Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2022 • EIN 04-3462719

Jan 01, 2022 to Dec 31, 2022 • Filed on Sep 05, 2023

Organization ProfileWWW.ALS.NET

View Organization Page

480 Arsenal Street Suite 201Watertown, MA 02472

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.28x

Higher debt load relative to assets than 61% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Liabilities / Revenue

69th percentile

0.51x

Higher debt load relative to revenue than 69% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Net Margin

63rd percentile

14%

Higher net margin than 63% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Top Officer Pay

82nd percentile

$330,812

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Asset Growth

71st percentile

11%

Faster asset growth than 71% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Revenue Growth

29th percentile

-8.1%

Faster revenue growth than 29% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets61st percentile

Assets

Up

$21,051,525

Up $2,004,514 (+11%) from 2021

Net Assets

Down

$15,228,481

Down $1,293,281 (-7.8%) from 2021

Liabilities

Up

$5,823,044

Up $3,297,795 (+131%) from 2021

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin63rd percentile

Revenue

Down

$11,364,169

Down $1,006,482 (-8.1%) from 2021

Expenses

Up

$9,829,539

Up $842,053 (+9.4%) from 2021

Net Income

Down

$1,534,630

Down $1,848,535 (-55%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth71st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2022

Assets$21,051,525
Liabilities$5,823,044
Net Assets$15,228,481
Open 2022 Filing

Operations Trend

Revenue Growth29th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2022

Revenue$11,364,169
Expenses$9,829,539
Net Income$1,534,630
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 5, 2023
Return Version
2022v5.0
Gross Receipts
$12,385,061
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$7,350,760$7,748,460▲ $397,700
Cash and Non-Interest-Bearing Accounts$3,608,722$3,467,200▼ $141,522
Investments in Publicly Traded Securities$5,845,830$3,231,414▼ $2,614,416
Accounts Receivable$1,049,523$1,053,475▲ $3,952
Intangible Assets$662,622$775,666▲ $113,044
Pledges and Grants Receivable$45,000$389,388▲ $344,388
Land, Buildings, and Equipment, Net$251,537$192,136▼ $59,401
Prepaid Expenses and Deferred Charges$233,017$174,487▼ $58,530
Total Assets$19,047,011$21,051,525▲ $2,004,514
Other Assets Total$0$4,019,299▲ $4,019,299
Liabilities
Other Liabilities$1,093,702$5,196,468▲ $4,102,766
Unsecured Notes Loans Payable$739,875--
Accounts Payable and Accrued Expenses$393,423$532,001▲ $138,578
Deferred Revenue$232,684$94,575▼ $138,109
Mortgage Notes Payable Secured by Investment Property$65,565--
Total Liabilities$2,525,249$5,823,044▲ $3,297,795
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$16,521,762$14,928,481▼ $1,593,281
Net Assets With Donor Restrictions-$300,000-
Total Net Assets Fund Balance$16,521,762$15,228,481▼ $1,293,281
Total Liabilities and Net Assets / Fund Balance$19,047,011$21,051,525▲ $2,004,514

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$187,944$2,612,636$2,800,580
Leasehold Improvements$4,192$58,278$62,470
Other Assets Org$417,402--
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraCEO / CSOFT$315,125$15,687$330,812
Alan GillVP of ResearchFT$170,654$8,280$178,934
Matvey LukashevVP of Translation SciencesFT$160,332$13,251$173,583
Carol HamiltonVP of DevelopmentFT$148,199$8,280$156,479
Kyle DentonDirector, Cell BiologyFT$134,069$20,622$154,691
Theo HatzipetrosDirector of PharmacologyFT$130,026$6,711$136,737

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Steven Perrin PhdVice Chair
Alexander CappelloBoard Member
Andrew NiblockBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Kent Jackson Bransford MdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Paul SallaberryBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Tom EngellennerBoard Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$488,389
Lathrop GageLegal2345 GRAND BLVD SUITE 2800, Kansas City, MO 64108$112,260
Revenue and Support

Revenue Composition

Contributions and Grants
$9,817,402
Program Service Revenue
$636,927
Investment Income
$66,813
Other Revenue
$843,027
All Other Contributions
$4,799,871
Change in Net Assets
$1,534,630

Audited Revenue Reconciliation

Revenue per Audited Statements
$11,364,169
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-2,823,110
Total Revenue per Audited Statements
$8,541,059
Total Revenue per Form 990
$11,364,169
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,342,558
Salaries, Compensation, and Employee Benefits$4,486,981
Total Fundraising Expense$459,735
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,020,575$210,998$123,319$3,354,892
Occupancy$1,363,872$9,811$16,294$1,389,977
Fees for Services Other$535,397$56,897$56,023$648,317
Information Technology$538,803$11,189$43,200$593,192
Other Employee Benefits$434,933$40,352$20,184$495,469
Current Officers, Directors, Trustees, and Key Employees$264,650$33,081$33,081$330,812
Payroll Taxes$241,604$17,818$11,315$270,737
Depreciation Depletion$211,720$10,021$6,231$227,972
Office Expenses$88,171$5,777$10,038$103,986
Insurance$88,312$6,628$6,046$100,986
Conferences and Meetings$55,375$3,543$20,534$79,452
Fees for Services Legal-$45,707-$45,707
All Other Expenses$38,596$4,371$2,477$45,444
Fees for Services Accounting-$40,526-$40,526
Pension Plan Contributions$30,993$2,655$1,423$35,071
Other Expenses$15,311$16,810$402$32,523
Advertising$1,606-$15,335$16,941
Interest$11,720--$11,720
Total Functional Expenses$8,832,734$537,070$459,735$9,829,539

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$9,834,340
Expenses per Audited Statements$9,829,539
Total Expenses per Form 990$9,829,539
Expenses Not Reported on Form 990$4,801
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,760,757
Fundraising Direct Expenses$1,020,892
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
White Coat Affair$1,021,262$128,256$34,778$93,478
Tri-stat Trek$607,983$9,400$111,745$-102,345
Total Events$6,038,413$1,760,757$1,020,892$739,865
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$4,765,986
Finance Lease Liability$430,482
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent bransford, board members, are the wife and brother-in-law, respectively, of augie nieto, board member.”

