Civic Intelligence

The Orphan Disease Pathway Project

990 • Fiscal year 2017 • EIN 27-3862623

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 06, 2018

Organization ProfileWWW.ORPHANDISEASEPATHWAYPROJECT.ORG
One State Street 20th FloorHartford, CT 06103-3110

(860) 240-8900

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

99th percentile

99%

Higher net margin than 99% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

88th percentile

69%

Faster asset growth than 88% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

2nd percentile

-91%

Faster revenue growth than 2% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$270,642

Up $110,073 (+69%) from 2016

Net Assets

Up

$270,642

Up $129,073 (+91%) from 2016

Liabilities

Down

$0

Down $19,000 (-100%) from 2016

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin99th percentile

Revenue

Down

$130,501

Down $1,358,852 (-91%) from 2016

Expenses

Down

$1,428

Down $1,462,838 (-100%) from 2016

Net Income

Up

$129,073

Up $103,986 (+415%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth88th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $120,222Liabilities 2013: $0Net Assets 2013: $120,2222013Assets 2014: $31,139Liabilities 2014: $0Net Assets 2014: $31,1392014Assets 2015: $153,857Liabilities 2015: $107,625Net Assets 2015: $46,2322015Assets 2016: $160,569Liabilities 2016: $19,000Net Assets 2016: $141,5692016Assets 2017: $270,642Liabilities 2017: $0Net Assets 2017: $270,6422017Assets 2018: $453,607Liabilities 2018: $20,000Net Assets 2018: $433,6072018Assets 2019: $600,115Liabilities 2019: $0Net Assets 2019: $600,1152019Assets 2020: $356,177Liabilities 2020: $23,600Net Assets 2020: $332,5772020Assets 2022: $79,380Liabilities 2022: $23,500Net Assets 2022: $55,8802022Assets 2024: $1,252,080Liabilities 2024: $0Net Assets 2024: $1,252,0802024

Highlighted filing

2017

Assets$270,642
Liabilities$0
Net Assets$270,642
Open 2017 Filing

Operations Trend

Revenue Growth2nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2013: $125,786Expenses 2013: $11,096Net Income 2013: $114,6902013Revenue 2014: $858,974Expenses 2014: $948,057Net Income 2014: -$89,0832014Revenue 2015: $36,185Expenses 2015: $21,092Net Income 2015: $15,0932015Revenue 2016: $1,489,353Expenses 2016: $1,464,266Net Income 2016: $25,0872016Revenue 2017: $130,501Expenses 2017: $1,428Net Income 2017: $129,0732017Revenue 2018: $2,712,042Expenses 2018: $2,536,076Net Income 2018: $175,9662018Revenue 2019: $170,603Expenses 2019: $4,095Net Income 2019: $166,5082019Revenue 2020: $1,479,904Expenses 2020: $1,734,442Net Income 2020: -$254,5382020Revenue 2022: $1,702,639Expenses 2022: $2,185,270Net Income 2022: -$482,6312022Revenue 2024: $1,045,050Expenses 2024: $3,460Net Income 2024: $1,041,5902024

Highlighted filing

2017

Revenue$130,501
Expenses$1,428
Net Income$129,073
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 6, 2018
Return Version
2017v2.3
Gross Receipts
$130,501
Mission and Program Overview

Mission

The organization is working towards helping find cures and/or effective treatments for orphan (rare) diseases, and to facilitate research of such diseases.

