Civic Intelligence

Moebius Syndrome Foundation

990 • Fiscal year 2018 • EIN 13-3753992

Jan 01, 2018 to Dec 31, 2018 • Filed on Jun 17, 2019

PO Box 147Pilot Grove, MO 65276

(660) 834-3406

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

17th percentile

0.00x

Higher debt load relative to assets than 17% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

19th percentile

0.00x

Higher debt load relative to revenue than 19% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

11th percentile

-25%

Higher net margin than 11% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

15th percentile

-9.3%

Faster asset growth than 15% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

75th percentile

20%

Faster revenue growth than 75% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Assets

Down

$1,775,916

Down $182,648 (-9.3%) from 2017

Net Assets

Down

$1,774,385

Down $184,179 (-9.4%) from 2017

Liabilities

Up

$1,531

Up $1,531 from 2017

Revenue

Up

$331,391

Up $56,102 (+20%) from 2017

Expenses

Up

$414,749

Up $136,977 (+49%) from 2017

Net Income

Down

-$83,358

Down $80,875 (-3257%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2018

Assets$1,775,916
Liabilities$1,531
Net Assets$1,774,385

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2018

Revenue$331,391
Expenses$414,749
Net Income-$83,358
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Jun 17, 2019
Return Version
2018v3.1
Gross Receipts
$331,391
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cap Stk Tr Prin Current Funds$1,958,564$1,774,385▼ $184,179
Investments Other Securities$1,329,106$1,267,948▼ $61,158
Savings and Temporary Cash Investments$615,765$490,026▼ $125,739
Cash and Non-Interest-Bearing Accounts$13,693$17,942▲ $4,249
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Total Assets$1,958,564$1,775,916▼ $182,648
Liabilities
Accounts Payable and Accrued Expenses-$1,531-
Total Liabilities$0$1,531▲ $1,531
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,958,564$1,774,385▼ $184,179
Total Liabilities and Net Assets / Fund Balance$1,958,564$1,775,916▼ $182,648

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,267,948--
Compensation and Service Providers

Board Members and Trustees

NameTitle
Vicki MccarrellPresident
Kevin SmantVice President
Bryn Webb MdBoard Member
Kelsey FerrillBoard Member
Nicole ZeitlerBoard Member
Paula SantanaBoard Member
Rebecca MaherBoard Member
Steven MaldonadoBoard Member
Monica WoodallSecretary
Jacob LichtTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$180,300
Program Service Revenue
$107,497
Investment Income
$43,594
Other Revenue
$0
All Other Contributions
$180,300
Change in Net Assets
$-83,358
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$326,749
Grants and Similar Amounts Paid$88,000
Total Fundraising Expense$3,670
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$202,869--$202,869
Grants to Domestic Orgs$88,000--$88,000
Fees for Services Management$48,332$18,352$3,670$70,354
Travel$11,258--$11,258
Information Technology$7,400--$7,400
Advertising$6,221--$6,221
Fees for Services Accounting$2,019$2,019-$4,038
All Other Expenses$2,500--$2,500
Insurance-$1,397-$1,397
Other Expenses$1,000--$1,000
Office Expenses$374$373-$747
Total Functional Expenses$388,938$22,141$3,670$414,749
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mount Sinai HospitalNew York, NY501(c)(3)To Provide Funds for Research to Determine the Genetic Cause of Moebius Syndrome.$80,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

All board members receive a copy of the form 990. It is reviewed by the officers before filing.

Form 990, Part VI, Section C, Line 19

These documents are made available upon request.

Filing and Contact Details

Filer

Filer Name
Moebius Syndrome Foundation
EIN
13-3753992
Phone
6608343406
Address
PO BOX 147, PILOT GROVE, MO 65276

Signing Officer

Name
Vicki Mccarrell
Title
President
Phone
6608343406
Signed
2019-06-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Vicki Mccarrell
Formed
1994
Legal Domicile
Mo
Voting Board Members
9
Independent Board Members
9
Employees
0
Volunteers
0

Preparer

Firm
Wilson Toellner & Associates LLC
Address
2700 MATTHEW DR, SEDALIA, MO 65301
Preparer
Norma Schlesselman CPA
Phone
6608274990
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IRS990/ProgSrvcAccomActy2Grp/Desc0PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
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IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
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IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt053749
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0615765
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0490026
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0180300
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0167563
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0667773
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0643479
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0674820
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02333935
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt043594
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt021219
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt019271
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt014776
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt01706
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0100566
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt097111
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0532
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt077790
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0425
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt069724
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0245582
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt043594
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt021219
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt019271
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt014776
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt01706
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0100566
IRS990ScheduleA/InvestmentIncomeCYPct00.03750
IRS990ScheduleA/InvestmentIncomePYPct00.02390
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.96250
IRS990ScheduleA/PublicSupportPY509Pct00.97610
IRS990ScheduleA/PublicSupportTotal509Amt02579517
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0277411
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0168095
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0745563
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0643904
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0744544
IRS990ScheduleA/Total509Grp/TotalAmt02579517
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0321005
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0189314
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0764834
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0658680
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0746250
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02680083
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt01267948
IRS990ScheduleD/OtherSecuritiesGrp/Desc0CHARLES SCHWAB
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueSecuritiesAmt01267948
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt080000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0MOUNT SINAI HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientEIN0131624096
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01468 MADISON AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010029
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt01958564
IRS990/TotalAssetsEOYAmt01775916
IRS990/TotalAssetsGrp/BOYAmt01958564
IRS990/TotalAssetsGrp/EOYAmt01775916
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0180300
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt03670
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt022141
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0388938
IRS990/TotalFunctionalExpensesGrp/TotalAmt0414749
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt01531
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt01531
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01958564
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01774385
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt08000
IRS990/TotalOtherProgSrvcGrantAmt08000
IRS990/TotalProgramServiceExpensesAmt0388938
IRS990/TotalProgramServiceRevenueAmt0107497
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt043594
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0107497
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0331391
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01958564
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01775916
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt011258
IRS990/TravelGrp/TotalAmt011258
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt06879 HIGHWAY 135
IRS990/USAddress/CityNm0PILOT GROVE
IRS990/USAddress/StateAbbreviationCd0MO
IRS990/USAddress/ZIPCd065276
IRS990/VotingMembersGoverningBodyCnt09
IRS990/VotingMembersIndependentCnt09
IRS990/WebsiteAddressTxt0WWW.MOEBIUSSYNDROME.COM
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0VICKI MCCARRELL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum06608343406
ReturnHeader/BusinessOfficerGrp/SignatureDt02019-06-17
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0MOEBIUS SYNDROME FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0MOEB

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16