Civic Intelligence

The Orphan Disease Pathway Project

990 • Fiscal year 2019 • EIN 27-3862623

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 16, 2020

Organization ProfileWWW.ORPHANDISEASEPATHWAYPROJECT.ORG
One State Street 20th FloorHartford, CT 06103-3110

(860) 240-8900

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

28th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

99th percentile

98%

Higher net margin than 99% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

50th percentile

$0

Higher top officer pay than 50% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

84th percentile

32%

Faster asset growth than 84% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

1st percentile

-94%

Faster revenue growth than 1% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$600,115

Up $146,508 (+32%) from 2018

Net Assets

Up

$600,115

Up $166,508 (+38%) from 2018

Liabilities

Down

$0

Down $20,000 (-100%) from 2018

Revenue And Expenses
Liabilities / Revenue28th percentileNet Margin99th percentile

Revenue

Down

$170,603

Down $2,541,439 (-94%) from 2018

Expenses

Down

$4,095

Down $2,531,981 (-100%) from 2018

Net Income

Down

$166,508

Down $9,458 (-5.4%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $120,222Liabilities 2013: $0Net Assets 2013: $120,2222013Assets 2014: $31,139Liabilities 2014: $0Net Assets 2014: $31,1392014Assets 2015: $153,857Liabilities 2015: $107,625Net Assets 2015: $46,2322015Assets 2016: $160,569Liabilities 2016: $19,000Net Assets 2016: $141,5692016Assets 2017: $270,642Liabilities 2017: $0Net Assets 2017: $270,6422017Assets 2018: $453,607Liabilities 2018: $20,000Net Assets 2018: $433,6072018Assets 2019: $600,115Liabilities 2019: $0Net Assets 2019: $600,1152019Assets 2020: $356,177Liabilities 2020: $23,600Net Assets 2020: $332,5772020Assets 2022: $79,380Liabilities 2022: $23,500Net Assets 2022: $55,8802022Assets 2024: $1,252,080Liabilities 2024: $0Net Assets 2024: $1,252,0802024

Highlighted filing

2019

Assets$600,115
Liabilities$0
Net Assets$600,115
Open 2019 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2013: $125,786Expenses 2013: $11,096Net Income 2013: $114,6902013Revenue 2014: $858,974Expenses 2014: $948,057Net Income 2014: -$89,0832014Revenue 2015: $36,185Expenses 2015: $21,092Net Income 2015: $15,0932015Revenue 2016: $1,489,353Expenses 2016: $1,464,266Net Income 2016: $25,0872016Revenue 2017: $130,501Expenses 2017: $1,428Net Income 2017: $129,0732017Revenue 2018: $2,712,042Expenses 2018: $2,536,076Net Income 2018: $175,9662018Revenue 2019: $170,603Expenses 2019: $4,095Net Income 2019: $166,5082019Revenue 2020: $1,479,904Expenses 2020: $1,734,442Net Income 2020: -$254,5382020Revenue 2022: $1,702,639Expenses 2022: $2,185,270Net Income 2022: -$482,6312022Revenue 2024: $1,045,050Expenses 2024: $3,460Net Income 2024: $1,041,5902024

Highlighted filing

2019

Revenue$170,603
Expenses$4,095
Net Income$166,508
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 16, 2020
Return Version
2019v5.1
Gross Receipts
$170,603
Mission and Program Overview

Mission

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

See part iii, line 1 for description

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$448,430$537,662▲ $89,232
Prepaid Expenses and Deferred Charges-$57,424-
Savings and Temporary Cash Investments$5,177$5,029▼ $148
Total Assets$453,607$600,115▲ $146,508
Liabilities
Accounts Payable and Accrued Expenses$20,000--
Total Liabilities$20,000$0▼ $20,000
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$433,607$600,115▲ $166,508
Total Net Assets Fund Balance$433,607$600,115▲ $166,508
Total Liabilities and Net Assets / Fund Balance$453,607$600,115▲ $146,508
Compensation and Service Providers
Top Officer Pay50th percentile

Board Members and Trustees

NameTitle
George a WeissTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$170,600
Program Service Revenue
$0
Investment Income
$3
Other Revenue
$0
All Other Contributions
$170,600
Change in Net Assets
$166,508
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,095
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Accounting-$2,800-$2,800
Fees for Services Other-$580-$580
Office Expenses-$390-$390
Other Expenses-$150-$150
Total Functional Expenses$0$4,095$0$4,095
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8A

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section A, Line 8B

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section B, Line 11B

“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”

Form 990, Part VI, Section B, Line 12C

“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”

Form 990, Part VI, Section C, Line 19

“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”

Filing and Contact Details

Filer

Filer Name
The Orphan Disease Pathway Project
EIN
27-3862623
Phone
8602408900
Address
ONE STATE STREET 20TH FLOOR, HARTFORD, CT 06103-3110

Signing Officer

Name
George a Weiss
Title
Trustee
Phone
8602408900
Signed
2020-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
George a Weiss
Formed
2010
Legal Domicile
Ct
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
0

Preparer

Firm
Citrin Cooperman & Company Llp
Address
290 W MT PLEASANT AVENUE 3310, LIVINGSTON, NJ 07039
Preparer
Robert Siegel
Phone
9732180500
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Credit card processing fees: program service expenses 0. Management and general expenses 580. Fundraising expenses 0. Total expenses 580.”

Raw XML Appendix323 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CREDIT CARD PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 580. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 580.
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ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0GEORGE A WEISS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TRUSTEE
ReturnHeader/BusinessOfficerGrp/PhoneNum08602408900
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-11-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0THE ORPHAN DISEASE PATHWAY PROJECT
ReturnHeader/Filer/BusinessNameControlTxt0ORPH
ReturnHeader/Filer/EIN0273862623
ReturnHeader/Filer/PhoneNum08602408900
ReturnHeader/Filer/USAddress/AddressLine1Txt0ONE STATE STREET 20TH FLOOR
ReturnHeader/Filer/USAddress/CityNm0HARTFORD
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CT
ReturnHeader/Filer/USAddress/ZIPCd0061033110
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId09390710455BDAF124D2C3841DD59D38A31FE914D
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0A8F1625EC9EC75D66E2E7E7E8F9CC8003E8AEA87
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0100.35.58.64
ReturnHeader/FilingSecurityInformation/IPDt02020-11-16
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0ES
ReturnHeader/FilingSecurityInformation/IPTm009:31:59
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0222428965
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CITRIN COOPERMAN & COMPANY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0290 W MT PLEASANT AVENUE 3310
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LIVINGSTON
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007039
ReturnHeader/PreparerPersonGrp/PhoneNum09732180500
ReturnHeader/PreparerPersonGrp/PreparationDt02020-11-16
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ROBERT SIEGEL
ReturnHeader/ReturnTs02020-11-16T12:17:32-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$600,115
Liabilities
$0
Net assets
$600,115
Revenue
$170,603
Expenses
$4,095
Net income
$166,508
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.00$1.25$1.05$0.00$1.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.08$0.02$0.06$1.70$2.19$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.02$0.33$1.48$1.73$0.25
2019Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$0.17$0.00$0.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.45$0.02$0.43$2.71$2.54$0.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.27$0.00$0.27$0.13$0.00$0.13
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.16$0.02$0.14$1.49$1.46$0.03
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.11$0.05$0.04$0.02$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.86$0.95$0.09
2013Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.13$0.01$0.11
Peer Organizations

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