Civic Intelligence

Moebius Syndrome Foundation

990 • Fiscal year 2013 • EIN 13-3753992

Jan 01, 2013 to Dec 31, 2013 • Filed on May 08, 2014

Organization ProfileWWW.MOEBIUSSYNDROME.COM
PO Box 147Denver, CO 65276

(660) 834-3406

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

24th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Liabilities / Revenue

25th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Net Margin

94th percentile

64%

Higher net margin than 94% of similar nonprofits.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Asset Growth

74th percentile

15%

Faster asset growth than 74% of similar nonprofits.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets24th percentile

Assets

Up

$618,938

Up $79,354 (+15%) from 2012

Net Assets

Up

$618,938

Up $79,354 (+15%) from 2012

Liabilities

Flat

$0

Flat from 2012

Revenue And Expenses
Liabilities / Revenue25th percentileNet Margin94th percentile

Revenue

$124,366

No earlier filing loaded for comparison.

Expenses

Down

$45,012

Down $205,375 (-82%) from 2012

Net Income

$79,354

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2013

Assets$618,938
Liabilities$0
Net Assets$618,938
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2013

Revenue$124,366
Expenses$45,012
Net Income$79,354
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 8, 2014
Return Version
2013v3.0
Gross Receipts
$126,610
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cap Stk Tr Prin Current Funds$539,584$618,938▲ $79,354
Savings and Temporary Cash Investments$539,584$610,638▲ $71,054
Cash and Non-Interest-Bearing Accounts-$8,300-
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Total Assets$539,584$618,938▲ $79,354
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$539,584$618,938▲ $79,354
Total Liabilities and Net Assets / Fund Balance$539,584$618,938▲ $79,354
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Vicki MccarrellPresident
Matthew JoffeVice President
Kathleen BogartBoard Member
Kevin SmantBoard Member
Lori ThomasBoard Member
Monica WoodallBoard Member
Roland BienvenuBoard Member
Marcia AbbottSecretary
Jacob LichtTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$121,875
Program Service Revenue
$0
Investment Income
$2,368
Other Revenue
$123
All Other Contributions
$121,875
Change in Net Assets
$79,354
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$25,556
Grants and Similar Amounts Paid$19,456
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$19,456--$19,456
Travel$7,550--$7,550
Advertising$2,845--$2,845
Fees for Services Accounting$680$680-$1,360
Insurance-$744-$744
Other Expenses$300--$300
Conferences and Meetings$185--$185
Office Expenses-$149-$149
Fees for Services Other-$20-$20
All Other Expenses-$3-$3
Total Functional Expenses$43,416$1,596$0$45,012
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
27-4483701--Scientific Research to Advance the Diagnosis and Treatment of Moebius Syndrome$19,456
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$2,367
Fundraising Direct Expenses$2,244
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”

Form 990, Part VI, Section C, Line 19

“These documents are made available upon request.”

Form 990, Part VI, Section B, Line 13

“The organization has no employees, only board members. The members have determined that a whistleblower policy is not necessary.”

Form 990, Part VI, Section B, Line 14

“Although there is no written policy regarding document retention and destruction, all records are retained permanently.”

Filing and Contact Details

Filer

EIN
13-3753992
Phone
6608343406

Signing Officer

Name
Vicki Mccarrell
Title
President
Phone
6608343406
Signed
2014-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Vicki Mccarrell
Formed
1994
Legal Domicile
Mo
Voting Board Members
9
Independent Board Members
9
Employees
0
Volunteers
0

Preparer

Preparer
Norma Schlesselman CPA
Phone
6608274990
Raw XML Appendix397 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt02980
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt04368
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt06379
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt010293
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt026388
IRS990ScheduleA/InvestmentIncomeCYPct00.03120
IRS990ScheduleA/InvestmentIncomePYPct00.03930
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt04774
IRS990ScheduleA/OtherIncome509Grp/TotalAmt04774
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.96320
IRS990ScheduleA/PublicSupportPY509Pct00.94430
IRS990ScheduleA/PublicSupportTotal509Amt0815242
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0124240
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0210927
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0139698
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0216040
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0124337
IRS990ScheduleA/Total509Grp/TotalAmt0815242
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0126608
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0213907
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0144066
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0227193
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0134630
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0846404
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt019456
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine10TALKTOOLS
IRS990ScheduleI/RecipientTable/RecipientEIN0274483701
IRS990ScheduleI/RecipientTable/USAddress/AddressLine102209 MECHANIC STREET
IRS990ScheduleI/RecipientTable/USAddress/City0CHARLESTON
IRS990ScheduleI/RecipientTable/USAddress/State0SC
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode029403
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION HAS NO EMPLOYEES, ONLY BOARD MEMBERS. THE MEMBERS HAVE DETERMINED THAT A WHISTLEBLOWER POLICY IS NOT NECESSARY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3ALTHOUGH THERE IS NO WRITTEN POLICY REGARDING DOCUMENT RETENTION AND DESTRUCTION, ALL RECORDS ARE RETAINED PERMANENTLY.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 13
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 14
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0539584
IRS990/TotalAssetsEOYAmt0618938
IRS990/TotalAssetsGrp/BOYAmt0539584
IRS990/TotalAssetsGrp/EOYAmt0618938
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0121875
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt01596
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt043416
IRS990/TotalFunctionalExpensesGrp/TotalAmt045012
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0539584
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0618938
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt043416
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt02491
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0124366
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0539584
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0618938
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt07550
IRS990/TravelGrp/TotalAmt07550
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine106879 HIGHWAY 135
IRS990/USAddress/City0PILOT GROVE
IRS990/USAddress/State0MO
IRS990/USAddress/ZIPCode065276
IRS990/VotingMembersGoverningBodyCnt09
IRS990/VotingMembersIndependentCnt09
IRS990/WebsiteAddressTxt0WWW.MOEBIUSSYNDROME.COM
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0VICKI MCCARRELL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum06608343406
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-05-08
ReturnHeader/Filer/BusinessName/BusinessNameLine10MOEBIUS SYNDROME FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0MOEB
ReturnHeader/Filer/EIN0133753992
ReturnHeader/Filer/PhoneNum06608343406
ReturnHeader/Filer/USAddress/AddressLine10PO BOX 147
ReturnHeader/Filer/USAddress/City0PILOT GROVE
ReturnHeader/Filer/USAddress/State0MO
ReturnHeader/Filer/USAddress/ZIPCode065276
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0431909489
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10WILSON TOELLNER & ASSOCIATES LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine102700 MATTHEW DR
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City0SEDALIA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State0MO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode0653020228
ReturnHeader/PreparerPersonGrp/PhoneNum06608274990
ReturnHeader/PreparerPersonGrp/PreparationDt02014-05-08
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0NORMA SCHLESSELMAN CPA
ReturnHeader/ReturnTs02014-05-09T15:35:38-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02013-01-01
ReturnHeader/TaxPeriodEndDt02013-12-31
ReturnHeader/TaxYr02013

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$618,938
Liabilities
$0
Net assets
$618,938
Revenue
$124,366
Expenses
$45,012
Net income
$79,354
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16