Civic Intelligence

Moebius Syndrome Foundation

990 • Fiscal year 2020 • EIN 13-3753992

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 10, 2021

Organization ProfileWWW.MOEBIUSSYNDROME.COM
P O Box 147Pilot Grove, MO 65276

(660) 834-3406

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

51st percentile

0.11x

Higher debt load relative to assets than 51% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

89th percentile

1.66x

Higher debt load relative to revenue than 89% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

1st percentile

-475%

Higher net margin than 1% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

37th percentile

$0

Higher top officer pay than 37% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

7th percentile

-13%

Faster asset growth than 7% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

6th percentile

-55%

Faster revenue growth than 6% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets51st percentile

Assets

Down

$1,589,005

Down $235,342 (-13%) from 2019

Net Assets

Down

$1,415,616

Down $408,366 (-22%) from 2019

Liabilities

Up

$173,389

Up $173,024 (+47404%) from 2019

Revenue And Expenses
Liabilities / Revenue89th percentileNet Margin1st percentile

Revenue

Down

$104,435

Down $127,999 (-55%) from 2019

Expenses

Up

$600,241

Up $278,927 (+87%) from 2019

Net Income

Down

-$495,806

Down $406,926 (-458%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2020

Assets$1,589,005
Liabilities$173,389
Net Assets$1,415,616
Open 2020 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2020

Revenue$104,435
Expenses$600,241
Net Income-$495,806
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 10, 2021
Return Version
2020v4.0
Gross Receipts
$340,876
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$1,449,068$1,553,870▲ $104,802
Savings and Temporary Cash Investments$259,865--
Cash and Non-Interest-Bearing Accounts$115,414$34,712▼ $80,702
Prepaid Expenses and Deferred Charges$18,267$423▼ $17,844
Total Assets$1,842,614$1,589,005▼ $253,609
Liabilities
Grants Payable$191,000$171,000▼ $20,000
Accounts Payable and Accrued Expenses$365$2,389▲ $2,024
Total Liabilities$191,365$173,389▼ $17,976
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,650,249$1,413,616▼ $236,633
Net Assets With Donor Restrictions$1,000$2,000▲ $1,000
Total Net Assets Fund Balance$1,651,249$1,415,616▼ $235,633
Total Liabilities and Net Assets / Fund Balance$1,842,614$1,589,005▼ $253,609

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,553,870--
Compensation and Service Providers
Top Officer Pay37th percentile

Board Members and Trustees

NameTitle
Jacob LichtPresident
Bryn Webb MdBoard Member
Kelsey FerrillBoard Member
Monica WoodallBoard Member
Nicole ZeitlerBoard Member
Steven MaldonadoBoard Member
Rebecca MaherSecretary
Vicki MccarrellTreasurer
Kevin SmantVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$66,325
Program Service Revenue
$0
Investment Income
$38,110
Other Revenue
$0
All Other Contributions
$66,325
Change in Net Assets
$-495,806

Audited Revenue Reconciliation

Revenue per Audited Statements
$93,330
Revenue Not Reported on Financial Statements
$11,105
Revenue Not Reported on Form 990
$98,545
Total Revenue per Audited Statements
$191,875
Total Revenue per Form 990
$104,435
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$435,344
Other Expenses$164,897
Total Fundraising Expense$4,915
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$241,000--$241,000
Grants to Domestic Orgs$184,344--$184,344
Fees for Services Management$64,269$12,726$4,915$81,910
Advertising$25,614--$25,614
Office Expenses$11,309$12,546-$23,855
Fees for Services Accounting-$14,500-$14,500
Grants to Domestic Individuals$10,000--$10,000
Information Technology$6,100--$6,100
Conferences and Meetings$5,438--$5,438
Insurance-$1,407-$1,407
Other Expenses$1,000$3,000-$1,000
Travel$1,000--$1,000
Total Functional Expenses$551,147$44,179$4,915$600,241

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$600,241
Total Expenses per Audited Statements$427,508
Expenses per Audited Statements$409,241
Expenses Not Reported on Financial Statements$191,000
Other Expense Adjustments$191,000
Expenses Not Reported on Form 990$18,267
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Icahn School of Medicine at Mount SNew York, NYGovFunds for Research$160,000
Oregon State UniversityCorvallis, OR-Funds for Research$24,344

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and MexicoGrant to a RecipientGrant to Sickkids Fo---
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”

Form 990, Page 6, Part VI, Line 19

“These documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Moebius Syndrome Foundation
EIN
13-3753992
Phone
6608343406
Address
P O BOX 147, PILOT GROVE, MO 65276

Signing Officer

Name
Jacob Licht
Title
President
Phone
6608343406
Signed
2021-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jacob Licht
Formed
1994
Legal Domicile
Mo
Voting Board Members
9
Independent Board Members
9
Employees
0

Preparer

Firm
Wilson Toellner CPA
Address
2700 MATTHEW DR, SEDALIA, MO 65301
Preparer
Norma Schlesselman CPA
Phone
6608274990
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.”

Form 990, Page 2, Part III, Line 4D

“Provide college scholarships to students with moebius syndrome. Expenses 10,000. Inlcuding grants of 10,000. Revenue 0.”

Form 990, Part XI, Line 9

“Prepaid expenses -18,267 grants awarded 191,000 total 172,733”

Form 990, Page 12, Part XII, Line 1

“The organization changed its method of accounting from the cash basis to the accrual basis for 2020. As such, expenses as shown in the statement of functions expenses (part ix) have been increased by 191,000 for grants awarded prior to 2020 and have been reduced by 18,367 for prepaid expenses at december 31, 2019, as these items were reflected in expenses in 2019. The net amount of these two items or 172,733 is reflected as a section 481(a) adjustment on form 3115.”

