Civic Intelligence

Moebius Syndrome Foundation

EIN 13-3753992 • 501(c)3 • Denver, CO

Profile

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

1312 17th Street 976Denver, CO 80202

www.moebiussyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

27th percentile

0.00x

Higher debt load relative to assets than 27% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

36th percentile

0.02x

Higher debt load relative to revenue than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

69th percentile

16%

Higher net margin than 69% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

62nd percentile

$90,018

Higher top officer pay than 62% of similar nonprofits.

Top officer pay equals 26.6% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

61st percentile

7.9%

Faster asset growth than 61% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

12th percentile

-26%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$1,978,268

Up $144,696 (+7.9%) from 2023

Liabilities

Up

$8,019

Up $4,933 (+160%) from 2023

Net Assets

Up

$1,970,249

Up $139,763 (+7.6%) from 2023

Operations
Liabilities / Revenue36th percentileNet Margin69th percentile

Revenue

Down

$338,157

Down $120,143 (-26%) from 2023

Expenses

Down

$283,083

Down $316,176 (-53%) from 2023

Net Income

Up

$55,074

Up $196,033 (+139%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth61st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2010: $507,557Liabilities 2010: $0Net Assets 2010: $507,5572010Assets 2011: $576,064Liabilities 2011: $0Net Assets 2011: $576,0642011Assets 2012: $539,584Liabilities 2012: $0Net Assets 2012: $539,5842012Assets 2013: $618,938Liabilities 2013: $0Net Assets 2013: $618,9382013Assets 2014: $1,122,571Liabilities 2014: $0Net Assets 2014: $1,122,5712014Assets 2015: $1,642,578Liabilities 2015: $0Net Assets 2015: $1,642,5782015Assets 2016: $1,971,590Liabilities 2016: $0Net Assets 2016: $1,971,5902016Assets 2017: $1,958,564Liabilities 2017: $0Net Assets 2017: $1,958,5642017Assets 2018: $1,775,916Liabilities 2018: $1,531Net Assets 2018: $1,774,3852018Assets 2019: $1,824,347Liabilities 2019: $365Net Assets 2019: $1,823,9822019Assets 2020: $1,589,005Liabilities 2020: $173,389Net Assets 2020: $1,415,6162020Assets 2021: $2,393,833Liabilities 2021: $71,000Net Assets 2021: $2,322,8332021Assets 2022: $1,898,826Liabilities 2022: $45,653Net Assets 2022: $1,853,1732022Assets 2023: $1,833,572Liabilities 2023: $3,086Net Assets 2023: $1,830,4862023Assets 2024: $1,978,268Liabilities 2024: $8,019Net Assets 2024: $1,970,2492024

Highlighted filing

2024

Assets$1,978,268
Liabilities$8,019
Net Assets$1,970,249
Open 2024 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $159,8342010Expenses 2011: $73,2502011Expenses 2012: $250,3872012Revenue 2013: $124,366Expenses 2013: $45,012Net Income 2013: $79,3542013Revenue 2014: $746,250Expenses 2014: $242,617Net Income 2014: $503,6332014Revenue 2015: $652,694Expenses 2015: $110,936Net Income 2015: $541,7582015Revenue 2016: $786,121Expenses 2016: $479,484Net Income 2016: $306,6372016Revenue 2017: $275,289Expenses 2017: $277,772Net Income 2017: -$2,4832017Revenue 2018: $331,391Expenses 2018: $414,749Net Income 2018: -$83,3582018Revenue 2019: $232,434Expenses 2019: $321,314Net Income 2019: -$88,8802019Revenue 2020: $104,435Expenses 2020: $600,241Net Income 2020: -$495,8062020Revenue 2021: $1,037,936Expenses 2021: $183,742Net Income 2021: $854,1942021Revenue 2022: $358,125Expenses 2022: $519,527Net Income 2022: -$161,4022022Revenue 2023: $458,300Expenses 2023: $599,259Net Income 2023: -$140,9592023Revenue 2024: $338,157Expenses 2024: $283,083Net Income 2024: $55,0742024

Highlighted filing

2024

Revenue$338,157
Expenses$283,083
Net Income$55,074
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,978,268
Liabilities
$8,019
Net assets
$1,970,249
Revenue
$338,157
Expenses
$283,083
Net income
$55,074
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.97$0.34$0.28$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.83$0.00$1.83$0.46$0.60$0.14
2022Detailed filing. Detailed filing data is available for this year.$1.90$0.05$1.85$0.36$0.52$0.16
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.07$2.32$1.04$0.18$0.85
2020Detailed filing. Detailed filing data is available for this year.$1.59$0.17$1.42$0.10$0.60$0.50
2019Detailed filing. Detailed filing data is available for this year.$1.82$0.00$1.82$0.23$0.32$0.09
2018Detailed filing. Detailed filing data is available for this year.$1.78$0.00$1.77$0.33$0.41$0.08
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.00$1.96$0.28$0.28$0.00
2016Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.79$0.48$0.31
2015Detailed filing. Detailed filing data is available for this year.$1.64$0.00$1.64$0.65$0.11$0.54
2014Detailed filing. Detailed filing data is available for this year.$1.12$0.00$1.12$0.75$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.12$0.05$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.54$0.00$0.54$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.07
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.51$0.00$0.51$0.16
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 29, 2025
Return Version
2024v5.1
Gross Receipts
$338,157
Mission and Program Overview

