Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2014 • EIN 04-3462719

Jan 01, 2014 to Dec 31, 2014 • Filed on May 11, 2015

Organization ProfileWWW.ALS.NET

View Organization Page

300 Technology Square No 400Cambridge, MA 02139

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.23x

Higher debt load relative to assets than 49% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Liabilities / Revenue

42nd percentile

0.18x

Higher debt load relative to revenue than 42% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Net Margin

78th percentile

20%

Higher net margin than 78% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Top Officer Pay

86th percentile

$386,766

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 2.7% of source-year revenue.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2014

Asset Growth

96th percentile

68%

Faster asset growth than 96% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2013 to 2014

Revenue Growth

91st percentile

63%

Faster revenue growth than 91% of similar nonprofits.

2014 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets49th percentile

Assets

Up

$11,349,070

Up $4,602,701 (+68%) from 2013

Net Assets

Up

$8,707,228

Up $2,830,375 (+48%) from 2013

Liabilities

Up

$2,641,842

Up $1,772,326 (+204%) from 2013

Revenue And Expenses
Liabilities / Revenue42nd percentileNet Margin78th percentile

Revenue

Up

$14,319,785

Up $5,518,934 (+63%) from 2013

Expenses

Up

$11,489,410

Up $1,956,536 (+21%) from 2013

Net Income

Up

$2,830,375

Up $3,562,398 (+487%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth96th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2014

Assets$11,349,070
Liabilities$2,641,842
Net Assets$8,707,228
Open 2014 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2014

Revenue$14,319,785
Expenses$11,489,410
Net Income$2,830,375
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
May 11, 2015
Return Version
2014v5.0
Gross Receipts
$15,128,185
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,473,850$6,675,137▲ $5,201,287
Cash and Non-Interest-Bearing Accounts$2,237,218$1,924,247▼ $312,971
Pledges and Grants Receivable$1,592,064$1,173,637▼ $418,427
Land, Buildings, and Equipment, Net$591,307$876,560▲ $285,253
Prepaid Expenses and Deferred Charges$92,182$279,514▲ $187,332
Accounts Receivable$629,769$234,014▼ $395,755
Intangible Assets$129,979$185,961▲ $55,982
Total Assets$6,746,369$11,349,070▲ $4,602,701
Liabilities
Escrow Account Liability-$1,245,745-
Accounts Payable and Accrued Expenses$611,613$801,261▲ $189,648
Mortgage Notes Payable Secured by Investment Property$193,078$485,630▲ $292,552
Deferred Revenue$64,825$109,206▲ $44,381
Total Liabilities$869,516$2,641,842▲ $1,772,326
Net Assets / Fund Balance
Unrestricted Net Assets$4,294,268$7,533,591▲ $3,239,323
Temporarily Rstr Net Assets$1,582,585$1,173,637▼ $408,948
Total Net Assets Fund Balance$5,876,853$8,707,228▲ $2,830,375
Total Liabilities and Net Assets / Fund Balance$6,746,369$11,349,070▲ $4,602,701

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$710,102$1,999,402$2,709,504
Leasehold Improvements$166,458$209,225$375,683
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven Perrin PhdCEO/CSO/pres., Vice ChairmFT$366,864$19,902$386,766
Alan GillVP Research and DevelopmenFT$184,878$19,750$204,628
John LincecumDirector of Discovery BiolFT$159,381$18,119$177,500
Fernando VieiraDirector of ResearchFT$153,076$19,800$172,876
Matvey LukashevDirector, Translational ResearchFT$162,280$7,974$170,254
Robert GoldsteinVP of Marketing, Communications & DevelopmentFT$136,675$7,428$144,103

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Alexander CappelloBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Keith MelansonBoard Member
Leslie Michelson JdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Steven FowlerBoard Member - Resigned During 2014
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Partners Health Care (mgh Research)Contract Research - Science125 HIGH STREET, Boston, MA 02241$527,795
Insource Services INCBookkeeping & Finance & Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$519,005
Ropes & Gray LLPLegal Services800 BOYLSTON STREET, Boston, MA 02199$109,272
Revenue and Support

Revenue Composition

Contributions and Grants
$13,405,432
Program Service Revenue
$435,914
Investment Income
$5,151
Other Revenue
$473,288
All Other Contributions
$4,623,369
Change in Net Assets
$2,830,375

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table30$37,578Selling Price
Other Non Cash Contri Table24$29,531Selling Price
Food Inventory12$2,326Selling Price
Total Noncash Contributions66$69,435-

