Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2020 • EIN 04-3462719

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 10, 2021

Organization ProfileWWW.ALS.NET

View Organization Page

480 Arsenal Street Suite 201Watertown, MA 02472

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

31st percentile

0.09x

Higher debt load relative to assets than 31% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Liabilities / Revenue

42nd percentile

0.27x

Higher debt load relative to revenue than 42% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Net Margin

59th percentile

7.0%

Higher net margin than 59% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Top Officer Pay

54th percentile

$262,365

Higher top officer pay than 54% of similar nonprofits.

Top officer pay equals 2.6% of source-year revenue.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2020

Asset Growth

94th percentile

72%

Faster asset growth than 94% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2019 to 2020

Revenue Growth

16th percentile

-22%

Faster revenue growth than 16% of similar nonprofits.

2020 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets31st percentile

Assets

Up

$29,996,989

Up $12,527,442 (+72%) from 2019

Net Assets

Up

$27,204,165

Up $12,114,035 (+80%) from 2019

Liabilities

Up

$2,792,824

Up $413,407 (+17%) from 2019

Revenue And Expenses
Liabilities / Revenue42nd percentileNet Margin59th percentile

Revenue

Down

$10,248,613

Down $2,881,123 (-22%) from 2019

Expenses

Down

$9,529,307

Down $1,929,583 (-17%) from 2019

Net Income

Down

$719,306

Down $951,540 (-57%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2020

Assets$29,996,989
Liabilities$2,792,824
Net Assets$27,204,165
Open 2020 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2020

Revenue$10,248,613
Expenses$9,529,307
Net Income$719,306
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 10, 2021
Return Version
2020v4.1
Gross Receipts
$18,247,216
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities-$20,414,009-
Cash and Non-Interest-Bearing Accounts$3,133,540$4,667,402▲ $1,533,862
Savings and Temporary Cash Investments$3,407,029$3,080,830▼ $326,199
Intangible Assets$580,456$707,689▲ $127,233
Prepaid Expenses and Deferred Charges$474,042$382,139▼ $91,903
Land, Buildings, and Equipment, Net$334,061$282,980▼ $51,081
Pledges and Grants Receivable$495,098$255,000▼ $240,098
Accounts Receivable$876,984$206,940▼ $670,044
Total Assets$17,469,547$29,996,989▲ $12,527,442
Other Assets Total$8,168,337$0▼ $8,168,337
Liabilities
Other Liabilities$499,983$1,505,746▲ $1,005,763
Escrow Account Liability$1,042,895--
Unsecured Notes Loans Payable-$896,400-
Accounts Payable and Accrued Expenses$711,917$293,124▼ $418,793
Mortgage Notes Payable Secured by Investment Property$84,150$95,059▲ $10,909
Deferred Revenue$40,472$2,495▼ $37,977
Total Liabilities$2,379,417$2,792,824▲ $413,407
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$14,519,380$26,954,165▲ $12,434,785
Net Assets With Donor Restrictions$570,750$250,000▼ $320,750
Total Net Assets Fund Balance$15,090,130$27,204,165▲ $12,114,035
Total Liabilities and Net Assets / Fund Balance$17,469,547$29,996,989▲ $12,527,442

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$282,980$2,464,688$2,747,668
Leasehold Improvements$0$375,683$375,683
Compensation and Service Providers
Top Officer Pay54th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraChief Scientific OfficerFT$243,145$19,220$262,365
Bashar Al-nakhalaChief Operating OfficerFT$200,994$20,220$221,214
Alan GillVP of ResearchFT$176,211$13,229$189,440
Matvey LukashevVP of Translational SciencesFT$174,637$6,813$181,450
Theo HatzipetrosDirector of PharmacologyFT$121,047$20,220$141,267

