Civic Intelligence

Scleroderma Research Foundation

990 • Fiscal year 2023 • EIN 68-0087234

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 28, 2024

Organization Profilewww.srfcure.org
220 Montgomery St Ste 484San Francisco, CA 94104

(415) 834-9444

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

68th percentile

0.38x

Higher debt load relative to assets than 68% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Liabilities / Revenue

77th percentile

0.85x

Higher debt load relative to revenue than 77% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Net Margin

78th percentile

23%

Higher net margin than 78% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Top Officer Pay

59th percentile

$206,500

Higher top officer pay than 59% of similar nonprofits.

Top officer pay equals 2.5% of source-year revenue.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Asset Growth

93rd percentile

67%

Faster asset growth than 93% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Revenue Growth

85th percentile

43%

Faster revenue growth than 85% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets68th percentile

Assets

Up

$18,654,748

Up $7,511,111 (+67%) from 2022

Net Assets

Up

$11,532,357

Up $1,629,590 (+16%) from 2022

Liabilities

Up

$7,122,391

Up $5,881,521 (+474%) from 2022

Revenue And Expenses
Liabilities / Revenue77th percentileNet Margin78th percentile

Revenue

Up

$8,418,038

Up $2,525,300 (+43%) from 2022

Expenses

Up

$6,487,599

Up $1,828,997 (+39%) from 2022

Net Income

Up

$1,930,439

Up $696,303 (+56%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth93rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2012: $2,953,581Liabilities 2012: $58,716Net Assets 2012: $2,894,8652012Assets 2013: $3,204,230Liabilities 2013: $249,978Net Assets 2013: $2,954,2522013Assets 2014: $3,296,007Liabilities 2014: $188,273Net Assets 2014: $3,107,7342014Assets 2015: $3,162,131Liabilities 2015: $35,964Net Assets 2015: $3,126,1672015Assets 2016: $3,139,910Liabilities 2016: $89,381Net Assets 2016: $3,050,5292016Assets 2017: $3,678,640Liabilities 2017: $166,375Net Assets 2017: $3,512,2652017Assets 2018: $5,318,800Liabilities 2018: $51,927Net Assets 2018: $5,266,8732018Assets 2019: $7,445,548Liabilities 2019: $296,597Net Assets 2019: $7,148,9512019Assets 2020: $9,592,172Liabilities 2020: $201,194Net Assets 2020: $9,390,9782020Assets 2021: $9,819,469Liabilities 2021: $346,825Net Assets 2021: $9,472,6442021Assets 2022: $11,143,637Liabilities 2022: $1,240,870Net Assets 2022: $9,902,7672022Assets 2023: $18,654,748Liabilities 2023: $7,122,391Net Assets 2023: $11,532,3572023Assets 2024: $32,999,784Liabilities 2024: $18,916,787Net Assets 2024: $14,082,9972024

Highlighted filing

2023

Assets$18,654,748
Liabilities$7,122,391
Net Assets$11,532,357
Open 2023 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $1,266,850Expenses 2012: $1,710,851Net Income 2012: -$444,0012012Revenue 2013: $1,796,130Expenses 2013: $1,763,404Net Income 2013: $32,7262013Revenue 2014: $2,087,681Expenses 2014: $1,864,887Net Income 2014: $222,7942014Revenue 2015: $2,480,174Expenses 2015: $2,457,021Net Income 2015: $23,1532015Revenue 2016: $2,501,519Expenses 2016: $2,512,527Net Income 2016: -$11,0082016Revenue 2017: $2,880,248Expenses 2017: $2,527,636Net Income 2017: $352,6122017Revenue 2018: $4,733,081Expenses 2018: $3,005,455Net Income 2018: $1,727,6262018Revenue 2019: $5,168,122Expenses 2019: $3,364,239Net Income 2019: $1,803,8832019Revenue 2020: $3,931,140Expenses 2020: $2,957,771Net Income 2020: $973,3692020Revenue 2021: $3,768,969Expenses 2021: $3,687,303Net Income 2021: $81,6662021Revenue 2022: $5,892,738Expenses 2022: $4,658,602Net Income 2022: $1,234,1362022Revenue 2023: $8,418,038Expenses 2023: $6,487,599Net Income 2023: $1,930,4392023Revenue 2024: $12,173,161Expenses 2024: $9,622,521Net Income 2024: $2,550,6402024

Highlighted filing

2023

Revenue$8,418,038
Expenses$6,487,599
Net Income$1,930,439
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 28, 2024
Return Version
2023v5.1
Gross Receipts
$8,770,386
Mission and Program Overview

