Liabilities / Assets
16th percentile
Higher debt load relative to assets than 16% of similar nonprofits.
990 • Fiscal year 2019 • EIN 13-3753992
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
16th percentile
Higher debt load relative to assets than 16% of similar nonprofits.
Liabilities / Revenue
17th percentile
Higher debt load relative to revenue than 17% of similar nonprofits.
Net Margin
8th percentile
Higher net margin than 8% of similar nonprofits.
Top Officer Pay
36th percentile
Higher top officer pay than 36% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
49th percentile
Faster asset growth than 49% of similar nonprofits.
Revenue Growth
10th percentile
Faster revenue growth than 10% of similar nonprofits.
Assets
Up$1,824,347
Up $48,431 (+2.7%) from 2018
Net Assets
Up$1,823,982
Up $49,597 (+2.8%) from 2018
Liabilities
Down$365
Down $1,166 (-76%) from 2018
Revenue
Down$232,434
Down $98,957 (-30%) from 2018
Expenses
Down$321,314
Down $93,435 (-23%) from 2018
Net Income
Down-$88,880
Down $5,522 (-6.6%) from 2018
The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cap Stk Tr Prin Current Funds | $1,774,385 | $1,823,982 | ▲ $49,597 |
| Investments Other Securities | $1,267,948 | $1,449,068 | ▲ $181,120 |
| Savings and Temporary Cash Investments | $490,026 | $259,865 | ▼ $230,161 |
| Cash and Non-Interest-Bearing Accounts | $17,942 | $115,414 | ▲ $97,472 |
| Total Assets | $1,775,916 | $1,824,347 | ▲ $48,431 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $1,531 | $365 | ▼ $1,166 |
| Total Liabilities | $1,531 | $365 | ▼ $1,166 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $1,774,385 | $1,823,982 | ▲ $49,597 |
| Total Liabilities and Net Assets / Fund Balance | $1,775,916 | $1,824,347 | ▲ $48,431 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Securities | $1,449,068 | - | - |
| Name | Title |
|---|---|
| Jacob Licht | President |
| Bryn Webb Md | Board Member |
| Kelsey Ferrill | Board Member |
| Monica Woodall | Board Member |
| Nicole Zeitler | Board Member |
| Paula Santana | Board Member |
| Steven Maldonado | Board Member |
| Rebecca Maher | Secretary |
| Vicki Mccarrell | Treasurer |
| Kevin Smant | Vice Preside |
| Line Item | Amount |
|---|---|
| Other Expenses | $199,314 |
| Grants and Similar Amounts Paid | $122,000 |
| Total Fundraising Expense | $4,374 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $57,904 | $21,869 | $4,374 | $84,147 |
| Grants to Domestic Orgs | $80,000 | - | - | $80,000 |
| Conferences and Meetings | $35,663 | - | - | $35,663 |
| Foreign Grants | $31,000 | - | - | $31,000 |
| Advertising | $23,632 | - | - | $23,632 |
| Travel | $12,999 | - | - | $12,999 |
| Grants to Domestic Individuals | $11,000 | - | - | $11,000 |
| Fees for Services Accounting | $3,225 | $3,225 | - | $6,450 |
| All Other Expenses | $4,896 | - | - | $4,896 |
| Other Expenses | $2,500 | - | - | $2,500 |
| Information Technology | $2,200 | - | - | $2,200 |
| Insurance | - | $1,397 | - | $1,397 |
| Office Expenses | $242 | $242 | - | $484 |
| Total Functional Expenses | $290,207 | $26,733 | $4,374 | $321,314 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Icahn School of Medicine at Mount S | New York, NY | - | Funds for Research | $80,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America - Canada and Mexico | Grant to a Recipient | Grant to Sickkids Fo | - | - | - |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“All board members receive a copy of the form 990. It is reviewed by the officers before filing.”
“These documents are made available upon request.”
“The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.”
