Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990EZ • Fiscal year 2022 • EIN 23-2635206

Jan 01, 2022 to Dec 31, 2022 • Filed on May 30, 2023

Organization ProfileSMITHLEMLIOPITZ.ORG
PO Box 10598Fargo, ND 58106

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Higher debt load relative to assets than 56% of similar nonprofits.

2022 filings • NTEE A • <$500k nonprofits • Source year 2022

Liabilities / Revenue

60th percentile

0.01x

Higher debt load relative to revenue than 60% of similar nonprofits.

2022 filings • NTEE A • <$500k nonprofits • Source year 2022

Net Margin

68th percentile

18%

Higher net margin than 68% of similar nonprofits.

2022 filings • NTEE A • <$500k nonprofits • Source year 2022

Top Officer Pay

81st percentile

$8,000

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 13.5% of source-year revenue.

2022 filings • NTEE A • <$500k nonprofits • Source year 2022

Asset Growth

59th percentile

7.4%

Faster asset growth than 59% of similar nonprofits.

2022 filings • NTEE A • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

33rd percentile

-4.5%

Faster revenue growth than 33% of similar nonprofits.

2022 filings • NTEE A • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$166,804

Up $11,537 (+7.4%) from 2021

Net Assets

Up

$166,160

Up $10,893 (+7.0%) from 2021

Liabilities

$644

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin68th percentile

Revenue

Down

$59,374

Down $2,776 (-4.5%) from 2021

Expenses

Up

$48,481

Up $15,520 (+47%) from 2021

Net Income

Down

$10,893

Down $18,296 (-63%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth59th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2022

Assets$166,804
Liabilities$644
Net Assets$166,160
Open 2022 Filing

Operations Trend

Revenue Growth33rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2022

Revenue$59,374
Expenses$48,481
Net Income$10,893
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 30, 2023
Return Version
2022v5.0
Gross Receipts
$59,374
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

Program Services

DescriptionGrantsExpenses
PROVIDE SUPPORT SERVICES TO FAMILIES AFFECTED BY SLO SYNDROME. ORIGINALLY , THE SMITH-LEMLI-OPITZ FOUNDATION WAS CREATED IN 1988 TO GIVE A GROUP OF 37 FAMILIES WITH SLO CHILDREN A NETWORK TO EXCHANGE EXPRIENCES AND INFORMATION ABOUT SMITH-LEMLI-OPITZ SYNDROME. SINCE THEN, THE GROUP HAS GROWN TO MORE THAN 1,000 FAMILIES IN THE UNITED STATES AND ACROSS THE WORLD. THE SLO FOUNDATION'S WEBSITE (WWW.SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH THE SMITH-LEMLI-OPITZ SYNDROME. ON THE WEBSITE FAMILES WILL FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, INFORMATION ABOUT ONGOING RESEARCH STUDIES, AND AN INVITATION FOR FAMILES TO JOIN OUR SPECIAL SUPPORT COMMUNITY. THE FOUNDATION, IN CONJUNCTION WITH VOLUNTEERS, HAS SET-UP E-MAIL AND SOCIAL MEDIA GROUPS SUCH AS TWITTER AND OUR SLOF FACEBOOK GROUP SO THAT FAMILIES CAN CONTACT EACH OTHER INFORMALLY. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS, SHARE IN JOYFUL TIMES AND SHARE IN GRIEF OR FRUSTRATION. ADDITIONALLY THE FOUNDATION HELPS TO SPONSOR REGULAR NATIONAL CONFERENCES WHERE PHYSICIANS, SCIENTISTS, AND PARENTS CAN LEARN MORE ABOUT THE SYNDROME AND FROM EACH OTHER. ANOTHER IMPORTANT GOAL OF THE FOUNDATION IS TO RAISE FUNDS AND PROVIDE FUNDS TO PROMOTE RESEARCH INTO TREATMENTS AND ULTIMATELY A CURE FOR THE SMITH-LEMLI-OPITZ SYNDROME.-$43,204
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
GRETCHEN NOAHPresidentPT$8,000-$8,000
KATE DURENDirectorPT$4,000-$4,000
KELLY NOAHSecretaryPT$0--
CAROLINE KELLYDirector-$0--
KAYLEIGH KEMPSTERDirector-$0--
CAROLA GUTIERREZDirector-$0--
CELIA TRIMESTRADirector-$0--
MICHAEL COHENDirector-$0--
AMY DINUNZIODirector-$0--
Filing and Contact Details

Filer

Filer Name
Smith-lemli-opitz Foundation
EIN
23-2635206
Phone
7013671976
Address
PO BOX 10598, FARGO, ND 58106

Signing Officer

Name
Gretchen Noah
Title
President
Signed
2023-05-30
Discuss with paid preparer
Yes

Preparer

Firm
Hattrup and Associates Ps
Address
10130 Edmonds Way, Edmonds, WA 98020
Preparer
David Ballard EA
Phone
4257718239
Supplemental Narrative

Additional Explanations

Other Expenses.1001

“Advertising and Promotion $2119”

Other Expenses.1002

“Office Expenses $3942”

Other Expenses.1005

“Travel $656”

Other Expenses.1009

“Depreciation $1318”

Other Expenses.1012

“Insurance $1421”

Other Expenses.1

“Telephone & internet $7013”

Other Expenses.2

“Education & training $6587”

Other Expenses.3

“WEBSITE $5300”

Other Expenses.4

“LOSS CHARMS $1075”

Other Expenses.5

“DUES / MEMBERSHIP $945”

Other Expenses.6

“STATE TAX $450”

Other Expenses.7

“MEALS $8”

Other Expenses.8

“BANK SERVICE CHARGES $5”

Other Assets.1003

“Machinery and Equipment - Beginning $3296 Machinery and Equipment - Ending $1978”

Total Liabilities.1

“loan from Gretchen - Beginning $0 loan from Gretchen - Ending $644”

Raw XML Appendix190 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0President
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt8Director
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Advertising and Promotion $2119
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Office Expenses $3942
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Travel $656
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Depreciation $1318
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Insurance $1421
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5TELEPHONE & INTERNET $7013
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6EDUCATION & TRAINING $6587
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7WEBSITE $5300
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8LOSS CHARMS $1075
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9DUES / MEMBERSHIP $945
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10STATE TAX $450
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt11MEALS $8
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt12BANK SERVICE CHARGES $5
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc14Total Liabilities.1
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0GRETCHEN NOAH
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-05-30
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ReturnHeader/Filer/BusinessNameControlTxt0SMIT
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/PhoneNum07013671976
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 10598
ReturnHeader/Filer/USAddress/CityNm0FARGO
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ND
ReturnHeader/Filer/USAddress/ZIPCd058106
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0320184712
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd098020
ReturnHeader/PreparerPersonGrp/PhoneNum04257718239
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0David Ballard EA
ReturnHeader/ReturnTs02023-06-05T14:15:43-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0GRETCHEN
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0NOAH
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$166,804
Liabilities
$644
Net assets
$166,160
Revenue
$59,374
Expenses
$48,481
Net income
$10,893
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022Detailed filing. Detailed filing data is available for this year.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54