Mission

The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,795,333$1,907,058▲ $111,725
Cash and Non-Interest-Bearing Accounts$38,239$70,710▲ $32,471
Accounts Receivable-$500-
Total Assets$1,833,572$1,978,268▲ $144,696
Liabilities
Accounts Payable and Accrued Expenses$3,086$8,019▲ $4,933
Total Liabilities$3,086$8,019▲ $4,933
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,829,634$1,925,610▲ $95,976
Net Assets With Donor Restrictions$852$44,639▲ $43,787
Total Net Assets Fund Balance$1,830,486$1,970,249▲ $139,763
Total Liabilities and Net Assets / Fund Balance$1,833,572$1,978,268▲ $144,696
Compensation and Service Providers
Top Officer Pay62nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jennifer WhitmanExecutive DirectorFT$90,018$90,018

Board Members and Trustees

NameTitle
Jacob LichtPast President
Rebecca MaherPresident
Steven MaldonadoVice President
Austin HallsBoard Member
Bryn Webb MDBoard Member
Kathryn KrausBoard Member
KiOwana PhillipsBoard Member
Vicky McCarrellBoard Member
Jon FisherSecretary
Destiny BachmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$275,943
Program Service Revenue
$5,761
Investment Income
$56,102
Other Revenue
$351
All Other Contributions
$275,943
Change in Net Assets
$55,074
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$134,688
Other Expenses$125,995
Grants and Similar Amounts Paid$22,400
Total Fundraising Expense$17,878
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$37,580$51,585$4,523$93,688
Other Salaries and Wages$29,510--$29,510
Grants to Domestic Orgs$21,000--$21,000
Advertising$1,394$3,773$12,933$18,100
Fees for Services Other$7,557$9,342-$16,899
Travel$9,764$6,349-$16,113
Fees for Service Investment Mgmnt Fees-$14,340-$14,340
Fees for Services Accounting-$12,683-$12,683
Payroll Taxes$6,253$4,815$422$11,490
Office Expenses$2,157$5,128-$7,285
Conferences and Meetings-$6,966-$6,966
Other Expenses$3,372$596-$3,372
Fees for Services Legal-$1,975-$1,975
Grants to Domestic Individuals$1,400--$1,400
Insurance$113$605-$718
Total Functional Expenses$146,312$118,893$17,878$283,083
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Eckerd CollegeSt Petersburg, FL501(c)(3)Scholarship$3,000
Oklahoma State UniversityStillwater, OK501(c)(3)Scholarship$3,000
Oklahoma Wesleyan UniversityBartlesville, OK501(c)(3)Scholarship$3,000
University of Nebraska LincolnLincoln, NE501(c)(3)Scholarship$3,000
University of North FloridaJacksonville, FL501(c)(3)Scholarship$3,000
University of South FloridaTampa, FL501(c)(3)Scholarship$3,000
York College of PennsylvaniaYork, PA501(c)(3)Scholarship$3,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“All board members receive a copy of the Form 990. It is reviewed by the officers before filing.”

Form 990, Part VI, Section C, line 18

“These documents are made available upon request.”

Form 990, Part VI, Section C, line 19

“These documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Moebius Syndrome Foundation
EIN
13-3753992
Phone
8446632487
Address
1312 17th Street 976, Denver, CO 80202

Signing Officer

Name
Rebecca Maher
Title
President
Phone
8446632487
Signed
2025-05-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rebecca Maher
Formed
1994
Legal Domicile
De
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
5

Preparer

Firm
Kositzka Wicks and Company
Address
5270 Shawnee Road Suite 250, Alexandria, VA 22312
Preparer
Jennica Jardine Whitfield CPA
Phone
7036422700
Supplemental Narrative

Financial Statement Notes

Part X, Line 2:

“Moebius Syndrome Foundation is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Income from certain activities not directly related to the Organization's exempt purpose is subject to taxation as unrelated business income. The Foundation had no unrelated business income for the year ended December 31, 2024.”

Raw XML AppendixShowing 400 of 544 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
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IRS990/ProgSrvcAccomActy3Grp/Desc0To provide college scholarships to students with Moebius Syndrome.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Moebius Syndrome Foundation is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Income from certain activities not directly related to the Organization's exempt purpose is subject to taxation as unrelated business income. The Foundation had no unrelated business income for the year ended December 31, 2024.
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0University of South Florida
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Oklahoma State University
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6University of Nebraska Lincoln
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11 UNF Dr
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2107 Whitehurst
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt32201 Silver Lake Rd

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