Civic Intelligence

Als Therapy Development Foundation Inc.

990 • Fiscal year 2021 • EIN 04-3462719

Jan 01, 2021 to Dec 31, 2021 • Filed on Sep 01, 2022

Organization ProfileWWW.ALS.NET

View Organization Page

480 Arsenal Street Suite 201Watertown, MA 02472

(617) 441-7200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.13x

Higher debt load relative to assets than 45% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Liabilities / Revenue

48th percentile

0.20x

Higher debt load relative to revenue than 48% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Net Margin

72nd percentile

27%

Higher net margin than 72% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Top Officer Pay

79th percentile

$294,285

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 2.4% of source-year revenue.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Asset Growth

1st percentile

-37%

Faster asset growth than 1% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Revenue Growth

61st percentile

21%

Faster revenue growth than 61% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$19,047,011

Down $10,949,978 (-37%) from 2020

Net Assets

Down

$16,521,762

Down $10,682,403 (-39%) from 2020

Liabilities

Down

$2,525,249

Down $267,575 (-9.6%) from 2020

Revenue And Expenses
Liabilities / Revenue48th percentileNet Margin72nd percentile

Revenue

Up

$12,370,651

Up $2,122,038 (+21%) from 2020

Expenses

Down

$8,987,486

Down $541,821 (-5.7%) from 2020

Net Income

Up

$3,383,165

Up $2,663,859 (+370%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth1st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $5,578,935Liabilities 2010: $1,087,357Net Assets 2010: $4,491,5782010Assets 2011: $5,421,510Liabilities 2011: $675,469Net Assets 2011: $4,746,0412011Assets 2012: $7,256,370Liabilities 2012: $647,494Net Assets 2012: $6,608,8762012Assets 2013: $6,746,369Liabilities 2013: $869,516Net Assets 2013: $5,876,8532013Assets 2014: $11,349,070Liabilities 2014: $2,641,842Net Assets 2014: $8,707,2282014Assets 2015: $8,357,864Liabilities 2015: $2,928,420Net Assets 2015: $5,429,4442015Assets 2016: $9,084,217Liabilities 2016: $3,089,288Net Assets 2016: $5,994,9292016Assets 2017: $13,595,583Liabilities 2017: $2,885,336Net Assets 2017: $10,710,2472017Assets 2018: $15,652,260Liabilities 2018: $2,232,976Net Assets 2018: $13,419,2842018Assets 2019: $17,469,547Liabilities 2019: $2,379,417Net Assets 2019: $15,090,1302019Assets 2020: $29,996,989Liabilities 2020: $2,792,824Net Assets 2020: $27,204,1652020Assets 2021: $19,047,011Liabilities 2021: $2,525,249Net Assets 2021: $16,521,7622021Assets 2022: $21,051,525Liabilities 2022: $5,823,044Net Assets 2022: $15,228,4812022Assets 2023: $20,012,651Liabilities 2023: $5,001,719Net Assets 2023: $15,010,9322023Assets 2024: $23,052,170Liabilities 2024: $4,418,122Net Assets 2024: $18,634,0482024

Highlighted filing

2021

Assets$19,047,011
Liabilities$2,525,249
Net Assets$16,521,762
Open 2021 Filing

Operations Trend

Revenue Growth61st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2010: $7,439,2332010Expenses 2011: $7,731,0792011Expenses 2012: $9,706,2272012Revenue 2013: $8,800,851Expenses 2013: $9,532,874Net Income 2013: -$732,0232013Revenue 2014: $14,319,785Expenses 2014: $11,489,410Net Income 2014: $2,830,3752014Revenue 2015: $9,400,531Expenses 2015: $12,678,315Net Income 2015: -$3,277,7842015Revenue 2016: $11,833,820Expenses 2016: $11,268,335Net Income 2016: $565,4852016Revenue 2017: $17,248,520Expenses 2017: $12,533,202Net Income 2017: $4,715,3182017Revenue 2018: $15,038,596Expenses 2018: $12,329,559Net Income 2018: $2,709,0372018Revenue 2019: $13,129,736Expenses 2019: $11,458,890Net Income 2019: $1,670,8462019Revenue 2020: $10,248,613Expenses 2020: $9,529,307Net Income 2020: $719,3062020Revenue 2021: $12,370,651Expenses 2021: $8,987,486Net Income 2021: $3,383,1652021Revenue 2022: $11,364,169Expenses 2022: $9,829,539Net Income 2022: $1,534,6302022Revenue 2023: $11,558,482Expenses 2023: $11,160,593Net Income 2023: $397,8892023Revenue 2024: $13,406,171Expenses 2024: $12,879,065Net Income 2024: $527,1062024

