Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2015 • EIN 04-3462719

Jan 01, 2015 to Dec 31, 2015 • Filed on May 04, 2016

Organization ProfileWWW.ALS.NET

View Organization Page

300 Technology Square No 400Cambridge, MA 02139

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.35x

Higher debt load relative to assets than 60% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Liabilities / Revenue

56th percentile

0.31x

Higher debt load relative to revenue than 56% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Net Margin

7th percentile

-35%

Higher net margin than 7% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Top Officer Pay

85th percentile

$367,404

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 3.9% of source-year revenue.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Asset Growth

2nd percentile

-26%

Faster asset growth than 2% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Revenue Growth

8th percentile

-34%

Faster revenue growth than 8% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$8,357,864

Down $2,991,206 (-26%) from 2014

Net Assets

Down

$5,429,444

Down $3,277,784 (-38%) from 2014

Liabilities

Up

$2,928,420

Up $286,578 (+11%) from 2014

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin7th percentile

Revenue

Down

$9,400,531

Down $4,919,254 (-34%) from 2014

Expenses

Up

$12,678,315

Up $1,188,905 (+10%) from 2014

Net Income

Down

-$3,277,784

Down $6,108,159 (-216%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2015

Assets$8,357,864
Liabilities$2,928,420
Net Assets$5,429,444
Open 2015 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2015

Revenue$9,400,531
Expenses$12,678,315
Net Income-$3,277,784
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
May 4, 2016
Return Version
2015v2.1
Gross Receipts
$10,684,093
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$6,675,137$2,458,257▼ $4,216,880
Cash and Non-Interest-Bearing Accounts$1,924,247$2,283,337▲ $359,090
Land, Buildings, and Equipment, Net$876,560$1,185,117▲ $308,557
Pledges and Grants Receivable$1,173,637$579,510▼ $594,127
Prepaid Expenses and Deferred Charges$279,514$288,775▲ $9,261
Intangible Assets$185,961$265,478▲ $79,517
Accounts Receivable$234,014$17,146▼ $216,868
Total Assets$11,349,070$8,357,864▼ $2,991,206
Other Assets Total$0$1,280,244▲ $1,280,244
Liabilities
Mortgage Notes Payable Secured by Investment Property$485,630$990,066▲ $504,436
Accounts Payable and Accrued Expenses$801,261$896,588▲ $95,327
Escrow Account Liability$1,245,745$856,783▼ $388,962
Other Liabilities$0$112,924▲ $112,924
Deferred Revenue$109,206$72,059▼ $37,147
Total Liabilities$2,641,842$2,928,420▲ $286,578
Net Assets / Fund Balance
Unrestricted Net Assets$7,533,591$4,874,934▼ $2,658,657
Temporarily Rstr Net Assets$1,173,637$554,510▼ $619,127
Total Net Assets Fund Balance$8,707,228$5,429,444▼ $3,277,784
Total Liabilities and Net Assets / Fund Balance$11,349,070$8,357,864▼ $2,991,206

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,095,485$2,271,917$3,367,402
Leasehold Improvements$89,632$286,051$375,683
Other Assets Org$1,280,244--
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven Perrin PhdCEO/CSO/pres., Vice ChairmPT$300,335$67,069$367,404
Alan GillVP of Research and DevelopmentFT$150,347$17,069$167,416
Matvey LukashevDirector of Translational ResearchFT$147,108$5,921$153,029
Fernando VieiraDirector of ResearchFT$135,745$16,569$152,314
Shannon ShyrneVP of DevelopmentFT$125,813$14,030$139,843
Robert GoldsteinVP of Marketing, Communications & DevelopmentFT$124,520$6,434$130,954

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Alexander CappelloBoard Member
Cheryl SmithBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
Eric S CravenBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Keith MelansonBoard Member
Kent Jackson Bransford MdBoard Member
Leslie Michelson JdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Broad InstiuteContract Research - Science415 MAIN STREET NE30-7031, Cambridge, MA 02142$486,500
Insource Services INCFinance, Hr & It ServicesPO BOX 427, Newton Upper Falls, MA 02464$412,136
Partners Health Care (mgh Research)Contract Research - SciencePO BOX 3829, Boston, MA 02241-3829$112,356
Revenue and Support

