Civic Intelligence

Scleroderma Research Foundation

990 • Fiscal year 2025 • EIN 68-0087234

Jan 01, 2025 to Dec 31, 2025

Organization Profilewww.srfcure.org
220 Montgomery St Ste 484San Francisco, CA 94104

(415) 834-9444

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Up

$42,239,970

Up $9,240,186 (+28%) from 2024

Net Assets

Up

$16,888,561

Up $2,805,564 (+20%) from 2024

Liabilities

Up

$25,351,409

Up $6,434,622 (+34%) from 2024

Revenue And Expenses

Revenue

Up

$13,131,089

Up $957,928 (+7.9%) from 2024

Expenses

Up

$10,325,525

Up $703,004 (+7.3%) from 2024

Net Income

Up

$2,805,564

Up $254,924 (+10.0%) from 2024

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2012: $2,953,581Liabilities 2012: $58,716Net Assets 2012: $2,894,8652012Assets 2013: $3,204,230Liabilities 2013: $249,978Net Assets 2013: $2,954,2522013Assets 2014: $3,296,007Liabilities 2014: $188,273Net Assets 2014: $3,107,7342014Assets 2015: $3,162,131Liabilities 2015: $35,964Net Assets 2015: $3,126,1672015Assets 2016: $3,139,910Liabilities 2016: $89,381Net Assets 2016: $3,050,5292016Assets 2017: $3,678,640Liabilities 2017: $166,375Net Assets 2017: $3,512,2652017Assets 2018: $5,318,800Liabilities 2018: $51,927Net Assets 2018: $5,266,8732018Assets 2019: $7,445,548Liabilities 2019: $296,597Net Assets 2019: $7,148,9512019Assets 2020: $9,592,172Liabilities 2020: $201,194Net Assets 2020: $9,390,9782020Assets 2021: $9,819,469Liabilities 2021: $346,825Net Assets 2021: $9,472,6442021Assets 2022: $11,143,637Liabilities 2022: $1,240,870Net Assets 2022: $9,902,7672022Assets 2023: $18,654,748Liabilities 2023: $7,122,391Net Assets 2023: $11,532,3572023Assets 2024: $32,999,784Liabilities 2024: $18,916,787Net Assets 2024: $14,082,9972024Assets 2025: $42,239,970Liabilities 2025: $25,351,409Net Assets 2025: $16,888,5612025

Highlighted filing

2025

Assets$42,239,970
Liabilities$25,351,409
Net Assets$16,888,561
Open 2025 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $1,266,850Expenses 2012: $1,710,851Net Income 2012: -$444,0012012Revenue 2013: $1,796,130Expenses 2013: $1,763,404Net Income 2013: $32,7262013Revenue 2014: $2,087,681Expenses 2014: $1,864,887Net Income 2014: $222,7942014Revenue 2015: $2,480,174Expenses 2015: $2,457,021Net Income 2015: $23,1532015Revenue 2016: $2,501,519Expenses 2016: $2,512,527Net Income 2016: -$11,0082016Revenue 2017: $2,880,248Expenses 2017: $2,527,636Net Income 2017: $352,6122017Revenue 2018: $4,733,081Expenses 2018: $3,005,455Net Income 2018: $1,727,6262018Revenue 2019: $5,168,122Expenses 2019: $3,364,239Net Income 2019: $1,803,8832019Revenue 2020: $3,931,140Expenses 2020: $2,957,771Net Income 2020: $973,3692020Revenue 2021: $3,768,969Expenses 2021: $3,687,303Net Income 2021: $81,6662021Revenue 2022: $5,892,738Expenses 2022: $4,658,602Net Income 2022: $1,234,1362022Revenue 2023: $8,418,038Expenses 2023: $6,487,599Net Income 2023: $1,930,4392023Revenue 2024: $12,173,161Expenses 2024: $9,622,521Net Income 2024: $2,550,6402024Revenue 2025: $13,131,089Expenses 2025: $10,325,525Net Income 2025: $2,805,5642025

Highlighted filing

2025

Revenue$13,131,089
Expenses$10,325,525
Net Income$2,805,564
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Jun 18, 2026
Return Version
2025v4.1
Gross Receipts
$13,278,097
Mission and Program Overview

Mission

To fund scientific research to find a cure for scleroderma

The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$13,929,113$21,303,569▲ $7,374,456
Investments in Publicly Traded Securities$13,267,844$15,792,402▲ $2,524,558
Pledges and Grants Receivable$1,269,620$4,760,968▲ $3,491,348
Prepaid Expenses and Deferred Charges$203,741$132,659▼ $71,082
Land, Buildings, and Equipment, Net$19,535$7,655▼ $11,880
Savings and Temporary Cash Investments$4,012,726$2,993▼ $4,009,733
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$32,999,784$42,239,970▲ $9,240,186
Other Assets Total$297,205$239,724▼ $57,481
Liabilities
Other Liabilities$11,015,106$16,839,927▲ $5,824,821
Accounts Payable and Accrued Expenses$7,245,249$7,837,334▲ $592,085
Grants Payable$500,000$574,148▲ $74,148
Deferred Revenue$156,432$100,000▼ $56,432
Total Liabilities$18,916,787$25,351,409▲ $6,434,622
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$13,823,997$16,562,026▲ $2,738,029
Net Assets With Donor Restrictions$259,000$326,535▲ $67,535
Total Net Assets Fund Balance$14,082,997$16,888,561▲ $2,805,564
Total Liabilities and Net Assets / Fund Balance$32,999,784$42,239,970▲ $9,240,186

