Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2023 • EIN 04-3462719

Jan 01, 2023 to Dec 31, 2023 • Filed on Jun 24, 2024

480 Arsenal Street 201Watertown, MA 02472

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.25x

Higher debt load relative to assets than 57% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Liabilities / Revenue

64th percentile

0.43x

Higher debt load relative to revenue than 64% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Net Margin

49th percentile

3.4%

Higher net margin than 49% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Top Officer Pay

83rd percentile

$340,011

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Asset Growth

14th percentile

-4.9%

Faster asset growth than 14% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Revenue Growth

42nd percentile

1.7%

Faster revenue growth than 42% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Assets

Down

$20,012,651

Down $1,038,874 (-4.9%) from 2022

Net Assets

Down

$15,010,932

Down $217,549 (-1.4%) from 2022

Liabilities

Down

$5,001,719

Down $821,325 (-14%) from 2022

Revenue

Up

$11,558,482

Up $194,313 (+1.7%) from 2022

Expenses

Up

$11,160,593

Up $1,331,054 (+14%) from 2022

Net Income

Down

$397,889

Down $1,136,741 (-74%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2023

Assets$20,012,651
Liabilities$5,001,719
Net Assets$15,010,932

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2023

Revenue$11,558,482
Expenses$11,160,593
Net Income$397,889
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jun 24, 2024
Return Version
2023v5.1
Gross Receipts
$12,415,651
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,231,414$7,976,815▲ $4,745,401
Savings and Temporary Cash Investments$7,748,460$6,415,329▼ $1,333,131
Intangible Assets$775,666$875,678▲ $100,012
Pledges and Grants Receivable$389,388$455,824▲ $66,436
Land, Buildings, and Equipment, Net$192,136$393,002▲ $200,866
Prepaid Expenses and Deferred Charges$174,487$297,565▲ $123,078
Cash and Non-Interest-Bearing Accounts$3,467,200$282,198▼ $3,185,002
Accounts Receivable$1,053,475$97,420▼ $956,055
Total Assets$21,051,525$20,012,651▼ $1,038,874
Other Assets Total$4,019,299$3,218,820▼ $800,479
Liabilities
Other Liabilities$5,196,468$4,422,082▼ $774,386
Accounts Payable and Accrued Expenses$532,001$426,183▼ $105,818
Deferred Revenue$94,575$153,454▲ $58,879
Total Liabilities$5,823,044$5,001,719▼ $821,325
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$14,928,481$14,810,932▼ $117,549
Net Assets With Donor Restrictions$300,000$200,000▼ $100,000
Total Net Assets Fund Balance$15,228,481$15,010,932▼ $217,549
Total Liabilities and Net Assets / Fund Balance$21,051,525$20,012,651▼ $1,038,874

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$385,231$2,711,619$3,096,850
Leasehold Improvements$7,771$54,699$62,470
Other Assets Org$2,915,734--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraCEO and CSOFT$320,000$20,011$340,011
Alan GillVP of ResearchFT$182,421$13,214$195,635
Carol HamiltonVP of DevelopmentFT$165,724$8,146$173,870
Theo HatzipetrosDirector of PharmacologyFT$150,899$20,236$171,135
Kyle R DentonDirector, Cell BiologyFT$150,194$8,434$158,628
Kenneth ThompsonVP of Facility OperationFT$129,202$19,011$148,213

Board Members and Trustees

NameTitle
Lynne NietoChairman (as of 5/2023)
Augie NietoChairman (until 2/2023)
Steven Perrin PhdVice Chair
Alexander CappelloBoard Member
Andrew NiblockBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Kent Jackson Bransford MdBoard Member
Mike SmithBoard Member
Paul SallaberryBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Tom EngellennerBoard Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$556,808
Unite Genomics INCResearch Consultant951 MARINERS ISLAND BLVD SUITE 300, San Mateo, CA 94404$116,000
Somalogic Operating Co INCResearch Consultant2945 WILDERNESS PL, Boulder, CO 80301$110,000
Revenue and Support

Revenue Composition

Contributions and Grants
$10,029,574
Program Service Revenue
$657,980
Investment Income
$363,770
Other Revenue
$507,158
All Other Contributions
$4,835,541
Change in Net Assets
$397,889

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$260,590Fair Market Value (FMV)
Total Noncash Contributions7$260,590-

Audited Revenue Reconciliation

Revenue per Audited Statements
$11,558,482
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-612,093
Total Revenue per Audited Statements
$10,946,389
Total Revenue per Form 990
$11,558,482
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,165,289
Salaries, Compensation, and Employee Benefits$4,968,144
Total Fundraising Expense$568,158
Professional Fundraising Fees$27,160
Grants and Similar Amounts Paid$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,356,266$277,783$119,249$3,753,298
Occupancy$1,588,308$67,756$17,289$1,673,353
Fees for Services Other$569,055$41,140$28,940$639,135
Information Technology$525,056$8,019$75,556$608,631
Other Employee Benefits$466,672$38,299$23,792$528,763
Current Officers, Directors, Trustees, and Key Employees$272,009$34,001$34,001$340,011
Payroll Taxes$273,026$23,422$11,536$307,984
Depreciation Depletion$174,165$9,704$2,699$186,568
Office Expenses$118,174$6,947$23,929$149,050
Conferences and Meetings$74,628$10$44,942$119,580
Insurance$95,085$8,329$4,125$107,539
Fees for Services Legal-$103,456-$103,456
Other Expenses$29,529$31,437$926$61,892
Advertising$217-$61,639$61,856
All Other Expenses$38,435$4,826$11,490$54,751
Fees for Services Accounting-$51,334-$51,334
Pension Plan Contributions$33,249$3,197$1,642$38,088
Fees for Services Professional Fundraising--$27,160$27,160
Interest$14,228--$14,228
Travel$5,638--$5,638
Total Functional Expenses$9,880,001$712,434$568,158$11,160,593

