Civic Intelligence

The Orphan Disease Pathway Project

990 • Fiscal year 2018 • EIN 27-3862623

Jan 01, 2018 to Dec 31, 2018 • Filed on Nov 14, 2019

Organization ProfileWWW.ORPHANDISEASEPATHWAYPROJECT.ORG
One State Street 20th FloorHartford, CT 06103-3110

(860) 240-8900

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.04x

Higher debt load relative to assets than 41% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

21st percentile

0.01x

Higher debt load relative to revenue than 21% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

59th percentile

6.5%

Higher net margin than 59% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

93rd percentile

68%

Faster asset growth than 93% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

100th percentile

1978%

Faster revenue growth than 100% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$453,607

Up $182,965 (+68%) from 2017

Net Assets

Up

$433,607

Up $162,965 (+60%) from 2017

Liabilities

Up

$20,000

Up $20,000 from 2017

Revenue And Expenses
Liabilities / Revenue21st percentileNet Margin59th percentile

Revenue

Up

$2,712,042

Up $2,581,541 (+1978%) from 2017

Expenses

Up

$2,536,076

Up $2,534,648 (+177496%) from 2017

Net Income

Up

$175,966

Up $46,893 (+36%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth93rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $120,222Liabilities 2013: $0Net Assets 2013: $120,2222013Assets 2014: $31,139Liabilities 2014: $0Net Assets 2014: $31,1392014Assets 2015: $153,857Liabilities 2015: $107,625Net Assets 2015: $46,2322015Assets 2016: $160,569Liabilities 2016: $19,000Net Assets 2016: $141,5692016Assets 2017: $270,642Liabilities 2017: $0Net Assets 2017: $270,6422017Assets 2018: $453,607Liabilities 2018: $20,000Net Assets 2018: $433,6072018Assets 2019: $600,115Liabilities 2019: $0Net Assets 2019: $600,1152019Assets 2020: $356,177Liabilities 2020: $23,600Net Assets 2020: $332,5772020Assets 2022: $79,380Liabilities 2022: $23,500Net Assets 2022: $55,8802022Assets 2024: $1,252,080Liabilities 2024: $0Net Assets 2024: $1,252,0802024

Highlighted filing

2018

Assets$453,607
Liabilities$20,000
Net Assets$433,607
Open 2018 Filing

Operations Trend

Revenue Growth100th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2013: $125,786Expenses 2013: $11,096Net Income 2013: $114,6902013Revenue 2014: $858,974Expenses 2014: $948,057Net Income 2014: -$89,0832014Revenue 2015: $36,185Expenses 2015: $21,092Net Income 2015: $15,0932015Revenue 2016: $1,489,353Expenses 2016: $1,464,266Net Income 2016: $25,0872016Revenue 2017: $130,501Expenses 2017: $1,428Net Income 2017: $129,0732017Revenue 2018: $2,712,042Expenses 2018: $2,536,076Net Income 2018: $175,9662018Revenue 2019: $170,603Expenses 2019: $4,095Net Income 2019: $166,5082019Revenue 2020: $1,479,904Expenses 2020: $1,734,442Net Income 2020: -$254,5382020Revenue 2022: $1,702,639Expenses 2022: $2,185,270Net Income 2022: -$482,6312022Revenue 2024: $1,045,050Expenses 2024: $3,460Net Income 2024: $1,041,5902024

Highlighted filing

2018

Revenue$2,712,042
Expenses$2,536,076
Net Income$175,966
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 14, 2019
Return Version
2018v3.1
Gross Receipts
$2,897,930
Mission and Program Overview

Mission

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

See part iii, line 1 for description

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$202,575$448,430▲ $245,855
Prepaid Expenses and Deferred Charges$64,440--
Savings and Temporary Cash Investments$3,626$5,177▲ $1,551
Total Assets$270,641$453,607▲ $182,966
Liabilities
Accounts Payable and Accrued Expenses-$20,000-
Total Liabilities$0$20,000▲ $20,000
Net Assets / Fund Balance
Unrestricted Net Assets$270,641$433,607▲ $162,966
Total Net Assets Fund Balance$270,641$433,607▲ $162,966
Total Liabilities and Net Assets / Fund Balance$270,641$453,607▲ $182,966
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
George a WeissTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$2,204,863
Program Service Revenue
$0
Investment Income
$132
Other Revenue
$507,047
All Other Contributions
$177
Change in Net Assets
$175,966

