Civic Intelligence

Moebius Syndrome Foundation

990 • Fiscal year 2021 • EIN 13-3753992

Jan 01, 2021 to Dec 31, 2021 • Filed on Aug 02, 2022

Organization ProfileWWW.MOEBIUSSYNDROME.COM
P O Box 147Pilot Grove, MO 65276

(660) 834-3406

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

40th percentile

0.03x

Higher debt load relative to assets than 40% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

45th percentile

0.07x

Higher debt load relative to revenue than 45% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

96th percentile

82%

Higher net margin than 96% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

39th percentile

$0

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

86th percentile

51%

Faster asset growth than 86% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

99th percentile

894%

Faster revenue growth than 99% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$2,393,833

Up $804,828 (+51%) from 2020

Net Assets

Up

$2,322,833

Up $907,217 (+64%) from 2020

Liabilities

Down

$71,000

Down $102,389 (-59%) from 2020

Revenue And Expenses
Liabilities / Revenue45th percentileNet Margin96th percentile

Revenue

Up

$1,037,936

Up $933,501 (+894%) from 2020

Expenses

Down

$183,742

Down $416,499 (-69%) from 2020

Net Income

Up

$854,194

Up $1,350,000 (+272%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2021

Assets$2,393,833
Liabilities$71,000
Net Assets$2,322,833
Open 2021 Filing

Operations Trend

Revenue Growth99th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2021

Revenue$1,037,936
Expenses$183,742
Net Income$854,194
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Aug 2, 2022
Return Version
2021v4.0
Gross Receipts
$1,106,570
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$1,553,870$2,195,388▲ $641,518
Cash and Non-Interest-Bearing Accounts$34,712$128,953▲ $94,241
Prepaid Expenses and Deferred Charges$423$69,492▲ $69,069
Total Assets$1,589,005$2,393,833▲ $804,828
Liabilities
Grants Payable$171,000$71,000▼ $100,000
Accounts Payable and Accrued Expenses$2,389--
Total Liabilities$173,389$71,000▼ $102,389
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,413,616$2,180,397▲ $766,781
Net Assets With Donor Restrictions$2,000$142,436▲ $140,436
Total Net Assets Fund Balance$1,415,616$2,322,833▲ $907,217
Total Liabilities and Net Assets / Fund Balance$1,589,005$2,393,833▲ $804,828

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$2,195,388--
Compensation and Service Providers
Top Officer Pay39th percentile

Board Members and Trustees

NameTitle
Jacob LichtPresident
Bryn Webb MdBoard Member
Destiny BachmanBoard Member
Jon FisherBoard Member
Kathyrn KrausBoard Member
Kelsey FerrillBoard Member
Kiowana PhillipsBoard Member
Monica WoodallBoard Member
Nicole ZeitlerBoard Member
Rebecca MaherSecretary
Vicki MccarrellTreasurer
Steven MaldonadoVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$988,888
Program Service Revenue
$0
Investment Income
$49,048
Other Revenue
$0
All Other Contributions
$988,888
Change in Net Assets
$854,194

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,026,539
Revenue Not Reported on Financial Statements
$11,397
Revenue Not Reported on Form 990
$64,420
Total Revenue per Audited Statements
$1,090,959
Total Revenue per Form 990
$1,037,936
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$175,742
Grants and Similar Amounts Paid$8,000
Total Fundraising Expense$6,283
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$82,259$16,171$6,283$104,713
Office Expenses$23,821$13,801-$37,622
Advertising$16,667$126-$16,793
Fees for Services Accounting-$14,050-$14,050
Grants to Domestic Individuals$8,000--$8,000
Insurance$99$1,217-$1,316
Travel$1,248--$1,248
Total Functional Expenses$132,094$45,365$6,283$183,742

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$183,742
Total Expenses per Audited Statements$183,742
Total Expenses per Form 990$183,742
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”

Form 990, Page 6, Part VI, Line 19

“These documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Moebius Syndrome Foundation
EIN
13-3753992
Phone
6608343406
Address
P O BOX 147, PILOT GROVE, MO 65276

Signing Officer

Name
Jacob Licht
Title
President
Phone
6608343406
Signed
2022-08-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jacob Licht
Formed
1994
Legal Domicile
Mo
Voting Board Members
12
Independent Board Members
12
Employees
0
Volunteers
45

Preparer

Firm
Wilson Toellner CPA
Address
2700 MATTHEW DR, SEDALIA, MO 65301
Preparer
Lindsay Kelly CPA
Phone
6608274990
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.”

Form 990, Page 2, Part III, Line 4D

“Provide college scholarships to students with moebius syndrome. Expenses 8,000. Inlcuding grants of 8,000. Revenue 0.”

Form 990, Page 12, Part XII, Line 2C

“The finance committee has oversight over the aduit or review process until the final draft is issued. Once the final draft is issued, the entire board reviews and votes on approval as presented.”

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IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0277411
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IRS990ScheduleA/Total509Grp/TotalAmt01188400
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 8,000. INLCUDING GRANTS OF 8,000. REVENUE 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE FINANCE COMMITTEE HAS OVERSIGHT OVER THE ADUIT OR REVIEW PROCESS UNTIL THE FINAL DRAFT IS ISSUED. ONCE THE FINAL DRAFT IS ISSUED, THE ENTIRE BOARD REVIEWS AND VOTES ON APPROVAL AS PRESENTED.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
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Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,393,833
Liabilities
$71,000
Net assets
$2,322,833
Revenue
$1,037,936
Expenses
$183,742
Net income
$854,194
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16