Mission

To fund scientific research to find a cure for scleroderma

The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,215,407$13,488,695▲ $5,273,288
Cash and Non-Interest-Bearing Accounts$1,489,493$3,921,428▲ $2,431,935
Pledges and Grants Receivable$1,207,075$1,071,849▼ $135,226
Prepaid Expenses and Deferred Charges$38,910$56,574▲ $17,664
Land, Buildings, and Equipment, Net$45,607$31,629▼ $13,978
Savings and Temporary Cash Investments$174$12,296▲ $12,122
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$11,143,637$18,654,748▲ $7,511,111
Other Assets Total$146,971$72,277▼ $74,694
Liabilities
Other Liabilities$157,658$3,978,774▲ $3,821,116
Accounts Payable and Accrued Expenses$775,777$2,842,768▲ $2,066,991
Deferred Revenue$287,435$300,849▲ $13,414
Grants Payable$20,000--
Total Liabilities$1,240,870$7,122,391▲ $5,881,521
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$8,984,292$11,531,310▲ $2,547,018
Net Assets With Donor Restrictions$918,475$1,047▼ $917,428
Total Net Assets Fund Balance$9,902,767$11,532,357▲ $1,629,590
Total Liabilities and Net Assets / Fund Balance$11,143,637$18,654,748▲ $7,511,111

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$31,629$57,321$88,950
Compensation and Service Providers
Top Officer Pay59th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joanne GoldExecutive DirectorFT$184,786$21,714$206,500
Kate CeredonaDirector PhilanthropyFT$148,315$10,516$158,831
Gloria BlechaSr Director Comm O & EdFT$129,705$11,123$140,828
Hannah YoungDirector CommunicationsFT$110,376$5,867$116,243

Board Members and Trustees

NameTitle
Luke Evnin PhDChairman
Caryn ZuckerBoard Member
David KnollerBoard Member
Eric Kau MDBoard Member
Jeff SeamanBoard Member
Omar Baker MDBoard Member
Regina HallBoard Member
Sharon Dobie MDBoard Member
Violetta MerinBoard Member
Deann WrightSecretary
Susan FenigerTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Kelly OliverCONQUEST consultant838 61st St, Oakland, CA 94608$359,375
Wade BentonCONQUEST consultant870 Crestview Dr, San Carlos, CA 94070$310,000
Dahlia GarzaCONQUEST consultant6 Giles Hill Rd, Redding, CT 06896$230,517
Ravix Financial IncFinance & human resources226 Airport Pkwy Ste 400, San Jose, CA 95110$200,121
BrowneMusserMktg, adv, outreach10 Rice Ln, Larkspur, CA 94939$121,376
Revenue and Support

Revenue Composition

Contributions and Grants
$3,932,952
Program Service Revenue
$3,832,233
Investment Income
$904,546
Other Revenue
$-251,693
All Other Contributions
$2,765,385
Change in Net Assets
$1,930,439

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded13$352,080Fair Market Value (FMV)
Other Non Cash Contri Table4$71,832Fair Market Value (FMV)
Total Noncash Contributions17$423,912-

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,377,761
Revenue Not Reported on Financial Statements
$40,277
Total Revenue per Audited Statements
$8,377,761
Total Revenue per Form 990
$8,418,038
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,113,250
Grants and Similar Amounts Paid$2,482,921
Salaries, Compensation, and Employee Benefits$891,428
Total Fundraising Expense$395,928
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,482,921--$2,482,921
Fees for Services Other$1,784,379$24,664$22,519$1,831,562
Other Salaries and Wages$369,514$62,340$160,373$592,227
Fees for Services Legal$298,892--$298,892
Fees for Services Accounting-$236,971-$236,971
Conferences and Meetings$206,501$162$551$207,214
Current Officers, Directors, Trustees, and Key Employees$122,737$61,368$20,456$204,561
Advertising$140,141$8,546$33,357$182,044
Information Technology$39,390$8,662$50,189$98,241
Office Expenses$44,929$7,669$41,034$93,632
Occupancy$50,864$8,477$25,432$84,773
Payroll Taxes$35,145$8,503$13,191$56,839
Fees for Service Investment Mgmnt Fees-$40,277-$40,277
Other Employee Benefits$21,632$6,282$9,887$37,801
Travel$4,559$584$12,269$17,412
Depreciation Depletion$8,388$1,396$4,194$13,978
Insurance$4,953$825$2,476$8,254
Total Functional Expenses$5,614,945$476,726$395,928$6,487,599

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,487,599
Expenses per Audited Statements$6,447,322
Total Expenses per Audited Statements$6,447,322
Expenses Not Reported on Financial Statements$40,277
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford School of MedicineSan Francisco, CA501c3Research$673,018
University of UtahSalt Lake City, UT501c3Research$279,048
Univ of TX Health Science CtrDallas, TX501c3Research$265,286
Hospital for Special SurgeryNew York, NY501c3Research$168,444
Vanderbilt University Med CtrDallas, TX501c3Research$140,004
John Hopkins UniversityChicago, IL501c3Research$135,090
Yale UniversityNew Haven, CT501c3Research$125,000
Trustees of Dartmouth CollegeHanover, NH501c3Research$117,950
NYU Grossman School MedicineNew York, NYGovResearch$100,000
Trustees of the Univ of PAPhiladelphia, PA501c3Research$79,935
University of PittsburghPittsburgh, PA501c3Research$75,000
Regents of Univ of MichiganPittsburgh, PA501c3Research$67,153
Northwestern UniversityChicago, IL501c3Research$45,866
Regents of Univ of CA-UCSFLoa Angeles, CA501c3Research$42,320
Georgetown Univ Medical CtrWashington, DC501c3Research$35,194
Mayo ClinicMinneapolis, MN501c3Research$24,338
Columbia UniversityNew York, NY501c3Research$23,936
Duke UniversityCharlotte, NC501c3Research$23,794
Regents of UCLALos Angeles, CA501c3Research$19,757
Massachusetts GeneralHospitalBoston, MA501c3Research$19,135
Boston Childrens Hospital CoBoston, MA501c3Research$15,000
Medical Univ of SouthCarolinaCharleston, SC501c3Research$7,653
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$352,348
Fundraising Gross Income$93,400
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cool Comedy$1,234,688$93,400$149,940$-56,540
Total Events$1,234,688$93,400$352,348$-258,948
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to partners$3,900,440
Operating lease liability$78,334
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