Highlighted filing

2021

Revenue$12,370,651
Expenses$8,987,486
Net Income$3,383,165
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Sep 1, 2022
Return Version
2021v4.2
Gross Receipts
$12,901,794
Mission and Program Overview

Mission

Our mission is to identify viable targets for therapy development and expeditiously manage the creation of those treatments that will arrest the suffering of today's als patients.

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,080,830$7,350,760▲ $4,269,930
Investments in Publicly Traded Securities$20,414,009$5,845,830▼ $14,568,179
Cash and Non-Interest-Bearing Accounts$4,667,402$3,608,722▼ $1,058,680
Accounts Receivable$206,940$1,049,523▲ $842,583
Intangible Assets$707,689$662,622▼ $45,067
Land, Buildings, and Equipment, Net$282,980$251,537▼ $31,443
Prepaid Expenses and Deferred Charges$382,139$233,017▼ $149,122
Pledges and Grants Receivable$255,000$45,000▼ $210,000
Total Assets$29,996,989$19,047,011▼ $10,949,978
Liabilities
Other Liabilities$1,505,746$1,093,702▼ $412,044
Unsecured Notes Loans Payable$896,400$739,875▼ $156,525
Accounts Payable and Accrued Expenses$293,124$393,423▲ $100,299
Deferred Revenue$2,495$232,684▲ $230,189
Mortgage Notes Payable Secured by Investment Property$95,059$65,565▼ $29,494
Total Liabilities$2,792,824$2,525,249▼ $267,575
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$26,954,165$16,521,762▼ $10,432,403
Net Assets With Donor Restrictions$250,000$0▼ $250,000
Total Net Assets Fund Balance$27,204,165$16,521,762▼ $10,682,403
Total Liabilities and Net Assets / Fund Balance$29,996,989$19,047,011▼ $10,949,978

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$246,030$2,544,723$2,790,753
Leasehold Improvements$5,507$56,963$62,470
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Fernando VieiraCEO / CSOFT$274,971$19,314$294,285
Bashar Al-nakhalaChief Operating OfficerFT$194,993$20,173$215,166
Alan GillVP of ResearchFT$170,347$12,244$182,591
Matvey LukashevVP of Translation SciencesFT$173,583$7,159$180,742
Theo HatzipetrosDirector of PharmacologyFT$121,058$19,314$140,372
Kenneth ThompsonDirector of LabFT$116,998$16,166$133,164

Board Members and Trustees

NameTitle
Augie NietoChairman and Board Member
Steven Perrin PhdVice Chair
Alexander CappelloBoard Member
Andrew NiblockBoard Member
Dr Spiros Jamas ScdBoard Member
Dr Stanley H Appel MdBoard Member
James Allen HeywoodBoard Member
Jenny DwyerBoard Member
John B Heywood Phd ScdBoard Member
Julie SwanBoard Member
Kent Jackson Bransford MdBoard Member
Lynne NietoBoard Member
Mike SmithBoard Member
Paul SallaberryBoard Member
Rob RodinBoard Member
Robert SepuchaBoard Member
Theodore Reich Jd CPATreasurer and Board Member

