Civic Intelligence

Smith-Lemli -Opitz Rsh Foundation

990EZ • Fiscal year 2021 • EIN 23-2635206

Jan 01, 2021 to Dec 31, 2021 • Filed on Oct 13, 2022

PO Box 10598Fargo, ND 58106

(701) 367-1976

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2021

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2021

Net Margin

82nd percentile

47%

Higher net margin than 82% of similar nonprofits.

2021 filings • NTEE A • <$500k nonprofits • Source year 2021

Top Officer Pay

74th percentile

$0

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • NTEE A • <$500k nonprofits • Source year 2021

Asset Growth

65th percentile

23%

Faster asset growth than 65% of similar nonprofits.

2021 filings • NTEE A • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

45th percentile

-2.7%

Faster revenue growth than 45% of similar nonprofits.

2021 filings • NTEE A • <$500k nonprofits • Annualized from 2020 to 2021

Assets

Up

$155,267

Up $29,189 (+23%) from 2020

Net Assets

Up

$155,267

Up $29,189 (+23%) from 2020

Liabilities

-

No earlier filing loaded for comparison.

Revenue

Down

$62,150

Down $1,711 (-2.7%) from 2020

Expenses

Up

$32,961

Up $20,823 (+172%) from 2020

Net Income

Down

$29,189

Down $22,534 (-44%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2021

Assets$155,267
Liabilities-
Net Assets$155,267

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2021

Revenue$62,150
Expenses$32,961
Net Income$29,189
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Oct 13, 2022
Return Version
2021v4.0
Gross Receipts
$62,150
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

Program Services

DescriptionGrantsExpenses
PROVIDE SUPPORT SERVICES TO FAMILIES AFFECTED BY SLO SYNDROME. ORIGINALLY , THE SMITH-LEMLI-OPITZ FOUNDATION WAS CREATED IN 1988 TO GIVE A GROUP OF 37 FAMILIES WITH SLO CHILDREN A NETWORK TO EXCHANGE EXPRIENCES AND INFORMATION ABOUT SMITH-LEMLI-OPITZ SYNDROME. SINCE THEN, THE GROUP HAS GROWN TO MORE THAN 1,000 FAMILIES IN THE UNITED STATES AND ACROSS THE WORLD. THE SLO FOUNDATION'S WEBSITE (WWW.SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH THE SMITH-LEMLI-OPITZ SYNDROME. ON THE WEBSITE FAMILES WILL FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, INFORMATION ABOUT ONGOING RESEARCH STUDIES, AND AN INVITATION FOR FAMILES TO JOIN OUR SPECIAL SUPPORT COMMUNITY. THE FOUNDATION, IN CONJUNCTION WITH VOLUNTEERS, HAS SET-UP E-MAIL AND SOCIAL MEDIA GROUPS SUCH AS TWITTER AND OUR SLOF FACEBOOK GROUP SO THAT FAMILIES CAN CONTACT EACH OTHER INFORMALLY. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS, SHARE IN JOYFUL TIMES AND SHARE IN GRIEF OR FRUSTRATION. ADDITIONALLY THE FOUNDATION HELPS TO SPONSOR REGULAR NATIONAL CONFERENCES WHERE PHYSICIANS, SCIENTISTS, AND PARENTS CAN LEARN MORE ABOUT THE SYNDROME AND FROM EACH OTHER. ANOTHER IMPORTANT GOAL OF THE FOUNDATION IS TO RAISE FUNDS AND PROVIDE FUNDS TO PROMOTE RESEARCH INTO TREATMENTS AND ULTIMATELY A CURE FOR THE SMITH-LEMLI-OPITZ SYNDROME.-$16,144
PROVIDE FUNDS TO FURTHER RESEARCH OF THE SMITH LEMLI OPITZ SYNDROME.$10,000$10,000
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
GRETCHEN NOAHPresidentPT$0--
KELLY NOAHSecretaryPT$0--
KATE DURENDirectorPT$0--
CAROLINE KELLYDirector-$0--
KAYLEIGH KEMPSTERDirector-$0--
CAROLA GUTIERREZDirector-$0--
CELIA TRIMESTRADirector-$0--
MICHAEL COHENDirector-$0--
AMY DINUNZIODirector-$0--
Filing and Contact Details

