Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2013 • EIN 04-3462719

Jan 01, 2013 to Dec 31, 2013 • Filed on May 12, 2014

Organization ProfileWWW.ALS.NET

View Organization Page

300 Technology Square No 400Watertown, MA 02139

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.13x

Higher debt load relative to assets than 42% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Liabilities / Revenue

35th percentile

0.10x

Higher debt load relative to revenue than 35% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Net Margin

20th percentile

-8.3%

Higher net margin than 20% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Top Officer Pay

91st percentile

$384,116

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 4.4% of source-year revenue.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Asset Growth

13th percentile

-7.0%

Faster asset growth than 13% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets42nd percentile

Assets

Down

$6,746,369

Down $510,001 (-7.0%) from 2012

Net Assets

Down

$5,876,853

Down $732,023 (-11%) from 2012

Liabilities

Up

$869,516

Up $222,022 (+34%) from 2012

Revenue And Expenses
Liabilities / Revenue35th percentileNet Margin20th percentile

Revenue

$8,800,851

No earlier filing loaded for comparison.

Expenses

Down

$9,532,874

Down $173,353 (-1.8%) from 2012

Net Income

-$732,023

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2013

Assets$6,746,369
Liabilities$869,516
Net Assets$5,876,853
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2013

Revenue$8,800,851
Expenses$9,532,874
Net Income-$732,023
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 12, 2014
Return Version
2013v3.0
Gross Receipts
$9,354,290
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,482,395$2,237,218▼ $245,177
Pledges and Grants Receivable$2,981,555$1,592,064▼ $1,389,491
Savings and Temporary Cash Investments$1,044,907$1,473,850▲ $428,943
Accounts Receivable$49,000$629,769▲ $580,769
Land, Buildings, and Equipment, Net$556,990$591,307▲ $34,317
Intangible Assets$76,071$129,979▲ $53,908
Prepaid Expenses and Deferred Charges$65,452$92,182▲ $26,730
Total Assets$7,256,370$6,746,369▼ $510,001
Liabilities
Accounts Payable and Accrued Expenses$596,889$611,613▲ $14,724
Mortgage Notes Payable Secured by Investment Property$50,605$193,078▲ $142,473
Deferred Revenue-$64,825-
Total Liabilities$647,494$869,516▲ $222,022
Net Assets / Fund Balance
Unrestricted Net Assets$4,527,321$4,294,268▼ $233,053
Temporarily Rstr Net Assets$2,081,555$1,582,585▼ $498,970
Total Net Assets Fund Balance$6,608,876$5,876,853▼ $732,023
Total Liabilities and Net Assets / Fund Balance$7,256,370$6,746,369▼ $510,001

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$348,022$1,818,747$2,166,769
Leasehold Improvements$243,285$132,398$375,683
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven Perrin PhdCEO/CSO/pres., Vice ChairmanFT$365,317$18,799$384,116
Alan GillVP Research and DevelopmentFT$159,351$18,550$177,901
John LincecumDirector of Discovery BiologyFT$140,667$17,979$158,646
Fernando VieiraDirector of ResearchFT$139,326$18,597$157,923
Bashar Al-nakhalaVice President ItFT$117,235$18,546$135,781
Vladimir MorozovSenior ScientistFT$112,230$16,929$129,159
Patricia TanskiFormer VP of DevelopmentFT$114,503$1,387$115,890

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Alexander CappelloBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Keith MelansonBoard Member
Leslie Michelson JdBoard Member
Mike SmithBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Spiros Jamas ScdBoard Member
Steven FowlerBoard Member
John SutherlandSecretary and Board Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCBookkeeping & Finance & Hr & It-$351,656
Partners Health Care (mgh Research)Contract Research - Science-$233,255
Revenue and Support

Revenue Composition

Contributions and Grants
$8,115,487
Program Service Revenue
$408,977
Investment Income
$5,924
Other Revenue
$270,463
All Other Contributions
$5,573,483
Change in Net Assets
$-732,023

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table35$35,930Selling Price
Other Non Cash Contri Table56$24,767Selling Price
Other Non Cash Contri Table20$3,394Selling Price
Food Inventory8$910Selling Price
Total Noncash Contributions119$65,001-