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,655$51,743$59,398

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2025$2,912,843$306,163-$302,000$2,917,006
2024$2,953,901$190,225-$231,283$2,912,843
2023$3,069,771$276,423-$392,293$2,953,901
2022-$3,453,956-$384,185$3,069,771
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Gregory GordonChief Medical OfficerFT$401,640$125,735$527,375
Joanne GoldExecutive DirectorFT$197,200$41,067$238,267
Gloria BlechaVP CommunicationsFT$165,984$29,158$195,142
Hannah YoungDirector CommunicationFT$130,689$7,851$138,540
Neha PambooSr. Acct. ManagerFT$118,965$10,521$129,486
Anoushka DonnelleyDirector PhilanthropyFT$112,854$7,656$120,510

Board Members and Trustees

NameTitle
Luke Evnin PhDChairman
Dan SchimbergBoard Member
David KnollerBoard Member
Eric Kau MDBoard Member
Jeff SeamanBoard Member
Mark ScherBoard Member
Omar Baker MDBoard Member
Regina HallBoard Member
Sharon Dobie MDBoard Member
Violetta MerinBoard Member
Susan FenigerSecretary
Deann WrightTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Kelly OliverCONQUEST consultant838 61st St, Oakland, CA 94608$390,625
Lauretta Sue FredrickCONQUEST consultant1121 Pinehurst Dr, Chapel Hill, NC 27517$288,000
Amy SwansonCONQUEST consultant2111 W Waveland Avenue, Chicago, IL 60618$227,500
Kevin OSheaCONQUEST consultant1500 Great Highway, San Francisco, CA 94122$209,238
Dinesh KhannaCONQUEST consultant3930 Waldenwood Drive, Ann Arbor, MI 48105$195,000
Revenue and Support

Revenue Composition

Contributions and Grants
$5,730,652
Program Service Revenue
$5,907,254
Investment Income
$1,584,991
Other Revenue
$-91,808
All Other Contributions
$4,566,339
Change in Net Assets
$2,805,564

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$643,585Fair Market Value (FMV)
Other Non Cash Contri Table6$40,840Fair Market Value (FMV)
Total Noncash Contributions12$684,425-

Audited Revenue Reconciliation

Revenue per Audited Statements
$13,131,089
Total Revenue per Audited Statements
$13,131,089
Total Revenue per Form 990
$13,131,089
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,893,828
Grants and Similar Amounts Paid$3,733,185
Salaries, Compensation, and Employee Benefits$1,698,512
Total Fundraising Expense$575,396
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$3,683,185--$3,683,185
Fees for Services Other$2,849,991$1,630$96,126$2,947,747
Conferences and Meetings$829,002$2,597$13,915$845,514
Current Officers, Directors, Trustees, and Key Employees$701,146$68,670$68,670$838,486
Other Salaries and Wages$524,506$75,916$112,995$713,417
Advertising$166,787$4,195$40,387$211,369
Fees for Services Legal$187,828$300-$188,128
Fees for Services Accounting-$160,243-$160,243
Insurance$111,845$745$1,990$114,580
Information Technology$95,808$4,429$12,795$113,032
Payroll Taxes$66,530$9,489$12,561$88,580
Occupancy$71,595$4,389$12,288$88,272
Other Employee Benefits$43,037$5,268$9,724$58,029
Foreign Grants$50,000--$50,000
Office Expenses$9,202$11,579$3,274$24,055
Other Expenses--$12,117$12,117
Depreciation Depletion$9,623$594$1,663$11,880
Total Functional Expenses$9,400,085$350,044$575,396$10,325,525