Highest Paid Contractors

ContractorServicesLocationCompensation
Insource Services INCFinance, Hr & ItPO BOX 427, Newton Upper Falls, MA 02464$490,644
MicroconstantsReseach9050 CAMINO SANTA FE, San Diego, CA 92121$121,080
Lathrop GageLegal2345 GRAND BLVD SUITE 2800, Kansas City, MO 64108$109,544
Revenue and Support

Revenue Composition

Contributions and Grants
$11,401,098
Program Service Revenue
$628,036
Investment Income
$8,195
Other Revenue
$333,322
All Other Contributions
$5,186,241
Change in Net Assets
$3,383,165

Audited Revenue Reconciliation

Revenue per Audited Statements
$12,370,651
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-14,058,770
Total Revenue per Audited Statements
$-1,688,119
Total Revenue per Form 990
$12,370,651
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,874,728
Salaries, Compensation, and Employee Benefits$4,112,758
Total Fundraising Expense$384,423
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,760,047$194,167$103,150$3,057,364
Occupancy$1,435,129$60,028$7,364$1,502,521
Fees for Services Other$522,777$32,258-$555,035
Other Employee Benefits$410,517$34,368$15,238$460,123
Information Technology$409,042$7,203$20,342$436,587
Current Officers, Directors, Trustees, and Key Employees$235,429$29,428$29,428$294,285
Payroll Taxes$241,364$18,333$10,409$270,106
Depreciation Depletion$181,376$13,358$7,930$202,664
Fees for Services Accounting-$184,852-$184,852
Office Expenses$87,624$415$28,431$116,470
All Other Expenses$28,738$14,016$37,330$80,084
Conferences and Meetings$69,346$84-$69,430
Insurance$56,728$4,111$2,557$63,396
Other Expenses$9,386$4,308$54,578$54,578
Fees for Services Legal-$47,408-$47,408
Pension Plan Contributions$27,615$2,054$1,211$30,880
Interest$5,728--$5,728
Total Functional Expenses$7,892,961$710,102$384,423$8,987,486

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$8,994,284
Expenses per Audited Statements$8,987,486
Total Expenses per Form 990$8,987,486
Expenses Not Reported on Form 990$6,798
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$860,671
Fundraising Direct Expenses$531,143
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Virtual White Coat Affair$164,720---
Virtual Trek$694,551$33,000$14,170$18,830
Total Events$5,366,046$860,671$531,143$329,528
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent Liability$1,093,702
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“James heywood, board member, is the son of john heywood, member of the board of directors. Additionally, lynne nieto and kent bransford, board members, are the wife and brother-in-law, respectively, of augie nieto, board member.”

Form 990, Part VI, Section B, Line 11B

“Form 990 is reviewed by the chief financial officer and then approved by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Als tdi has a written conflict of inerest policy which requires annual signoffs by officers, directors and key employees.”

Form 990, Part VI, Section B, Line 15

“The process to determine the compensation of the president consists of evaluating comparable data for functionally similar positions at similar organizations, along with the review and approval by the executive compensation committee of the board of directors which is comprised of independent members. Form 990, part vi, section b, line 15b: the process to establish compensation of other officers and key employees is completed on an annual basis by evaluating comparable data for functionally similar positions at similar organizations, presenting recommendations to the executive compensation committee of the board of directors which is comprised of independent members and documenting such discussions in the board minutes.”

Form 990, Part VI, Section C, Line 18

“Als tdi's form 990 is available for public inspection on als tdi's website and at www.guidestar.com. Als tdi's form 1023 is available upon request.”

Form 990, Part VI, Section C, Line 19

“Financial statements are made available on als tdi's website and are available by mail upon request. Governing documents and als tdi's conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Development Foundation Inc
EIN
04-3462719
Phone
6174417200
Address
480 ARSENAL STREET SUITE 201, WATERTOWN, MA 02472

Signing Officer

Name
Fernando Vieira
Title
CEO/CSO
Phone
6174417200
Signed
2022-09-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Fernando Vieira
Formed
1999
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
17
Employees
48
Volunteers
500

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
Thomas F Muldoon CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Write-off of deferred rent 502,611.”