See part iii, line 1 for description

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$156,944$202,575▲ $45,631
Prepaid Expenses and Deferred Charges-$64,441-
Savings and Temporary Cash Investments$3,625$3,626▲ $1
Total Assets$160,569$270,642▲ $110,073
Liabilities
Accounts Payable and Accrued Expenses$19,000--
Total Liabilities$19,000$0▼ $19,000
Net Assets / Fund Balance
Unrestricted Net Assets$141,569$270,642▲ $129,073
Total Net Assets Fund Balance$141,569$270,642▲ $129,073
Total Liabilities and Net Assets / Fund Balance$160,569$270,642▲ $110,073
Compensation and Service Providers
Top Officer Pay76th percentile

Board Members and Trustees

NameTitle
George a WeissTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$130,500
Program Service Revenue
$0
Investment Income
$1
Other Revenue
$0
All Other Contributions
$130,500
Change in Net Assets
$129,073
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,428
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Expenses-$706-$706
Office Expenses-$602-$602
Fees for Services Accounting-$120-$120
Total Functional Expenses$0$1,428$0$1,428
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8A

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section A, Line 8B

“The organization is a trust that is managed by one trustee. Therefore, no meetings or written actions were held or undertaken.”

Form 990, Part VI, Section B, Line 11B

“The organization will provide the sole trustee of the organization a copy of the form 990 for review before it is filed.”

Form 990, Part VI, Section B, Line 12C

“The organization is a trust managed by one trustee. The trustee at all times endeavors to avoid any conflict between their own personal or professional interests and the interests of the organization when taking any action on behalf of the organization.”

Form 990, Part VI, Section C, Line 19

“All governing documents of the organization are available to the public upon request. The public can utilize the contact information provided in section c to request this information.”

Filing and Contact Details

Filer

Filer Name
The Orphan Disease Pathway Project
EIN
27-3862623
Phone
8602408900
Address
ONE STATE STREET 20TH FLOOR, HARTFORD, CT 06103-3110

Signing Officer

Name
George a Weiss
Title
Trustee
Phone
8602408900
Signed
2018-11-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
George a Weiss
Formed
2010
Legal Domicile
Ct
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
0

Preparer

Firm
Citrin Cooperman & Company Llp
Address
290 W MT PLEASANT AVENUE 3310, LIVINGSTON, NJ 07039
Preparer
Robert Siegel
Phone
9732180500
Raw XML Appendix305 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS A TRUST THAT IS MANAGED BY ONE TRUSTEE. THEREFORE, NO MEETINGS OR WRITTEN ACTIONS WERE HELD OR UNDERTAKEN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ORGANIZATION WILL PROVIDE THE SOLE TRUSTEE OF THE ORGANIZATION A COPY OF THE FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION IS A TRUST MANAGED BY ONE TRUSTEE. THE TRUSTEE AT ALL TIMES ENDEAVORS TO AVOID ANY CONFLICT BETWEEN THEIR OWN PERSONAL OR PROFESSIONAL INTERESTS AND THE INTERESTS OF THE ORGANIZATION WHEN TAKING ANY ACTION ON BEHALF OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL GOVERNING DOCUMENTS OF THE ORGANIZATION ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE PUBLIC CAN UTILIZE THE CONTACT INFORMATION PROVIDED IN SECTION C TO REQUEST THIS INFORMATION.
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CITRIN COOPERMAN & COMPANY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0290 W MT PLEASANT AVENUE 3310
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LIVINGSTON
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007039
ReturnHeader/PreparerPersonGrp/PhoneNum09732180500
ReturnHeader/PreparerPersonGrp/PreparationDt02018-11-06
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ROBERT SIEGEL
ReturnHeader/ReturnTs02018-11-13T10:30:50-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$270,642
Liabilities
$0
Net assets
$270,642
Revenue
$130,501
Expenses
$1,428
Net income
$129,073
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.00$1.25$1.05$0.00$1.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.08$0.02$0.06$1.70$2.19$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.02$0.33$1.48$1.73$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.60$0.00$0.60$0.17$0.00$0.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.45$0.02$0.43$2.71$2.54$0.18
2017Detailed filing. Detailed filing data is available for this year.$0.27$0.00$0.27$0.13$0.00$0.13
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.16$0.02$0.14$1.49$1.46$0.03
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.15$0.11$0.05$0.04$0.02$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.86$0.95$0.09
2013Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.13$0.01$0.11