Civic Intelligence

Moebius Syndrome Foundation

990 • Fiscal year 2017 • EIN 13-3753992

Jan 01, 2017 to Dec 31, 2017 • Filed on May 07, 2018

Organization ProfileWWW.MOEBIUSSYNDROME.COM
PO Box 147Pilot Grove, MO 65276

(660) 834-3406

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

36th percentile

-0.9%

Higher net margin than 36% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

41st percentile

$36,000

Higher top officer pay than 41% of similar nonprofits.

Top officer pay equals 13.1% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

36th percentile

-0.7%

Faster asset growth than 36% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

3rd percentile

-65%

Faster revenue growth than 3% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets14th percentile

Assets

Down

$1,958,564

Down $13,026 (-0.7%) from 2016

Net Assets

Down

$1,958,564

Down $13,026 (-0.7%) from 2016

Liabilities

Flat

$0

Flat from 2016

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin36th percentile

Revenue

Down

$275,289

Down $510,832 (-65%) from 2016

Expenses

Down

$277,772

Down $201,712 (-42%) from 2016

Net Income

Down

-$2,483

Down $309,120 (-101%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth36th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2017

Assets$1,958,564
Liabilities$0
Net Assets$1,958,564
Open 2017 Filing

Operations Trend

Revenue Growth3rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2017

Revenue$275,289
Expenses$277,772
Net Income-$2,483
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
May 7, 2018
Return Version
2017v2.2
Gross Receipts
$1,641,672
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cap Stk Tr Prin Current Funds$1,971,590$1,958,564▼ $13,026
Investments Other Securities$836,428$1,329,106▲ $492,678
Savings and Temporary Cash Investments$1,131,641$615,765▼ $515,876
Cash and Non-Interest-Bearing Accounts$3,521$13,693▲ $10,172
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Total Assets$1,971,590$1,958,564▼ $13,026
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,971,590$1,958,564▼ $13,026
Total Liabilities and Net Assets / Fund Balance$1,971,590$1,958,564▼ $13,026

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,329,106--
Compensation and Service Providers
Top Officer Pay41st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kimberley CunninghamExecutive DirectorPT$36,000$36,000

Board Members and Trustees

NameTitle
Vicki MccarrellPresident
Matthew JoffeVice President
Kathleen BogartBoard Member
Kevin SmantBoard Member
Monica WoodallBoard Member
Roland BienvenuBoard Member
Marcia AbbottSecretary
Jacob LichtTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$167,664
Program Service Revenue
$430
Investment Income
$107,195
Other Revenue
$0
All Other Contributions
$167,664
Change in Net Assets
$-2,483
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$162,000
Other Expenses$115,772
Total Fundraising Expense$3,600
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$131,000--$131,000
Conferences and Meetings$48,640--$48,640
Fees for Services Management$18,935$18,000$3,600$40,535
Foreign Grants$31,000--$31,000
Advertising$9,752--$9,752
Travel$8,511--$8,511
Office Expenses$1,341$1,341-$2,682
Fees for Services Accounting$1,225$1,225-$2,450
Insurance-$1,584-$1,584
Other Expenses$150--$150
Total Functional Expenses$252,022$22,150$3,600$277,772
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
National Human Genome Research InstituteBethesda, MD-To Provide Funds for Research to Determine the Genetic Cause of Moebius Syndrome.$75,000
BOSTON CHILDREN'S HOSPITALBoston, MA-To Provide Funds for Research to Determine the Genetic Cause of Moebius Syndrome.$50,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesGrant to a Recipient Located in the RegionGRANT TO SICKKIDS FOUNDATION FOR USE BY DR. RONALD ZUKER AND DR. GREGORY BORSCHEL'S FOR FOLLOWUP ON CHILDREN WHO HAVE HAD THE GRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY.00-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”