FORM 990, PART XII, LINE 2C:

“During 2021, the organization did not change the way in which its committee assumes responsibility for oversight of the audit, its financial statements, and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“Als tdi accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the financial statements regarding a tax position taken or expected to be taken in a tax return. Als tdi has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in their financial statements at december 31, 2021. The informational returns of als tdi are subject to examination by the federal and state jurisdictions and generally remain open for the most recent three years.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Write-off of deferred rent 502,611.”

Raw XML AppendixShowing 400 of 778 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
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IRS990/Desc0ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1719314
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1812244
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt197159
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2020173
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2119314
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2216166
IRS990/Form990PartVIISectionAGrp/PersonNm0DR STANLEY H APPEL MD
IRS990/Form990PartVIISectionAGrp/PersonNm1ALEXANDER CAPPELLO
IRS990/Form990PartVIISectionAGrp/PersonNm2DR SPIROS JAMAS SCD
IRS990/Form990PartVIISectionAGrp/PersonNm3JAMES ALLEN HEYWOOD
IRS990/Form990PartVIISectionAGrp/PersonNm4JOHN B HEYWOOD PHD SCD
IRS990/Form990PartVIISectionAGrp/PersonNm5AUGIE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm6ROB RODIN
IRS990/Form990PartVIISectionAGrp/PersonNm7PAUL SALLABERRY
IRS990/Form990PartVIISectionAGrp/PersonNm8THEODORE REICH JD CPA
IRS990/Form990PartVIISectionAGrp/PersonNm9ROBERT SEPUCHA
IRS990/Form990PartVIISectionAGrp/PersonNm10JENNY DWYER
IRS990/Form990PartVIISectionAGrp/PersonNm11MIKE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm12LYNNE NIETO
IRS990/Form990PartVIISectionAGrp/PersonNm13JULIE SWAN
IRS990/Form990PartVIISectionAGrp/PersonNm14KENT JACKSON BRANSFORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm15ANDREW NIBLOCK
IRS990/Form990PartVIISectionAGrp/PersonNm16STEVEN PERRIN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm17FERNANDO VIEIRA
IRS990/Form990PartVIISectionAGrp/PersonNm18ALAN GILL
IRS990/Form990PartVIISectionAGrp/PersonNm19MATVEY LUKASHEV
IRS990/Form990PartVIISectionAGrp/PersonNm20BASHAR AL-NAKHALA
IRS990/Form990PartVIISectionAGrp/PersonNm21THEO HATZIPETROS
IRS990/Form990PartVIISectionAGrp/PersonNm22KENNETH THOMPSON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17274971
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18170347
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19173583
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20194993
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21121058
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22116998
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5CHAIRMAN AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER AND BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CEO / CSO
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP OF TRANSLATION SCIENCES
IRS990/Form990PartVIISectionAGrp/TitleTxt20CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR OF PHARMACOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR OF LAB
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01999
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt04505375
IRS990/FundraisingDirectExpensesAmt0531143
IRS990/FundraisingGrossIncomeAmt0860671
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GovernmentGrantsAmt01709482
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt012901794
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt011
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt020342
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt07203
IRS990/InformationTechnologyGrp/ProgramServicesAmt0409042
IRS990/InformationTechnologyGrp/TotalAmt0436587
IRS990/InsuranceGrp/FundraisingAmt02557
IRS990/InsuranceGrp/ManagementAndGeneralAmt04111
IRS990/InsuranceGrp/ProgramServicesAmt056728
IRS990/InsuranceGrp/TotalAmt063396
IRS990/IntangibleAssetsGrp/BOYAmt0707689
IRS990/IntangibleAssetsGrp/EOYAmt0662622
IRS990/InterestGrp/ProgramServicesAmt05728
IRS990/InterestGrp/TotalAmt05728
IRS990/InvestmentIncomeGrp/ExclusionAmt08195
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt08195
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt020414009
IRS990/InvestmentsPubTradedSecGrp/EOYAmt05845830
IRS990/IRPDocumentCnt021
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02601686
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0282980
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0251537
IRS990/LandBldgEquipCostOrOtherBssAmt02853223
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt095059
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt065565
IRS990/NetAssetsOrFundBalancesBOYAmt027204165
IRS990/NetAssetsOrFundBalancesEOYAmt016521762
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0329528
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0329528
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-14568179
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt026954165
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt016521762
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt07364
IRS990/OccupancyGrp/ManagementAndGeneralAmt060028
IRS990/OccupancyGrp/ProgramServicesAmt01435129
IRS990/OccupancyGrp/TotalAmt01502521
IRS990/OfficeExpensesGrp/FundraisingAmt028431
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0415
IRS990/OfficeExpensesGrp/ProgramServicesAmt087624
IRS990/OfficeExpensesGrp/TotalAmt0116470
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0502611
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt015238
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt034368
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0410517
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0460123
IRS990/OtherExpensesGrp/Desc0TESTING AND LAB EXPENSE
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2BANK AND CREDIT CARD PR
IRS990/OtherExpensesGrp/Desc3FUNDRAISING
IRS990/OtherExpensesGrp/FundraisingAmt095
IRS990/OtherExpensesGrp/FundraisingAmt166360
IRS990/OtherExpensesGrp/FundraisingAmt254578
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt063711
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt14308
IRS990/OtherExpensesGrp/ProgramServicesAmt01412115
IRS990/OtherExpensesGrp/ProgramServicesAmt19386
IRS990/OtherExpensesGrp/TotalAmt01412115
IRS990/OtherExpensesGrp/TotalAmt173192
IRS990/OtherExpensesGrp/TotalAmt270668
IRS990/OtherExpensesGrp/TotalAmt354578
IRS990/OtherInd0X
IRS990/OtherLiabilitiesGrp/BOYAmt01505746
IRS990/OtherLiabilitiesGrp/EOYAmt01093702
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0CONTRACTED SERVICES
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt03794
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt03794
IRS990/OtherRevenueTotalAmt03794
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0103150
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0194167
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt02760047
IRS990/OtherSalariesAndWagesGrp/TotalAmt03057364
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt010409
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt018333
IRS990/PayrollTaxesGrp/ProgramServicesAmt0241364
IRS990/PayrollTaxesGrp/TotalAmt0270106