Board Members and Trustees

NameTitle
Rob RodinChairman and Board Member
Steven Perrin PhdCEO/president and Secretary
Alexander CappelloBoard Member
Andrew NiblockBoard Member
Augie NietoBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Keith MelansonBoard Member
Kent Jackson Bransford MdBoard Member
Leslie Michelson JdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Robert SepuchaBoard Member
Eric S CravenBoard Member (until 4/2020)
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$305,056
Nelson MullinsLegalPOST OFFICE DRAWER 11009, Columbia, SC 29211$124,378
Honigman Miller Schwartz And Cohn LLPLegal315 EAST EISENHOWER PARKWAY SUITE, Ann Arbor, MI 48108$123,456
Revenue and Support

Revenue Composition

Contributions and Grants
$8,062,216
Program Service Revenue
$265,315
Investment Income
$1,118,667
Other Revenue
$802,415
All Other Contributions
$3,920,507
Change in Net Assets
$719,306

Audited Revenue Reconciliation

Revenue per Audited Statements
$10,248,613
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$11,435,213
Total Revenue per Audited Statements
$21,683,826
Total Revenue per Form 990
$10,248,613
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,105,092
Salaries, Compensation, and Employee Benefits$4,424,215
Total Fundraising Expense$278,666
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,161,389$255,134$123,516$3,540,039
Occupancy$2,218,483$94,790$3,508$2,316,781
Other Employee Benefits$509,172$46,523$17,663$573,358
Fees for Services Other$406,779$27,232-$434,011
Information Technology$345,729$5,123$23,778$374,630
Payroll Taxes$244,532$19,741$9,588$273,861
Fees for Services Legal-$242,682-$242,682
Depreciation Depletion$208,903$16,979$8,218$234,100
Office Expenses$102,603$464$10,935$114,002
Fees for Services Accounting-$53,807-$53,807
Insurance$38,426$2,803-$41,229
Pension Plan Contributions$31,414$2,217$3,326$36,957
Conferences and Meetings$25,512--$25,512
All Other Expenses$21,626$2,692$136$24,454
Other Expenses$11,507$41,011$19,772$19,772
Interest-$10,679-$10,679
Total Functional Expenses$8,425,564$825,077$278,666$9,529,307

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$9,569,791
Expenses per Audited Statements$9,529,307
Total Expenses per Form 990$9,529,307
Expenses Not Reported on Form 990$40,484
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$792,663
Fundraising Direct Expenses$80,265
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Virtual Trek$472,077$462,103$8,710$453,393
Virtual White Coat Affair$317,819$317,819$95$317,724
Total Events$4,934,372$792,663$80,265$712,398
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-SubsidiaryCertain Employees of Als Tdi Spent a Portion of Their Time Performing Services for Anelixis Pharmaceuticals, Inc. During Tax Year 2020. Als Tdi Has Charged Anelixis Pharmaceuticals, Inc. for These Services, Equal to the Cost Incurred by Als Tdi for Salary and Related Costs Relating to These Employees.No$58,686
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent Liability$1,505,746
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent bransford, board members, are the wife and brother-in-law, respectively, of augie nieto, board member.”

Form 990, Part VI, Section B, Line 11B

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 18

“Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.”

Form 990, Part VI, Section C, Line 19

“Financial statements are made available on als tdi's web site and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.”

FORM 990, PART VI, SECTION B, LINE 16:

“Als tdi's policy over evaluating its participation in its joint venture with anelixis pharmaceuticals, inc., involved an assessment performed by management and the board of directors to ensure the terms of the arrangement was permitted under applicable federal tax law and als tdi's exempt status is being safeguarded. As of december 31, 2020 als tdi sold all of their shares of anelixis pharmaceuticals.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
480 ARSENAL STREET SUITE 201, WATERTOWN, MA 02472

Signing Officer

Name
Fernando Vieira
Title
Chief Scientific Officer
Phone
6174417200
Signed
2021-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Perrin
Formed
1999
Legal Domicile
Ma
Voting Board Members
18
Independent Board Members
18
Employees
57
Volunteers
500

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Courtney Mcfarland CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“During 2020, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2020. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.”