Form 990, Part VI, Section C, Line 19

“These documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Moebius Syndrome Foundation
EIN
13-3753992
Phone
6608343406
Address
PO BOX 147, PILOT GROVE, MO 65276

Signing Officer

Name
Vicki Mccarrell
Title
President
Phone
6608343406
Signed
2018-05-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Vicki Mccarrell
Formed
1994
Legal Domicile
Mo
Voting Board Members
9
Independent Board Members
9
Employees
0
Volunteers
0

Preparer

Firm
Wilson Toellner & Associates LLC
Address
2700 MATTHEW DR, SEDALIA, MO 65301
Preparer
Norma Schlesselman CPA
Phone
6608274990
Raw XML AppendixShowing 400 of 449 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990/AdvertisingGrp/ProgramServicesAmt09752
IRS990/AdvertisingGrp/TotalAmt09752
IRS990/AllOtherContributionsAmt0167664
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0VICKI MCCARRELL
IRS990/BooksInCareOfDetail/PhoneNum06608343406
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt06879 HWY 135
IRS990/BooksInCareOfDetail/USAddress/CityNm0PILOT GROVE
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd065276
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt01971590
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt01958564
IRS990/CashNonInterestBearingGrp/BOYAmt03521
IRS990/CashNonInterestBearingGrp/EOYAmt013693
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt048640
IRS990/ConferencesMeetingsGrp/TotalAmt048640
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0167664
IRS990/CYGrantsAndSimilarPaidAmt0162000
IRS990/CYInvestmentIncomeAmt0107195
IRS990/CYOtherExpensesAmt0115772
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt0430
IRS990/CYRevenuesLessExpensesAmt0-2483
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0277772
IRS990/CYTotalFundraisingExpenseAmt03600
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0275289
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt045011
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt01225
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt01225
IRS990/FeesForServicesAccountingGrp/TotalAmt02450
IRS990/FeesForServicesManagementGrp/FundraisingAmt03600
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt018000
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt018935
IRS990/FeesForServicesManagementGrp/TotalAmt040535
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt031000
IRS990/ForeignGrantsGrp/TotalAmt031000
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt025.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt225.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt825.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/PersonNm0VICKI MCCARRELL
IRS990/Form990PartVIISectionAGrp/PersonNm1MATTHEW JOFFE
IRS990/Form990PartVIISectionAGrp/PersonNm2MARCIA ABBOTT
IRS990/Form990PartVIISectionAGrp/PersonNm3JACOB LICHT
IRS990/Form990PartVIISectionAGrp/PersonNm4KEVIN SMANT
IRS990/Form990PartVIISectionAGrp/PersonNm5MONICA WOODALL
IRS990/Form990PartVIISectionAGrp/PersonNm6ROLAND BIENVENU
IRS990/Form990PartVIISectionAGrp/PersonNm7KATHLEEN BOGART
IRS990/Form990PartVIISectionAGrp/PersonNm8KIMBERLEY CUNNINGHAM
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt836000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01994
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt085857
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0131000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0131000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01452240
IRS990/GrossReceiptsAmt01641672
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt01584
IRS990/InsuranceGrp/TotalAmt01584
IRS990/InvestmentExpenseAmt0-11062
IRS990/InvestmentIncomeGrp/ExclusionAmt021338
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt021338
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0836428
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt01329106
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01366383
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME AND BE AN ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt01971590
IRS990/NetAssetsOrFundBalancesEOYAmt01958564
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt085857
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt085857
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0519
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01341
IRS990/OfficeExpensesGrp/ProgramServicesAmt01341
IRS990/OfficeExpensesGrp/TotalAmt02682
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0WEBINARS AND CONTINUING
IRS990/OtherExpensesGrp/Desc1POSTAGE
IRS990/OtherExpensesGrp/Desc2MEMBERSHIPS
IRS990/OtherExpensesGrp/ProgramServicesAmt0919
IRS990/OtherExpensesGrp/ProgramServicesAmt1549
IRS990/OtherExpensesGrp/ProgramServicesAmt2150
IRS990/OtherExpensesGrp/TotalAmt0919
IRS990/OtherExpensesGrp/TotalAmt1549
IRS990/OtherExpensesGrp/TotalAmt2150
IRS990/PartialLiquidationInd00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0VICKI MCCARRELL
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0430
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0430
IRS990/ProgSrvcAccomActy2Grp/Desc0PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt045011
IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0156000
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0156000
IRS990/ProgSrvcAccomActyOtherGrp/Desc0PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt06000
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt06000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0667773
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0163725
IRS990/PYInvestmentIncomeAmt040558
IRS990/PYOtherExpensesAmt0315759
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt077790
IRS990/PYRevenuesLessExpensesAmt0306637
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0479484
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0786121
