Civic Intelligence

Als Therapy Development Foundation Inc D/B/A Als Therapy Development Institute

EIN 04-3462719 • 501(c)3 • Watertown, MA

Profile

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

480 Arsenal Street 201Watertown, MA 02472

www.als.net

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

52nd percentile

0.19x

Higher debt load relative to assets than 52% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

59th percentile

0.33x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

48th percentile

3.9%

Higher net margin than 48% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

75th percentile

15%

Faster asset growth than 75% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

67th percentile

16%

Faster revenue growth than 67% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Assets

Up

$23,052,170

Up $3,039,519 (+15%) from 2023

Liabilities

Down

$4,418,122

Down $583,597 (-12%) from 2023

Net Assets

Up

$18,634,048

Up $3,623,116 (+24%) from 2023

Revenue

Up

$13,406,171

Up $1,847,689 (+16%) from 2023

Expenses

Up

$12,879,065

Up $1,718,472 (+15%) from 2023

Net Income

Up

$527,106

Up $129,217 (+32%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2024

Assets$23,052,170
Liabilities$4,418,122
Net Assets$18,634,048

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2024

Revenue$13,406,171
Expenses$12,879,065
Net Income$527,106

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jun 25, 2025
Return Version
2024v5.2
Gross Receipts
$14,580,804
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$7,976,815$13,446,822▲ $5,470,007
Savings and Temporary Cash Investments$6,415,329$4,143,356▼ $2,271,973
Intangible Assets$875,678$970,777▲ $95,099
Land, Buildings, and Equipment, Net$393,002$727,510▲ $334,508
Cash and Non-Interest-Bearing Accounts$282,198$408,496▲ $126,298
Pledges and Grants Receivable$455,824$389,277▼ $66,547
Accounts Receivable$97,420$327,321▲ $229,901
Prepaid Expenses and Deferred Charges$297,565$191,952▼ $105,613
Total Assets$20,012,651$23,052,170▲ $3,039,519
Other Assets Total$3,218,820$2,446,659▼ $772,161
Liabilities
Other Liabilities$4,422,082$3,765,362▼ $656,720
Accounts Payable and Accrued Expenses$426,183$567,204▲ $141,021
Deferred Revenue$153,454$85,556▼ $67,898
Total Liabilities$5,001,719$4,418,122▼ $583,597
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$14,810,932$18,159,048▲ $3,348,116
Net Assets With Donor Restrictions$200,000$475,000▲ $275,000
Total Net Assets Fund Balance$15,010,932$18,634,048▲ $3,623,116
Total Liabilities and Net Assets / Fund Balance$20,012,651$23,052,170▲ $3,039,519

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$715,068$2,875,338$3,590,406
Leasehold Improvements$12,442$50,028$62,470
Other Assets Org$2,220,959--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraCEO and CSOFT$386,901$28,032$414,933
Alan GillVP of ResearchFT$188,954$19,776$208,730
Carol HamiltonVP of DevelopmentFT$172,628$14,505$187,133
Kyle R DentonDirector, Cell BiologyFT$158,381$26,707$185,088
Theo HatzipetrosDirector of PharmacologyFT$155,581$13,972$169,553
Meghan BucoSenior Director of Marketing & CommunicationsFT$135,001$20,819$155,820
Meghan BucoSenior Director of Marketing & Commu-$135,001$20,819$155,820

Board Members and Trustees

NameTitle
Lynne NietoChairman
Steven Perrin PhdVice Chair
Alexander CappelloBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Kent Jackson Bransford MdBoard Member
Mike SmithBoard Member
Paul SallaberryBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Tom EngellennerBoard Member
Andrew NiblockBoard Member (left in Dec 2024)
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$573,233
Albert Einstein College Of MedicineResearch Consultant100 WEST 33RD STREET, New York, NY 10001$137,111
Somalogic Operating Co INCResearch Consultant2945 WILDERNESS PL, Boulder, CO 80301$135,000
Lathrop GageLegalACCOUNTS RECEIVABLE POST OFFICE DRA, Columbia, SC 29211$124,101
Revenue and Support