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,800,851
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$31,410
Total Revenue per Audited Statements
$8,832,261
Total Revenue per Form 990
$8,800,851
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,046,673
Salaries, Compensation, and Employee Benefits$4,486,201
Total Fundraising Expense$761,813
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,843,799$192,506$355,086$3,391,391
Occupancy$1,780,312$74,491$5,603$1,860,406
Fees for Services Other$369,938$22,590$145,326$537,854
Other Employee Benefits$332,483$12,559$40,511$385,553
Current Officers, Directors, Trustees, and Key Employees$330,339$11,524$42,253$384,116
Payroll Taxes$255,789$6,330$31,533$293,652
Depreciation Depletion$170,376$5,981$20,861$197,218
Information Technology$127,692$4,946$41,712$174,350
Travel$109,277$9,857$30,300$149,434
Conferences and Meetings$77,246$12,071$5,427$94,744
Office Expenses$77,047$2,172$3,817$83,036
Fees for Services Legal-$63,289$1,200$64,489
Other Expenses$19,531$10,711$2,185$32,427
Pension Plan Contributions$27,207$718$3,564$31,489
Fees for Services Accounting-$29,279-$29,279
All Other Expenses$25,122$660$1,080$26,862
Advertising$18,392-$1,165$19,557
Interest$9,128--$9,128
Total Functional Expenses$8,294,499$476,562$761,813$9,532,874

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$9,564,284
Expenses per Audited Statements$9,532,874
Total Expenses per Form 990$9,532,874
Expenses Not Reported on Form 990$31,410
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$823,902
Fundraising Direct Expenses$553,439
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 2$252,125$127,125$35,181$91,944
Event 1$459,314$37,550$54,796$-17,246
Total Events$3,365,906$823,902$553,439$270,463
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors.”

Form 990, Part VI, Section B, Line 11

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president was last undertaken at the end of 2011. The process consisted of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Approvals and discussions were formally documented by meeting minutes for presenation to the full board for approval. Form 990, part vi, section b. Line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policy and financial statements are made available on the organization's web site. Financial statements are also available by mail upon request.”

Filing and Contact Details

Filer

EIN
04-3462719
Phone
6174417200

Signing Officer

Name
Steve Perrin
Title
CEO/CSO/president
Phone
6174417200
Signed
2014-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Perrin
Formed
1999
Legal Domicile
Ma
Voting Board Members
16
Independent Board Members
15
Employees
62
Volunteers
656

Preparer

Preparer
Jeffrey Cicolini CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“During 2013, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statement regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2013. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years. These returns are generally subject to examination by internal revenue service, massachusetts, california, indiana, illinois, and michigan tax authorities for the last three years.”