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$11,163,938
Expenses per Audited Statements$11,160,593
Total Expenses per Form 990$11,160,593
Expenses Not Reported on Form 990$3,345
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,360,746
Fundraising Direct Expenses$857,169
Professional Fundraising Fees$27,160

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
White Coat Affair$615,438$129,708$71,012$58,696
Tri-state Trek$634,809$14,350$62,748$-48,398
Total Events$6,554,779$1,360,746$857,169$503,577
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Clare ReichEmployeeDAUGHTER OF A BOARD MEMBER; WAGES PAID AS AN EMPLOYEENo$63,880
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$4,103,529
Finance Lease Liabilities$318,553
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent bransford, board members, are related.

Form 990, Part VI, Section B, Line 11B

Form 990 is reviewed by the chief financial officer and then approved by the board of directors.

Form 990, Part VI, Section B, Line 12C

Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.

Form 990, Part VI, Section B, Line 15

The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.

Form 990, Part VI, Section C, Line 18

Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.

Form 990, Part VI, Section C, Line 19

Financial statements are made available on als tdi's website and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
480 ARSENAL STREET 201, WATERTOWN, MA 02472
Doing Business As
Als Therapy Development Institute

Signing Officer

Name
Dr Fernando Vieira
Title
CEO/CSO
Phone
6174417200
Signed
2024-06-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dr Fernando Vieira
Formed
1999
Legal Domicile
Ma
Voting Board Members
18
Independent Board Members
17
Employees
63
Volunteers
500

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Thomas F Muldoon CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

During 2023, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.

Financial Statement Notes

PART X, LINE 2:

Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2023. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.

Raw XML AppendixShowing 400 of 864 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt172.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt182.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt192.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt202.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt212.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt222.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt232.50
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt020011
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt113214
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt28146
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt320236
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt48434
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt519011
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/PersonNm0FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm1ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm2CAROL HAMILTON
IRS990/Form990PartVIISectionAGrp/PersonNm3THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/PersonNm4KYLE R DENTON
IRS990/Form990PartVIISectionAGrp/PersonNm5KENNETH THOMPSON
IRS990/Form990PartVIISectionAGrp/PersonNm6LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm10DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm11ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm12DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm13JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm14JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm15ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm16PAUL SALLABERRY
IRS990/Form990PartVIISectionAGrp/PersonNm17ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm18JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm19MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm20JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm21KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm22ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm23TOM ENGELLENNER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0320000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1182421
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2165724
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt3150899
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4150194
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt5129202
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO AND CSO
IRS990/Form990PartVIISectionAGrp/TitleTxt1VP OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR OF PHARMACOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR, CELL BIOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt5VP OF FACILITY OPERATION
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN (AS OF 5/2023)
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHAIRMAN (UNTIL 2/2023)
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt20BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt21BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt22BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt23BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt05194033
IRS990/FundraisingDirectExpensesAmt0857169
IRS990/FundraisingGrossIncomeAmt01360746
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt012415651
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt09
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt075556
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt08019
IRS990/InformationTechnologyGrp/ProgramServicesAmt0525056
IRS990/InformationTechnologyGrp/TotalAmt0608631
IRS990/InsuranceGrp/FundraisingAmt04125
IRS990/InsuranceGrp/ManagementAndGeneralAmt08329
IRS990/InsuranceGrp/ProgramServicesAmt095085
IRS990/InsuranceGrp/TotalAmt0107539
IRS990/IntangibleAssetsGrp/BOYAmt0775666
IRS990/IntangibleAssetsGrp/EOYAmt0875678
IRS990/InterestGrp/ProgramServicesAmt014228
IRS990/InterestGrp/TotalAmt014228
IRS990/InvestmentIncomeGrp/ExclusionAmt0363770
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0363770
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt03231414
IRS990/InvestmentsPubTradedSecGrp/EOYAmt07976815
IRS990/IRPDocumentCnt040
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02766318
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0192136
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0393002
IRS990/LandBldgEquipCostOrOtherBssAmt03159320
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt015228481
IRS990/NetAssetsOrFundBalancesEOYAmt015010932
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0503577
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0503577
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-615438
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt014928481
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt014810932
IRS990/NoncashContributionsAmt0260590
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt017289
IRS990/OccupancyGrp/ManagementAndGeneralAmt067756
IRS990/OccupancyGrp/ProgramServicesAmt01588308
IRS990/OccupancyGrp/TotalAmt01673353
IRS990/OfficeExpensesGrp/FundraisingAmt023929
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06947
IRS990/OfficeExpensesGrp/ProgramServicesAmt0118174
IRS990/OfficeExpensesGrp/TotalAmt0149050
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt04019299
IRS990/OtherAssetsTotalGrp/EOYAmt03218820
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt023792
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt038299
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0466672
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0528763
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1BANK AND CREDIT CARD PR
IRS990/OtherExpensesGrp/Desc2CREDIT LOSS
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt079243
IRS990/OtherExpensesGrp/FundraisingAmt1926
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02774
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt131437
IRS990/OtherExpensesGrp/ProgramServicesAmt02174287
IRS990/OtherExpensesGrp/ProgramServicesAmt171974
IRS990/OtherExpensesGrp/ProgramServicesAmt229529
IRS990/OtherExpensesGrp/TotalAmt02174287
IRS990/OtherExpensesGrp/TotalAmt182017
IRS990/OtherExpensesGrp/TotalAmt271974
IRS990/OtherExpensesGrp/TotalAmt361892
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt05196468
IRS990/OtherLiabilitiesGrp/EOYAmt04422082

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44