Civic Intelligence

The Orphan Disease Pathway Project

990 • Fiscal year 2013 • EIN 27-3862623

Jan 01, 2013 to Dec 31, 2013 • Filed on Nov 11, 2014

Organization ProfileWWW.ORPHANDISEASEPATHWAYPROJECT.ORG
One State Street 20th Floor06103-3110

(860) 240-8900

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Net Margin

98th percentile

91%

Higher net margin than 98% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Top Officer Pay

73rd percentile

$0

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets55th percentile

Assets

$120,222

No earlier filing loaded for comparison.

Net Assets

$120,222

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin98th percentile

Revenue

$125,786

No earlier filing loaded for comparison.

Expenses

$11,096

No earlier filing loaded for comparison.

Net Income

$114,690

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $120,222Liabilities 2013: $0Net Assets 2013: $120,2222013Assets 2014: $31,139Liabilities 2014: $0Net Assets 2014: $31,1392014Assets 2015: $153,857Liabilities 2015: $107,625Net Assets 2015: $46,2322015Assets 2016: $160,569Liabilities 2016: $19,000Net Assets 2016: $141,5692016Assets 2017: $270,642Liabilities 2017: $0Net Assets 2017: $270,6422017Assets 2018: $453,607Liabilities 2018: $20,000Net Assets 2018: $433,6072018Assets 2019: $600,115Liabilities 2019: $0Net Assets 2019: $600,1152019Assets 2020: $356,177Liabilities 2020: $23,600Net Assets 2020: $332,5772020Assets 2022: $79,380Liabilities 2022: $23,500Net Assets 2022: $55,8802022Assets 2024: $1,252,080Liabilities 2024: $0Net Assets 2024: $1,252,0802024

Highlighted filing

2013

Assets$120,222
Liabilities$0
Net Assets$120,222
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2013: $125,786Expenses 2013: $11,096Net Income 2013: $114,6902013Revenue 2014: $858,974Expenses 2014: $948,057Net Income 2014: -$89,0832014Revenue 2015: $36,185Expenses 2015: $21,092Net Income 2015: $15,0932015Revenue 2016: $1,489,353Expenses 2016: $1,464,266Net Income 2016: $25,0872016Revenue 2017: $130,501Expenses 2017: $1,428Net Income 2017: $129,0732017Revenue 2018: $2,712,042Expenses 2018: $2,536,076Net Income 2018: $175,9662018Revenue 2019: $170,603Expenses 2019: $4,095Net Income 2019: $166,5082019Revenue 2020: $1,479,904Expenses 2020: $1,734,442Net Income 2020: -$254,5382020Revenue 2022: $1,702,639Expenses 2022: $2,185,270Net Income 2022: -$482,6312022Revenue 2024: $1,045,050Expenses 2024: $3,460Net Income 2024: $1,041,5902024

Highlighted filing

2013

Revenue$125,786
Expenses$11,096
Net Income$114,690
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Nov 11, 2014
Return Version
2013v3.0
Gross Receipts
$125,786
Mission and Program Overview

Mission

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

See part iii, line 1 for description

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,493$93,579▲ $90,086
Cash and Non-Interest-Bearing Accounts$2,039$26,643▲ $24,604
Total Assets$5,532$120,222▲ $114,690
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$5,532$120,222▲ $114,690
Total Net Assets Fund Balance$5,532$120,222▲ $114,690
Total Liabilities and Net Assets / Fund Balance$5,532$120,222▲ $114,690
Compensation and Service Providers
Top Officer Pay73rd percentile

Board Members and Trustees

NameTitle
George a WeissTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$125,700
Program Service Revenue
$0
Investment Income
$86
Other Revenue
$0
All Other Contributions
$125,700
Change in Net Assets
$114,690

Audited Revenue Reconciliation

Revenue per Audited Statements
$125,786
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$29,591
Total Revenue per Audited Statements
$155,377
Total Revenue per Form 990
$125,786
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$11,096
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Accounting-$6,900-$6,900
Office Expenses-$2,833-$2,833
Travel-$1,218-$1,218
Other Expenses-$145-$145
Total Functional Expenses$0$11,096$0$11,096

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$40,687
Expenses Not Reported on Form 990$29,591
Expenses per Audited Statements$11,096
Total Expenses per Form 990$11,096
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8A

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section A, Line 8B

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section B, Line 11

“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”

Form 990, Part VI, Section B, Line 12C

“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”

Form 990, Part VI, Section C, Line 19

“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”

Filing and Contact Details

Filer

EIN
27-3862623
Phone
8602408900

Signing Officer

Name
George a Weiss
Title
Trustee
Phone
8602408900
Signed
2014-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
George a Weiss
Formed
2010
Legal Domicile
Ct
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
0

Preparer

Preparer
Brian Kelleher
Phone
9739946666
Raw XML Appendix319 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION.
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ReturnHeader/Filer/USAddress/State0CT
ReturnHeader/Filer/USAddress/ZIPCode0061033110
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0135565207
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10KPMG LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine104 BECKER FARM ROAD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City0ROSELAND
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode007068
ReturnHeader/PreparerPersonGrp/PhoneNum09739946666
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0BRIAN KELLEHER
ReturnHeader/ReturnTs02014-11-13T09:30:19-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02013-01-01
ReturnHeader/TaxPeriodEndDt02013-12-31
ReturnHeader/TaxYr02013

Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$120,222
Liabilities
$0
Net assets
$120,222
Revenue
$125,786
Expenses
$11,096
Net income
$114,690
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.00$1.25$1.05$0.00$1.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.08$0.02$0.06$1.70$2.19$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.02$0.33$1.48$1.73$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.60$0.00$0.60$0.17$0.00$0.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.45$0.02$0.43$2.71$2.54$0.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.27$0.00$0.27$0.13$0.00$0.13
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.16$0.02$0.14$1.49$1.46$0.03
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.11$0.05$0.04$0.02$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.86$0.95$0.09
2013Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.13$0.01$0.11