Civic Intelligence

Smith-Lemli-Opitzrsh Foundation

EIN 23-2635206 • 501(c)3 • Fargo, ND

Profile

Family support for families affected by SLO/RSH Syndrome and funding research to find a cure for SLO/RSH Syndrome.

1710 S 8th StFargo, ND 58103

www.smithlemliopitz.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

64th percentile

0.01x

Higher debt load relative to assets than 64% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

68th percentile

0.01x

Higher debt load relative to revenue than 68% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

80th percentile

27%

Higher net margin than 80% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

73rd percentile

16%

Faster asset growth than 73% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

19th percentile

-43%

Faster revenue growth than 19% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Up

$228,547

Up $31,189 (+16%) from 2023

Liabilities

Flat

$1,186

Flat from 2023

Net Assets

Up

$227,361

Up $31,189 (+16%) from 2023

Revenue

Down

$116,865

Down $88,169 (-43%) from 2023

Expenses

Down

$85,676

Down $91,372 (-52%) from 2023

Net Income

Up

$31,189

Up $3,203 (+11%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300K$200K$100K$0Assets 2011: $84,588Liabilities 2011: $0Net Assets 2011: $84,5882011Assets 2012: $95,914Liabilities 2012: $0Net Assets 2012: $95,9142012Assets 2013: $79,130Liabilities 2013: $0Net Assets 2013: $79,1302013Assets 2014: $135,612Liabilities 2014: $0Net Assets 2014: $135,6122014Assets 2015: $134,583Liabilities 2015: $0Net Assets 2015: $134,5832015Assets 2016: $172,587Liabilities 2016: $0Net Assets 2016: $172,5872016Assets 2017: $131,681Liabilities 2017: $0Net Assets 2017: $131,6812017Assets 2018: $98,137Liabilities 2018: $0Net Assets 2018: $98,1372018Assets 2019: $74,355Net Assets 2019: $74,3552019Assets 2020: $126,078Net Assets 2020: $126,0782020Assets 2021: $155,267Net Assets 2021: $155,2672021Assets 2022: $166,804Liabilities 2022: $644Net Assets 2022: $166,1602022Assets 2023: $197,358Liabilities 2023: $1,186Net Assets 2023: $196,1722023Assets 2024: $228,547Liabilities 2024: $1,186Net Assets 2024: $227,3612024

Highlighted filing

2024

Assets$228,547
Liabilities$1,186
Net Assets$227,361

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $19,472Expenses 2011: $73,162Net Income 2011: -$53,6902011Expenses 2012: $34,3462012Revenue 2013: $61,300Expenses 2013: $78,084Net Income 2013: -$16,7842013Revenue 2014: $66,737Expenses 2014: $10,255Net Income 2014: $56,4822014Revenue 2015: $55,475Expenses 2015: $56,504Net Income 2015: -$1,0292015Revenue 2016: $54,510Expenses 2016: $16,506Net Income 2016: $38,0042016Revenue 2017: $14,344Expenses 2017: $55,250Net Income 2017: -$40,9062017Revenue 2018: $30,507Expenses 2018: $64,051Net Income 2018: -$33,5442018Revenue 2019: $78,588Expenses 2019: $102,121Net Income 2019: -$23,5332019Revenue 2020: $63,861Expenses 2020: $12,138Net Income 2020: $51,7232020Revenue 2021: $62,150Expenses 2021: $32,961Net Income 2021: $29,1892021Revenue 2022: $59,374Expenses 2022: $48,481Net Income 2022: $10,8932022Revenue 2023: $205,034Expenses 2023: $177,048Net Income 2023: $27,9862023Revenue 2024: $116,865Expenses 2024: $85,676Net Income 2024: $31,1892024

Highlighted filing

2024

Revenue$116,865
Expenses$85,676
Net Income$31,189

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.29$0.01$2.27$1.17$0.86$0.31
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.97$0.01$1.96$2.05$1.77$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$0.59$0.48$0.11
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$1.55$0.62$0.33$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.26$1.26$0.64$0.12$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.74$0.74$0.79$1.02$0.24
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.31$0.64$0.34
2017Detailed filing. Detailed filing data is available for this year.$1.32$0.00$1.32$0.14$0.55$0.41
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.00$1.73$0.55$0.17$0.38
2015Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.55$0.57$0.01
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.00$1.36$0.67$0.10$0.56
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.61$0.78$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.00$0.96$0.34
2011Summary only. Only limited summary data is available for this year.$0.85$0.00$0.85$0.19$0.73$0.54
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2017 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Aug 30, 2018
Return Version
2017v2.3
Gross Receipts
$14,614
Mission and Program Overview

Mission

Primary exempt purpose raise funds to provide research grants for study of slo syndrome and provide support services and information to families affected by smith-lemli-opitz syndrome.