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,712,042
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$182,101
Total Revenue per Audited Statements
$2,894,143
Total Revenue per Form 990
$2,712,042
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,500,000
Other Expenses$36,076
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,500,000--$2,500,000
Fees for Services Accounting-$25,000-$25,000
Fees for Services Other-$10,341-$10,341
Office Expenses-$560-$560
Other Expenses-$175-$175
Total Functional Expenses$2,500,000$36,076$0$2,536,076

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,718,177
Expenses per Audited Statements$2,536,076
Total Expenses per Form 990$2,536,076
Expenses Not Reported on Form 990$182,101
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PA501(c)(3)The Penn Center for Oprhan Disease$2,500,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$692,935
Fundraising Direct Expenses$185,888
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Benefit Dinner$2,897,621$692,935$86,281$606,654
Total Events$2,897,621$692,935$185,888$507,047
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8A

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section A, Line 8B

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section B, Line 11B

“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”

Form 990, Part VI, Section B, Line 12C

“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”

Form 990, Part VI, Section C, Line 19

“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”

Filing and Contact Details

Filer

Filer Name
The Orphan Disease Pathway Project
EIN
27-3862623
Phone
8602408900
Address
ONE STATE STREET 20TH FLOOR, HARTFORD, CT 06103-3110

Signing Officer

Name
George a Weiss
Title
Trustee
Phone
8602408900
Signed
2019-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
George a Weiss
Formed
2010
Legal Domicile
Ct
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
0

Preparer

Firm
Citrin Cooperman & Company Llp
Address
290 W MT PLEASANT AVENUE 3310, LIVINGSTON, NJ 07039
Preparer
Robert Siegel
Phone
9732180500
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Gross income from fundraiser 111,488.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct costs of fundraiser 111,488.”

Raw XML AppendixShowing 400 of 405 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 2D - OTHER ADJUSTMENTS:
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION HAS A PLEDGE AGREEMENT WITH THE PENN CENTER FOR ORPHAN DISEASE RESEARCH AND THERAPY AT THE SCHOOL OF MEDICINE AT THE UNIVERSITY OF PENNSYLVANIA.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt01
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 8A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
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IRS990ScheduleR/AssetSaleToOtherOrgInd00
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IRS990ScheduleR/GiftGrntOrCapContriToOthOrgInd00
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IRS990ScheduleR/LoansOrGuaranteesToOtherOrgInd00
IRS990ScheduleR/PaidEmployeesSharingInd00
IRS990ScheduleR/PerformOfServicesByOtherOrgInd00
IRS990ScheduleR/PerformOfServicesForOthOrgInd00
IRS990ScheduleR/ReceiptOfIntAnntsRntsRyltsInd00
IRS990ScheduleR/ReimbursementPaidByOtherOrgInd00
IRS990ScheduleR/ReimbursementPaidToOtherOrgInd00
IRS990ScheduleR/RentalOfFacilitiesToOthOrgInd00
IRS990ScheduleR/RentalOfFcltsFromOthOrgInd00
IRS990ScheduleR/SharingOfFacilitiesInd00
IRS990ScheduleR/TransferFromOtherOrgInd00
IRS990ScheduleR/TransferToOtherOrgInd00
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
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IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
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IRS990/WebsiteAddressTxt0WWW.ORPHANDISEASEPATHWAYPROJECT.ORG
IRS990/WhistleblowerPolicyInd00
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ReturnHeader/BusinessOfficerGrp/SignatureDt02019-11-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0THE ORPHAN DISEASE PATHWAY PROJECT
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$453,607
Liabilities
$20,000
Net assets
$433,607
Revenue
$2,712,042
Expenses
$2,536,076
Net income
$175,966
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.00$1.25$1.05$0.00$1.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.08$0.02$0.06$1.70$2.19$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.02$0.33$1.48$1.73$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.60$0.00$0.60$0.17$0.00$0.17
2018Detailed filing. Detailed filing data is available for this year.$0.45$0.02$0.43$2.71$2.54$0.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.27$0.00$0.27$0.13$0.00$0.13
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.16$0.02$0.14$1.49$1.46$0.03
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.11$0.05$0.04$0.02$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.86$0.95$0.09
2013Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.13$0.01$0.11
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2018 filings • 501(c)3 • $1M-$5M nonprofits