Raw XML AppendixShowing 400 of 828 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0THE ALS THERAPY DEVELOPMENT INSTITUTE RECEIVED FDA APPROVAL FOR PHASE IIA TESTING OF GILENYA IN ALS PATIENTS. THE INSTITUTE CREATED A NEW TRANSGENIC MOUSE MODEL BASED A KNOWN MUTATION IN ALS PATIENTS CALLED TAFF15. THE INSTITUTE ALSO DEMONSTRATED THAT EXPRESSING THE MUTANT TAFF15 GENE IN MICE IS EMBRYONIC LETHAL. ENTERED INTO COLLABORATIVE RESEARCH AGREEMENTS TO DEVELOP ANTIBODIES TARGETING MIS-FOLDED SOD1 AND TO DEVELOP SMALL MOLECULE DE STABILIZING MIS FODED SOD1. ALSO ENTERED INTO CRO AGREEMENTS FOR MEDICINAL CHEMISTRY TO IMPROVE THE SOLUBILITY OF SALUBRINAL, A SMALL MOLECULE TARGETING EIF2A AND PROTEIN SYNTHESIS, AND FOR MEDICINAL CHEMISTRY TO CREATE NEW BENZODIAZEPINONE DERIVATIVES THAT TARGET THE ASK1 KINASE AND PROTEIN STRESS PATHWAYS. THE INSTITUTE ALSO RECEIVED IRB APPROVAL AND STARTED PATIENT ENROLLMENT FOR THE GILENYA TRIAL IN FOUR ALS CLINICS.
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IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt818799
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1618550
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1718546
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1817979
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1918597
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2016929
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt211387
IRS990/Form990PartVIISectionAGrp/PersonNm0DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3KEITH MELANSON
IRS990/Form990PartVIISectionAGrp/PersonNm4LESLIE MICHELSON JD
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm10THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN SUTHERLAND
IRS990/Form990PartVIISectionAGrp/PersonNm12STEVEN FOWLER
IRS990/Form990PartVIISectionAGrp/PersonNm13ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm14JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm15MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm16ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm17BASHAR AL-NAKHALA
IRS990/Form990PartVIISectionAGrp/PersonNm18JOHN LINCECUM
IRS990/Form990PartVIISectionAGrp/PersonNm19FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm20VLADIMIR MOROZOV
IRS990/Form990PartVIISectionAGrp/PersonNm21PATRICIA TANSKI
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8365317
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16159351
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17117235
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18140667
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19139326
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20112230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21114503
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/CSO/PRES., VICE CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11SECRETARY AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16VP RESEARCH AND DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt17VICE PRESIDENT IT
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR OF DISCOVERY BIOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIR. OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt20SENIOR SCIENTIST
IRS990/Form990PartVIISectionAGrp/TitleTxt21FORMER VP OF DEVELOPMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd01
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt02542004
IRS990/FundraisingDirectExpensesAmt0553439
IRS990/FundraisingGrossIncomeAmt0823902
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt09354290
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt07
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt041712
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt04946
IRS990/InformationTechnologyGrp/ProgramServicesAmt0127692
IRS990/InformationTechnologyGrp/TotalAmt0174350
IRS990/IntangibleAssetsGrp/BOYAmt076071
IRS990/IntangibleAssetsGrp/EOYAmt0129979
IRS990/InterestGrp/ProgramServicesAmt09128
IRS990/InterestGrp/TotalAmt09128
IRS990/InvestmentIncomeGrp/ExclusionAmt05924
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt05924
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt044
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt01951145
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0556990
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0591307
IRS990/LandBldgEquipCostOrOtherBssAmt02542452
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt050605
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0193078
IRS990/NetAssetsOrFundBalancesBOYAmt06608876
IRS990/NetAssetsOrFundBalancesEOYAmt05876853
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0270463
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0270463
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt065001
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt05603
IRS990/OccupancyGrp/ManagementAndGeneralAmt074491
IRS990/OccupancyGrp/ProgramServicesAmt01780312
IRS990/OccupancyGrp/TotalAmt01860406
IRS990/OfficeExpensesGrp/FundraisingAmt03817
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02172
IRS990/OfficeExpensesGrp/ProgramServicesAmt077047
IRS990/OfficeExpensesGrp/TotalAmt083036
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt040511
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt012559
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0332483
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0385553
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2BAD DEBT
IRS990/OtherExpensesGrp/Desc3PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/FundraisingAmt030190
IRS990/OtherExpensesGrp/FundraisingAmt12185
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt016878
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt110711
IRS990/OtherExpensesGrp/ProgramServicesAmt01655276
IRS990/OtherExpensesGrp/ProgramServicesAmt116545
IRS990/OtherExpensesGrp/ProgramServicesAmt249000
IRS990/OtherExpensesGrp/ProgramServicesAmt319531
IRS990/OtherExpensesGrp/TotalAmt01655276
IRS990/OtherExpensesGrp/TotalAmt163613
IRS990/OtherExpensesGrp/TotalAmt249000
IRS990/OtherExpensesGrp/TotalAmt332427
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0355086
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0192506
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt02843799
IRS990/OtherSalariesAndWagesGrp/TotalAmt03391391
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt031533
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06330
IRS990/PayrollTaxesGrp/ProgramServicesAmt0255789
IRS990/PayrollTaxesGrp/TotalAmt0293652
IRS990/PensionPlanContributionsGrp/FundraisingAmt03564
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0718
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt027207
IRS990/PensionPlanContributionsGrp/TotalAmt031489
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt02981555
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01592064
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt065452
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt092182
IRS990/PrincipalOfficerNm0STEVE PERRIN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541700
IRS990/ProgramServiceRevenueGrp/Desc0PHARMACEUTICAL CONTRAC
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0408977
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0408977
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt011018319
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt070907
IRS990/PYOtherExpensesAmt05279615
IRS990/PYOtherRevenueAmt0205876
IRS990/PYProgramServiceRevenueAmt0273960
IRS990/PYRevenuesLessExpensesAmt01862835
IRS990/PYSalariesCompEmpBnftPaidAmt04426612
IRS990/PYTotalExpensesAmt09706227

Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,746,369
Liabilities
$869,516
Net assets
$5,876,853
Revenue
$8,800,851
Expenses
$9,532,874
Net income
-$732,023
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44