Civic Intelligence

The Orphan Disease Pathway Project

990 • Fiscal year 2024 • EIN 27-3862623

Jan 01, 2024 to Dec 31, 2024 • Filed on Nov 17, 2025

Organization ProfileWWW.ORPHANDISEASEPATHWAYPROJECT.ORG
7252 Fisher Island DriveMiami Beach, FL 33109

(917) 312-8668

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

99th percentile

100%

Higher net margin than 99% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

99th percentile

495%

Faster asset growth than 99% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

98th percentile

553%

Faster revenue growth than 98% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets18th percentile

Assets

Up

$1,252,080

Up $1,172,700 (+1477%) from 2022

Net Assets

Up

$1,252,080

Up $1,196,200 (+2141%) from 2022

Liabilities

Down

$0

Down $23,500 (-100%) from 2022

Revenue And Expenses
Liabilities / Revenue18th percentileNet Margin99th percentile

Revenue

Down

$1,045,050

Down $657,589 (-39%) from 2022

Expenses

Down

$3,460

Down $2,181,810 (-100%) from 2022

Net Income

Up

$1,041,590

Up $1,524,221 (+316%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth99th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $120,222Liabilities 2013: $0Net Assets 2013: $120,2222013Assets 2014: $31,139Liabilities 2014: $0Net Assets 2014: $31,1392014Assets 2015: $153,857Liabilities 2015: $107,625Net Assets 2015: $46,2322015Assets 2016: $160,569Liabilities 2016: $19,000Net Assets 2016: $141,5692016Assets 2017: $270,642Liabilities 2017: $0Net Assets 2017: $270,6422017Assets 2018: $453,607Liabilities 2018: $20,000Net Assets 2018: $433,6072018Assets 2019: $600,115Liabilities 2019: $0Net Assets 2019: $600,1152019Assets 2020: $356,177Liabilities 2020: $23,600Net Assets 2020: $332,5772020Assets 2022: $79,380Liabilities 2022: $23,500Net Assets 2022: $55,8802022Assets 2024: $1,252,080Liabilities 2024: $0Net Assets 2024: $1,252,0802024

Highlighted filing

2024

Assets$1,252,080
Liabilities$0
Net Assets$1,252,080
Open 2024 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2013: $125,786Expenses 2013: $11,096Net Income 2013: $114,6902013Revenue 2014: $858,974Expenses 2014: $948,057Net Income 2014: -$89,0832014Revenue 2015: $36,185Expenses 2015: $21,092Net Income 2015: $15,0932015Revenue 2016: $1,489,353Expenses 2016: $1,464,266Net Income 2016: $25,0872016Revenue 2017: $130,501Expenses 2017: $1,428Net Income 2017: $129,0732017Revenue 2018: $2,712,042Expenses 2018: $2,536,076Net Income 2018: $175,9662018Revenue 2019: $170,603Expenses 2019: $4,095Net Income 2019: $166,5082019Revenue 2020: $1,479,904Expenses 2020: $1,734,442Net Income 2020: -$254,5382020Revenue 2022: $1,702,639Expenses 2022: $2,185,270Net Income 2022: -$482,6312022Revenue 2024: $1,045,050Expenses 2024: $3,460Net Income 2024: $1,041,5902024

Highlighted filing

2024

Revenue$1,045,050
Expenses$3,460
Net Income$1,041,590
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$1,045,050
Mission and Program Overview

Mission

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

See part iii, line 1 for description

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$205,913$1,251,287▲ $1,045,374
Savings and Temporary Cash Investments$4,577$793▼ $3,784
Total Assets$210,490$1,252,080▲ $1,041,590
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$210,490$1,252,080▲ $1,041,590
Total Net Assets Fund Balance$210,490$1,252,080▲ $1,041,590
Total Liabilities and Net Assets / Fund Balance$210,490$1,252,080▲ $1,041,590
Compensation and Service Providers
Top Officer Pay40th percentile

Board Members and Trustees

NameTitle
George a WeissTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$1,045,049
Program Service Revenue
$0
Investment Income
$1
Other Revenue
$0
All Other Contributions
$1,045,049
Change in Net Assets
$1,041,590

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,045,050
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$1,045,050
Total Revenue per Form 990
$1,045,050
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,460
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Accounting-$2,600-$2,600
Other Expenses-$5-$5
Total Functional Expenses$0$3,460$0$3,460

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,460
Total Expenses per Audited Statements$3,460
Total Expenses per Form 990$3,460
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8A

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section A, Line 8B

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section B, Line 11B

“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”

Form 990, Part VI, Section B, Line 12C

“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”

Form 990, Part VI, Section C, Line 19

“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”

Filing and Contact Details

Filer

Filer Name
The Orphan Disease Pathway Project
EIN
27-3862623
Phone
9173128668
Address
7252 FISHER ISLAND DRIVE, MIAMI BEACH, FL 33109

Signing Officer

Name
George a Weiss
Title
Trustee
Phone
8602408900
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
George a Weiss
Formed
2010
Legal Domicile
Ct
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
0

Preparer

Firm
Bedrock Tax and Accounting Services LLC
Address
163 MADISON AVE SUITE 220-33, MORRISTOWN, NJ 07960
Preparer
Robert Siegel
Phone
9732007945
Raw XML Appendix327 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION.
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01252080
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationTrustInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt07252 FISHER ISLAND DRIVE
IRS990/USAddress/CityNm0FISHER ISLAND
IRS990/USAddress/StateAbbreviationCd0FL
IRS990/USAddress/ZIPCd033109
IRS990/VotingMembersGoverningBodyCnt01
IRS990/VotingMembersIndependentCnt01
IRS990/WebsiteAddressTxt0WWW.ORPHANDISEASEPATHWAYPROJECT.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0GEORGE A WEISS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TRUSTEE
ReturnHeader/BusinessOfficerGrp/PhoneNum08602408900
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-17
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0THE ORPHAN DISEASE PATHWAY PROJECT
ReturnHeader/Filer/BusinessNameControlTxt0ORPH
ReturnHeader/Filer/EIN0273862623
ReturnHeader/Filer/PhoneNum09173128668
ReturnHeader/Filer/USAddress/AddressLine1Txt07252 FISHER ISLAND DRIVE
ReturnHeader/Filer/USAddress/CityNm0MIAMI BEACH
ReturnHeader/Filer/USAddress/StateAbbreviationCd0FL
ReturnHeader/Filer/USAddress/ZIPCd033109
ReturnHeader/IRSResponsiblePrtyInfoCurrInd00
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0332534240
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BEDROCK TAX AND ACCOUNTING SERVICES LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0163 MADISON AVE SUITE 220-33
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0MORRISTOWN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007960
ReturnHeader/PreparerPersonGrp/PhoneNum09732007945
ReturnHeader/PreparerPersonGrp/PreparationDt02025-11-17
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ROBERT SIEGEL
ReturnHeader/ReturnTs02025-11-17T17:08:51-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,252,080
Liabilities
$0
Net assets
$1,252,080
Revenue
$1,045,050
Expenses
$3,460
Net income
$1,041,590
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.25$0.00$1.25$1.05$0.00$1.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.08$0.02$0.06$1.70$2.19$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.02$0.33$1.48$1.73$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.60$0.00$0.60$0.17$0.00$0.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.45$0.02$0.43$2.71$2.54$0.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.27$0.00$0.27$0.13$0.00$0.13
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.16$0.02$0.14$1.49$1.46$0.03
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.11$0.05$0.04$0.02$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.86$0.95$0.09
2013Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.13$0.01$0.11