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$19,047,011
Liabilities
$2,525,249
Net assets
$16,521,762
Revenue
$12,370,651
Expenses
$8,987,486
Net income
$3,383,165
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$23.1$4.42$18.6$13.4$12.9$0.53
2023Detailed filing. Detailed filing data is available for this year.$20.0$5.00$15.0$11.6$11.2$0.40
2022Detailed filing. Detailed filing data is available for this year.$21.1$5.82$15.2$11.4$9.83$1.53
2021Detailed filing. Detailed filing data is available for this year.$19.0$2.53$16.5$12.4$8.99$3.38
2020Detailed filing. Detailed filing data is available for this year.$30.0$2.79$27.2$10.2$9.53$0.72
2019Detailed filing. Detailed filing data is available for this year.$17.5$2.38$15.1$13.1$11.5$1.67
2018Detailed filing. Detailed filing data is available for this year.$15.7$2.23$13.4$15.0$12.3$2.71
2017Detailed filing. Detailed filing data is available for this year.$13.6$2.89$10.7$17.2$12.5$4.72
2016Detailed filing. Detailed filing data is available for this year.$9.08$3.09$5.99$11.8$11.3$0.57
2015Detailed filing. Detailed filing data is available for this year.$8.36$2.93$5.43$9.40$12.7$3.28
2014Detailed filing. Detailed filing data is available for this year.$11.3$2.64$8.71$14.3$11.5$2.83
2013Detailed filing. Detailed filing data is available for this year.$6.75$0.87$5.88$8.80$9.53$0.73
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.26$0.65$6.61$9.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.42$0.68$4.75$7.73
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.58$1.09$4.49$7.44