Revenue Composition

Contributions and Grants
$7,743,559
Program Service Revenue
$293,663
Investment Income
$9,003
Other Revenue
$1,354,306
All Other Contributions
$921,162
Change in Net Assets
$-3,277,784

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table45$91,967Selling Price
Total Noncash Contributions45$91,967-

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,400,531
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$3,832
Total Revenue per Audited Statements
$9,404,363
Total Revenue per Form 990
$9,400,531
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$7,094,700
Salaries, Compensation, and Employee Benefits$5,583,615
Total Fundraising Expense$855,789
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,735,680$154,082$345,162$4,234,924
Occupancy$2,103,214$92,466$10,464$2,206,144
Other Employee Benefits$510,074$29,646$46,181$585,901
Fees for Services Other$424,037$28,031$92,296$544,364
Information Technology$385,766$6,812$17,768$410,346
Depreciation Depletion$329,812$15,864$30,511$376,187
Current Officers, Directors, Trustees, and Key Employees$323,316$14,696$29,392$367,404
Payroll Taxes$310,132$12,829$29,138$352,099
Conferences and Meetings$183,651$19,966$12,149$215,766
Office Expenses$128,083$1,594$22,742$152,419
Fees for Services Legal$2,438$89,310-$91,748
Advertising$7,818-$53,141$60,959
Interest$52,683--$52,683
Insurance$26,236$17,922$2,491$46,649
Pension Plan Contributions$38,177$1,587$3,523$43,287
Other Expenses$21,893$2,285$9,653$33,831
Fees for Services Accounting-$32,948-$32,948
Travel$8,878$577$168$9,623
All Other Expenses$2,123$6,728-$8,851
Total Functional Expenses$11,265,581$556,945$855,789$12,678,315

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$12,682,147
Expenses per Audited Statements$12,678,315
Total Expenses per Form 990$12,678,315
Expenses Not Reported on Form 990$3,832
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$2,496,737
Fundraising Direct Expenses$1,283,562
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Augie Quest Bash$1,130,189$761,500$69,859$691,641
Tri State Trek$813,411$21,150$33,547$-12,397
Total Events$9,319,134$2,496,737$1,283,562$1,213,175
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-SubsidiaryCertain Employees of Als Tdi Spent a Portion of Their Time Performing Services for Anelixis Pharmaceuticals, Inc. During Tax Year 2015. Als Tdi Has Charged Anelixis Pharmaceuticals, Inc. for These Services, Equal to the Cost Incurred by Als Tdi for Salary and Related Costs Relating to These Employees.No$141,131
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent Liability$112,924
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent jackson, board members, are the wife and brother-in-law, respectively, of augie nieto, chairman and board member.”

Form 990, Part VI, Section B, Line 11

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Approvals and discussions were formally documented by meeting minutes for presenation to the full board for approval. Form 990, part vi, section b. Line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 18

“Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policy and financial statements are made available on the organization's web site. Financial statements are also available by mail upon request.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
300 TECHNOLOGY SQUARE NO 400, CAMBRIDGE, MA 02139

Signing Officer

Name
Steve Perrin
Title
CEO/CSO/president
Phone
6174417200
Signed
2016-05-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Perrin
Formed
1999
Legal Domicile
Ma
Voting Board Members
18
Independent Board Members
17
Employees
72
Volunteers
900

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
21 EAST MAIN STREET, WESTBORO, MA 01581
Preparer
Jeffrey Cicolini CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“During 2015, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2015. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years. These returns are generally subject to examination by internal revenue service, massachusetts, california, indiana, illinois, and michigan tax authorities for the last three years.”