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$10,325,525
Total Expenses per Audited Statements$10,325,525
Total Expenses per Form 990$10,325,525
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Regents of Univ of CA-UCSFSan Francisco, CAGovernmentResearch$466,635
Stanford School of MedicineSan Francisco, CA501c3Research$459,985
University of UtahSalt Lake City, UTGovernmentResearch$365,618
Univ of TX Health Science CtrDallas, TXGovernmentResearch$314,255
Regents of Univ of MichiganPittsburgh, PA501c3Research$218,440
John Hopkins UniversityChicago, IL501c3Research$212,416
Hospital for Special SurgeryNew York, NY501c3Research$191,356
University of PittsburghPittsburgh, PA501c3Research$176,500
NYU Grossman School MedicineNew York, NY501c3Research$150,000
Boston Childrens Hospital CoBoston, MA501c3Research$147,103
Trustees of Dartmouth CollegeHanover, NH501c3Research$132,338
Yale UniversityNew Haven, CT501c3Research$125,000
Regents of UCLALos Angeles, CAGovernmentResearch$114,950
The Feinstein InstituteManhasset, CA501c3Research$110,000
Duke UniversityCharlotte, NC501c3Research$103,057
Vanderbilt University Med CtrDallas, TX501c3Research$93,884
Columbia UniversityNew York, NY501c3Research$84,376
Northwestern UniversityChicago, IL501c3Research$78,587
UscLos Angeles, CA501c3Research$75,000
University of Colorado DenverAurora, CO501c3Research$32,197
Massachusetts GeneralHospitalBoston, MA501c3Research$26,638
Trustees of the Univ of PAPhiladelphia, PA501c3Research$25,810
Georgetown Univ Medical CtrWashington, DC501c3Research$21,769
Mayo ClinicMinneapolis, MN501c3Research$16,482
Regents of the Univ MinnesotaMinneapolis, MN501c3Research$12,068
Medical Univ of SouthCarolinaCharleston, SC501c3Research$11,344

International Summary

Spending
$50,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants to recipientsProject funding00$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$147,008
Fundraising Gross Income$55,200
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cool Comedy$1,202,828$55,200$18,344$36,856
Total Events$1,202,828$55,200$147,008$-91,808
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to partners$16,593,991
Operating lease liability$245,936
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Luke Evnin (Chairman) is married to Deann Wright (Treasurer).”

Form 990, Part VI, Section B, Line 11B

“The Executive Director distributes it to the entire Board of Directors to review.”

Form 990, Part VI, Section B, Line 12C

“Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy.”

Form 990, Part VI, Section B, Line 15A

“Market comparisons were done during initial recruitment. Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the BOD meeting.”

Form 990, Part VI, Section B, Line 15B

“Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote.”

Form 990, Part VI, Section C, Line 19

“Financial statements, bylaws, and conflict of interest policy are available upon request”

Filing and Contact Details

Filer

Filer Name
Scleroderma Research Foundation
EIN
68-0087234
Phone
4158349444
Address
220 Montgomery St Ste 484, San Francisco, CA 94104

Signing Officer

Name
Luke Evnin PhD
Title
Chairman
Signed
2026-06-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Joanne Gold
Formed
1987
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
12
Employees
10
Volunteers
255

Preparer

Firm
Crosby & Kaneda CPAs LLP
Address
548 Market St PMB 97503, San Francisco, CA 94104
Preparer
Felix Gorrindo
Phone
5108352727
Supplemental Narrative

Additional Explanations

990 Part IX, Statement of Functional Expenses

“In addition to the activity reflected in the financial statements, the Organization launched a platform clinical trial in 2023. As part of the launch, the Organization became responsible for significant clinical trial costs. Under agreements with external partnering corporations, the Organization receives funds in advance to be paid for clinical trial costs. The Organization reports such funds as Due to Clinical Trial. $10,427,237 in funds received and disbursed were related to this platform clinical trial; they were accounted for on a pass-through basis during the year ended December 31, 2025.”

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“The Bob Saget Memorial Scleroderma Research Fund was established as a board designated fund to hold contributions made to the Organization in tribute to Bob Saget and will be used to fund research grants. The intention of the board is that the fund maintain a minimum balance of $500,000.”

Part X : FIN48 Footnote

“The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2025 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed.”

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IRS990/Desc0CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$42,239,970
Liabilities
$25,351,409
Net assets
$16,888,561
Revenue
$13,131,089
Expenses
$10,325,525
Net income
$2,805,564
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$42.2$25.4$16.9$13.1$10.3$2.81
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.0$18.9$14.1$12.2$9.62$2.55
2023Detailed filing. Detailed filing data is available for this year.$18.7$7.12$11.5$8.42$6.49$1.93
2022Detailed filing. Detailed filing data is available for this year.$11.1$1.24$9.90$5.89$4.66$1.23
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.35$9.47$3.77$3.69$0.08
2020Detailed filing. Detailed filing data is available for this year.$9.59$0.20$9.39$3.93$2.96$0.97
2019Detailed filing. Detailed filing data is available for this year.$7.45$0.30$7.15$5.17$3.36$1.80
2018Detailed filing. Detailed filing data is available for this year.$5.32$0.05$5.27$4.73$3.01$1.73
2017Detailed filing. Detailed filing data is available for this year.$3.68$0.17$3.51$2.88$2.53$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.14$0.09$3.05$2.50$2.51$0.01
2015Detailed filing. Detailed filing data is available for this year.$3.16$0.04$3.13$2.48$2.46$0.02
2014Summary only. Only limited summary data is available for this year.$3.30$0.19$3.11$2.09$1.86$0.22
2013Summary only. Only limited summary data is available for this year.$3.20$0.25$2.95$1.80$1.76$0.03
2012Summary only. Only limited summary data is available for this year.$2.95$0.06$2.89$1.27$1.71$0.44