Liabilities / Assets
19th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 27-3862623 • 501(c)3 • Rocky Hill, CT
Profile
The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
19th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
20th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
99th percentile
Higher net margin than 99% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
99th percentile
Faster asset growth than 99% of similar nonprofits.
Revenue Growth
98th percentile
Faster revenue growth than 98% of similar nonprofits.
Assets
Up$1,252,080
Up $1,172,700 (+1477%) from 2022
Liabilities
Down$0
Down $23,500 (-100%) from 2022
Net Assets
Up$1,252,080
Up $1,196,200 (+2141%) from 2022
Revenue
Down$1,045,050
Down $657,589 (-39%) from 2022
Expenses
Down$3,460
Down $2,181,810 (-100%) from 2022
Net Income
Up$1,041,590
Up $1,524,221 (+316%) from 2022
Most recent year
2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.
The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.
The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.
See part iii, line 1 for description
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $533,529 | $74,655 | ▼ $458,874 |
| Savings and Temporary Cash Investments | $4,982 | $4,725 | ▼ $257 |
| Total Assets | $538,511 | $79,380 | ▼ $459,131 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $23,500 | - |
| Total Liabilities | $0 | $23,500 | ▲ $23,500 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $538,511 | $55,880 | ▼ $482,631 |
| Total Net Assets Fund Balance | $538,511 | $55,880 | ▼ $482,631 |
| Total Liabilities and Net Assets / Fund Balance | $538,511 | $79,380 | ▼ $459,131 |
| Name | Title |
|---|---|
| George a Weiss | Trustee |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $2,150,000 |
| Other Expenses | $35,270 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $2,150,000 | - | - | $2,150,000 |
| Fees for Services Accounting | - | $26,000 | - | $26,000 |
| Fees for Services Other | - | $9,091 | - | $9,091 |
| Other Expenses | - | $4 | - | $4 |
| Total Functional Expenses | $2,150,000 | $35,270 | $0 | $2,185,270 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,322,473 |
| Expenses per Audited Statements | $2,185,270 |
| Total Expenses per Form 990 | $2,185,270 |
| Expenses Not Reported on Form 990 | $137,203 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Pennsylvania | Philadelphia, PA | 501(c)(3) | The Penn Center for Orphan Disease | $2,150,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $1,134,172 |
| Fundraising Direct Expenses | $182,203 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Benefit Dinner | $1,794,283 | $1,134,172 | $88,535 | $1,045,637 |
| Total Events | $1,794,283 | $1,134,172 | $182,203 | $951,969 |
“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”
“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”
“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”
“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”
“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”
“Gross income from fundraiser 137,203.”
“Direct costs of fundraiser 137,203.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 23500 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SEE PART III, LINE 1 FOR DESCRIPTION |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 90450 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | ROBERT E GENDREAU |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8602408900 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 400 CAPITAL BOULEVARD SUITE 201 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCKY HILL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CT |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 06067 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 533529 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 74655 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 660111 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 750561 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 2150000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 109 |
| IRS990/CYOtherExpensesAmt | 0 | 35270 |
| IRS990/CYOtherRevenueAmt | 0 | 951969 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -482631 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 2185270 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1702639 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE FOUNDATION MADE CONTRIBUTIONS TO THE PENN CENTER FOR ORPHAN DISEASE RESEARCH AND THERAPY AT THE SCHOOL OF MEDICINE OF THE UNIVERSITY OF PENNSYLVANIA. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2150000 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 26000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 26000 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 9091 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 9091 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | GEORGE A WEISS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | TRUSTEE |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 660111 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 182203 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 1134172 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 107 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 1 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2150000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2150000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 107 |
| IRS990/GrossReceiptsAmt | 0 | 1884842 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 1 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 2 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 2 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CT |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 0 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 0 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 0 |
| IRS990/MissionDesc | 0 | THE ORGANIZATION IS WORKING TOWARDS HELPING FIND CURES AND/OR EFFECTIVE TREATMENTS FOR ORPHAN (RARE) DISEASES, AND TO FACILITATE RESEARCH OF SUCH DISEASES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 538511 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 55880 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 107 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 107 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 951969 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 951969 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 538511 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 55880 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | FILING FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK FEES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 175 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 4 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 175 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 4 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | GEORGE A WEISS |
| IRS990/ProfessionalFundraisingInd | 0 | 1 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 210630 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2 |
