Liabilities / Assets
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2016 • EIN 13-3753992
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
89th percentile
Higher net margin than 89% of similar nonprofits.
Top Officer Pay
35th percentile
Higher top officer pay than 35% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
82nd percentile
Faster asset growth than 82% of similar nonprofits.
Revenue Growth
77th percentile
Faster revenue growth than 77% of similar nonprofits.
Assets
Up$1,971,590
Up $329,012 (+20%) from 2015
Net Assets
Up$1,971,590
Up $329,012 (+20%) from 2015
Liabilities
Flat$0
Flat from 2015
Revenue
Up$786,121
Up $133,427 (+20%) from 2015
Expenses
Up$479,484
Up $368,548 (+332%) from 2015
Net Income
Down$306,637
Down $235,121 (-43%) from 2015
The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cap Stk Tr Prin Current Funds | $1,642,578 | $1,971,590 | ▲ $329,012 |
| Savings and Temporary Cash Investments | $359,189 | $1,131,641 | ▲ $772,452 |
| Investments Other Securities | $775,876 | $836,428 | ▲ $60,552 |
| Cash and Non-Interest-Bearing Accounts | $507,513 | $3,521 | ▼ $503,992 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Rtn Earn Endowment Incm Other Fnds | $0 | $0 | → $0 |
| Total Assets | $1,642,578 | $1,971,590 | ▲ $329,012 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $1,642,578 | $1,971,590 | ▲ $329,012 |
| Total Liabilities and Net Assets / Fund Balance | $1,642,578 | $1,971,590 | ▲ $329,012 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Securities | $836,428 | - | - |
| Name | Title |
|---|---|
| Vicki Mccarrell | President |
| Matthew Joffe | Vice President |
| Kathleen Bogart | Board Member |
| Kevin Smant | Board Member |
| Lori Thomas | Board Member |
| Monica Woodall | Board Member |
| Natalie Abbott | Board Member |
| Roland Bienvenu | Board Member |
| Marcia Abbott | Secretary |
| Jacob Licht | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $315,759 |
| Grants and Similar Amounts Paid | $163,725 |
| Total Fundraising Expense | $3,510 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $262,638 | - | - | $262,638 |
| Grants to Domestic Orgs | $132,725 | - | - | $132,725 |
| Fees for Services Management | $14,540 | $17,550 | $3,510 | $35,600 |
| Foreign Grants | $31,000 | - | - | $31,000 |
| Advertising | $6,819 | - | - | $6,819 |
| Information Technology | $4,574 | - | - | $4,574 |
| Travel | $1,722 | - | - | $1,722 |
| Fees for Services Accounting | $705 | $705 | - | $1,410 |
| Insurance | - | $744 | - | $744 |
| Office Expenses | - | $215 | - | $215 |
| Other Expenses | $150 | - | - | $150 |
| Total Functional Expenses | $456,760 | $19,214 | $3,510 | $479,484 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| National Human Genome Research Institute | Bethesda, MD | - | To Provide Funds for Research to Determine the Genetic Cause of Moebius Syndrome. | $75,000 |
| BOSTON CHILDREN'S HOSPITAL | Boston, MA | - | To Provide Funds for Research to Determine the Genetic Cause of Moebius Syndrome. | $50,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America - Canada and Mexico, But Not the United States | Grant to a Recipient Located in the Region | GRANT TO SICKKIDS FOUNDATION FOR USE BY DR. RONALD ZUKER AND DR. GREGORY BORSCHEL'S FOR FOLLOWUP ON CHILDREN WHO HAVE HAD THE GRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY. | 0 | 0 | - |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”
“These documents are made available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 6819 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 6819 |
| IRS990/AllOtherContributionsAmt | 0 | 667773 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | VICKI MCCARRELL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6608343406 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6879 HWY 135 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | PILOT GROVE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 65276 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 1642578 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 1971590 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 507513 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 3521 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 262638 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 262638 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 667773 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 163725 |
| IRS990/CYInvestmentIncomeAmt | 0 | 40558 |
| IRS990/CYOtherExpensesAmt | 0 | 315759 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 77790 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 306637 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 479484 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 3510 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 786121 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 146518 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 705 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 705 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 1410 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 3510 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 17550 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 14540 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 35600 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 31000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 31000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | VICKI MCCARRELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MATTHEW JOFFE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARCIA ABBOTT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JACOB LICHT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | KEVIN SMANT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MONICA WOODALL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | ROLAND BIENVENU |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KATHLEEN BOGART |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | LORI THOMAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | NATALIE ABBOTT |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1994 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 21287 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 132725 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 132725 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 1020885 |
| IRS990/GrossReceiptsAmt | 0 | 1785719 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4574 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 4574 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 744 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 744 |
| IRS990/InvestmentExpenseAmt | 0 | -11975 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 19271 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 19271 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 775876 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 836428 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MO |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 999598 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME AND BE AN ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1642578 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1971590 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 21287 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 21287 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 34350 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 215 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 215 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | POSTAGE |
| IRS990/OtherExpensesGrp/Desc | 1 | CONFERENCE CALLS AND OT |
| IRS990/OtherExpensesGrp/Desc | 2 | MEMBERSHIPS |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1477 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 410 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 150 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1477 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 410 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 150 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | VICKI MCCARRELL |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE PROCEEDS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 77790 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 77790 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 146517 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 38895 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 156000 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 156000 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 7725 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 7725 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 643479 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 31000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 8790 |
| IRS990/PYOtherExpensesAmt | 0 | 79936 |
| IRS990/PYOtherRevenueAmt | 0 | 425 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 541758 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 110936 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 652694 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 306637 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 38895 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 0 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 359189 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1131641 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 667773 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 643479 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 674820 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 121875 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 123262 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2231209 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 19271 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 14776 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1706 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2368 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2980 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 41101 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 77790 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 425 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 69724 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 123 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 87665 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 235727 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 19271 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 14776 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1706 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 2368 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 2980 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 41101 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.01640 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.01390 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.98360 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.98610 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2466936 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 745563 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 643904 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 744544 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 121998 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 210927 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2466936 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 764834 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 658680 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 746250 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 124366 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 213907 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2508037 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 0 | 836428 |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 0 | MERRILL LYNCH |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 836428 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | GRANT TO SICKKIDS FOUNDATION FOR USE BY DR. RONALD ZUKER AND DR. GREGORY BORSCHEL'S FOR FOLLOWUP ON CHILDREN WHO HAVE HAD THE GRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY. |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | GRANT TO A RECIPIENT LOCATED IN THE REGION |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 31000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | CHECK |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | THE PURPOSE OF THIS GRANT IS FOR DR. RONALD ZUKER AND DR. GREGORY BORSCHEL TO FOLLOWUP ON CHILDREN WHO HAVE HAD THE BRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY. |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 0 | FAIR MARKET VALUE |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | GRANT RECIPIENT PROVIDES PERIODIC REPORTS TO THE BOARD OF THIS ORGANIZATION. |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 1 | PAYMENTS MADE IN CASH |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART I, LINE 3: |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 50000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 75000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME. |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME. |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | BOSTON CHILDREN'S HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | NATIONAL HUMAN GENOME RESEARCH INSTITUTE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 401 PARK DRIVE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 9000 ROCKVILLE PIKE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | BOSTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | BETHESDA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02215 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 20892 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 2 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 1642578 |
| IRS990/TotalAssetsEOYAmt | 0 | 1971590 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1642578 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1971590 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 667773 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 3510 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 19214 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 456760 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 479484 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 0 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.