Filer

Filer Name
Smith-lemli-opitz Foundation
EIN
23-2635206
Phone
7013671976
Address
PO BOX 10598, FARGO, ND 58106

Signing Officer

Name
Gretchen Noah
Title
President
Signed
2022-10-13
Discuss with paid preparer
Yes

Preparer

Firm
Hattrup and Associates Ps
Address
10130 Edmonds Way, Edmonds, WA 98020
Preparer
David Ballard EA
Phone
4257718239
Supplemental Narrative

Additional Explanations

Grants and Similar Amounts Paid In Excess of $5,000.1

| Donee's Name: SANFORD RESEARCH | Donee's Address: 2301 EAST 60TH ST N SOUIX FALLS SD 57104 | Cash Amount Given: $10000

Other Expenses.1001

Advertising and Promotion $5712

Other Expenses.1002

Office Expenses $2222

Other Expenses.1009

Depreciation $2198

Other Expenses.1012

Insurance $744

Other Expenses.1

Telephone & internet $4976

Other Expenses.2

WEBSITE $2508

Other Expenses.3

DUES / MEMBERSHIP $1829

Other Assets.1003

Machinery and Equipment - Beginning $5494 Machinery and Equipment - Ending $3296

Raw XML Appendix178 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1PROVIDE SUPPORT SERVICES TO FAMILIES AFFECTED BY SLO SYNDROME. ORIGINALLY , THE SMITH-LEMLI-OPITZ FOUNDATION WAS CREATED IN 1988 TO GIVE A GROUP OF 37 FAMILIES WITH SLO CHILDREN A NETWORK TO EXCHANGE EXPRIENCES AND INFORMATION ABOUT SMITH-LEMLI-OPITZ SYNDROME. SINCE THEN, THE GROUP HAS GROWN TO MORE THAN 1,000 FAMILIES IN THE UNITED STATES AND ACROSS THE WORLD. THE SLO FOUNDATION'S WEBSITE (WWW.SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH THE SMITH-LEMLI-OPITZ SYNDROME. ON THE WEBSITE FAMILES WILL FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, INFORMATION ABOUT ONGOING RESEARCH STUDIES, AND AN INVITATION FOR FAMILES TO JOIN OUR SPECIAL SUPPORT COMMUNITY. THE FOUNDATION, IN CONJUNCTION WITH VOLUNTEERS, HAS SET-UP E-MAIL AND SOCIAL MEDIA GROUPS SUCH AS TWITTER AND OUR SLOF FACEBOOK GROUP SO THAT FAMILIES CAN CONTACT EACH OTHER INFORMALLY. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS, SHARE IN JOYFUL TIMES AND SHARE IN GRIEF OR FRUSTRATION. ADDITIONALLY THE FOUNDATION HELPS TO SPONSOR REGULAR NATIONAL CONFERENCES WHERE PHYSICIANS, SCIENTISTS, AND PARENTS CAN LEARN MORE ABOUT THE SYNDROME AND FROM EACH OTHER. ANOTHER IMPORTANT GOAL OF THE FOUNDATION IS TO RAISE FUNDS AND PROVIDE FUNDS TO PROMOTE RESEARCH INTO TREATMENTS AND ULTIMATELY A CURE FOR THE SMITH-LEMLI-OPITZ SYNDROME.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0| Donee's Name: SANFORD RESEARCH | Donee's Address: 2301 EAST 60TH ST N SOUIX FALLS SD 57104 | Cash Amount Given: $10000
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Insurance $744
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ReturnHeader/TaxYr02021

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021Detailed filing. Detailed filing data is available for this year.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54