Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990 • Fiscal year 2017 • EIN 23-2635206

Jan 01, 2017 to Dec 31, 2017 • Filed on Aug 30, 2018

Organization Profilewww.smithlemliopitz.org
1710 S 8th StFargo, ND 58103

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • NTEE A • <$500k nonprofits • Source year 2017

Liabilities / Revenue

49th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • NTEE A • <$500k nonprofits • Source year 2017

Net Margin

2nd percentile

-285%

Higher net margin than 2% of similar nonprofits.

2017 filings • NTEE A • <$500k nonprofits • Source year 2017

Top Officer Pay

71st percentile

$0

Higher top officer pay than 71% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • NTEE A • <$500k nonprofits • Source year 2017

Asset Growth

20th percentile

-24%

Faster asset growth than 20% of similar nonprofits.

2017 filings • NTEE A • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

5th percentile

-74%

Faster revenue growth than 5% of similar nonprofits.

2017 filings • NTEE A • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets49th percentile

Assets

Down

$131,681

Down $40,906 (-24%) from 2016

Net Assets

Down

$131,681

Down $40,906 (-24%) from 2016

Liabilities

Flat

$0

Flat from 2016

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin2nd percentile

Revenue

Down

$14,344

Down $40,166 (-74%) from 2016

Expenses

Up

$55,250

Up $38,744 (+235%) from 2016

Net Income

Down

-$40,906

Down $78,910 (-208%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth20th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2017

Assets$131,681
Liabilities$0
Net Assets$131,681
Open 2017 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2017

Revenue$14,344
Expenses$55,250
Net Income-$40,906
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Aug 30, 2018
Return Version
2017v2.3
Gross Receipts
$14,614
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

To raise funds to provide research grants for the study of SLO/RSH Syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$168,313$129,727▼ $38,586
Land, Buildings, and Equipment, Net$4,274$1,954▼ $2,320
Total Assets$172,587$131,681▼ $40,906
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$157,587$116,181▼ $41,406
Temporarily Rstr Net Assets$15,000$15,500▲ $500
Total Net Assets Fund Balance$172,587$131,681▼ $40,906
Total Liabilities and Net Assets / Fund Balance$172,587$131,681▼ $40,906

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,954$9,638$11,592
Compensation and Service Providers
Top Officer Pay71st percentile

Board Members and Trustees

NameTitle
Gretchen NoahPresident/Treasurer
Amanda BlackVice President
Kathy ProudfootDirector of Global Relatio
Kate DurenDirector of Media Relation
Kelly NoahSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$8,033
Program Service Revenue
$6,331
Investment Income
$0
Other Revenue
$-20
All Other Contributions
$8,033
Change in Net Assets
$-40,906
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$55,250
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$40,573--$40,573
Office Expenses-$10,144-$10,144
Depreciation Depletion$2,320--$2,320
Fees for Services Accounting-$1,799-$1,799
Other Expenses-$292-$292
All Other Expenses$122--$122
Total Functional Expenses$43,015$12,235$0$55,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$270
Fundraising Gross Income$250
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“Kelly and Gretchen Noah have a family relationship.”

Form 990, Part VI, Section A, line 6

“The SLO/RSH Foundation is made up of families with lifetime memberships. These memberships have no voting rights or influence over the Foundation or its members. Those with memberships receive information regarding the syndrome Smith-Lemli-Opitz Syndrome.”

Form 990, Part VI, Section A, line 8B

“There are no committees that are able to act on behalf of the board.”

Form 990, Part VI, Section B, line 11B

“The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.”

Form 990, Part VI, Section B, line 12C

“Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.”

Form 990, Part VI, Section B, line 15

“There are no employees in the filing organization.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy, and financial statements are available upon request to the public.”

Filing and Contact Details

Filer

Filer Name
Smith-Lemli-OpitzRSH Foundation
EIN
23-2635206
Phone
7013671976
Address
1710 S 8th St, Fargo, ND 58103

Signing Officer

Name
Gretchen Noah
Title
President/Treasurer
Phone
7013671976
Signed
2018-08-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gretchen Noah
Formed
1990
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
5

Preparer

Firm
Eide Bailly Llp
Address
4310 17TH AVE S PO BOX 2545, FARGO, ND 58108-2545
Preparer
Lisa Chaffee
Phone
7012398500
Raw XML Appendix343 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration.Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other.Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Kelly and Gretchen Noah have a family relationship.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The SLO/RSH Foundation is made up of families with lifetime memberships. These memberships have no voting rights or influence over the Foundation or its members. Those with memberships receive information regarding the syndrome Smith-Lemli-Opitz Syndrome.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2There are no committees that are able to act on behalf of the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5There are no employees in the filing organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The governing documents, conflict of interest policy, and financial statements are available upon request to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section B, line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990, Part VI, Section C, line 19
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IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt012235
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt043015
IRS990/TotalFunctionalExpensesGrp/TotalAmt055250
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0172587
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0131681
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt043015
IRS990/TotalProgramServiceRevenueAmt06331
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt0-20
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt06331
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt014344
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt05
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0172587
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0131681
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UnrestrictedNetAssetsGrp/BOYAmt0157587
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0116181
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01710 S 8th St
IRS990/USAddress/CityNm0Fargo
IRS990/USAddress/StateAbbreviationCd0ND
IRS990/USAddress/ZIPCd058103
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0www.smithlemliopitz.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02018-06-14 16:35:46Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Gretchen Noah
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President/Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum07013671976
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-08-30
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Smith-Lemli-OpitzRSH Foundation
ReturnHeader/Filer/BusinessNameControlTxt0SMIT
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/PhoneNum07013671976
ReturnHeader/Filer/USAddress/AddressLine1Txt01710 S 8th St
ReturnHeader/Filer/USAddress/CityNm0Fargo
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ND
ReturnHeader/Filer/USAddress/ZIPCd058103
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId066CC91E6B7F11C4783FFFA5645E675327CB67316
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId03F1B4C4A1C1F32CA3CD03C05270CE62742EA9E6E
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0198.135.124.110
ReturnHeader/FilingSecurityInformation/IPDt02018-08-30
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CD
ReturnHeader/FilingSecurityInformation/IPTm015:18:49
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0450250958
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0EIDE BAILLY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt04310 17TH AVE S PO BOX 2545
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0FARGO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0ND
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0581082545
ReturnHeader/PreparerPersonGrp/PhoneNum07012398500
ReturnHeader/PreparerPersonGrp/PreparationDt02018-08-30
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Lisa Chaffee
ReturnHeader/ReturnTs02018-08-31T08:21:21-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$131,681
Liabilities
$0
Net assets
$131,681
Revenue
$14,344
Expenses
$55,250
Net income
-$40,906
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54