| IRS990/PYOtherExpensesAmt | 0 | 4698 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 205934 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 4698 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 210632 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -482631 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 4982 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 4725 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1884733 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 210630 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1625025 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 170600 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2897798 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6788786 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 109 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 224 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 132 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 470 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.88640 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.83730 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6018066 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 770720 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1884733 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 210630 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1625025 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 170600 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2897798 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 6788786 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 6789256 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 137203 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 2185270 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 137203 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 137203 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 137203 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1702639 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | GROSS INCOME FROM FUNDRAISER 137,203. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT COSTS OF FUNDRAISER 137,203. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 2185270 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1702639 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1839842 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 2322473 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | 1 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt | 0 | BENEFIT DINNER |
| IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd | 0 | 0 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt | 0 | 1794283 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt | 0 | 1729283 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt | 0 | EVENT ASSOCIATES INC |
| IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt | 0 | 65000 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt | 0 | 162 W 56TH STREET 405 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm | 0 | NEW YORK |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd | 0 | 10019 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 660111 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 660111 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 182203 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 12590 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 12590 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | BENEFIT DINNER |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 45000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 45000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 1794283 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 1794283 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 1134172 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 1134172 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 951969 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 88535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 88535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 36078 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 36078 |
| IRS990ScheduleG/LicensedStatesCd | 0 | CT |
| IRS990ScheduleG/LicensedStatesCd | 1 | NY |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleG/TotalGrossReceiptsAmt | 0 | 1794283 |
| IRS990ScheduleG/TotalNetToOrganizationAmt | 0 | 1729283 |
| IRS990ScheduleG/TotalRetainedByContractorsAmt | 0 | 65000 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 2150000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc | 0 | N/A |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | THE PENN CENTER FOR ORPHAN DISEASE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UNIVERSITY OF PENNSYLVANIA |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 231352685 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 3451 WALNUT STREET 433 FRANKLIN |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 0 | BUILDING |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | PHILADELPHIA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 191046205 |
| IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc | 0 | BOOK |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION HAS A PLEDGE AGREEMENT WITH THE PENN CENTER FOR ORPHAN DISEASE RESEARCH AND THERAPY AT THE SCHOOL OF MEDICINE AT THE UNIVERSITY OF PENNSYLVANIA. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART 1, LINE 2: |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 8A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION A, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION C, LINE 19 |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CT |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | NY |
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| IRS990/SubjectToProxyTaxInd | 0 | 0 |
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| IRS990/TotalAssetsEOYAmt | 0 | 79380 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 538511 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 79380 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 750561 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 35270 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 2150000 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 2185270 |
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| IRS990/TotalLiabilitiesBOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 23500 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 23500 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 538511 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 55880 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 2150000 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
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| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 1702639 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 0 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 538511 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 79380 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationTrustInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 7252 FISHER ISLAND DRIVE |
| IRS990/USAddress/CityNm | 0 | FISHER ISLAND |
| IRS990/USAddress/StateAbbreviationCd | 0 | FL |
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| IRS990/VotingMembersIndependentCnt | 0 | 1 |
| IRS990/WebsiteAddressTxt | 0 | WWW.ORPHANDISEASEPATHWAYPROJECT.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | 0 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 3 |
| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | GEORGE A WEISS |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | TRUSTEE |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8602408900 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2023-11-15 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | THE ORPHAN DISEASE PATHWAY PROJECT |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | ORPH |
| ReturnHeader/Filer/EIN | 0 | 273862623 |
| ReturnHeader/Filer/PhoneNum | 0 | 8602408900 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 400 CAPITAL BOULEVARD SUITE 201 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | ROCKY HILL |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CT |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 06067 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 0 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 410746749 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | CLIFTONLARSONALLEN LLP |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 293 EISENHOWER PARKWAY 2ND FLOOR |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | LIVINGSTON |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | NJ |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 07039 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 9739949494 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2023-11-15 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | ROBERT SIEGEL |
| ReturnHeader/ReturnTs | 0 | 2023-11-15T18:36:35-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | GEORGE |
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