Revenue Composition

Contributions and Grants
$11,328,179
Program Service Revenue
$1,312,529
Investment Income
$465,979
Other Revenue
$299,484
All Other Contributions
$5,511,455
Change in Net Assets
$527,106

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$150,209Fair Market Value (FMV)
Total Noncash Contributions7$150,209-

Audited Revenue Reconciliation

Revenue per Audited Statements
$13,406,171
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$3,098,526
Total Revenue per Audited Statements
$16,504,697
Total Revenue per Form 990
$13,406,171
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$7,256,610
Salaries, Compensation, and Employee Benefits$5,595,580
Total Fundraising Expense$620,667
Professional Fundraising Fees$26,875
Grants and Similar Amounts Paid$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,837,067$226,446$85,901$4,149,414
Occupancy$1,436,922$57,054$11,185$1,505,161
Information Technology$588,964$3,379$86,189$678,532
Other Employee Benefits$510,750$31,566$14,280$556,596
Fees for Services Other$348,702$33,282$39,967$421,951
Current Officers, Directors, Trustees, and Key Employees$331,947$41,493$41,493$414,933
Payroll Taxes$312,535$20,181$9,397$342,113
Depreciation Depletion$246,529$11,495$5,224$263,248
Fees for Services Legal$216,955$44,444-$261,399
Office Expenses$181,954$8,400$38,117$228,471
Conferences and Meetings$40,488-$95,052$135,540
Pension Plan Contributions$121,935$7,436$3,153$132,524
Insurance$81,129$5,302$2,557$88,988
Advertising$314-$47,927$48,241
Fees for Services Accounting-$37,352-$37,352
Fees for Services Professional Fundraising--$26,875$26,875
Other Expenses$21,905$1,745$50$23,700
Interest$20,118--$20,118
All Other Expenses$2,361$1,378$91$3,830
Travel$1,116-$100$1,216
Total Functional Expenses$11,714,119$544,279$620,667$12,879,065

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$12,881,581
Expenses per Audited Statements$12,879,065
Total Expenses per Form 990$12,879,065
Expenses Not Reported on Form 990$2,516
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,474,117
Fundraising Direct Expenses$1,174,633
Professional Fundraising Fees$26,875

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
White Coat Affair$738,200$107,834$80,377$27,457
Tri-state Trek$666,750$12,950$74,214$-61,264
Total Events$6,608,572$1,474,117$1,174,633$299,484
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Clare ReichEmployeeDAUGHTER OF A BOARD MEMBER; WAGES PAID AS AN EMPLOYEENo$8,175
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$3,164,427
Conditional Grant Advances$359,675
Finance Lease Liabilities$241,260
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent bransford, board members, are related.

Form 990, Part VI, Section B, Line 11B

Form 990 is reviewed by the chief financial officer and then approved by the board of directors.

Form 990, Part VI, Section B, Line 12C

Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.

Form 990, Part VI, Section B, Line 15

The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.

Form 990, Part VI, Section C, Line 18

Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.

Form 990, Part VI, Section C, Line 19

Financial statements are made available on als tdi's website and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
480 ARSENAL STREET 201, WATERTOWN, MA 02472
Doing Business As
Als Therapy Development Institute

Signing Officer

Name
Dr Fernando Vieira
Title
CEO/CSO
Phone
6174417200
Signed
2025-06-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dr Fernando Vieira
Formed
1999
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
16
Employees
59
Volunteers
500

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Caitlin Limoges CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

During 2024, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.

Financial Statement Notes

PART X, LINE 2:

Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2024. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.