PART IV, LINE 2A:

“Als-tdi has an arrangement to serve as a fiscal agent. Als-tdi collects contributions in connection with a special event on behalf of other public charities as directed by the donors. These amounts are remitted to these public charities shortly after the special event takes place.”

Raw XML AppendixShowing 400 of 917 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2240.00
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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt817069
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1817069
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt195921
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2016569
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2114030
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt226434
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IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3KEITH MELANSON
IRS990/Form990PartVIISectionAGrp/PersonNm4LESLIE MICHELSON JD
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm10THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm11ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm14LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm15CHERYL SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm16ERIC S CRAVEN
IRS990/Form990PartVIISectionAGrp/PersonNm17KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm18ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm19MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm20FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm21SHANNON SHYRNE
IRS990/Form990PartVIISectionAGrp/PersonNm22ROBERT GOLDSTEIN
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19147108
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20135745
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21125813
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22124520
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/CSO/PRES., VICE CHAIRM
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP OF RESEARCH AND DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR OF TRANSLATIONAL RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt21VP OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt22VP OF MARKETING, COMMUNICATIONS & DEVELOPMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt06822397
IRS990/FundraisingDirectExpensesAmt01283562
IRS990/FundraisingGrossIncomeAmt02496737
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt010684093
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt09
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt017768
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06812
IRS990/InformationTechnologyGrp/ProgramServicesAmt0385766
IRS990/InformationTechnologyGrp/TotalAmt0410346
IRS990/InsuranceGrp/FundraisingAmt02491
IRS990/InsuranceGrp/ManagementAndGeneralAmt017922
IRS990/InsuranceGrp/ProgramServicesAmt026236
IRS990/InsuranceGrp/TotalAmt046649
IRS990/IntangibleAssetsGrp/BOYAmt0185961
IRS990/IntangibleAssetsGrp/EOYAmt0265478
IRS990/InterestGrp/ProgramServicesAmt052683
IRS990/InterestGrp/TotalAmt052683
IRS990/InvestmentIncomeGrp/ExclusionAmt09003
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt09003
IRS990/InvestmentInJointVentureInd01
IRS990/IRPDocumentCnt042
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02557968
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0876560
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01185117
IRS990/LandBldgEquipCostOrOtherBssAmt03743085
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0990066
IRS990/NetAssetsOrFundBalancesBOYAmt08707228
IRS990/NetAssetsOrFundBalancesEOYAmt05429444
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt01213175
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt01213175
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt091967
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt010464
IRS990/OccupancyGrp/ManagementAndGeneralAmt092466
IRS990/OccupancyGrp/ProgramServicesAmt02103214
IRS990/OccupancyGrp/TotalAmt02206144
IRS990/OfficeExpensesGrp/FundraisingAmt022742
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01594
IRS990/OfficeExpensesGrp/ProgramServicesAmt0128083
IRS990/OfficeExpensesGrp/TotalAmt0152419
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt01280244
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt046181
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt029646
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0510074
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0585901
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1BANK CHARGES
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/FundraisingAmt0140304
IRS990/OtherExpensesGrp/FundraisingAmt110706
IRS990/OtherExpensesGrp/FundraisingAmt29653
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08130
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt121472
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22285
IRS990/OtherExpensesGrp/ProgramServicesAmt02662901
IRS990/OtherExpensesGrp/ProgramServicesAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt28669
IRS990/OtherExpensesGrp/ProgramServicesAmt321893
IRS990/OtherExpensesGrp/TotalAmt02662901
IRS990/OtherExpensesGrp/TotalAmt1148434
IRS990/OtherExpensesGrp/TotalAmt240847
IRS990/OtherExpensesGrp/TotalAmt333831
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt0112924
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0CONTRACTED SERVICES
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0141131
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0141131
IRS990/OtherRevenueTotalAmt0141131
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0345162
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0154082
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt03735680
IRS990/OtherSalariesAndWagesGrp/TotalAmt04234924
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,357,864
Liabilities
$2,928,420
Net assets
$5,429,444
Revenue
$9,400,531
Expenses
$12,678,315
Net income
-$3,277,784
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44