Audited Revenue Reconciliation

Revenue per Audited Statements
$14,319,785
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$12,751
Total Revenue per Audited Statements
$14,332,536
Total Revenue per Form 990
$14,319,785
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,236,670
Salaries, Compensation, and Employee Benefits$5,252,740
Total Fundraising Expense$939,459
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,505,171$104,640$394,944$4,004,755
Occupancy$1,862,335$96,273$6,204$1,964,812
Other Employee Benefits$430,012$18,578$48,939$497,529
Fees for Services Other$346,705$71,002$42,878$460,585
Current Officers, Directors, Trustees, and Key Employees$332,618$11,603$42,544$386,765
Information Technology$258,719$24,726$50,444$333,889
Payroll Taxes$287,469$7,610$33,323$328,402
Conferences and Meetings$226,366$33,972$57,970$318,308
Depreciation Depletion$238,026$7,198$27,034$272,258
Office Expenses$102,003$1,071$27,939$131,013
Fees for Services Legal-$125,449$2,094$127,543
Pension Plan Contributions$30,701$1,059$3,529$35,289
Other Expenses$23,595$2,673$7,018$33,286
Fees for Services Accounting-$30,419-$30,419
Advertising$14,778-$6,557$21,335
Interest$19,276--$19,276
All Other Expenses$11,466$1,137$150$12,753
Travel$10,166$398$522$11,086
Total Functional Expenses$9,970,297$579,654$939,459$11,489,410

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$11,502,161
Expenses per Audited Statements$11,489,410
Total Expenses per Form 990$11,489,410
Expenses Not Reported on Form 990$12,751
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,281,688
Fundraising Direct Expenses$808,400
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
White Coat Affair - Boston Gala$385,772$117,900$33,212$84,688
Tri State Trek$799,393$35,500$63,454$-27,954
Total Events$10,063,751$1,281,688$808,400$473,288
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto, board member, is the wife of augie nieto, chairman and board member”

Form 990, Part VI, Section B, Line 11

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president was last undertaken at the end of 2011. The process consisted of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Approvals and discussions were formally documented by meeting minutes for presenation to the full board for approval. Form 990, part vi, section b. Line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policy and financial statements are made available on the organization's web site. Financial statements are also available by mail upon request.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
300 TECHNOLOGY SQUARE NO 400, CAMBRIDGE, MA 02139

Signing Officer

Name
Steve Perrin
Title
CEO/CSO/president
Phone
6174417200
Signed
2015-05-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Perrin
Formed
1999
Legal Domicile
Ma
Voting Board Members
15
Independent Board Members
14
Employees
66
Volunteers
875

Preparer

Firm
Alexander Aronson Finning & Co Pc
Address
21 EAST MAIN STREET, WESTBORO, MA 01581
Preparer
Jeffrey Cicolini CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“During 2014, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statement regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the financial statements at december 31, 2014. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years. These returns are generally subject to examination by internal revenue service, massachusetts, california, indiana, illinois, and michigan tax authorities for the last three years.”

PART IV, LINE 2A:

“Als-tdi has an arrangement to serve as a fiscal agent. Als-tdi collects contributions, in connection with a special event, on behalf of other public charities as directed by the donors. These amounts are remitted to these public charities shortly after the special event takes place.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0THE ALS THERAPY DEVELOPMENT INSTITUTE COMPLETED PHASE IIA TRIAL OF GILENYA IN ALS PATIENTS. THE TRIAL REACHED ALL ENDPOINTS FOR SAFETY AND TOLERABILITY SUCCESSFULLY. THE INSTITUTE PUBLISHED TWO SCIENTIFIC PAPERS, A REVIEW ARTICLE IN NATURE IN BEST PRACTICES TO IMPROVE PRECLINICAL DATA AND A SECOND PAPER IN PLOS ON THE LACK OF POSITIVE DATA ON DEXPRAMIPEXOLE IN SOD1 ANIMALS. THE INSTITUTE VALIDATED POSITIVE BENEFIT OF AN ANTI SOD1 ANTIBODY, NI-204B IN SLOWING DOWN DISEASE PROGRESSION IN SOD1 MICE IN COLLABORATION WITH NEURIMMUNE. THE TRANSLATIONAL MEDICINE TEAM LAUNCHED THE PRECISION MEDICINE PROGRAM ENROLLING 200 PATIENTS FOR SELF REPORTED HEALTH METRICS, UNBIASED ASSESSMENT OF WELLNESS, GENOME SEQUENCING, AND INDUCED PLURIPOTENT STEM CELL DEVELOPMENT FROM SKIN BIOPSIES. THE SCIENCE TEAM ALSO COMPLETED THE DEVELOPMENT AND PRECLINICAL OPTIMIZATION OF A HUMAN ANTI BODY TARGETING CD40L, JB5 WHICH IS NOW READY FOR CLINICAL DEVELOPMENT.THE DEVELOPMENT AND ACCOUNTS PAYABLE TEAMS INTEGRATED AUGIE'S QUEST STAFF AND EVENTS IN 2014 AND SUCCESSFULLY EXECUTED THE FIRST YEAR OF THESE PROGRAMS. THE MARKETING TEAM LEVERAGED THE PHENOMENON OF THE ICE BUCKET CHALLENGE AND RAISED AWARENESS OF OUR NETWORK OF PALS RAISING AN ADDITIONAL $3.8M IN 2014. THE DEVELOPMENT TEAM CONTINUED GROWTH IN MANY OTHER PROGRAMS EXECUTING A VERY SUCCESSFUL YEAR OF OVERALL REVENUE GROWTH. THE IT TEAM COMPLETED SPECIFICATIONS OF A NEW WEB SITE DESIGN FOR ALS TDI. THE MARKETING TEAM LAUNCHED A NEW CAMPAIGN, ALS.NET, TO BUILD BRAND AWARENESS AND DRIVE TRAFFIC TO ALS TDI.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt152.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2040.00
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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt819902
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1619750
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1718119
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1819800
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt197974
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt207428
IRS990/Form990PartVIISectionAGrp/PersonNm0DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3KEITH MELANSON
IRS990/Form990PartVIISectionAGrp/PersonNm4LESLIE MICHELSON JD
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm10THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm11ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm14LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm15STEVEN FOWLER
IRS990/Form990PartVIISectionAGrp/PersonNm16ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm17JOHN LINCECUM
IRS990/Form990PartVIISectionAGrp/PersonNm18FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm19MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm20ROBERT GOLDSTEIN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8366864
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16184878
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17159381
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18153076
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19162280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20136675
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/CSO/PRES., VICE CHAIRM
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER - RESIGNED DURING 2014
IRS990/Form990PartVIISectionAGrp/TitleTxt16VP RESEARCH AND DEVELOPMEN
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR OF DISCOVERY BIOL
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIR. OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR, TRANSLATIONAL RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt20VP OF MARKETING, COMMUNICATIONS & DEVELOPMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt08782063
IRS990/FundraisingDirectExpensesAmt0808400
IRS990/FundraisingGrossIncomeAmt01281688
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt015128185
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt050444
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt024726
IRS990/InformationTechnologyGrp/ProgramServicesAmt0258719
IRS990/InformationTechnologyGrp/TotalAmt0333889
IRS990/IntangibleAssetsGrp/BOYAmt0129979
IRS990/IntangibleAssetsGrp/EOYAmt0185961
IRS990/InterestGrp/ProgramServicesAmt019276
IRS990/InterestGrp/TotalAmt019276
IRS990/InvestmentIncomeGrp/ExclusionAmt05151
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt05151
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt043
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02208627
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0591307
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0876560
IRS990/LandBldgEquipCostOrOtherBssAmt03085187
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt0193078
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0485630
IRS990/NetAssetsOrFundBalancesBOYAmt05876853
IRS990/NetAssetsOrFundBalancesEOYAmt08707228
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0473288
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0473288
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt069435
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06204
IRS990/OccupancyGrp/ManagementAndGeneralAmt096273
IRS990/OccupancyGrp/ProgramServicesAmt01862335
IRS990/OccupancyGrp/TotalAmt01964812
IRS990/OfficeExpensesGrp/FundraisingAmt027939
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01071
IRS990/OfficeExpensesGrp/ProgramServicesAmt0102003
IRS990/OfficeExpensesGrp/TotalAmt0131013
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt048939
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt018578
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0430012
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0497529
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2BAD DEBT
IRS990/OtherExpensesGrp/Desc3PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/FundraisingAmt0187370
IRS990/OtherExpensesGrp/FundraisingAmt17018
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt041846
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12673
IRS990/OtherExpensesGrp/ProgramServicesAmt02210037
IRS990/OtherExpensesGrp/ProgramServicesAmt110854
IRS990/OtherExpensesGrp/ProgramServicesAmt250000
IRS990/OtherExpensesGrp/ProgramServicesAmt323595
IRS990/OtherExpensesGrp/TotalAmt02210037
IRS990/OtherExpensesGrp/TotalAmt1240070
IRS990/OtherExpensesGrp/TotalAmt250000
IRS990/OtherExpensesGrp/TotalAmt333286
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0394944
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0104640
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt03505171
IRS990/OtherSalariesAndWagesGrp/TotalAmt04004755
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt033323
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07610
IRS990/PayrollTaxesGrp/ProgramServicesAmt0287469
IRS990/PayrollTaxesGrp/TotalAmt0328402
IRS990/PensionPlanContributionsGrp/FundraisingAmt03529
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01059
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt030701
IRS990/PensionPlanContributionsGrp/TotalAmt035289
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01592064
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01173637
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt092182
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0279514
IRS990/PrincipalOfficerNm0STEVE PERRIN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541700
IRS990/ProgramServiceRevenueGrp/Desc0PHARMACEUTICAL CONTRACTS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0435914
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0435914
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt08115487
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt05924
IRS990/PYOtherExpensesAmt05046673
IRS990/PYOtherRevenueAmt0270463
IRS990/PYProgramServiceRevenueAmt0408977
IRS990/PYRevenuesLessExpensesAmt0-732023

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,349,070
Liabilities
$2,641,842
Net assets
$8,707,228
Revenue
$14,319,785
Expenses
$11,489,410
Net income
$2,830,375
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44