To raise funds to provide research grants for the study of SLO/RSH Syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$168,313$129,727▼ $38,586
Land, Buildings, and Equipment, Net$4,274$1,954▼ $2,320
Total Assets$172,587$131,681▼ $40,906
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$157,587$116,181▼ $41,406
Temporarily Rstr Net Assets$15,000$15,500▲ $500
Total Net Assets Fund Balance$172,587$131,681▼ $40,906
Total Liabilities and Net Assets / Fund Balance$172,587$131,681▼ $40,906

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,954$9,638$11,592
Compensation and Service Providers

Board Members and Trustees

NameTitle
Gretchen NoahPresident/Treasurer
Amanda BlackVice President
Kathy ProudfootDirector of Global Relatio
Kate DurenDirector of Media Relation
Kelly NoahSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$8,033
Program Service Revenue
$6,331
Investment Income
$0
Other Revenue
$-20
All Other Contributions
$8,033
Change in Net Assets
$-40,906
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$55,250
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$40,573--$40,573
Office Expenses-$10,144-$10,144
Depreciation Depletion$2,320--$2,320
Fees for Services Accounting-$1,799-$1,799
Other Expenses-$292-$292
All Other Expenses$122--$122
Total Functional Expenses$43,015$12,235$0$55,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$270
Fundraising Gross Income$250
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

Kelly and Gretchen Noah have a family relationship.

Form 990, Part VI, Section A, line 6

The SLO/RSH Foundation is made up of families with lifetime memberships. These memberships have no voting rights or influence over the Foundation or its members. Those with memberships receive information regarding the syndrome Smith-Lemli-Opitz Syndrome.

Form 990, Part VI, Section A, line 8B

There are no committees that are able to act on behalf of the board.

Form 990, Part VI, Section B, line 11B

The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.

Form 990, Part VI, Section B, line 12C

Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.

Form 990, Part VI, Section B, line 15

There are no employees in the filing organization.

Form 990, Part VI, Section C, line 19

The governing documents, conflict of interest policy, and financial statements are available upon request to the public.

Filing and Contact Details

Filer

Filer Name
Smith-Lemli-OpitzRSH Foundation
EIN
23-2635206
Phone
7013671976
Address
1710 S 8th St, Fargo, ND 58103

Signing Officer

Name
Gretchen Noah
Title
President/Treasurer
Phone
7013671976
Signed
2018-08-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gretchen Noah
Formed
1990
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
5