Raw XML AppendixShowing 400 of 819 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1913229
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt206813
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2119220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2220220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2320220
IRS990/Form990PartVIISectionAGrp/PersonNm0DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3KEITH MELANSON
IRS990/Form990PartVIISectionAGrp/PersonNm4LESLIE MICHELSON JD
IRS990/Form990PartVIISectionAGrp/PersonNm5JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm6AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm7ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm10THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm11ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm14LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm15JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm16ERIC S CRAVEN
IRS990/Form990PartVIISectionAGrp/PersonNm17KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm18ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm19ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm20MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm21FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm22BASHAR AL-NAKHALA
IRS990/Form990PartVIISectionAGrp/PersonNm23THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19176211
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20174637
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21243145
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22200994
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23121047
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/PRESIDENT AND SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER (UNTIL 4/2020)
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt20VP OF TRANSLATIONAL SCIENCES
IRS990/Form990PartVIISectionAGrp/TitleTxt21CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR OF PHARMACOLOGY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt04141709
IRS990/FundraisingDirectExpensesAmt080265
IRS990/FundraisingGrossIncomeAmt0792663
IRS990/GainOrLossGrp/OtherAmt01100942
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt09019280
IRS990/GrossReceiptsAmt018247216
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt018
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt023778
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt05123
IRS990/InformationTechnologyGrp/ProgramServicesAmt0345729
IRS990/InformationTechnologyGrp/TotalAmt0374630
IRS990/InsuranceGrp/ManagementAndGeneralAmt02803
IRS990/InsuranceGrp/ProgramServicesAmt038426
IRS990/InsuranceGrp/TotalAmt041229
IRS990/IntangibleAssetsGrp/BOYAmt0580456
IRS990/IntangibleAssetsGrp/EOYAmt0707689
IRS990/InterestGrp/ManagementAndGeneralAmt010679
IRS990/InterestGrp/TotalAmt010679
IRS990/InvestmentIncomeGrp/ExclusionAmt017725
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt017725
IRS990/InvestmentInJointVentureInd01
IRS990/InvestmentsPubTradedSecGrp/EOYAmt020414009
IRS990/IRPDocumentCnt010
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02840371
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0334061
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0282980
IRS990/LandBldgEquipCostOrOtherBssAmt03123351
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt07918338
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt084150
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt095059
IRS990/NetAssetsOrFundBalancesBOYAmt015090130
IRS990/NetAssetsOrFundBalancesEOYAmt027204165
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt01100942
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt01100942
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0712398
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0712398
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt011394729
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt014519380
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt026954165
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt02481
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03508
IRS990/OccupancyGrp/ManagementAndGeneralAmt094790
IRS990/OccupancyGrp/ProgramServicesAmt02218483
IRS990/OccupancyGrp/TotalAmt02316781
IRS990/OfficeExpensesGrp/FundraisingAmt010935
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0464
IRS990/OfficeExpensesGrp/ProgramServicesAmt0102603
IRS990/OfficeExpensesGrp/TotalAmt0114002
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt08168337
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt017663
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt046523
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0509172
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0573358
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1BANK AND CREDIT CARD PR
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3FUNDRAISING
IRS990/OtherExpensesGrp/FundraisingAmt058226
IRS990/OtherExpensesGrp/FundraisingAmt119772
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03200
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt141011
IRS990/OtherExpensesGrp/ProgramServicesAmt01099489
IRS990/OtherExpensesGrp/ProgramServicesAmt111507
IRS990/OtherExpensesGrp/TotalAmt01099489
IRS990/OtherExpensesGrp/TotalAmt161426
IRS990/OtherExpensesGrp/TotalAmt252518
IRS990/OtherExpensesGrp/TotalAmt319772
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt0499983
IRS990/OtherLiabilitiesGrp/EOYAmt01505746
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0CONTRACTED SERVICES
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt090017
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt090017
IRS990/OtherRevenueTotalAmt090017
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0123516
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0255134
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt03161389

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$29,996,989
Liabilities
$2,792,824
Net assets
$27,204,165
Revenue
$10,248,613
Expenses
$9,529,307
Net income
$719,306
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44