Form 990, Part VI, Section B, Line 11B

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 18

“Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.”

Form 990, Part VI, Section C, Line 19

“Financial statements are made available on als tdi's website and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
480 ARSENAL STREET SUITE 201, WATERTOWN, MA 02472
Doing Business As
Als Therapy Development Institute

Signing Officer

Name
Fernando Vieira
Title
CEO/CSO
Phone
6174417200
Signed
2023-09-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Fernando Vieira
Formed
1999
Legal Domicile
Ma
Voting Board Members
19
Independent Board Members
18
Employees
59
Volunteers
500

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Thomas F Muldoon CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“During 2022, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2022. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.”

Raw XML AppendixShowing 400 of 806 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt18280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt213251
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt38280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt420622
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt56711
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
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IRS990/Form990PartVIISectionAGrp/PersonNm1ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm2MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm3CAROL HAMILTON
IRS990/Form990PartVIISectionAGrp/PersonNm4KYLE DENTON
IRS990/Form990PartVIISectionAGrp/PersonNm5THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm8THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm9LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm10ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm11DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm12JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm13JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm14ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm15PAUL SALLABERRY
IRS990/Form990PartVIISectionAGrp/PersonNm16ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm17JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm18MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm19JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm20KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm21ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm22DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm23TOM ENGELLENNER
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1170654
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2160332
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt3148199
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4134069
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt5130026
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO / CSO
IRS990/Form990PartVIISectionAGrp/TitleTxt1VP OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP OF TRANSLATION SCIENCES
IRS990/Form990PartVIISectionAGrp/TitleTxt3VP OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR, CELL BIOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR OF PHARMACOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt20BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt21BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt22BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt23BOARD MEMBER
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IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt04277656
IRS990/FundraisingDirectExpensesAmt01020892
IRS990/FundraisingGrossIncomeAmt01760757
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt019
IRS990/GovernmentGrantsAmt0739875
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt012385061
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt018
IRS990/IndivRcvdGreaterThan100KCnt010
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt043200
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt011189
IRS990/InformationTechnologyGrp/ProgramServicesAmt0538803
IRS990/InformationTechnologyGrp/TotalAmt0593192
IRS990/InsuranceGrp/FundraisingAmt06046
IRS990/InsuranceGrp/ManagementAndGeneralAmt06628
IRS990/InsuranceGrp/ProgramServicesAmt088312
IRS990/InsuranceGrp/TotalAmt0100986
IRS990/IntangibleAssetsGrp/BOYAmt0662622
IRS990/IntangibleAssetsGrp/EOYAmt0775666
IRS990/InterestGrp/ProgramServicesAmt011720
IRS990/InterestGrp/TotalAmt011720
IRS990/InvestmentIncomeGrp/ExclusionAmt066813
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt066813
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt05845830
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03231414
IRS990/IRPDocumentCnt030
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02670914
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0251537
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0192136
IRS990/LandBldgEquipCostOrOtherBssAmt02863050
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt065565
IRS990/NetAssetsOrFundBalancesBOYAmt016521762
IRS990/NetAssetsOrFundBalancesEOYAmt015228481
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0739865
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0739865
IRS990/NetUnrelatedBusTxblIncmAmt00
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IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt014928481
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt016294
IRS990/OccupancyGrp/ManagementAndGeneralAmt09811
IRS990/OccupancyGrp/ProgramServicesAmt01363872
IRS990/OccupancyGrp/TotalAmt01389977
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IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05777
IRS990/OfficeExpensesGrp/ProgramServicesAmt088171
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IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt04019299
IRS990/OtherChangesInNetAssetsAmt00
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt040352
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0434933
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0495469
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/Desc2BANK AND CREDIT CARD PR
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt021408
IRS990/OtherExpensesGrp/FundraisingAmt172425
IRS990/OtherExpensesGrp/FundraisingAmt2402
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt017696
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13190
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt216810
IRS990/OtherExpensesGrp/ProgramServicesAmt01848719
IRS990/OtherExpensesGrp/ProgramServicesAmt142377
IRS990/OtherExpensesGrp/ProgramServicesAmt215311
IRS990/OtherExpensesGrp/TotalAmt01848719
IRS990/OtherExpensesGrp/TotalAmt181481
IRS990/OtherExpensesGrp/TotalAmt275615
IRS990/OtherExpensesGrp/TotalAmt332523
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt01093702
IRS990/OtherLiabilitiesGrp/EOYAmt05196468
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0CONTRACTED SERVICES
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0103162
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0103162
IRS990/OtherRevenueTotalAmt0103162
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0123319
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0210998
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt03020575

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$21,051,525
Liabilities
$5,823,044
Net assets
$15,228,481
Revenue
$11,364,169
Expenses
$9,829,539
Net income
$1,534,630
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44