“A separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review.”

Form 990, Part VI, Section A, Line 2

“Luke Evnin (Chairman) is married to Deann Wright (Secretary).”

Form 990, Part VI, Section B, Line 11B

“A draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval.”

Form 990, Part VI, Section B, Line 12C

“Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy.”

Form 990, Part VI, Section B, Line 15A

“Market comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the February 2024 BOD meeting”

Form 990, Part VI, Section B, Line 15B

“Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote.”

Form 990, Part VI, Section C, Line 19

“Financial statements, bylaws, and conflict of interest policy are available upon request”

Filing and Contact Details

Filer

Filer Name
Scleroderma Research Foundation
EIN
68-0087234
Phone
4158349444
Address
220 Montgomery St Ste 484, San Francisco, CA 94104

Signing Officer

Name
Joanne Gold
Title
Executive Director
Signed
2024-08-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Luke Evnin PhD
Formed
1987
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
10
Employees
9
Volunteers
365

Preparer

Firm
Crosby & Kaneda CPAs LLP
Address
548 Market St PMB 97503, San Francisco, CA 94104
Preparer
Felix Gorrindo
Phone
5108352727
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“In August 2023, The SRF launched CONQUEST, a highly innovative clinical trial platform designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from Phase 2b to Phase 3 clinical trials. Using a model first created over a decade ago to accelerate oncology drug development, the SRF platform is the first of its kind in rare autoimmune diseases. In its initial iteration, CONQUEST will focus on Interstitial Lung Disease secondary to Scleroderma (SSc-ILD). In the future, the platform will be expanded to address other manifestations of scleroderma.”

990 Part IX, Statement of Functional Expenses

“In addition to the activity reflected in the financial statements, the Organization launched a platform clinical trial in 2023. As part of the launch, the Organization became responsible for significant clinical trial costs. Under agreements with external partnering corporations, the Organization receives funds in advance to be paid for clinical trial costs. The Organization reports such funds as Due to Clinical Trial. $25,460,149 in funds received and disbursed were related to this platform clinical trial; they were accounted for on a pass-through basis during the year ended December 31, 2023.”

Financial Statement Notes

Part X : FIN48 Footnote

“The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2023 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt2Dahlia Garza
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IRS990/Desc0The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.
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IRS990/ProgSrvcAccomActy2Grp/Desc0CONQUEST is a global, perpetual, clinical trial platform developed by the SRF in coordination with partner biopharmaceutical companies to accelerate the clinical development of agents for scleroderma. CONQUEST is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from phase 2b to phase 3 clinical trials. CONQUEST will make an enduring contribution to the scleroderma community by creating an ecosystem designed to enable rapid and efficient development of novel drugs for scleroderma patients.
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IRS990/ProgSrvcAccomActy3Grp/Desc0SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed. We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date, trusted and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.
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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$18,654,748
Liabilities
$7,122,391
Net assets
$11,532,357
Revenue
$8,418,038
Expenses
$6,487,599
Net income
$1,930,439
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.0$18.9$14.1$12.2$9.62$2.55
2023Detailed filing. Detailed filing data is available for this year.$18.7$7.12$11.5$8.42$6.49$1.93
2022Detailed filing. Detailed filing data is available for this year.$11.1$1.24$9.90$5.89$4.66$1.23
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.35$9.47$3.77$3.69$0.08
2020Detailed filing. Detailed filing data is available for this year.$9.59$0.20$9.39$3.93$2.96$0.97
2019Detailed filing. Detailed filing data is available for this year.$7.45$0.30$7.15$5.17$3.36$1.80
2018Detailed filing. Detailed filing data is available for this year.$5.32$0.05$5.27$4.73$3.01$1.73
2017Detailed filing. Detailed filing data is available for this year.$3.68$0.17$3.51$2.88$2.53$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.14$0.09$3.05$2.50$2.51$0.01
2015Detailed filing. Detailed filing data is available for this year.$3.16$0.04$3.13$2.48$2.46$0.02
2014Summary only. Only limited summary data is available for this year.$3.30$0.19$3.11$2.09$1.86$0.22
2013Summary only. Only limited summary data is available for this year.$3.20$0.25$2.95$1.80$1.76$0.03
2012Summary only. Only limited summary data is available for this year.$2.95$0.06$2.89$1.27$1.71$0.44