Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990EZ • Fiscal year 2024 • EIN 23-2635206

Jan 01, 2024 to Dec 31, 2024 • Filed on Nov 17, 2025

PO Box 10598Fargo, ND 58106

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.01x

Higher debt load relative to assets than 60% of similar nonprofits.

2024 filings • NTEE A • <$500k nonprofits • Source year 2024

Liabilities / Revenue

64th percentile

0.01x

Higher debt load relative to revenue than 64% of similar nonprofits.

2024 filings • NTEE A • <$500k nonprofits • Source year 2024

Net Margin

77th percentile

27%

Higher net margin than 77% of similar nonprofits.

2024 filings • NTEE A • <$500k nonprofits • Source year 2024

Top Officer Pay

88th percentile

$21,600

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 18.5% of source-year revenue.

2024 filings • NTEE A • <$500k nonprofits • Source year 2024

Asset Growth

67th percentile

16%

Faster asset growth than 67% of similar nonprofits.

2024 filings • NTEE A • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

16th percentile

-43%

Faster revenue growth than 16% of similar nonprofits.

2024 filings • NTEE A • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Up

$228,547

Up $31,189 (+16%) from 2023

Net Assets

Up

$227,361

Up $31,189 (+16%) from 2023

Liabilities

Flat

$1,186

Flat from 2023

Revenue

Down

$116,865

Down $88,169 (-43%) from 2023

Expenses

Down

$85,676

Down $91,372 (-52%) from 2023

Net Income

Up

$31,189

Up $3,203 (+11%) from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2024

Assets$228,547
Liabilities$1,186
Net Assets$227,361

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2024

Revenue$116,865
Expenses$85,676
Net Income$31,189
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$116,865
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

The slo foundation works to improve the quality of life for the people with smith-lemli-opitz syndrome though education, family support, awareness, and funding research into the disorder.

Program Services

DescriptionGrantsExpenses
THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION PROVIDES EDUCATION AND SUPPORT SERVICES TO FAMILIES AND MEDICAL PROFESSIONALS DEALING WITH SMITH-LEMLI-OPITZ SYNDROME (SLOS). ORIGINALLY, THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION WAS FOUNDED IN 1990 BY 37 FAMILIES WHO DESIRED A NETWORK OF SUPPORT TO EXCHANGE EXPERIENCES AND INFORMATION ABOUT SLOS. SINCE THEN, THE PATIENT ADVOCACY GROUP HAS GROWN TO MORE THAN 2,000 FAMILIES IN THE UNITED STATES AND AROUND THE WORLD. THE SLO FOUNDATIONS WEBSITE (SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH SLOS. WITHIN THE WEBSITE, FAMILIES FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, CONTACT INFORMATION FOR SLOS SPECIALISTS, EDUCATIONAL MATERIALS, AND ACCESS TO FAMILY MENTORS. THE FOUNDATION SPONSORS AN ONLINE LIBRARY OF CONFERENCE VIDEOS AND OTHER WEBINARS RELATED TO SLOS. THE FOUNDATION HAS THREE ACTIVE FAMILY SUPPORT GROUPS ON FACEBOOK AND IS ACTIVE IN OTHER VARIOUS SOCIAL MEDIA GROUPS. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS AND SHARE IN JOYFUL TIMES AND IN GRIEF. THE SLO FOUNDATION HOSTS BIENNIAL FAMILY AND SCIENTIFIC SLOS CONFERENCES AROUND THE COUNTRY WHERE PHYSICIANS, SCIENTISTS, AND PARENTS LEARN MORE ABOUT THE SYNDROME AND CONNECT WITH EACH OTHER. ANOTHER IMPORTANT MISSION OF THE SLO FOUNDATION IS TO RAISE FUNDS TO PROMOTE RESEARCH AND BETTER HEALTH TREATMENTS INTO THE DISORDER.$0$69,715
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
GRETCHEN NOAHPresidentPT$21,600-$21,600
KATE DURENVice PresidentPT$10,800-$10,800
AMY DINUNZIOBoard Member-$0--
KELLY NOAHSecretary-$0--
MILI MAZZIOTTI IRIGOYENDirector-$0--
KAYLEIGH KEMPSTERDirector-$0--
CAROLA GUTIERREZDirector-$0--
MICHAEL COHENDirector-$0--
Filing and Contact Details

Filer

Filer Name
Smith-lemli-opitz Foundation
EIN
23-2635206
Phone
7013671976
Address
PO BOX 10598, FARGO, ND 58106

Signing Officer

Name
Amy S Dinunzio
Title
Acting Executive Director
Phone
7013671976
Signed
2025-11-17
Discuss with paid preparer
Yes

Preparer

Firm
Pease Bell Cpas LLC
Address
3501 EMBASSY PKWY 200, AKRON, OH 44333
Preparer
Frances a Taylor CPA
Phone
2163489600
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16 - Other Expenses

Description: conference expense. Amount: 30,712. Description: depreciation expense. Amount: 836. Description: office expense. Amount: 14,021. Description: insurance. Amount: 2,033. Description: fundraising expense. Amount: 975. Description: payorll processing fees. Amount: 1,784. Total to form 990-ez, line 16: 50,361.

