Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990 • Fiscal year 2012 • EIN 23-2635206

Jan 01, 2012 to Dec 31, 2012 • Filed on Sep 16, 2013

Organization ProfileSMITHLEMLIOPITZ.ORG
1710 S 8th St58103
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2012 filings • NTEE A • <$500k nonprofits • Source year 2012

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2012

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2012

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2012

Asset Growth

68th percentile

13%

Faster asset growth than 68% of similar nonprofits.

2012 filings • NTEE A • <$500k nonprofits • Annualized from 2011 to 2012

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets45th percentile

Assets

Up

$95,914

Up $11,326 (+13%) from 2011

Net Assets

Up

$95,914

Up $11,326 (+13%) from 2011

Liabilities

Flat

$0

Flat from 2011

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$34,346

Down $38,816 (-53%) from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth68th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2012

Assets$95,914
Liabilities$0
Net Assets$95,914
Open 2012 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2012

Revenue-
Expenses$34,346
Net Income-
Open 2012 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2012 to Dec 31, 2012
Signed
Sep 16, 2013
Return Version
2012v2.1
Gross Receipts
$45,672
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

Filing and Contact Details

Filer

EIN
23-2635206
Raw XML Appendix345 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDescription0To raise funds to provide research grants for the study of SLO/RSH Syndrome
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IRS990/Description0Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration. Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other. Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome.
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IRS990/MissionDescription0Family support for families affected by SLO/RSH Syndrome and funding research to find a cure for SLO/RSH Syndrome.
IRS990/MoreThan5000KToIndividuals00
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IRS990/NameOfPrincipalOfficerPerson0Gretchen Noah
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IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear045047
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year07942
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IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus3Years026428
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IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear075
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IRS990ScheduleA/PublicSupportPertcentage17000.97290
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IRS990ScheduleI/Form990ScheduleIPartIV/Explanation0Schedule I, Part I, Line 2: Completed proposals are reviewed by the Smith-Lemli-Opitz/RSH Foundation Medical Advisory Board for evaluation and interpretation. Final determination is made by the Board of Directors based on the recommendations of the Medical Advisory Board. If the grant is approved a letter of approval will be sent to the applicant and funds will be available for immediate disbursement. Funded research proposals must provide the information to the Foundation. At every six month interval over the course of the approved project, a progress report of the research must be submitted to the Smith-Lemli-Opitz/RSH Foundation for review. This report must include: 1) A summary of progress made thus far in the project 2) Details of any difficulties encountered and solutions used or proposed 3) A description of any proposed changes to the project and why the changes are required. 4) An updated Budget listing expenditures to date. 5) Within 60 days after the end of the grant period, a written report is due that includes a layman's summary which the Smith-Lemli-Opitz/RSH Foundation may publish. 6) Also within 60 days after the end of the grant period, a final financial report is due. 7) If the grant is for a multiple-year project, reports are due annually on the anniversary of grant commencement. 8) Immediate notification of changes in Principal Investigator or Institution 9) Notification of any patent application resulting from work performed for the funded research grant. 10) On any public report of the granted research project, the Smith-Lemli-Opitz/RSH Foundation must be named as a source of funding, no matter if funding was partial or whole and a copy of the report must be sent to the Smith-Lemli-Opitz/RSH Foundation.
IRS990ScheduleI/Form990ScheduleIPartIV/Identifier0Procedure for Monitoring Grants in the U.S.:
IRS990ScheduleI/Form990ScheduleIPartIV/ReturnReference0Part I, Line 2:
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IRS990ScheduleI/RecipientTable/PurposeOfGrant0Grant for application: "Using Mass Spectrometry to Reveal Proteomic and Metabolomic Signatures in Smith-Lemli-Opitz Syndrome Patients"
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine10NICHD National Institute of Health
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IRS990ScheduleO/GeneralExplanation/Explanation0There are no committees that are able to act on behalf of the board.
IRS990ScheduleO/GeneralExplanation/Explanation1The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.
IRS990ScheduleO/GeneralExplanation/Explanation2Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.
IRS990ScheduleO/GeneralExplanation/Explanation3There are no employees in the filing organization.
IRS990ScheduleO/GeneralExplanation/Explanation4The governing documents, conflict of interest policy, and financial statements are available upon request to the public.
IRS990ScheduleO/GeneralExplanation/ReturnReference0Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/GeneralExplanation/ReturnReference1Form 990, Part VI, Section B, line 11
IRS990ScheduleO/GeneralExplanation/ReturnReference2Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/GeneralExplanation/ReturnReference3Form 990, Part VI, Section C, line 19
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IRS990/StatesWhereCopyOfReturnIsFiled3MN
IRS990/StatesWhereCopyOfReturnIsFiled4NY
IRS990/StatesWhereCopyOfReturnIsFiled5OH
IRS990/StatesWhereCopyOfReturnIsFiled6IL
IRS990/StatesWhereCopyOfReturnIsFiled7WV
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IRS990/TheBooksAreInCareOf/NameBusiness/BusinessNameLine10Gretchen Noah
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IRS990/WebSite0www.smithlemliopitz.org
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IRS990/YearFormation01990
ReturnHeader/BuildTS02016-02-25 16:41:14Z
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/Name/BusinessNameLine10Smith-Lemli-OpitzRSH Foundation
ReturnHeader/Filer/NameControl0SMIT
ReturnHeader/Filer/Phone07013671976
ReturnHeader/Filer/USAddress/AddressLine101710 S 8th St
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ReturnHeader/Filer/USAddress/State0ND
ReturnHeader/Filer/USAddress/ZIPCode058103
ReturnHeader/Officer/AuthorizeThirdParty01
ReturnHeader/Officer/DateSigned02013-09-16
ReturnHeader/Officer/Name0Gretchen Noah
ReturnHeader/Officer/Phone07013671976
ReturnHeader/Officer/Title0President/Treasurer
ReturnHeader/Preparer/DatePrepared02013-09-16
ReturnHeader/PreparerFirm/EIN0450250958
ReturnHeader/PreparerFirm/PreparerFirmBusinessName/BusinessNameLine10EIDE BAILLY LLP
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/AddressLine104310 17TH AVE S PO BOX 2545
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/City0FARGO
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/State0ND
ReturnHeader/PreparerFirm/PreparerFirmUSAddress/ZIPCode0581082545
ReturnHeader/Preparer/Name0Lisa Chaffee
ReturnHeader/Preparer/Phone07012398500
ReturnHeader/ReturnType0990
ReturnHeader/TaxPeriodBeginDate02012-01-01
ReturnHeader/TaxPeriodEndDate02012-12-31
ReturnHeader/TaxYear02012
ReturnHeader/Timestamp02013-10-09T11:51:11-05:00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$95,914
Liabilities
$0
Net assets
$95,914
Revenue
-
Expenses
$34,346
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54