Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2019 • EIN 04-3462719

Jan 01, 2019 to Dec 31, 2019 • Filed on Jun 26, 2020

300 Technology Square No 400Cambridge, MA 02139

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.14x

Higher debt load relative to assets than 42% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

45th percentile

0.18x

Higher debt load relative to revenue than 45% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

72nd percentile

13%

Higher net margin than 72% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

67th percentile

$235,355

Higher top officer pay than 67% of similar nonprofits.

Top officer pay equals 1.8% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

71st percentile

12%

Faster asset growth than 71% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

18th percentile

-13%

Faster revenue growth than 18% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Assets

Up

$17,469,547

Up $1,817,287 (+12%) from 2018

Net Assets

Up

$15,090,130

Up $1,670,846 (+12%) from 2018

Liabilities

Up

$2,379,417

Up $146,441 (+6.6%) from 2018

Revenue

Down

$13,129,736

Down $1,908,860 (-13%) from 2018

Expenses

Down

$11,458,890

Down $870,669 (-7.1%) from 2018

Net Income

Down

$1,670,846

Down $1,038,191 (-38%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2019

Assets$17,469,547
Liabilities$2,379,417
Net Assets$15,090,130

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2019

Revenue$13,129,736
Expenses$11,458,890
Net Income$1,670,846
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jun 26, 2020
Return Version
2019v5.1
Gross Receipts
$13,947,809
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,380,087$3,407,029▲ $26,942
Cash and Non-Interest-Bearing Accounts$1,924,207$3,133,540▲ $1,209,333
Accounts Receivable$20,609$876,984▲ $856,375
Intangible Assets$431,891$580,456▲ $148,565
Pledges and Grants Receivable$840,390$495,098▼ $345,292
Prepaid Expenses and Deferred Charges$654,808$474,042▼ $180,766
Land, Buildings, and Equipment, Net$569,386$334,061▼ $235,325
Total Assets$15,652,260$17,469,547▲ $1,817,287
Other Assets Total$7,830,882$8,168,337▲ $337,455
Liabilities
Escrow Account Liability$686,190$1,042,895▲ $356,705
Accounts Payable and Accrued Expenses$749,663$711,917▼ $37,746
Other Liabilities$469,646$499,983▲ $30,337
Mortgage Notes Payable Secured by Investment Property$275,103$84,150▼ $190,953
Deferred Revenue$52,374$40,472▼ $11,902
Total Liabilities$2,232,976$2,379,417▲ $146,441
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$12,669,284$14,519,380▲ $1,850,096
Net Assets With Donor Restrictions$750,000$570,750▼ $179,250
Total Net Assets Fund Balance$13,419,284$15,090,130▲ $1,670,846
Total Liabilities and Net Assets / Fund Balance$15,652,260$17,469,547▲ $1,817,287

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$334,061$2,294,883$2,628,944
Leasehold Improvements$0$375,683$375,683
Other Assets Org$7,263,532--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraChief Scientific OfficerFT$216,335$19,020$235,355
Steven Perrin PhdCEO/president and Vice ChairmanPT$195,904$9,723$205,627
Bashar Al-nakhalaChief Operating OfficerFT$169,448$20,020$189,468
Alan GillVP of Research and DevelopFT$168,771$13,221$181,992
Matvey LukashevSr. Director of TranslatioFT$160,724$6,743$167,467
Theo HatzipetrosDirector of PharmacologyFT$115,949$20,020$135,969

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Alexander CappelloBoard Member
Andrew NiblockBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
Eric S CravenBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Keith MelansonBoard Member
Kent Jackson Bransford MdBoard Member
Leslie Michelson JdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Paul SallaberryBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$463,689
Orr Group INCFundraising3000 K STREET NW SUITE E280, Washington, DC 20007$253,000
Honigman Miller Schwartz And Cohn LLPLegal315 EAST EISEHOWER PARKWAY SUITE 1, Ann Arbor, MI 48108$126,904
Revenue and Support

Revenue Composition

Contributions and Grants
$11,823,260
Program Service Revenue
$410,883
Investment Income
$50,014
Other Revenue
$845,579
All Other Contributions
$7,666,782
Change in Net Assets
$1,670,846