Form 990-ez, Part II, Line 24 - Other Assets

Description: endowed funds. Beg. Of year amount: 51,754. End of year amount: 156,177. Description: other depreciable assets. Beg. Of year amount: 1,142. End of year amount: 306.

Form 990-ez, Part II, Line 26 - Other Liabilities

Description: other payables. Beg. Of year amount: 1,186. End of year amount: 1,186.

Raw XML Appendix180 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/PrimaryExemptPurposeTxt0THE SLO FOUNDATION WORKS TO IMPROVE THE QUALITY OF LIFE FOR THE PEOPLE WITH SMITH-LEMLI-OPITZ SYNDROME THOUGH EDUCATION, FAMILY SUPPORT, AWARENESS, AND FUNDING RESEARCH INTO THE DISORDER.
IRS990EZ/ProgramServiceRevenueAmt06872
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION PROVIDES EDUCATION AND SUPPORT SERVICES TO FAMILIES AND MEDICAL PROFESSIONALS DEALING WITH SMITH-LEMLI-OPITZ SYNDROME (SLOS). ORIGINALLY, THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION WAS FOUNDED IN 1990 BY 37 FAMILIES WHO DESIRED A NETWORK OF SUPPORT TO EXCHANGE EXPERIENCES AND INFORMATION ABOUT SLOS. SINCE THEN, THE PATIENT ADVOCACY GROUP HAS GROWN TO MORE THAN 2,000 FAMILIES IN THE UNITED STATES AND AROUND THE WORLD. THE SLO FOUNDATIONS WEBSITE (SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH SLOS. WITHIN THE WEBSITE, FAMILIES FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, CONTACT INFORMATION FOR SLOS SPECIALISTS, EDUCATIONAL MATERIALS, AND ACCESS TO FAMILY MENTORS. THE FOUNDATION SPONSORS AN ONLINE LIBRARY OF CONFERENCE VIDEOS AND OTHER WEBINARS RELATED TO SLOS. THE FOUNDATION HAS THREE ACTIVE FAMILY SUPPORT GROUPS ON FACEBOOK AND IS ACTIVE IN OTHER VARIOUS SOCIAL MEDIA GROUPS. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS AND SHARE IN JOYFUL TIMES AND IN GRIEF. THE SLO FOUNDATION HOSTS BIENNIAL FAMILY AND SCIENTIFIC SLOS CONFERENCES AROUND THE COUNTRY WHERE PHYSICIANS, SCIENTISTS, AND PARENTS LEARN MORE ABOUT THE SYNDROME AND CONNECT WITH EACH OTHER. ANOTHER IMPORTANT MISSION OF THE SLO FOUNDATION IS TO RAISE FUNDS TO PROMOTE RESEARCH AND BETTER HEALTH TREATMENTS INTO THE DISORDER.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0DESCRIPTION: CONFERENCE EXPENSE. AMOUNT: 30,712. DESCRIPTION: DEPRECIATION EXPENSE. AMOUNT: 836. DESCRIPTION: OFFICE EXPENSE. AMOUNT: 14,021. DESCRIPTION: INSURANCE. AMOUNT: 2,033. DESCRIPTION: FUNDRAISING EXPENSE. AMOUNT: 975. DESCRIPTION: PAYORLL PROCESSING FEES. AMOUNT: 1,784. TOTAL TO FORM 990-EZ, LINE 16: 50,361.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: ENDOWED FUNDS. BEG. OF YEAR AMOUNT: 51,754. END OF YEAR AMOUNT: 156,177. DESCRIPTION: OTHER DEPRECIABLE ASSETS. BEG. OF YEAR AMOUNT: 1,142. END OF YEAR AMOUNT: 306.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DESCRIPTION: OTHER PAYABLES. BEG. OF YEAR AMOUNT: 1,186. END OF YEAR AMOUNT: 1,186.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02025-03-06 01:10:19Z
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ReturnHeader/BusinessOfficerGrp/PhoneNum07013671976
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-17
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ReturnHeader/ReturnTs02025-11-17T09:39:52-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54