Preparer

Firm
Eide Bailly Llp
Address
4310 17TH AVE S PO BOX 2545, FARGO, ND 58108-2545
Preparer
Lisa Chaffee
Phone
7012398500
Raw XML Appendix343 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDesc0To raise funds to provide research grants for the study of SLO/RSH Syndrome.
IRS990/AllOtherContributionsAmt08033
IRS990/AllOtherExpensesGrp/ProgramServicesAmt0122
IRS990/AllOtherExpensesGrp/TotalAmt0122
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0Gretchen Noah
IRS990/BooksInCareOfDetail/PhoneNum07013671976
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt01710 S 8th St
IRS990/BooksInCareOfDetail/USAddress/CityNm0Fargo
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0ND
IRS990/BooksInCareOfDetail/USAddress/ZIPCd058103
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IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt08033
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt055250
IRS990/CYOtherRevenueAmt0-20
IRS990/CYProgramServiceRevenueAmt06331
IRS990/CYRevenuesLessExpensesAmt0-40906
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IRS990/DepreciationDepletionGrp/ProgramServicesAmt02320
IRS990/DepreciationDepletionGrp/TotalAmt02320
IRS990/Desc0Originally, the Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO children a network to exchange experiences and information about Smith-Lemli-Opitz Syndrome. Since then, the group has grown to more than 500 families in the United States and across the world.The SLO/RSH Foundation's website (www.smithlemliopitz.org) is often a parent's first point of contact after their child has been newly diagnosed with the Smith-Lemli-Opitz Syndrome. On the website, families will find a syndrome overview and related research articles, information about ongoing research studies, and an invitation for families to join our special support community. The Foundation, in conjunction with volunteers, has set up e-mail and social media groups such as Facebook, Twitter and our SLO Yahoo Group so that families can contact each other informally. This medium provides immediate support for families to ask questions, share in joyful times and share in grief or frustration.Additionally, the Foundation provides semi-annual newsletters and helps to sponsor regular national conferences where physicians, scientists, and parents can learn more about the syndrome and from each other.Another important goal of the Foundation, which is run solely by volunteers, is to raise and provide funds to promote research into treatments and ultimately a cure for Smith-Lemli-Opitz Syndrome.
IRS990/DescribedInSection501c3Ind01
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/PersonNm0Gretchen Noah
IRS990/Form990PartVIISectionAGrp/PersonNm1Amanda Black
IRS990/Form990PartVIISectionAGrp/PersonNm2Kelly Noah
IRS990/Form990PartVIISectionAGrp/PersonNm3Kate Duren
IRS990/Form990PartVIISectionAGrp/PersonNm4Kathy Proudfoot
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/TitleTxt0President/Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director of Media Relation
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director of Global Relatio
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IRS990/FundraisingGrossIncomeAmt0250
IRS990/GamingActivitiesInd00
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IRS990/GrantsToIndividualsInd00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Kelly and Gretchen Noah have a family relationship.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The SLO/RSH Foundation is made up of families with lifetime memberships. These memberships have no voting rights or influence over the Foundation or its members. Those with memberships receive information regarding the syndrome Smith-Lemli-Opitz Syndrome.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2There are no committees that are able to act on behalf of the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The full governing board is provided a copy for review and approval before filing the Form 990 with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Every board member is provided a copy of the conflict of interest policy upon election as a board member. Annually the board discusses if there are any conflicts of interest. If there is a conflict of interest that individual must abstain from voting.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5There are no employees in the filing organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The governing documents, conflict of interest policy, and financial statements are available upon request to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section B, line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990, Part VI, Section C, line 19
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IRS990/StatesWhereCopyOfReturnIsFldCd1NY
IRS990/StatesWhereCopyOfReturnIsFldCd2OH
IRS990/StatesWhereCopyOfReturnIsFldCd3IL
IRS990/StatesWhereCopyOfReturnIsFldCd4WV
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IRS990/USAddress/AddressLine1Txt01710 S 8th St
IRS990/USAddress/CityNm0Fargo
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IRS990/USAddress/ZIPCd058103
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IRS990/WebsiteAddressTxt0www.smithlemliopitz.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02018-06-14 16:35:46Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Gretchen Noah
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President/Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum07013671976
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-08-30
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Smith-Lemli-OpitzRSH Foundation
ReturnHeader/Filer/BusinessNameControlTxt0SMIT
ReturnHeader/Filer/EIN0232635206
ReturnHeader/Filer/PhoneNum07013671976
ReturnHeader/Filer/USAddress/AddressLine1Txt01710 S 8th St
ReturnHeader/Filer/USAddress/CityNm0Fargo
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ND
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ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId066CC91E6B7F11C4783FFFA5645E675327CB67316
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId03F1B4C4A1C1F32CA3CD03C05270CE62742EA9E6E
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0198.135.124.110
ReturnHeader/FilingSecurityInformation/IPDt02018-08-30
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CD
ReturnHeader/FilingSecurityInformation/IPTm015:18:49
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0450250958
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0EIDE BAILLY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt04310 17TH AVE S PO BOX 2545
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0FARGO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0ND
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0581082545
ReturnHeader/PreparerPersonGrp/PhoneNum07012398500
ReturnHeader/PreparerPersonGrp/PreparationDt02018-08-30
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Lisa Chaffee
ReturnHeader/ReturnTs02018-08-31T08:21:21-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

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