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table11$110,025Fair Market Value
Total Noncash Contributions11$110,025-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,180,600
Salaries, Compensation, and Employee Benefits$5,025,290
Total Fundraising Expense$532,015
Professional Fundraising Fees$253,000
Grants and Similar Amounts Paid$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,349,273$302,667$136,960$3,788,900
Occupancy$2,188,332$94,880-$2,283,212
Fees for Services Other$672,227$43,974-$716,201
Other Employee Benefits$547,460$66,447$27,172$641,079
Information Technology$364,434$6,411-$370,845
Payroll Taxes$307,236$27,659$14,310$349,205
Depreciation Depletion$285,946$22,521$17,085$325,552
Fees for Services Professional Fundraising--$253,000$253,000
Conferences and Meetings$188,320$20,827-$209,147
Current Officers, Directors, Trustees, and Key Employees$174,784$12,337$18,506$205,627
Office Expenses$190,490$1,302-$191,792
Fees for Services Legal$1,700$187,773-$189,473
Insurance$40,351$11,372-$51,723
Fees for Services Accounting-$40,905-$40,905
Pension Plan Contributions$34,407$2,429$3,643$40,479
All Other Expenses$24,983$8,976-$33,959
Other Expenses$21,577$1,528$61,339$23,105
Travel$9,553$4,268-$13,821
Interest$11,730--$11,730
Advertising$1,402--$1,402
Total Functional Expenses$10,016,222$910,653$532,015$11,458,890
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,384,016
Fundraising Direct Expenses$818,073
Professional Fundraising Fees$253,000

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
White Coat Affair$359,199$86,100$76,674$9,426
Tri State Trek$830,300$21,900$95,699$-73,799
Total Events$5,540,494$1,384,016$818,073$565,943
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-SubsidiaryALS TDI GRANTED A LICENSE TO ANELIXIS THERAPEUTICS, INC. TO USE ITS PATENT RIGHTS IN ORDER TO DEVELOP AND COMMERCIALIZE A TREATMENT FOR ALS. UNDER THIS AGREEMENT, ANELIXIS MUST MAKE PAYMENTS TO ALS TDI UPON REACHING CERTAIN MILESTONES. ANELIXIS MET THE FIRST TWO MILESTONES IN 2018 AND 2017, AND ACCORDINGLY OWED A PAYMENT OF $1,000,000 TO ALS TDI. IN DECEMBER 2018, ALS TDI ELECTED TO CONVERT THE AMOUNT OWED UNDER THIS AGREEMENT INTO ADDITIONAL SHARES OF ANELIXIS STOCK. THE FAIR VALUE OF THE STOCK RECEIVED APPROXIMATED THE AMOUNT OF THE LIABILITY.No$1,000,000
-SubsidiaryPrior Year and Current Year Advances to Anelixis Therapeutics, Inc. Were Converted to Common Stock in 2018. the Value of the Transaction Equals the Total Advances and Approximates the Fair Value of the Stock Received.No$424,136
-SubsidiaryCertain Employees of Als Tdi Spent a Portion of Their Time Performing Services for Anelixis Pharmaceuticals, Inc. During Tax Year 2019. Als Tdi Has Charged Anelixis Pharmaceuticals, Inc. for These Services, Equal to the Cost Incurred by Als Tdi for Salary and Related Costs Relating to These Employees.No$195,626
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent Liability$499,983
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent branford, board members, are the wife and brother-in-law, respectively, of augie nieto, chairman and board member.

Form 990, Part VI, Section B, Line 11B

Form 990 is reviewed by the chief financial officer and then approved by the board of directors.

Form 990, Part VI, Section B, Line 12C

Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.

Form 990, Part VI, Section B, Line 15

The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.

Form 990, Part VI, Section C, Line 18

Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.

Form 990, Part VI, Section C, Line 19

Financial statements are made available on als tdi's web site and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.

FORM 990, PART VI, SECTION B, LINE 16:

Als tdi's policy over evaluating its participation in its joint venture with anelixis pharmaceuticals, inc., a corporation where als tdi owns 94% of the outstanding shares as of december 31, 2019, involved an assessment performed by management and the board of directors to ensure the terms of the arrangement was permitted under applicable federal tax law and als tdi's exempt status is being safeguarded.