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-2483
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0430
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01131641
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0615765
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0167563
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0667773
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0643479
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0674820
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0121875
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02275510
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt021219
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt019271
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt014776
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt01706
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt02368
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt059340
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0532
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt077790
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0425
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt069724
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0123
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0148594
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt021219
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt019271
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt014776
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt01706
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt02368
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt059340
IRS990ScheduleA/InvestmentIncomeCYPct00.02390
IRS990ScheduleA/InvestmentIncomePYPct00.01640
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97610
IRS990ScheduleA/PublicSupportPY509Pct00.98360
IRS990ScheduleA/PublicSupportTotal509Amt02424104
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0168095
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0745563
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0643904
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0744544
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0121998
IRS990ScheduleA/Total509Grp/TotalAmt02424104
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0189314
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0764834
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0658680
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0746250
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0124366
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02483444
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt01329106
IRS990ScheduleD/OtherSecuritiesGrp/Desc0CHARLES SCHWAB
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueSecuritiesAmt01329106
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0GRANT TO SICKKIDS FOUNDATION FOR USE BY DR. RONALD ZUKER AND DR. GREGORY BORSCHEL'S FOR FOLLOWUP ON CHILDREN WHO HAVE HAD THE GRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY.
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANT TO A RECIPIENT LOCATED IN THE REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt031000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0THE PURPOSE OF THIS GRANT IS FOR DR. RONALD ZUKER AND DR. GREGORY BORSCHEL TO FOLLOWUP ON CHILDREN WHO HAVE HAD THE BRASCILIS MUSCLE TRANSPLANT (AKA SMILE) SURGERY.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc0FAIR MARKET VALUE
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0GRANT RECIPIENT PROVIDES PERIODIC REPORTS TO THE BOARD OF THIS ORGANIZATION.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1PAYMENTS MADE IN CASH
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1PART I, LINE 3:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt050000
IRS990ScheduleI/RecipientTable/CashGrantAmt175000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0BOSTON CHILDREN'S HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NATIONAL HUMAN GENOME RESEARCH INSTITUTE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0401 PARK DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt19000 ROCKVILLE PIKE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BOSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BETHESDA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MD
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002215
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd120892
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt01971590
IRS990/TotalAssetsEOYAmt01958564
IRS990/TotalAssetsGrp/BOYAmt01971590
IRS990/TotalAssetsGrp/EOYAmt01958564
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0167664
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt03600
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt022150
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0252022
IRS990/TotalFunctionalExpensesGrp/TotalAmt0277772
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01971590
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01958564
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt06000
IRS990/TotalOtherProgSrvcGrantAmt06000
IRS990/TotalProgramServiceExpensesAmt0252022
IRS990/TotalProgramServiceRevenueAmt0430
IRS990/TotalReportableCompFromOrgAmt036000
IRS990/TotalRevenueGrp/ExclusionAmt0107195
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0430
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0275289
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01971590
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01958564
IRS990/TotReportableCompRltdOrgAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,958,564
Liabilities
$0
Net assets
$1,958,564
Revenue
$275,289
Expenses
$277,772
Net income
-$2,483
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16