Financial Statement Notes

Schedule D, Page 4, Part XII, Line 2D

“PREPAID EXPENSES 18,267”

Schedule D, Page 4, Part XII, Line 4B

“GRANTS AWARDED 191,000”

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IRS990/OtherExpensesGrp/Desc0BOARD EXPENSES
IRS990/OtherExpensesGrp/Desc1MOEBIUS AWARENESS DAY
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03000
IRS990/OtherExpensesGrp/ProgramServicesAmt01073
IRS990/OtherExpensesGrp/ProgramServicesAmt11000
IRS990/OtherExpensesGrp/TotalAmt04073
IRS990/OtherExpensesGrp/TotalAmt11000
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt018267
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0423
IRS990/PrincipalOfficerNm0JACOB LICHT
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt057901
IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0425344
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0425344
IRS990/ProgSrvcAccomActyOtherGrp/Desc0PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 10,000. INLCUDING GRANTS OF 10,000. REVENUE 0.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt010000
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt010000
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0182833
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0122000
IRS990/PYInvestmentIncomeAmt044753
IRS990/PYOtherExpensesAmt0199314
IRS990/PYProgramServiceRevenueAmt04848
IRS990/PYRevenuesLessExpensesAmt0-88880
IRS990/PYTotalExpensesAmt0321314
IRS990/PYTotalRevenueAmt0232434
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-495806
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0true
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0259865
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt066325
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0182833
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0180300
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0167563
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0667773
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01264794
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt025770
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt02109
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt043594
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt021219
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt019271
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0111963
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt04848
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt097111
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0532
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt077790
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0180281
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt025770
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt02109
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt043594
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt021219
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt019271
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0111963
IRS990ScheduleA/InvestmentIncomeCYPct00.07000
IRS990ScheduleA/InvestmentIncomePYPct00.05000
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt034389
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt034389
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.90800
IRS990ScheduleA/PublicSupportPY509Pct00.93730
IRS990ScheduleA/PublicSupportTotal509Amt01445075
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt066325
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0187681
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0277411
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0168095
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0745563
IRS990ScheduleA/Total509Grp/TotalAmt01445075
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt092095
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0224179
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0321005
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0189314
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0764834
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01591427
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/ExpensesNotReportedAmt018267
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0191000
IRS990ScheduleD/ExpensesSubtotalAmt0409241
IRS990ScheduleD/InvestmentExpensesNotIncldAmt011105
IRS990ScheduleD/NetUnrealizedGainsInvstAmt098545
IRS990ScheduleD/OtherExpensesIncludedAmt018267
IRS990ScheduleD/OtherExpensesNotIncludedAmt0191000
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt01553870
IRS990ScheduleD/OtherSecuritiesGrp/Desc0OTHER SECURITIES
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/RevenueNotReportedAmt098545
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt011105
IRS990ScheduleD/RevenueSubtotalAmt093330
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0PREPAID EXPENSES 18,267
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1GRANTS AWARDED 191,000
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XII, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 4B
IRS990ScheduleD/TotalBookValueSecuritiesAmt01553870
IRS990ScheduleD/TotalExpensesPerForm990Amt0600241
IRS990ScheduleD/TotalRevenuePerForm990Amt0104435
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0191875
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0427508
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0NORTH AMERICA - CANADA AND MEXICO
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0GRANT TO SICKKIDS FO
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANT TO A RECIPIENT
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt0241000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0FUNDS FOR RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0NORTH AMERICA - CANADA AND MEXICO 0 0
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 3
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt010000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0SCHOLARSHIPS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt05
IRS990ScheduleI/RecipientTable/CashGrantAmt0160000
IRS990ScheduleI/RecipientTable/CashGrantAmt124344
IRS990ScheduleI/RecipientTable/IRCSectionDesc0GOV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0FUNDS FOR RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1FUNDS FOR RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0ICAHN SCHOOL OF MEDICINE AT MOUNT S
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1OREGON STATE UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0136171197
IRS990ScheduleI/RecipientTable/RecipientEIN1611730890
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01 GUSTAVA L LEVY PLACE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11701 SW WESTERN BLVD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm1CORVALLIS
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1OR
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010029
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd197333
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 10,000. INLCUDING GRANTS OF 10,000. REVENUE 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4PREPAID EXPENSES -18,267 GRANTS AWARDED 191,000 TOTAL 172,733
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5THE ORGANIZATION CHANGED ITS METHOD OF ACCOUNTING FROM THE CASH BASIS TO THE ACCRUAL BASIS FOR 2020. AS SUCH, EXPENSES AS SHOWN IN THE STATEMENT OF FUNCTIONS EXPENSES (PART IX) HAVE BEEN INCREASED BY 191,000 FOR GRANTS AWARDED PRIOR TO 2020 AND HAVE BEEN REDUCED BY 18,367 FOR PREPAID EXPENSES AT DECEMBER 31, 2019, AS THESE ITEMS WERE REFLECTED IN EXPENSES IN 2019. THE NET AMOUNT OF THESE TWO ITEMS OR 172,733 IS REFLECTED AS A SECTION 481(A) ADJUSTMENT ON FORM 3115.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART XI, LINE 9
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 12, PART XII, LINE 1
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01842614
IRS990/TotalAssetsEOYAmt01589005
IRS990/TotalAssetsGrp/BOYAmt01842614
IRS990/TotalAssetsGrp/EOYAmt01589005
IRS990/TotalCompGreaterThan150KInd0false

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,589,005
Liabilities
$173,389
Net assets
$1,415,616
Revenue
$104,435
Expenses
$600,241
Net income
-$495,806
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16