Raw XML AppendixShowing 400 of 876 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/DoingBusinessAsName/BusinessNameLine1Txt0ALS THERAPY DEVELOPMENT INSTITUTE
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0200000
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0475000
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt059
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt011714119
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt037352
IRS990/FeesForServicesAccountingGrp/TotalAmt037352
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt044444
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt0216955
IRS990/FeesForServicesLegalGrp/TotalAmt0261399
IRS990/FeesForServicesOtherGrp/FundraisingAmt039967
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt033282
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0348702
IRS990/FeesForServicesOtherGrp/TotalAmt0421951
IRS990/FeesForServicesProfFundraising/FundraisingAmt026875
IRS990/FeesForServicesProfFundraising/TotalAmt026875
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt152.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt162.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt172.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2240.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt028032
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1819776
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1914505
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2013972
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2126707
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2220819
IRS990/Form990PartVIISectionAGrp/PersonNm0FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm1LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm2STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm3THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm4DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm5ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm6DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm7JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm8JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm9ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm10PAUL SALLABERRY
IRS990/Form990PartVIISectionAGrp/PersonNm11ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm14JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm15KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm16ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm17TOM ENGELLENNER
IRS990/Form990PartVIISectionAGrp/PersonNm18ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm19CAROL HAMILTON
IRS990/Form990PartVIISectionAGrp/PersonNm20THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/PersonNm21KYLE R DENTON
IRS990/Form990PartVIISectionAGrp/PersonNm22MEGHAN BUCO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0386901
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18188954
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19172628
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20155581
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21158381
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22135001
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO AND CSO
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER (LEFT IN DEC 2024)
IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF PHARMACOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR, CELL BIOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt22SENIOR DIRECTOR OF MARKETING & COMMUNICATIONS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt05134455
IRS990/FundraisingDirectExpensesAmt01174633
IRS990/FundraisingGrossIncomeAmt01474117
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GovernmentGrantsAmt0682269
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt014580804
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt010
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt086189
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03379
IRS990/InformationTechnologyGrp/ProgramServicesAmt0588964
IRS990/InformationTechnologyGrp/TotalAmt0678532
IRS990/InsuranceGrp/FundraisingAmt02557
IRS990/InsuranceGrp/ManagementAndGeneralAmt05302
IRS990/InsuranceGrp/ProgramServicesAmt081129
IRS990/InsuranceGrp/TotalAmt088988
IRS990/IntangibleAssetsGrp/BOYAmt0875678
IRS990/IntangibleAssetsGrp/EOYAmt0970777
IRS990/InterestGrp/ProgramServicesAmt020118
IRS990/InterestGrp/TotalAmt020118
IRS990/InvestmentIncomeGrp/ExclusionAmt0465979
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0465979
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt07976815
IRS990/InvestmentsPubTradedSecGrp/EOYAmt013446822
IRS990/IRPDocumentCnt030
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02925366
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0393002
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0727510
IRS990/LandBldgEquipCostOrOtherBssAmt03652876
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt015010932
IRS990/NetAssetsOrFundBalancesEOYAmt018634048
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0299484
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0299484
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt03096010
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt014810932
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt018159048
IRS990/NoncashContributionsAmt0150209
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011185
IRS990/OccupancyGrp/ManagementAndGeneralAmt057054
IRS990/OccupancyGrp/ProgramServicesAmt01436922
IRS990/OccupancyGrp/TotalAmt01505161
IRS990/OfficeExpensesGrp/FundraisingAmt038117
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt08400
IRS990/OfficeExpensesGrp/ProgramServicesAmt0181954
IRS990/OfficeExpensesGrp/TotalAmt0228471
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt03218820
IRS990/OtherAssetsTotalGrp/EOYAmt02446659
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt014280
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt031566
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0510750
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0556596
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2PROGRAM SUPPLIES AND MA
IRS990/OtherExpensesGrp/Desc3DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/FundraisingAmt075885
IRS990/OtherExpensesGrp/FundraisingAmt137224
IRS990/OtherExpensesGrp/FundraisingAmt250
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt011708
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11618
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21745
IRS990/OtherExpensesGrp/ProgramServicesAmt03340639
IRS990/OtherExpensesGrp/ProgramServicesAmt142512
IRS990/OtherExpensesGrp/ProgramServicesAmt229277
IRS990/OtherExpensesGrp/ProgramServicesAmt321905
IRS990/OtherExpensesGrp/TotalAmt03340639
IRS990/OtherExpensesGrp/TotalAmt1130105
IRS990/OtherExpensesGrp/TotalAmt268119
IRS990/OtherExpensesGrp/TotalAmt323700

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