICIANS, SCIENTISTS, AND PARENTS CAN LEARN MORE ABOUT THE SYNDROME AND FROM EACHOTHER. ANOTHER IMPORTANT GOAL OF THE FOUNDATION WHICH IS RUN SOLELY BY VOLUNTEERS IS THE RAISE FUNDS AND PROVIDE FUNDS TO PROOTE RESEARCH INTO TREATMENTS AND ULTIMATELY A CURE FOR THE SMITH-LEMLI-OPITZ SYNDROME.$66,101-
PROVIDE FUNDS TO FURTHER RESEARCH OF THE SLO/RSH SYNDROME-$20,000
Compensation and Service Providers
Top Officer Pay72nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
GRETCHEN NOAHPresidentPT$0--
BONNY WILLIAMSVice PresidentPT$0--
KELLY NOAHSecretaryPT$0--
KATE DURENDirectorPT$0--
KATHY PROUDFOOTDirector-$0--
Filing and Contact Details

Filer

Filer Name
Smith-lemli -opitz Rsh Foundation
EIN
23-2635206
Phone
7013671976
Address
1710 S 8TH ST, FARGO, ND 58103

Signing Officer

Name
Gretchen Noah
Title
President
Signed
2020-07-12
Discuss with paid preparer
Yes

Preparer

Firm
Hattrup and Associates Ps
Address
10130 Edmonds Way, Edmonds, WA 98020
Preparer
David Ballard Ea
Phone
4257718239
Supplemental Narrative

Additional Explanations

Grants and Similar Amounts Paid In Excess of $5,000.1

“| Donee's Name: LIBIN XU UNIVERSITY OF WASHINGTON | Cash Amount Given: $20000”

Other Expenses.1001

“Advertising and Promotion $518”

Other Expenses.1002

“Office Expenses $2741”

Other Expenses.1003

“Information Technology $6097”

Other Expenses.1005

“Travel $8101”

Other Expenses.1007

“Conferences, Conventions, and Meetings $59504”

Other Expenses.1009

“Depreciation $710”

Other Expenses.1

“WEBSITE $500”

Other Expenses.2

“MISCELLANEOUS $107”

Other Assets.1003

“Machinery and Equipment - Beginning $513 Machinery and Equipment - Ending $787”

Raw XML Appendix151 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Vice President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Secretary
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Director
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherAssetsTotalDetail/BOYAmt0513
IRS990EZ/OtherAssetsTotalDetail/EOYAmt0787
IRS990EZ/OtherExpensesTotalAmt078278
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
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IRS990EZ/PrimaryExemptPurposeTxt0PRIMARY EXEMPT PURPOSE RAISE FUNDS TO PROVIDE RESEARCH GRANTS FOR STUDY OF SLO/RSH SYNDROM AND PROVIDE SUPPORT SERVICES AND INFORMAITON TO FAMILIES AFFECTED BY SMITH -LEMLI-OPITZ/RSH SYNDROME
IRS990EZ/ProgramServiceRevenueAmt031838
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0PROVIDE FUNDS TO FURTHER RESEARCH OF THE SLO/RSH SYNDROME
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1PROVIDE SUPPORT SERVICES TO FAMILIES AFFECTED BY SLO/RSH SYNDROME. ORIGINALLY , THE SMITH-LEMLI-OPITZ/RSH FOUNDATION WAS CREATED IN 1988 TO GIVE A GROUP OF 37 FAMILIES WITH SLO CHILDREN A NETWORK TO EXCHANGE EXPRIENCES AND INFORMATION ABOUT SMITH-LEMLI -OPITZ SYNDROME. SINNCE THEN, THE GROUP GROWN TO MORE THAN 500 FAMILIES IN THE UNITED STATES AND ACROSS THE WORLD. THE SLO/RSH FOUNDATION'S WEBSITE (WWW.SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH THE SMITH-LEMLI-OPITZ SYNDROME. ON THE WEBSITE FAMILES WIL FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, INFORMATION ABOUT ONGOING RESEARCH STUDIES, AND AN INVITATION FOR FAMILES TO JOIN OUR SPECIAL SUPPORT COMMUNITY. THE FOUNDATION, INCONJUNCTION WITH VOLUNTEERS, HAS SET-UP E-MAIL AND SOCIAL MEDIA GROUPS SUCH AS FACEBOOK, TWITTER AND OUR SLO YAHOOGROUP SO THAT FAMILIES CAN CONTACT EACHOTHER INFORMALLY. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS, SHARE IN JOYFUL TIMES AND SHARE IN GRIEF OR FRUSTRATION. ADDITIONAL THE FOUNDATION PROVIDES SEMI-ANNUAL NEWSLETTERS AND HELPS TO SPONSOR REGULAR NATIONAL CONFERENCES WHERE PHYSICIANS, SCIENTISTS, AND PARENTS CAN LEARN MORE ABOUT THE SYNDROME AND FROM EACHOTHER. ANOTHER IMPORTANT GOAL OF THE FOUNDATION WHICH IS RUN SOLELY BY VOLUNTEERS IS THE RAISE FUNDS AND PROVIDE FUNDS TO PROOTE RESEARCH INTO TREATMENTS AND ULTIMATELY A CURE FOR THE SMITH-LEMLI-OPITZ SYNDROME.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt066101
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt020000
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SpecialEventsDirectExpensesAmt00
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
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IRS990EZ/TaxReimbursedByOrganizationAmt00
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IRS990EZ/TotalProgramServiceExpensesAmt066101
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IRS990EZ/TransactionWithControlEntInd0false
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IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0SMITHLEMILIOPITZ.ORG
IRS990ScheduleA/First5Years170Ind0X
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IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt00
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
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IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt046750
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt046750
IRS990ScheduleA/TotalSupportAmt046750
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Donee's Name: LIBIN XU UNIVERSITY OF WASHINGTON | Cash Amount Given: $20000
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Advertising and Promotion $518
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Office Expenses $2741
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Information Technology $6097
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Travel $8101
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Conferences, Conventions, and Meetings $59504
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Depreciation $710
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7WEBSITE $500
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8MISCELLANEOUS $107
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9Machinery and Equipment - Beginning $513 Machinery and Equipment - Ending $787
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Grants and Similar Amounts Paid In Excess of $5,000.1
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ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0GRETCHEN NOAH
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-07-12
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SMITH-LEMLI -OPITZ RSH FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0SMIT
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/PhoneNum07013671976
ReturnHeader/Filer/USAddress/AddressLine1Txt01710 S 8TH ST
ReturnHeader/Filer/USAddress/CityNm0FARGO
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ND
ReturnHeader/Filer/USAddress/ZIPCd058103
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt010130 Edmonds Way
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Edmonds
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0WA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd098020
ReturnHeader/PreparerPersonGrp/PhoneNum04257718239
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0DAVID BALLARD EA
ReturnHeader/ReturnTs02020-09-15T08:48:55-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$74,355
Liabilities
-
Net assets
$74,355
Revenue
$78,588
Expenses
$102,121
Net income
-$23,533
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019Detailed filing. Detailed filing data is available for this year.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54