“Provide college scholarships to students with moebius syndrome. Expenses 11,000. Inlcuding grants of 11,000. Revenue 0.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 1531 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 365 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 23632 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 23632 |
| IRS990/AllOtherContributionsAmt | 0 | 182833 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 4896 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 4896 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | VICKI MCCARRELL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6608343406 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6879 HWY 135 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | PILOT GROVE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 65276 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 1774385 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 1823982 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 17942 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 115414 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 35663 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 35663 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 182833 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 122000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 44753 |
| IRS990/CYOtherExpensesAmt | 0 | 199314 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 4848 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -88880 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 321314 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 4374 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 232434 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 84104 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 3225 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 3225 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6450 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 4374 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 21869 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 57904 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 84147 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 31000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 31000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | KELSEY FERRILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JACOB LICHT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | REBECCA MAHER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STEVEN MALDONADO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | VICKI MCCARRELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BRYN WEBB MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PAULA SANTANA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KEVIN SMANT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MONICA WOODALL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | NICOLE ZEITLER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | VICE PRESIDE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1994 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 7652 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 1712 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 11000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 11000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 80000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 80000 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 7652 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 5082 |
| IRS990/GrossReceiptsAmt | 0 | 235804 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2200 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2200 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1397 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1397 |
| IRS990/InvestmentExpenseAmt | 0 | -10966 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 35389 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 35389 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 1267948 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 1449068 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MO |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 3370 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1774385 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1823982 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 9364 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 9364 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 149443 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 242 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 242 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 484 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | MEMBERSHIPS |
| IRS990/OtherExpensesGrp/Desc | 1 | PRINTING |
| IRS990/OtherExpensesGrp/Desc | 2 | POSTAGE |
| IRS990/OtherExpensesGrp/Desc | 3 | LICENSE AND REGISTRATION |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 16611 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 5460 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2875 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2500 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 16611 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5460 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2875 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2500 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | JACOB LICHT |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4848 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 4848 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 84103 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 2424 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 111000 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 111000 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 11,000. INLCUDING GRANTS OF 11,000. REVENUE 0. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 11000 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 11000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 180300 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 88000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 43594 |
| IRS990/PYOtherExpensesAmt | 0 | 326749 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 107497 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -83358 |
| IRS990/PYTotalExpensesAmt | 0 | 414749 |
| IRS990/PYTotalRevenueAmt | 0 | 331391 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -88880 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 2424 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 490026 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 259865 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 182833 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 180300 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 167563 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 667773 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 643479 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1841948 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 2109 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 43594 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 21219 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 19271 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 14776 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 100969 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 4848 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 97111 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 532 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 77790 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 425 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 180706 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 2109 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 43594 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 21219 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 19271 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 14776 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 100969 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.05000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.04000 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt | 0 | 34389 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 34389 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.93730 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.96250 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2022654 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 187681 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 277411 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 168095 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 745563 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 643904 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2022654 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 224179 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 321005 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 189314 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 764834 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 658680 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2158012 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 0 | 1449068 |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 0 | OTHER SECURITIES |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 1449068 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | GRANT TO SICKKIDS FO |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | GRANT TO A RECIPIENT |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 31000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | FUNDS FOR RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 0 | FMV |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | NORTH AMERICA - CANADA AND MEXICO 0 0 |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE F, PAGE 1, PART I, LINE 3 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 11000 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | SCHOLARSHIPS |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt | 0 | 6 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 80000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | FUNDS FOR RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | ICAHN SCHOOL OF MEDICINE AT MOUNT S |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 136171197 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1 GUSTAVA L LEVY PLACE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 10029 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 11,000. INLCUDING GRANTS OF 11,000. REVENUE 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ALL BOARD MEMBERS RECEIVE A COPY OF THE FORM 990. IT IS REVIEWED BY THE OFFICERS BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THESE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 2, PART III, LINE 4D |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 1775916 |
| IRS990/TotalAssetsEOYAmt | 0 | 1824347 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1775916 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1824347 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 182833 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 4374 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 26733 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 290207 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 321314 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 1531 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 365 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 1531 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 365 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 1774385 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 1823982 |
| IRS990/TotalOtherProgSrvcExpenseAmt | 0 | 11000 |
| IRS990/TotalOtherProgSrvcGrantAmt | 0 | 11000 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 290207 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 4848 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 35389 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.