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
300 TECHNOLOGY SQUARE NO 400, CAMBRIDGE, MA 02139

Signing Officer

Name
Steve Perrin
Title
CEO/president
Phone
6174417200
Signed
2020-06-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Perrin
Formed
1999
Legal Domicile
Ma
Voting Board Members
20
Independent Board Members
19
Employees
64
Volunteers
900

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Jeffrey Cicolini CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

During 2019, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.

Financial Statement Notes

PART IV, LINE 2B:

Als tdi has an arrangement to serve as a fiscal agent. Als tdi collects contributions in connection with a special event on behalf of other public charities as directed by the donors. These amounts are remitted to these public charities shortly after the special event takes place.

PART X, LINE 2:

Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2019. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.

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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt820.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.50
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt152.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt162.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt172.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt182.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt192.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2038.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2240.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2440.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt89723
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2013221
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt216743
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2219020
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2320020
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2420020
IRS990/Form990PartVIISectionAGrp/PersonNm0DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3KEITH MELANSON
IRS990/Form990PartVIISectionAGrp/PersonNm4LESLIE MICHELSON JD
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm10THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm11ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm14LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm15JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm16ERIC S CRAVEN
IRS990/Form990PartVIISectionAGrp/PersonNm17KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm18ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm19PAUL SALLABERRY
IRS990/Form990PartVIISectionAGrp/PersonNm20ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm21MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm22FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm23BASHAR AL-NAKHALA
IRS990/Form990PartVIISectionAGrp/PersonNm24THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20168771
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21160724
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22216335
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23169448
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt24115949
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/PRESIDENT AND VICE CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt20VP OF RESEARCH AND DEVELOP
IRS990/Form990PartVIISectionAGrp/TitleTxt21SR. DIRECTOR OF TRANSLATIO
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt23CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR OF PHARMACOLOGY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt04156478
IRS990/FundraisingDirectExpensesAmt0818073
IRS990/FundraisingGrossIncomeAmt01384016
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt020
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt013947809
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt019
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06411
IRS990/InformationTechnologyGrp/ProgramServicesAmt0364434
IRS990/InformationTechnologyGrp/TotalAmt0370845
IRS990/InsuranceGrp/ManagementAndGeneralAmt011372
IRS990/InsuranceGrp/ProgramServicesAmt040351
IRS990/InsuranceGrp/TotalAmt051723
IRS990/IntangibleAssetsGrp/BOYAmt0431891
IRS990/IntangibleAssetsGrp/EOYAmt0580456
IRS990/InterestGrp/ProgramServicesAmt011730
IRS990/InterestGrp/TotalAmt011730
IRS990/InvestmentIncomeGrp/ExclusionAmt050014
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt050014
IRS990/InvestmentInJointVentureInd01
IRS990/IRPDocumentCnt074
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02670566
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0569386
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0334061
IRS990/LandBldgEquipCostOrOtherBssAmt03004627
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt0275103
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt084150
IRS990/NetAssetsOrFundBalancesBOYAmt013419284
IRS990/NetAssetsOrFundBalancesEOYAmt015090130
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0565943
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0565943
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt012669284
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt014519380
IRS990/NoncashContributionsAmt0110025
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt094880
IRS990/OccupancyGrp/ProgramServicesAmt02188332
IRS990/OccupancyGrp/TotalAmt02283212
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01302
IRS990/OfficeExpensesGrp/ProgramServicesAmt0190490
IRS990/OfficeExpensesGrp/TotalAmt0191792
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt07830882
IRS990/OtherAssetsTotalGrp/EOYAmt08168337
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt027172
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt066447
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0547460
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0641079
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1BANK AND CREDIT CARD PR
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/FundraisingAmt061339
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03186
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt151191
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21528
IRS990/OtherExpensesGrp/ProgramServicesAmt01592613
IRS990/OtherExpensesGrp/ProgramServicesAmt19404
IRS990/OtherExpensesGrp/ProgramServicesAmt221577
IRS990/OtherExpensesGrp/TotalAmt01592613
IRS990/OtherExpensesGrp/TotalAmt164525
IRS990/OtherExpensesGrp/TotalAmt260595
IRS990/OtherExpensesGrp/TotalAmt323105
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt0469646

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44